Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Can you post pictures of her with it touching her nose? It sounds like it is rotating way too much if it can be pushed that far. Hopefully the adjustment tomorrow will fix it. Molly Novato, California Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 5 , 8.5 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of L R Sent: 8 July 2008 08:10 Plagiocephaly Subject: [sPAM]Re: Advice! She is absolutely overly cute cute cute with or without the hair and seems happy too! My daughter got her helmet last Wednesday. She doesn't have any red spots but whenever she lays on her back and starts moving a little, it comes down to rest on the ridge of her nose. Needless to say that it needs to be adjusted. I will be seeing the ortho tomorrow. Hopefully things will be taken care of soon. I've had to take it off longer than recommended because it would leave a crease on her nose when laying in her carseat. Leila, mother of Maysa, 5m 3w, 6 days in ECA helmet. From: browneyedgrl2411 <browneyedgrl2411> Subject: Advice! Plagiocephaly Date: Monday, July 7, 2008, 11:40 AM Hello, my son has just started in his Starband at exactly 1 year old. We are not sure yet wether Mediacid will cover it or not. I am in florida and and his head is 2 1/2 outside the variance of normal and he has bracheocephaly. I am unsure of the mm or how that works. If anyone knows wether Florida Medicaid covers it or not that would be very helpful! I have been trying to get him banded for 6 months and the doctors never measured his head they just would touch it and assure me that his hair would cover it.They do not like the banding. He is behind a little developementaly, he is just trying to pull himself up now and has no interest in crawling. He is very active and bright, he just is a very content baby. He has had Mri's of his head and full spine and they have been fine. He has enlarged ventricles but hydracephalus has been ruled out. I finally got the helmet because the OT and Pt supported me and the ped finally helped out with it all. The orthotist thinks that he will wear it only 3 months and I am not clear on why as a older child is supposed to wear it longer I had thought. has anyone had any experience in banding a 1 year old child and what were the outcomes? How long did they need to wear their helmet? I had heard of craniosynostosis and assume that at his age that would not be a problem now.he is still a total back sleeper and has had specialist and his ped look at hime few times. So it has been ruled positional. I have looked everywhere at the info and am sure that the headshapes are much more obvious and he has no facial assymetry. i just would not want to hurt him in any way. I am always very nervous about the anesthisia and do not want to do test for little reason.What testing is done and do they have to be sedated? I do not have any reason to believe he has this I am just a little nervous about all of this still and am trying to get used to him in his helmet. He looks so cute :-)Thanks for any feedback and have a great day everyone!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 I will take some pictures of her tomorrow before I go to the ortho and will post them as soon as I can. She has brachy more than she has plagio and I know that a correct fitting is more difficult in that case... We will see. From: browneyedgrl2411 <browneyedgrl2411>Subject: Advice!PlagiocephalyDate: Monday, July 7, 2008, 11:40 AM Hello, my son has just started in his Starband at exactly 1 year old. We are not sure yet wether Mediacid will cover it or not. I am in florida and and his head is 2 1/2 outside the variance of normal and he has bracheocephaly. I am unsure of the mm or how that works. If anyone knows wether Florida Medicaid covers it or not that would be very helpful! I have been trying to get him banded for 6 months and the doctors never measured his head they just would touch it and assure me that his hair would cover it.They do not like the banding. He is behind a little developementaly, he is just trying to pull himself up now and has no interest in crawling. He is very active and bright, he just is a very content baby. He has had Mri's of his head and full spine and they have been fine. He has enlarged ventricles but hydracephalus has been ruled out. I finally got the helmet because the OT and Pt supported me and the ped finally helped out with it all. The orthotist thinks that he will wear it only 3 months and I am not clear on why as a older child is supposed to wear it longer I had thought. has anyone had any experience in banding a 1 year old child and what were the outcomes? How long did they need to wear their helmet? I had heard of craniosynostosis and assume that at his age that would not be a problem now.he is still a total back sleeper and has had specialist and his ped look at hime few times. So it has been ruled positional. I have looked everywhere at the info and am sure that the headshapes are much more obvious and he has no facial assymetry. i just would not want to hurt him in any way. I am always very nervous about the anesthisia and do not want to do test for little reason.What testing is done and do they have to be sedated? I do not have any reason to believe he has this I am just a little nervous about all of this still and am trying to get used to him in his helmet. He looks so cute :-)Thanks for any feedback and have a great day everyone!! Quote Link to comment Share on other sites More sharing options...
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