Re: New Member...Trying to Find Help with new positional plagiocephaly

[Guest guest]

Raechel, You might look into a Shriner's Childrens Hospital if there

is one nearby. I was told they do low-cost or no-cost procedure like

these.

>

> Hello all,

> My name is Raechel, I had a baby girl 12/26/07 and recently found out

> that she has positional plagiocephaly. At first they told me she may

> need to have surgery because they thought her skull was not growing

> evenly, but luckily that is ruled out. Now we are going to talk to a

> Prosthetic Doctor to possibly get some more answers. I found out from

> my doctor that the helmets cost anywhere from $1800 and above, but

> like many other people I am strapped for extra money, I was told there

> was funding options but my family doctor was not for sure what they

> were. I will actually go to see the Prosthetic Doctor on the 28th but

> I am worried, about not being able to help my baby girl. I don't know

> if any of you have experienced this or not. Nor do I know how long she

> will need to be in the helmet. I am told she should be fine as long as

> we have thid done now while her skull is still soft. I am just a lost

> mother and I don't really know where to turn or what to ask?

>

[Guest guest]

Raechel,

Have you started doing repositioning? (Encourage your daughter to

sleep on the side that doesn't have the flat spot?) While you are

arranging for a helmet, you can often make a lot of progress with

aggressive repositioning.

....Kay

>

> Hello all,

> My name is Raechel, I had a baby girl 12/26/07 and recently found out

> that she has positional plagiocephaly. At first they told me she may

> need to have surgery because they thought her skull was not growing

> evenly, but luckily that is ruled out. Now we are going to talk to a

> Prosthetic Doctor to possibly get some more answers. I found out from

> my doctor that the helmets cost anywhere from $1800 and above, but

> like many other people I am strapped for extra money, I was told there

> was funding options but my family doctor was not for sure what they

> were. I will actually go to see the Prosthetic Doctor on the 28th but

> I am worried, about not being able to help my baby girl. I don't know

> if any of you have experienced this or not. Nor do I know how long she

> will need to be in the helmet. I am told she should be fine as long as

> we have thid done now while her skull is still soft. I am just a lost

> mother and I don't really know where to turn or what to ask?

>