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Anyone using a special Doctor? ie. Cranial facial?

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My daughter is 5 1/2 months old. She is scaphy/in utero. She has a DOC

band and it will be two weeks tomorrow.

We have had a 3d cat scan to make sure she's not fused and the

neurosurgeon was not much help after that. Her head is quite misshapen.

At her casting, the clinic lady, don't remember their title was feeling

's head and asked if she had been seen by a doctor, she had

never felt another head like hers.

Last week I had her feel her head again. I had felt some changes

before the band had gone on. She agreed that things have moved. Not

that this is a bad thing, just movement.

So, we have an appointment with a cranial facial doctor for June 17th.

So why am I blathering on? Does anyone else have in utero plagio?

Severe plagio being followed by a specialist? And what kind of

specialist?

5 1/2 months old

almost 2 weeks in DOC band

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