Re: Please HELP! - for Candy

[Guest guest]

Candy ( & others)

I read your post and it sounds VERY similar to my story with my

little Jake. Jake had Tort and Plagio (flat on right side). Just like

your Chloe - he always looked to the right and slept on the right

side of his head. Positioning, moving toys in his crib... did not

work - he would stare at the wall then. We are disappointed in our

Ped and his lack of awareness of the Tort. He simply told us to give

him tummy time (which was hard because Jake was/is a BIG spitter-

upper) and lay him the other way in his crib. I feel that if we had

been more informed we could have prevented or at least diminished the

plagio.

But what's done is done and we pick up Jake's STARband in 2 days! I

am excited about starting his treatment in improving his head shape.

He also has had 2 weeks of PT for the Tort.

How is your PT going for the Tort? Jake prefers looking to the right

and tilts his head to the left. It is pretty easy to get him to look

to the left but the tilt is harder to get rid of. Is your experience

similar? I would love to hear about your PT experiences and anyone

else's! I guess I am just looking for some reassurance that the PT

will help " cure " him (I don't know if " cure " is the right word to

use).

I did go to the discussion group that is out there specifically for

Tort - but some of the messages out there were pretty negative and I

was beginning to freak out a little!

Sorry this turned out to be so long!

I'm sure I'll have plenty more questions after Jake gets band.

Thanks!

Jenn

Jake (7months - plagio/Tort - getting STARband in 2 days!)

>

> From: paralegal21035 <paralegal21035@...>

> Subject: Please HELP!

> Plagiocephaly

> Date: Wednesday, September 17, 2008, 7:40 AM

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> I am in need of help. I need someone to talk to about my sons

condition.

>

> Clay is a very happy 4 month old little boy. While taking our oldest

> out for his birthday my mother noticed Clay had a flat spot on the

> side of his head. Lets just say that was the end of my fun for the

> day. I called his doctor immediately. We took him in the next day

and

> found out that he has plagiocephaly and torticollis. We have been

> going to a chiropractor which has made the torticollis much better.

We

> just started going to PT with Infants and Toddlers. Yesterday when I

> took him the PT said he was in need of a helmet and to see a

> neurologist. YIKES. The thought of my child wearing a helmet and

> seeing a neurologist makes me unable to eat. I am so worried. I am

> 100% convinced this is from his swing... and so is the doctor. Could

> someone please talk to me? Does anyone have any advice? Anything

that

> can help him? Any toys that are safe?

>

> Maybe if we (USA) would make products in the country they would be

> safe. I'm sick of buying products that take little to no thought in

> making. I'm so angry about this issue. I try my hardest to be the

best

> mom I can be and this kills me to think something is wrong with my

son.

>

> Thanks

>