Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 hello everyone i am new to the site,and have just started using ldn for ms 10 days ago,i have noticed that my sleeping patern is slightly better and appear to have slightly better leg strength, i live in the uk and ldn has only really started to be used by ms patients in the past 12months and is prescribed by private doctors neurologist's here are not very keen on the idea,because it has not been trialed or is it the fact that pharma company's cant make any money from it. what is the maximum dosage you guy's are allowed. john Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Read the LDN Website www.ldninfo.org or www.low dose naltrexone.org also here is the Introductory Side Effects when starting LDN - Introductory Side-effects: There may be some initial transient, though temporary, increase in MS symptoms during the adaptive period when the LDN is first introduced. This usually lasts no more than one week but if symptoms are severe, or more prolonged, then the initial dose of 1.5 for a month, 3 for a month, then 4.5 until the anticipated improvements begin to develop. Introductory symptoms, on starting this treatment, may include such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. Symptoms related to increased endorphins: These may include such as nausea or constipation. These symptoms diminish naturally as the body adjusts to the increased endorphin level. Symptoms related to previous Opiate use: On starting LDN the recent use of opiate analgesics will result in an opiate withdrawal syndrome, with increased pain, spasm, vomiting and diarrhea. These symptoms may be prevented by stopping all opiate analgesics at least two weeks before starting the LDN. Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy MS & TM Spouse & Caregiver Support Group [low dose naltrexone] Just started LDN Hi everyone,My name is and I have had MS for 20 years and decided to go on LDN after research. My doctor tod me about insomnia which I have experienced the last few nights. I have had for the last few days is a tiredness that I can fall asleep so quicky. I am tired during the day and I will fall asleep for two hours. Also, I notice that I have some of my MS symtoms back..Has anyone else experienced this? I have been on the LDN for four days. Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Crystal, Thank you for sending me this information. I have had the overwhelming fatigue but yesterday I had this sense of well-being that I have not felt in years. It only lasted for awhile but it really felt nice. [low dose naltrexone] Just started LDN Hi everyone,My name is and I have had MS for 20 years and decided to go on LDN after research. My doctor tod me about insomnia which I have experienced the last few nights. I have had for the last few days is a tiredness that I can fall asleep so quicky. I am tired during the day and I will fall asleep for two hours. Also, I notice that I have some of my MS symtoms back..Has anyone else experienced this? I have been on the LDN for four days. Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Clare, Thank you for sharing. I have had old symthoms that have come back for a short time. I know something is going on though. [low dose naltrexone] Just started LDN Hi . My name is Clare. I have ms now three years.I did not like the conventional medicines.I heard about ldn from someone on it.I started taking it six weeks ago.I am told it takes at least two months before you notice any difference.I am having sleepless nights, bizzare dreams and this morning I had a muscle spasm where my left leg and left arm goes completely stiff and numb. This is not knew.I am told it takes a while before ldn bulds up in your body.I hope this info helps you.I will keep taking it cause my friend feels better now and swears by it she is on it now five years.Its great to have a tablet. Regards, Clare. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.39/1044 - Release Date: 02/10/2007 11:10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 I have been on LDN for three months and I have an increase in numbness and tingling and even an itching sensation basically from head to toe. I had the LDN "muscle tested" by my allergist and I know I am not allergic to it. Is there anyway to get rid of the sensory numbness and tingling. I have tried B coplex, B-1, B-6, L Carnatine. Thanks abehring <abehring@...> wrote: Clare, Thank you for sharing. I have had old symthoms that have come back for a short time. I know something is going on though. [low dose naltrexone] Just started LDN Hi . My name is Clare. I have ms now three years.I did not like the conventional medicines.I heard about ldn from someone on it.I started taking it six weeks ago.I am told it takes at least two months before you notice any difference.I am having sleepless nights, bizzare dreams and this morning I had a muscle spasm where my left leg and left arm goes completely stiff and numb. This is not knew.I am told it takes a while before ldn bulds up in your body.I hope this info helps you.I will keep taking it cause my friend feels better now and swears by it she is on it now five years.Its great to have a tablet. Regards, Clare. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.39/1044 - Release Date: 02/10/2007 11:10 Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 > > I have been on LDN for three months and I have an increase in numbness and tingling and even an itching sensation basically from head to toe. I had the LDN " muscle tested " by my allergist and I know I am not allergic to it. Is there anyway to get rid of the sensory numbness and tingling. I have tried B coplex, B-1, B-6, L Carnatine. > > Thanks > > > I have numbness in my feet and legs after tx from lymphoma of the brain. I take 100 mg B6 and 900 mg of alpha-lipoic acid-300mg 3/day. If I miss a day of the alpha-lipoic acid my numbness and tingling get a lot more severe so I know the A-L acid helps a lot. Also I skip a day or so a week of the B6 since I also take a regular multi-vitamin. Another important supplement is Beta glucan and every one should take this. A good web site is youngagain.org. This guy Mason is a little radicle but he offers free books and articles on his web site that are very informative and highly backed by research. Also I have been on LDN for 4 mo. and I went from staying up 3-4 hours a day to staying up most of every day. Since my stem cell transplant two years ago my lymphocytes have been low but after 3 months on LDN there were normal Praise God for that. I hope this helps. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 > > I have been on LDN for three months and I have an increase in numbness and tingling and even an itching sensation basically from head to toe. I had the LDN " muscle tested " by my allergist and I know I am not allergic to it. Is there anyway to get rid of the sensory numbness and tingling. I have tried B coplex, B-1, B-6, L Carnatine. > > Thanks > > > I have numbness in my feet and legs after tx from lymphoma of the brain. I take 100 mg B6 and 900 mg of alpha-lipoic acid-300mg 3/day. If I miss a day of the alpha-lipoic acid my numbness and tingling get a lot more severe so I know the A-L acid helps a lot. Also I skip a day or so a week of the B6 since I also take a regular multi-vitamin. Another important supplement is Beta glucan and every one should take this. A good web site is youngagain.org. This guy Mason is a little radicle but he offers free books and articles on his web site that are very informative and highly backed by research. Also I have been on LDN for 4 mo. and I went from staying up 3-4 hours a day to staying up most of every day. Since my stem cell transplant two years ago my lymphocytes have been low but after 3 months on LDN there were normal Praise God for that. I hope this helps. Terry Quote Link to comment Share on other sites More sharing options...
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