RE: [SPAM]Re: My baby diagnosed with Torticollis - Need some Info

[Guest guest]

Each

state has its own Early Intervention program. They provide services to

infants and toddlers, birth to three years of age, with disabilities or delays,

and their families. Call them and tell them that you're concerned about

your little one, and ask how to contact the early intervention system in your neighborhood

so that you can have your child evaluated for a disability. To get

information on your state go here:

http://www.nichcy.org/states.htm

We had an evaluation done for my son when he was 6.5 months old

and the torticollis was not causing enough developmental delays to qualify him

for services. It really seems to vary from state to state whether they

will cover PT for torticollis.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 5.5

, 8.5

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of Audra

Sent: 21 August 2008 03:56

Plagiocephaly

Subject: [sPAM]Re: My baby diagnosed with Torticollis - Need

some Info

Hi

Chanda,

My

son was diagnosed with Torticollis and yes it can make the banding process

harder/slower. So it is imperative that you get treatment/pt started

asap. My son has not had any developmental delays, but he's been in pt

for the tort since he was 2.5 mo's old (he's now 7.5mo's). He

started crawling at 7 months, and this was considered on the early side of

normal.

When

you call your ped, ask him about your state's Early Intervention

program. Every state is different, but in NY if your baby qualifies

(based on physical need not financial) they will provide services to you in

your home for free. They will assess your baby's torticollis as well as

other developmental skills.

Tort

is a head tilt, and usually a preference to which side the baby faces.

They face the opposite side of the tilt, so your baby probably prefers to look

to the right. While you are waiting to start pt, here are some things

that we were told to do when we started pt: make your baby look to the

non-preferred side (left for your baby) - not by physically manipulating him

but by making him want to look to that side. We played on that side,

presented toys and food on that side and even let him watch 1/2 hr of TV

on that side. I know that the TV thing is controversial, but it did

give our son a good half hour stretch. We also got our son off

his back as much as possible - having him sit in a excersaucer, high

chair etc.

Keep

us posted.

Audra

My baby diagnosed with Torticollis - Need some Info

Hi

Until I took our baby to CT, we didn't know he had Torticollis ( Neck

stiffness). I did notice his face tilt towards left but always thought that

was how a baby looks. I am really worried now because I heard band treatment

may not get good results if this neck stiffness is not treated. And also

heard that babies with this problem have delays in developmental milestones.

My baby is 6 1/2 months and has just started rolling over. We think he is

strong enough to crawl or sit but he cant do them. He can not sit with out

support and is not able to crawl or atleast try crawling. I am thinking

to call his pediatrician and ask him to refer to a physical therapist.

Has any one of you had the similar problem ? Pls respond .. Any information

would be very helpful.

Thanks

Chanda