LDN and latent viruses

[Guest guest]

l-Lysine needs vitamin C as a cofactor, you might consider 3 or more grams a day.

I find that Meliisa officinalis tincture made from FRESH and also oregano oil very effective for the Herpes family of bad guys. St 's Wort also has a good history. So, your arsenal can be broadened.

Now that you know about how LDN can 'awaken' these dormant critters, please know that cognitive difficulties can accompany them and may well account for the issues another member asked about a few days ago to which there was no direct response.

Hope this helps mjh

mjhFive other low dose Naltrexone groupsldnsupport, LDN_Users, SpotlightLDN, Autism_LDN, NewGenLDNUsersProceedings of the 2nd LDN Conference, 2006, www.skipspharmacy.com

>

>

Debora wrote:

As herpes is a virus, I don't think an anti-fungal cream is going to do anything. I've been taking 2000-3000 mg.L- Lysine for a few weeks. Going to try virastop and olive leaf extract. If it continues, I may get a prescriptive anti-viral.

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[Guest guest]

Well, I just read through the archives of Dr. McCandless autism site

using LDN, and it seems like it is common for latent viruses and yeast

to emerge when using LDN, as part of the " normalizing " of the immune

function. I've been using LDN since this last December for Crohn's,

and have had the worst case of I think herpes across my butt, though

I'm feeling new tingling in the middle of my back, so it may be a

different herpes, or shingles. I've only had 2 outbreaks of the herpes

virus; the first over 6 years ago, diagnosed as shingles when I was

pregnant, though later I was told it must have been herpes because of

the location. The second was after having my last infusion of

Remicade, an immune suppressor, after surgery which removed my inflamed

and scarred descending colon, 3.5 years ago. So it's not something I

go through often, and interestingly, I've had the same partner for 13

years, so it's obviously not a new infection, unless you can pick up

herpes from hot tubs.

I guess I'm relieved that it is common,. though it hasn't been fun.

Luckily, my Crohn's seems to be doing better, so I will stay the course

and add some antivirals to my regime (going to try olive leaf extract,

since I've been doing oil of oregano and garlic without much help.)

Is it thought that the LDN activates latent viruses so the immune

system can mount a proper attack on them and fully suppress them? But

if it is a latent virus that never truly goes away, what's the point?

I'm just hoping this is a positive indication of my immune system

normalizing, but I have to say, the extensiveness of the rash and the

" tingling/burning " sensation has NOT been fun. I'm now using H-balm

(essential oils supposedly effective in killing the virus) and at least

I smell good now, though I can't say they're remarkably effective in 5

days.

I also read some accounts of parents taking their children off LDN, and

having permanent regressions, so now I'm afraid of going off of it

until I get more immune regulation. Dr. McCandless claims it takes 3-6

months for the immune system to " regulate " and these shifts and swings

of dormant viruses/yeasts emerging should subside after that. I feel

like I'm on a rollercoaster ride, but don't dare to get off lest I

fall....

I hope so!

Debora

[Guest guest]

>

> Well, I just read through the archives of Dr. McCandless autism site

> using LDN, and it seems like it is common for latent viruses and

yeast

> to emerge when using LDN, as part of the " normalizing " of the immune

> function. I've been using LDN since this last December for Crohn's,

> and have had the worst case of I think herpes across my butt, though

> I'm feeling new tingling in the middle of my back, so it may be a

> different herpes, or shingles. I've only had 2 outbreaks of the

herpes

> virus; the first over 6 years ago, diagnosed as shingles when I

was

> pregnant, though later I was told it must have been herpes because

of

> the location. The second was after having my last infusion of

> Remicade, an immune suppressor, after surgery which removed my

inflamed

> and scarred descending colon, 3.5 years ago. So it's not something

I

> go through often, and interestingly, I've had the same partner for

13

> years, so it's obviously not a new infection, unless you can pick up

> herpes from hot tubs.

>

> I guess I'm relieved that it is common,. though it hasn't been fun.

> Luckily, my Crohn's seems to be doing better, so I will stay the

course

> and add some antivirals to my regime (going to try olive leaf

extract,

> since I've been doing oil of oregano and garlic without much help.)

>

> Is it thought that the LDN activates latent viruses so the immune

> system can mount a proper attack on them and fully suppress them?

But

> if it is a latent virus that never truly goes away, what's the

point?

> I'm just hoping this is a positive indication of my immune system

> normalizing, but I have to say, the extensiveness of the rash and

the

> " tingling/burning " sensation has NOT been fun. I'm now using H-balm

> (essential oils supposedly effective in killing the virus) and at

least

> I smell good now, though I can't say they're remarkably effective in

5

> days.

>

> I also read some accounts of parents taking their children off LDN,

and

> having permanent regressions, so now I'm afraid of going off of it

> until I get more immune regulation. Dr. McCandless claims it takes

3-6

> months for the immune system to " regulate " and these shifts and

swings

> of dormant viruses/yeasts emerging should subside after that. I

feel

> like I'm on a rollercoaster ride, but don't dare to get off lest I

> fall....

>

> I hope so!

>

> Debora

>

==========

Dr. McCandless uses ViraStop(do a google search). L-Lysine 500mg

taken twice daily may help. See if your doctor will prescribe you

some Nystatin cream for your rash or get and anti-fungal cream from

Wal-Mart or drug store. Check out the detox kits at the site below.

There are 3 pages of products. I am currently using YeastMax and

ParaMax.

Advanced Naturals

http://www.yourwaytowellness.com/shop/advnat.htm

/Bren

[Guest guest]

>

>

> Dr. McCandless uses ViraStop(do a google search). L-Lysine 500mg

> taken twice daily may help. See if your doctor will prescribe you

> some Nystatin cream for your rash or get and anti-fungal cream from

> Wal-Mart or drug store. Check out the detox kits at the site below.

> There are 3 pages of products. I am currently using YeastMax and

> ParaMax.

>

As herpes is a virus, I don't think an anti-fungal cream is going to do

anything. I've been taking 2000-3000 mg.L- Lysine for a few weeks.

Going to try virastop and olive leaf extract. If it continues, I may

get a prescriptive anti-viral.

[Guest guest]

>

> >

> >

> > Dr. McCandless uses ViraStop(do a google search). L-Lysine 500mg

> > taken twice daily may help. See if your doctor will prescribe you

> > some Nystatin cream for your rash or get and anti-fungal cream

from

> > Wal-Mart or drug store. Check out the detox kits at the site

below.

> > There are 3 pages of products. I am currently using YeastMax and

> > ParaMax.

> >

>

> As herpes is a virus, I don't think an anti-fungal cream is going to

do

> anything. I've been taking 2000-3000 mg.L- Lysine for a few weeks.

> Going to try virastop and olive leaf extract. If it continues, I

may

> get a prescriptive anti-viral.

>

==========

The anti-fungal cream may help the itch.

Bren

[Guest guest]

Hi Debora,

I read your post with great interest. I started ldn for my ms and got all kinds of weird scary symptoms. I did well on it initually but then developed a latent virus by the way of lyme disease. It was/is very scary. It helped to find out that ldn could do thos as I felt like I was going insane. Many ms'er's that I know feel that the ldn caused them depression and mood swings. I have been questioning them if they were ever tested for lyme by Igenex. The test for lyme in Canada and the US are crap. Check out some lyme symptoms and see if they fit. I rarely use so if you want you can reach me at dare2dream@...

Take Care,

>> I'm wondering if LDN is responsible for triggering an outbreak of what > I think to be herpes simplex for me. I would think this is something > the LDN, by BOOSTIng the immune system, would help the body in > fighting. I started LDN Dec. 22, 2006 for Crohns, but started with > lactose filler from a local pharmacist, and took that for 40 days, > before it was evident I was worsening. My CRP levels (tests for > inflammation in the body) went WAY up during this time; from 8.5 before > LDN to 11.10, then15. I also had worse Crohn's symptoms; more mucus, > blood, looser stools, nausea, fatigue, no appetite, etc. I switched > fillers to acidopholus, took that for a week, then got Skip's with > Avicel, and now have been on the new "correct" formulation for almost a > month.> > On the "bad" filler, a rash started all across my bottom in January, > which looked and felt like shingles, or herpes . I've only had > shingles or herpes 2 X; one over 6 years ago, when I was pregnant, and > then 3 years ago, after taking Remicade a few months after surgery to > remove my descending colon. That time, I didn't need the Remicade > since I had very little inflammation, and it caused a herpes outbreak, > though small, and horrible acne.> > Since being on the LDN, I've noticed huge, really painful acne on my > head here and there (though I sometimes get that), and the rash. The > weird thing about the rash, is it was extensive; all across my panty > line and butt, and even a couple on my anus. I also had the biggest, > most painful hemmorhoid I ever had, probably from the looser stools.> > Well, I altered my diet (I'm on SCD, so I went on easier to digest > foods), started taking more probiotics, and also started rotating > natural antibiotics/antivirals like raw garlic, oregano oil, grapefruit > seed extract. I also added L-Lysine and rutin to my diet. I don't > know if it's all these diet/supplements, or the correct LDN, but my > Crohn's is getting better (less mucus, no blood, solid bowel movements > I don't have to run to the toilet for, 1-2 X a day.) The rash went > through it's worst stage 2 weeks ago (intense nerve pain) and is now > finally starting to fade, though I'm getting a few random dots in weird > places, like my neck, and down my legs (if it's genital herpes, why's > it on my neck?)> > I also have to add, that 3-4 viruses went through my house from January > to now; my husband had a horrible cold, both daughters had fever, > coughs, headache, etc. I got a cold in January, which is when my > Crohn's started getting worse, but nothing since except the flare up of > this latent virus. I tend not to get colds, or if I do, I just get a > Crohn's flare up instead, so this is common for me. We also had a > questionable water filter; when changed, major gurglings in my gut > subsided. So there were a lot of other things going on as well.> > I'm also getting weird tingling on the top of my head and up my spine > sometimes; like when you get the chills or are getting a massage, and > your head tingles. I'm wondering if this is the endorphins, or the > virus, as herpes lives in the spine latently.> > > Anyway, I"m hoping that all of my regression was due to the bad > formulation, or lactose, or both. Interesting that I was having sleep > disturbances and night sweats on my local formulation, but since > switching to Skip's, I've only had 1 night sweat, and it was when my > daughter had a fever, so it was probably me fighting that. I notice > nothing but slight happiness on Skip's.> > But I've never had a herpes rash take so long to go through its stages, > and so extensive. I've only had a rash about 2 inches long, or maybe > just 3 dots. This was huge!> > I thought LDN would boost my immune system, making this less likely to > happen. If it was the old formulation, shouldn't a month of the new be > more helpful? I should get a new CRP test to monitor progress. I > haven't really felt like going to the doctor, since both my doctors > really know nothing about LDN, and want me to take more risky > immunosuppressives, so this regression has not been fun, and would just > prove to them that LDN doesn't work.> > Hopefully I'm on the mend and will continue to do well. But it's been > a rollercoaster ride. Not fun!> > Debora>

[Guest guest]

,

Are you sure your MS wasn't really Lyme all along, in which case it

would explain your weird symptoms?

What evidence do you have to back your statement of " *Many ms'er's that

I know feel that the ldn caused them depression and mood swings. " *I've

been on here for three and a half years and have seen almost nobody say

that. In fact the only person I can specifically remember saying that

was not an MSer at all but had ALS. The very nature of how it acts

means most people find LDN leads to an increase in their feeling of well

being, not depression. That's why DLPA is recommended to further extend

that affect.

* *

wrote:

>

> *Hi Debora,*

>

> *I read your post with great interest. I started ldn for my ms and

> got all kinds of weird scary symptoms. I did well on it initually but

> then developed a latent virus by the way of lyme disease. It was/is

> very scary. It helped to find out that ldn could do thos as I felt

> like I was going insane. Many ms'er's that I know feel that the ldn

> caused them depression and mood swings. I have been questioning them

> if they were ever tested for lyme by Igenex. The test for lyme in

> Canada and the US are crap. Check out some lyme symptoms and see if

> they fit. I rarely use so if you want you can reach me at

> dare2dream@... <mailto:dare2dream@...> *

>

> *Take Care,*

>

> **

>

[Guest guest]

" Many ms'er's that I know feel that the ldn caused them depression

and mood swings. "

I have been a member of this discussion group for over two years and

I can't recall even once anyone blaming LDN for depression and mood

swings. Maybe I missed those posts. Could it be those folks you know

saying this are experiencing emotional problems due to other factors?

Artie

[Guest guest]

>

> " Many ms'er's that I know feel that the ldn caused them depression

> and mood swings. "

>

> I have been a member of this discussion group for over two years

and

> I can't recall even once anyone blaming LDN for depression and

mood

> swings. Maybe I missed those posts. Could it be those folks you

know

> saying this are experiencing emotional problems due to other

factors?

>

> Artie

>=========

About 4 or 5 people so far that I have read about have complained of

this.

[Guest guest]

There have been 6 people in my immediate internet circle who had the same thing. Whoever asked if it could indeed be lyme was right. I was dxd with it through Igenex over a month ago. And whomever said it was a person with als, yes because I know her. These 6 people are from opposite ends of the world.

I am not saying this because ldn is bad, awful, or anything. I just want to make people aware that this can happen and to educate them. The alternative is to have them stop ldn claiming it caused depression and telling others that. Now what would you say? I choose to say that ldn is a great drug and could it be that it is bringing out a latent virus.

Take Care > > About 4 or 5 people so far that I have read about have complained of > this.> > >