New Member...Trying to Find Help with new positional plagiocephaly

[Guest guest]

Hello all,

My name is Raechel, I had a baby girl 12/26/07 and recently found out

that she has positional plagiocephaly. At first they told me she may

need to have surgery because they thought her skull was not growing

evenly, but luckily that is ruled out. Now we are going to talk to a

Prosthetic Doctor to possibly get some more answers. I found out from

my doctor that the helmets cost anywhere from $1800 and above, but

like many other people I am strapped for extra money, I was told there

was funding options but my family doctor was not for sure what they

were. I will actually go to see the Prosthetic Doctor on the 28th but

I am worried, about not being able to help my baby girl. I don't know

if any of you have experienced this or not. Nor do I know how long she

will need to be in the helmet. I am told she should be fine as long as

we have thid done now while her skull is still soft. I am just a lost

mother and I don't really know where to turn or what to ask?

[Guest guest]

Welcome, I think you'll be pleased to find plenty of support from this group.A few weeks ago, someone posted a link to a grant available to help. It's at uhccf.org. I looked into it - as long as your household income is below $82,000 a year, you are eligible to apply for assistance.Good luck!Sandymom to Lyla (7 months) 6 weeks in a Doc Bandand Owen 4 New Member...Trying to Find Help with new positional plagiocephaly

Hello all,

My name is Raechel, I had a baby girl 12/26/07 and recently found out

that she has positional plagiocephaly. At first they told me she may

need to have surgery because they thought her skull was not growing

evenly, but luckily that is ruled out. Now we are going to talk to a

Prosthetic Doctor to possibly get some more answers. I found out from

my doctor that the helmets cost anywhere from $1800 and above, but

like many other people I am strapped for extra money, I was told there

was funding options but my family doctor was not for sure what they

were. I will actually go to see the Prosthetic Doctor on the 28th but

I am worried, about not being able to help my baby girl. I don't know

if any of you have experienced this or not. Nor do I know how long she

will need to be in the helmet. I am told she should be fine as long as

we have thid done now while her skull is still soft. I am just a lost

mother and I don't really know where to turn or what to ask?

[Guest guest]

My husband and I did apply for this grant and are currently being

considered. We should know by the end of the month if we receive

it. You do have to be covered by a major medical insurance plan. It

can not be medicaid. Other than that, the income guidelines are very

easy to qualify for and the application process was very easy. You

do an online application then mail in documetation. So if your

covered by BC/BS or some other major medical insurance definitely

apply for help with this. They do pay up to 100% if your insurance

won't pay any.

Lou Ann

>

> Welcome, I think you'll be pleased to find plenty of support from

this group.

>

> A few weeks ago, someone posted a link to a grant available to

help. It's at uhccf.org. I looked into it - as long as your

household income is below $82,000 a year, you are eligible to apply

for assistance.

>

> Good luck!

> Sandy

> mom to Lyla (7 months) 6 weeks in a Doc Band

> and Owen 4

>

>

> New Member...Trying to Find Help with new

positional plagiocephaly

>

>

> Hello all,

> My name is Raechel, I had a baby girl 12/26/07 and recently found

out

> that she has positional plagiocephaly. At first they told me she

may

> need to have surgery because they thought her skull was not growing

> evenly, but luckily that is ruled out. Now we are going to talk to

a

> Prosthetic Doctor to possibly get some more answers. I found out

from

> my doctor that the helmets cost anywhere from $1800 and above, but

> like many other people I am strapped for extra money, I was told

there

> was funding options but my family doctor was not for sure what they

> were. I will actually go to see the Prosthetic Doctor on the 28th

but

> I am worried, about not being able to help my baby girl. I don't

know

> if any of you have experienced this or not. Nor do I know how long

she

> will need to be in the helmet. I am told she should be fine as long

as

> we have thid done now while her skull is still soft. I am just a

lost

> mother and I don't really know where to turn or what to ask?

>