First day in helmet

[Guest guest]

Hi,

My daughter got her Clarin helmet yesterday. She spent the night in

it and seems to be adjusting well.

At our first consult at Children's in Seattle they said she would need

to wear it a minimum of six months. When they scanned her head they

said she would need it for around 4 months. At the helmet fitting

they said 2 1/2 to 3 months. They put a foam liner in the helmet to

cut down on the treatment time. I asked when we should come back for

a check-up and they said we didn't need to unless there was problems.

I asked when we got the next head scan and they said it wasn't

needed. They said she should wear the helmet till we get the results

we want or she outgrows it. I want numbers to compare, but they seem

more into just eyeballing it. Has anyone else experienced this?

We have been getting a fair bit of self correction but her head scan

for the brachy was still 94.7 and her plagio was 3.6. We are also

doing cranial sacral therapy as support to the helmet work.

~

[Guest guest]

Hi ,

there was a mom on here recently who was pretty happy with her clarren

helmet - you can search the old messages online to find her post, and

maybe contact her about how often she went for follow up appointments

etc.

I don't think most orthos are good at predicting the time in a band

anyway. We were told 4-6 mo, and it was 5, but that is such a big

range it is a pretty safe guess :-) My daughter had severe brachy and

got her band at 5 mo old. She started at about 97% and finished at

about 85%. She wore a starband and outgrew it by the end of her treatment.

Personally I wouldn't feel comfortable with my child in a helmet

unless there were regular visits - at least every 4 weeks, to make

sure there is progress. A bad fitting helmet can actually make the

head worse (happens in rare cases) so you can't just wait sick months

then figure out it isn't helping. I would also suggest you take

pictures yourself every 2 weeks and keep track of changes that way. I

found the view of the top of the head showed my daughter's brachy the

most. You can see her starting and ending pics under Our Plagio Babies

S / Sydney M in the photos area of this group.

Please let us know how she does in her helmet.

-christine

sydney 2.5 yrs starband grad

>

> Hi,

> My daughter got her Clarin helmet yesterday. She spent the night in

> it and seems to be adjusting well.

>

> At our first consult at Children's in Seattle they said she would need

> to wear it a minimum of six months. When they scanned her head they

> said she would need it for around 4 months. At the helmet fitting

> they said 2 1/2 to 3 months. They put a foam liner in the helmet to

> cut down on the treatment time. I asked when we should come back for

> a check-up and they said we didn't need to unless there was problems.

> I asked when we got the next head scan and they said it wasn't

> needed. They said she should wear the helmet till we get the results

> we want or she outgrows it. I want numbers to compare, but they seem

> more into just eyeballing it. Has anyone else experienced this?

>

> We have been getting a fair bit of self correction but her head scan

> for the brachy was still 94.7 and her plagio was 3.6. We are also

> doing cranial sacral therapy as support to the helmet work.

>

> ~

>