RE: [SPAM]Re: Re: My Nopco Experience Update....Making Good Progress.

[Guest guest]

18 mm down to 4 mm sounds like great correction! My son

graduated at 4.6 mm and looked great at that measurement. The time to truly

graduate is when you are happy with the shape of your child’s head.

For some people that may be at 3 mm for other people it may be at 6 mm.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 5

, 8.5

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of christie lake

Sent: 18 July 2008 07:19

Plagiocephaly

Subject: [sPAM]Re: Re: My Nopco Experience Update....Making

Good Progress.

Hi ,

Im just curious what your daughters measurement is currently. My daughter

(also hailey) wore the band for about 9 weeks and has " graduated "

but her measurement was eyeballed at 4mm from about 18mm. Now i am

questioning whether or not we should have stopped.

thanks!

Christie

From: bakerinboston31

<jmaurhoff@...>

Subject: Re: My Nopco Experience Update....Making Good Progress.

Plagiocephaly

Date: Friday, July 18, 2008, 9:36 AM

Thanks for the info! I'd also like to add a

positive review of

NOPCO. After reading some (old) things on here I was also nervous

that NOPCO / the " Boston Band " would not get results and be much

worse than the DOC Bans from CT but my daughter saw results right

away (after 2-3 weeks)from her NOPCO band and has had no red spots

or fit problems at all.

She was 7.5 months old when she started it and had moderate Plagio

(about 15mm difference)which she developed from torticollis. After 2

months of wearing the helmet she looks GREAT and is almost ready to

be done! We're going another 3 weeks since it's not bothering her at

all and then we'll see what we think. Her helmet is also really

cute with purple butterflies on it - not that should really matter,

but it helps. (There is 1 photo of her in helmet posted under

Hayley).

We are north of Boston and saw Dr. Greene at Children's in Boston

but then at the Peabody location (which was much easier to get

in/out from)and have been going to NOPCO in Burlington, MA.

We have UnitedHealthcare and had to pay out of pocket and the whole

thing cost us $2,000 which is also cheaper than some other options.

In our case we did not need to drive any further, pay anymore to see

great correction rather quickly.

Good luck to all in the Boston area.

> > > > > >

> > > > > > Hi,

> > > > > > I have been reading the archives and have read

nothing

but

> bad

> > > > things

> > > > > > about NOPCO in Boston Children's Hospital. Has

anyone

had

> a

> > > > good

> > > > > > experience they would like to share??

> > > > > >

> > > > > > Thanks so much

> > > > > > Karin

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

It is def. much better than it was! But I still see some flatness. I think what bothers me is that Nopco said for 5 weeks that there was "no change" and they had her measurements start at 24mm and down to 12 mm. but she supposedly stayed at 12 for 5 weeks. When we went for our followup with dr rogers he said she was about a 4 down from about 18. I trust him more than I trust Nopcos measurements.. but i dont understand why they would be so different from start to finish. The same day Dr rogers said she was at about 4mm Nopco said she was at 12mm. then when i said that there is no way she has not grown in 5 weeks.. they said yeah i dont think the measurements are accurate. I asked for another scan so we could compare.. but they wouldnt do it. Overall my experience with Nopco was okay. They were great at fittings and seeing us when I felt the helmet wasnt fitting

right.. but Im not crazy about their method of measureing. Also they dont take before and after picts.

From: bakerinboston31 <jmaurhoff (DOT) com>Subject: Re: My Nopco Experience Update....Making Good Progress.PlagiocephalyDate: Friday, July 18, 2008, 9:36 AM

Thanks for the info! I'd also like to add a positive review of NOPCO. After reading some (old) things on here I was also nervous that NOPCO / the "Boston Band" would not get results and be much worse than the DOC Bans from CT but my daughter saw results right away (after 2-3 weeks)from her NOPCO band and has had no red spots or fit problems at all. She was 7.5 months old when she started it and had moderate Plagio (about 15mm difference)which she developed from torticollis. After 2 months of wearing the helmet she looks GREAT and is almost ready to be done! We're going another 3 weeks since it's not bothering her at all and then we'll see what we think. Her helmet is also really cute with purple butterflies on it - not that should really matter, but it helps. (There is 1 photo of her in helmet posted under Hayley).We are north of Boston and saw Dr. Greene at Children's in Boston but

then at the Peabody location (which was much easier to get in/out from)and have been going to NOPCO in Burlington, MA. We have UnitedHealthcare and had to pay out of pocket and the whole thing cost us $2,000 which is also cheaper than some other options. In our case we did not need to drive any further, pay anymore to see great correction rather quickly.Good luck to all in the Boston area. > > > > > >> > > > > > Hi, > > > > > > I have been reading the archives and have read nothing but > bad > > > > things > > > > > > about NOPCO in Boston Children's Hospital. Has anyone had > a > > > > good > > > > > >

experience they would like to share??> > > > > > > > > > > > Thanks so much> > > > > > Karin> > > > > >> > > > >> > > >> > >> >>