Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 My son is 12 months old. He was born with torticollis, and plagio. The plagio worsened a bit in the first few months of his life, because we didn't have a diagnosis and didn't know about repostioning, etc. The plagio was " mild to moderate " , and the craniofacial specialist did not think a helmet was necessary. This was at around 5 months old. Although he did offer to write the rx for the band (if we insisted)...but he said my son's head shape would round out on it's own just fine, as we were also doing PT for his torticollis. We didn't do the band. Well, at 12 months, I'm not seeing a huge improvement. I don't see that his head shape is growing evenly. His torticollis is not completely resolved either, but it has improved. I could kick myself for not banding him early on. I'm just sick about it. Now I'm wondering...if we do it now, what's it like banding an older baby? Will we get good results? Is it more difficult for the kids to adapt to it? I'm worried because my son hates it when anyone touches his face (ie brushing teeth, wiping face off, etc. and he won't keep any type of hat on his head either. He always pull it off, even if it has a strap). Will he be able to keep the band on and sleep with it on without pulling it off? I should add that we did have a consult at CT when my son was around 4-5 months old. They said he was " borderline " for a helmet. I want to say he measured 6mm of difference at the time. From eyeballing him, I don't think this measurement has increased, but I do notice more of a bulging area above his ear that is not symmetrical with the other side, plus he has some facial asymmetry that has not really improved (one cheek/jaw slightly larger and I notice one ear slightly lower). I will try to post some picture later on today. Thanks, Tamra Quote Link to comment Share on other sites More sharing options...
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