Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 Just want to thank everyone on this board who've posted and shared their stories and anguish. My daughter just finished 10 weeks with the DOC band and she's now only 0-1 mm off. She started off at 5 months at 7 mm difference. SHe is now a few days shy of her 7 month birthday. It hasn't been the easiest process for us unlike for some of you. Reading this board helped tremendously in making sure I was doing the right thing and to have patience with the people we were dealing with. I was so upset at first and somewhat upset throughout the process that for a $3600 device that's supposedly custom made, it fit so poorly around the ears. And I was pissed that it made her not want to look up and they kept saying that was okay. But it's all over with now and I don't regret for one minute the numerous extra trips I made to have them adjust it better. She was happier in it after those extra adjustments and so was I. Btw, I should add to those worried about it that for one reason or another, we never did leave it on 23 out of 24 hours. We cleaned the helmet two times a day because it got sweaty/yellow and smelly otherwise. So that put it out of commission 2 - 3 hours a day. And due to heat wave, rash, etc, we sometimes took it off for that as well and that would be an additional couple hours a day at least. Despite all that, she made tremendous progress fast. So don't stress if you have to take the helmet off longer than prescribed. I'd post pics but I'm not good at that sort of thing and I also never could see from pics the assymetry although in real life you could definitely see it. I do have the measurement stats if anyone want to see it. Good luck to those just getting into the process. Quote Link to comment Share on other sites More sharing options...
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