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Dear Group,

I'm a caregiver (dpoa) for a woman named Handelman in Oakland,

Ca. She's had neurosarc for at least 3 years, and prednisone is no

longer effective.

She's tried cytoxin, etc, a couple years ago,with no effect.

Her neurologist is out of ideas and 24/7 home care has nearly


She and the Doc--who has become a personal friend--have decided to

try Thalidomide.

Except that we found out today that it'll cost about $3k a month,

with an estimate of 6 months before any results.

My questions for you all are: has anyone tried Thalomid? What kind

of results have you gotten? And have you found anyone to pay for it?

I'd appreciate any answers or opinions you might have.


Geoff Albertson

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