Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Tess, You will be in my prayers. Please keep us updated on how you are doing. hugs sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Oh, Tess. I hope nothing is found wrong!! Unfortunately, adhesions are very common with any kind of surgery, especially abdominal surgeries. I have issues with them as well. Good luck with the CT and I hope everything is ok......Marina > Hi...I've had some problems lately with acid reflux and nausea, plus an > inabiliy to eat very much food. My surgeon is concerned things might be > " kinking " up from adhesions. He has ordered a CT scan with contrast. > Hopefully it will turn out to be nothing...I sure DO NOT want another > surgery. Prayers would be appreciated. > > Much love..... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Oodles of prayers being said for you Tess. Hopefully it isn't anything that will require more surgery. Is the swelling in your scalp gone? You've been having some really bad days lately. (((((((hugs))))))) a On May 3, 2005, at 6:36 PM, Grammi_Love@... wrote: > Hi...I've had some problems lately with acid reflux and nausea, plus an > inabiliy to eat very much food. My surgeon is concerned things might > be > " kinking " up from adhesions. He has ordered a CT scan with contrast. > Hopefully it will turn out to be nothing...I sure DO NOT want another > surgery. Prayers would be appreciated. > > Much love..... > > Tess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Tess: Please know that my thoughts and prayers are with you that everything with turn out just fine with your CT........ Let us know how it goes. Gentle Hugs, Pat (your southern neighbor) --- marina_troi <marina_troi@...> wrote: > Oh, Tess. I hope nothing is found wrong!! > Unfortunately, adhesions > are very common with any kind of surgery, especially > abdominal > surgeries. I have issues with them as well. Good > luck with the CT > and I hope everything is ok......Marina > > > > > Hi...I've had some problems lately with acid > reflux and nausea, plus > an > > inabiliy to eat very much food. My surgeon is > concerned things > might be > > " kinking " up from adhesions. He has ordered a CT > scan with contrast. > > Hopefully it will turn out to be nothing...I sure > DO NOT want another > > surgery. Prayers would be appreciated. > > > > Much love..... > > > > Tess > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Dear Tess, You are in my thoughts and prayers. Love and Hugs, Joan > > > > > > Hi...I've had some problems lately with acid > > reflux and nausea, plus > > an > > > inabiliy to eat very much food. My surgeon is > > concerned things > > might be > > > " kinking " up from adhesions. He has ordered a CT > > scan with contrast. > > > Hopefully it will turn out to be nothing...I sure > > DO NOT want another > > > surgery. Prayers would be appreciated. > > > > > > Much love..... > > > > > > Tess > > > > > > > > __________________________________________________ > > ------------------------------------------------------------------------ > > * > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Dearest Tess, I am so sorry that you are having this problem now and I will definetely pray that the doctors will find an answer for this that will not encompass any more surgeries for you. Hopefully, it is just something simple that a few days of a new medication will cure. You are in my prayers always and I know better days are coming for all of us. God bless, Althea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Prayers would be appreciated. > > Much love..... > > Tess You are my inspiration, Tess!! I always look forward to your posts. My prayers and thoughts are with you, God Bless, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 You are all so dear and a blessing in my life. Thank you. I have my scan today at noon. I was just thinking that a year + ago it was difficult to do some of those tests as my weight made it both uncomfortable and in some cases impossible (because of size and weght limits), That is not an issue now! My surgeon has me coming in Monday to go over things with him. Much love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 I finished Chemo almost three years ago. I am working with a naturopath and also my oncologist. I have been clear for almost four years now and eat totally organic. I feel great. thanks for the input, I am going to forgo the CT Scan. Al UNT1971@... wrote: Hi Al, Of course you need to do what you think you should do....but....only recently I read that CT scans now are known to actually " cause " cancer. Are you currently undergoing chemo? Are you doing alternative therapy? My DH is working with a macrobiotic counselor for his prostate cancer. He and a friend who also has prostate cancer and is also on this diet were advised by their urologists to have a CT scan. Their counselors have shared that even doing a CT scan would set them back a good six months because of the radiation. They both opted to not do CT but go with results of blood work. What would be the benefit of a CT scan? I am scared of this radiation. I for one have never had a mammogram. I was a flight attendant for 15 years. With jets that fly at the altitudes of 35,000 ft and above a person is subjected to exposure of radiation that is equal to a full set of chest X-rays for each flight that is cross country. I for one have had enough radiation to last more than a life time. I hope you are well and feeling cancer free! Sincerely, In a message dated 4/30/2008 2:50:33 P.M. Central Daylight Time, albertrhurt@... writes: Hi everyone, Greetings from Spokane Washington. I am coming up on my four year exam and the Oncologist wants another CT Scan and blood test. I am not concerned with the blood test. The CT scan is of concern because of the amount of radiation and chemicals injected for the screen. I have had at least 16 CT scans in the last four years and am concerned about the radiation. Anyone have any thoughts before I get the scan??? Thanks Al **************Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp00300000002851) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Al, I'm glad you are doing well. ar On Thu, 1 May 2008 13:04:13 -0700 (PDT), " Al Hurt " <albertrhurt@...> said: > I finished Chemo almost three years ago. I am working with a naturopath > and also my oncologist. I have been clear for almost four years now and > eat totally organic. I feel great. > > thanks for the input, I am going to forgo the CT Scan. > > Al -- Arlyn Grant arlynsg@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 I would suggest you ask your oncologist if he/she even knows how much radiation there is in a CT scan. Most Dr's don't know, and even less people know how much rad. they are being sujected to. It's a massive amount. I just wanted to forwarn you and everyone else about the amount of radiation in a CT scan. It's over 100 times the amount of a chest x- ray... http://www.radiologytoday.net/archive/rt_071904p22.shtml . -------------------------------------------------------------------- > > Hi everyone, > > Greetings from Spokane Washington. I am coming up on my four year > exam and the Oncologist wants another CT Scan and blood test. I am > not concerned with the blood test. The CT scan is of concern because > of the amount of radiation and chemicals injected for the screen. > > I have had at least 16 CT scans in the last four years and am > concerned about the radiation. Anyone have any thoughts before I get > the scan??? > > Thanks > > Al > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 I received a leaflet from the NHS shortly before my first CT scan informing me that you receive approximately 4 years worth of radiation in 20 mins. if that's any help.The real bummer is you don't even come away with a sun tan! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly(sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. Thanks, , mom to Justice 6.5 months is second Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 I'm a little confused when you refer to CT in your post, you don't mean Cranial Technologies, right? Because they do not make the STARBand. But I'm assuming that you are referring to whichever ortho or helmet provider you are seeing for helmet treatment.... In any case, to answer your questions, not every child gets a CT scan before receiving helmet treatment, though many do because their doctors are overly cautious. Our ped was one of those, she couldn't say for certain that it wasn't craniosynostosis (premature fusing of the skull sutures) and she said x-rays often don't show it, so instead of exposing my son to radiation twice (once for x-rays that wouldn't do much good, and then again for a CT scan to get a clearer picture), she just referred us to a neurosurgeon right away and a CT scan was ordered. Thankfully, it wasn't cranio, just plagio. It sounds like your helmet provider might have a protocol that entails a CT scan must be done, though it is not the norm at every ortho location. Also, I believe sometimes insurance requires a CT scan (but I could be wrong there). I know craniosynostosis is premature fusing of the skull sutures, but what you describe sounds more like a premature fusing of the fontenel (sp?), the large soft spot in the center of the head where the suture lines meet. I'm not familiar with that issue, but it sounds like if they have any concern at all, you should get the CT scan done, just to be sure. It definitely would not be good to treat it as plagio if it wasn't. Do you notice any changes to his head for the worse? What led them to believe there was an issue with premature fusing? Has the scan been scheduled? I would maybe leave the helmet off for now until you know anything for sure. However, we had a CT scan and then had to wait a month to see a neurosurgeon who finally told us the results of the scan (though I suspect if there had been a serious issue, we may have heard from him sooner). I hope it isn't anything serious. Please keep us posted. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly(sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. > > Thanks, > > , mom to Justice 6.5 months is second Starband > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 We did not have a scan to see if his head had prematurely fused together. My son has tort though, so maybe they figured that was the cause of the plagio. I know that it is very rare, so hopefully it is not the case with your son. From: cobb6family <cobb6family@...>Subject: CT ScanPlagiocephaly Date: Tuesday, April 14, 2009, 12:40 AM My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly( sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. Thanks,, mom to Justice 6.5 months is second Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Wedid not have any type of scans before my daughter was banded. That was back in 2002. She is now 7. Our specialist said he ordered scans sometimes when he wasn't positive it was plagio. But having said that I know many members dr's have ordered scans. Please keep us posted on what you find out. Angie CT Scan My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly(sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. Thanks,, mom to Justice 6.5 months is second Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 I'm so sorry they are putting you through this scare, and hopefully it's all for nothing.We were referred to a crainofacial plastic surgeon. Our daughter had a bump on her head they suspected was a dermoid along with the plagio and severe tort. We had an x-ray study done when she was two months old that confirmed what Dr. Rozelle thought. She saw no signs that pointed to more serious issues. The tort was completely muscular, the bump presented as a dermoid tumor, and there was no evidence of premature fusion. We never had a CT scan done and went into the first helmet at four months old. She had her surgery at 6 months to remove the tumor and help resolve the tort. Not that there are any words of comfort for you right now, but Elly's surgeon deals with many cases of various premature fusings. If that is the case (which would be rare) there are many children I see when we go to her office that have been treated for it successfully. They are happy healthy toddlers and you'd never realize they had such a condition in the past. Hang in there until you have more information. Don't be afraid to ask questions of your medical team and demand answers. I hope it's just a typical " CYA " move on their part. Elaine (twin A), plagio & tort, 10 1/2 mos, 2nd helmet 1/5/09 MI On Mon, Apr 13, 2009 at 8:40 PM, cobb6family <cobb6family@...> wrote: My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly(sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. Thanks, , mom to Justice 6.5 months is second Starband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Wow, I know this is scary. My son had a CT scan for craniosynistosis as well, but that was because he was born with an asymetrical head shape. I was really scared, until I found this cranial clinic's website http://www.thecraniofacialcenter.org/deformations_howknow.html and this particular page gives you a way to get an idea if it PROBABLY is plagio. He tells you to look at the ears, but you will have to read it for yourself. It gave me some reasurance before the they even did the scan, then the scan confirmed that it was just plagio. Hope that helps you too, Annie > > My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they asked me about Justices scan because they say that they THINK the soft spots on his head have prematurely fused together. I said he never had a scan in which he never did, the CT replies that all kids have to have a scan before the helmet and that someone along the way messed up and they are thinking that it isnt plagio at all, it could be water on the brain or craniophephly(sp?)They were shocked of no scan ever being done. Anyways I leave and next thing I know we were getting the calls from neorosciences about a scan and needing it ASAP. So my question is...Did everyone elses little ones have a scan before the helmet? Also now I feel we are messing up and I dont want to continue the helmet process until some one can say for sure what is up. They also said that a doctor cant physically look at a little ones head and automatically say its plagio because it could be several other things...Im confused and to be honest im scared for my son. any help suggestions or anything would be appreciated. > > Thanks, > > , mom to Justice 6.5 months is second Starband > Quote Link to comment Share on other sites More sharing options...
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