Re: Also day 2 in helmet- Some sliding and some red spots where sideburns are

[Guest guest]

Hi Cecily,

Glad I am not alone!! McKenna's helmet also leaves a mark down the side of

the " sideburn " part, but the marks do go away after a while. McKenna is also so

fair that I think some marks can't be helped on her. I am just concerned it will

make her eyes or eyebrowns uneven, because now her face is symmetrical it is

really the back of head that there is any problem.

How is Diego adjusting otherwise? How is sleeping going? McKenna can't

seem to get herself back to sleep these past few nights- we will see!! Good

luck! I hope our journeys are smooth ones!!

Thanks for writing!

Mom to McKenna- 6 months

> From: Cecily Chudacoff <cvchudacoff@...>

> Subject: Also day 2 in helmet- Some sliding and some red spots where

" sideburns " are

> plagiocephaly

> Date: Saturday, October 11, 2008, 8:10 PM

> Hi , and everyone. Diego is also in his second day

> with his new Starband. His band also seems to move just a

> tad lower towards his brows if he's laying down and

> moves his head back, but it doesn't seem like a problem.

> What we have noticed is that the sideburns seem to be a

> little tight on his cheeks, just in front of his ears, and

> the skin there stays red and hot for a few hours after the

> helmet comes off. It's almost like a little indentation

> of the side burns.... but it does go away, so we put the

> helmet back on today. Does anyone have any experience with

> this?

>

> Thanks!

>

> Cecily, mom to Diego, 5 months today, 2 days in his

> Starband

>

>

> ________________________________

>

> Plagiocephaly

> From: sbmcd15@...

> Date: Fri, 10 Oct 2008 18:20:47 -0700

> Subject: day 2 helmet- is sliding normal?

>

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> We are on day two with our new helmet. Luckily my daughter

> has taken to it pretty well. I am a little concerned how

> close it comes to her eyebrows- I know she has plagio and

> brachy so it can't be as band like as other kids might

> have. Is it normal for the band to slide around a little,

> our ortho said that she will grow into it. We used a local

> place that our ped recommended and took his own son too, but

> I hope that wasn't a mistake. He is a wonderful person

> and very patient, but I hope the fit is as good as possible.

> My daughter also always has a mark on the side of her

> forehead and down near her ear that takes a long time to go

> away from the edge of the helmet- has anyone else

> experienced this?

>

> Thanks for your help!

>

> Mom to McKenna- 6 months- day 2 in helmet

>

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[Guest guest]

Wow! There are so many of us that seem to be " starting out "

together! It's so nice that this message board exists and we can all

chat about it... We're on Day 7, and things seem to be going pretty

well with Luke's DOC Band. The sideburn areas weren't as red today

and neither was his forehead (I swear it was my fault not checking to

make sure the alcohol had totally dried before I put it back on!).

- I know what you mean about the facial symmetry thing - Luke

definitely gets the " angry eye " that I've heard about on other

boards! The band pushes his eyebrows down and he tries to look up at

me and he's smiling but his eyes look mean! It's too funny! I don't

think I've ever heard of a helmet/band actually causing an asymmetry,

though, so I doubt we have anything to worry about there.

My husband and I were already talking about what we'd do if Luke

winds up needing another band after this one... I think we're

jumping the gun a little, but I still worry that he'll need a second

one if he grows out of this one too fast. What has your orthotist

told you about your LO's and the possibility of a second

band/helmet???

Good luck to all of you - keep posting!

--jess

--mom to Luke (Day 7 in DOC Band)and his big brother JT