Re: To Tena

[Guest guest]

Hi Tena/Diamond,

I am in total agreement with you as to being able to express

ourselves here. I think you should be totally free to ask your

questions here, especially since they seem to be about what to expect

from LDN, and like me, looking for personal experiences.

That said, if you are looking for MS support that is not specifically

about LDN, here are some ideas -- you may want to look at " mscured "

on , which covers a wider variety of topics about curing

MS, including but not limited to LDN.

For even more general support about MS there are of course things

like the MS Society's chat room and Jooly's Joint, which also has

chat rooms and pen pals.

Specifically, as to your question about cognitive problems, I haven't

had any serious problems in that area, but I do notice I am more

prone to mispelling words on occasion, which was never a problems

before. I don't know if it's due to MS, LDN, or simply anxiety over

being in this situation (having MS).

Here is my general expereince with LDN:

I became symptomatic with MS in October 2006, with symptoms of

bladder problems, numbness, and the beginning of feeling like my

vision wasn't quite right. I went on LDN in late December 2006,

4.5mg. My vision continued to deteriorate over the next couple weeks

while on LDN but then stopped getting worse -- but has not gotten

better either. My bladder symptoms have gotten better since LDN but

are not 100% back to normal. My numbness is much better, but also not

100% back to normal. I developed one new symptom since being on LDN---

that is electrical shock feelings in various parts of my body. The

feelings come and go and only last a second or so. Some days I get

this feeling as much as 15 or so times, some days not at all or just

once or twice. Not too bad lately. All in all, I am satisfied with

LDN. There's no way to know how I'd be doing without it.

I was having a lightheaded feeling for quite a while the past several

months and I thought that it might have to do with being on an

antidepressant--which I went on after getting sick. So I went off the

antidepressant and the lightheadedness has cleared up. I am still

mispelling words sometimes.

..

> >

> >

> > HI, JUST LIKE THE PERSON BELOW I AM A NEWBIE , REFERED HERE FROM

> > ANOTHTER GROUP . I WAS TOLD THE PROBLEMS I AM EXPERIENCING WOULD

BE

> > ABLE TO EXPRESS HERE AND WOULD MOST LIKELY FIND AN ANSWER OR SOME

> > KIND OF FAMILY LIKE FEELING WITH OTHERS IN MY SAME SITUATION.

> >

> > THESE LINKS ARE GREAT AND I REALIZE THAT YOU MAY GET TIRED OF

> > REPEATING THE SAME QUESTIONS BUT FOR THOSE WHO ARE STARTING OUT

AND

> > THEIR LIVES ARE TURNED UPSIDE DOWN, THIS IS NEW TO THEM. WE ARE

> > LOOKING FOR ANSWERS FROM THOSE THAT HAVE GONE THRU THE SAME

> > SITUATION. A KIN SHIP INWHICH WE CAN FEEL LIKE WE BELONG. A LINK

> > DOESN'T GIVE YOU THAT.

> >

> > I AM ALONE AND GOING THRU ALOT AND WAS LOOKING FOR ANSWERS I FELT

> > PPL THAT ARE GOING THRU WOULD HAVE COME ACROSS THE SAME OR COULD

> > GIVE ME SOME SUGGESTIONS ON WHAT I COULD DO OR EXPECT.

> >

> > A PESONALIZATION ON ONE'S EXPERIENCE IS MUCH BETTER THAN A LINK

AND

> > I AM SORRY IF THIS UPSET ANYONE. THE PERSON THAT IS GOING THRU

> > SOMETHING WAS ONCE YOU AND EMPATHY IS A PART OF BEING A GROUP TO

> > HELP OTHERS .

> >

> > THANK YOU FOR READING. I TOOK THE LINKS AND WILL READ THESE ,

> > ALTHOUGH I DON'T THINK IT WILL HELP THE QUESTIONS I ASKED.

> >

> > TENA/DIAMOND

>

> Not trying to blow you off, Tena. Just thought I'd point you in the

> right direction for people new to LDN and that website is the place

> to start.

>

> Now, what exactly is your question/concern?

>

> Artie

> --

>