FINALLY!

[Guest guest]

Welcome .

Lori Owen - Denton, Texas

SRVG 7/16/01

Dr. Ritter/Dr. Bryce

479/335/???

On Tue, 03 Jun 2003 14:21:45 -0500 basswood@... writes:

> Well, the long-awaited day has arrived! It is one year today since my

> RnY WLS. I have been lurking here for several months, and have

> thoroughly appreciated the information offered here. While my

> experience has been excellent from the beginning, it is always good

> to know what dangers may loom in the future if we are unaware.

>

> I have had a few individual contacts with Ceep and others, and now

> look forward to being a full participant on the list.

>

>

> ---

> Start weight 365#

> Lap RnY, Distal - Dr. s

> Vanderbilt University Hospital

> Surgery date June 3, 2002

> Current weight 210#

>

>

>

[Guest guest]

congrats Connie, I know you've really been waiting for that!!

I'm a bit confused though - cause I haven't been to orientation, but I

did go to an info class - is that the same thing? Or is the orientation

after you see the psychologist?

>

> Whoohoo...I finally got an orientation date! Its for July 11th in

> Richmond. Anyone else with the same date?

>

> Connie

> Sacramento

>

[Guest guest]

Thanks Misty! I went to an info class initially in Roseville and it

was just to fill out the paperwork and also offered going through the

Healthy Ways classes instead of having surgery. The psychologist that

was there did call me to see why I was on antidepressants but that was

it. This orientation is the one where I should get weighed and all

that I guess. Did you get a date for orientation yet or just the

psychologist date?

Connie

[Guest guest]

I had an appointment to see the nutritionist July 12Th in Modesto and they called and changed it to June 28Th .does that mean things will go faster ? what should i expect next?Misty wrote: congrats Connie, I know you've really been waiting for that!!I'm a bit confused though - cause I haven't been to orientation, but I did go to an info class - is that the same thing? Or is the orientation after you see the psychologist?>> Whoohoo...I finally got an orientation date! Its for July 11th in > Richmond. Anyone else with the same date? > > Connie> Sacramento>

I can do all things through christ who strengthens me

Wanda

[Guest guest]

only the psychologists appt

should I be concerned if I don't have an orientation appt yet?

>

> Thanks Misty! I went to an info class initially in Roseville and

it was

> just to fill out the paperwork and also offered going through the

> Healthy Ways classes instead of having surgery. The psychologist

that

> was there did call me to see why I was on antidepressants but that

was

> it. This orientation is the one where I should get weighed and all

that

> I guess. Did you get a date for orientation yet or just the

> psychologist date?

>

> Connie

>

>

> >

> >

> >

>

[Guest guest]

After your pcp sends all your paper work to Kaiser, or your insurance provider, and you have been accepted into a program, is when you wait for your Orientation appt to be scheduled.Misty wrote: When does that usually happen? Right now I have an appt with a psychologist at Richmond, but there has been no appt made for orientation. Should I call them?> >> >

Whoohoo...I finally got an orientation date! Its for July 11th in > > Richmond. Anyone else with the same date? > > > > Connie> > Sacramento> >> > > > > > __________________________________________________>

[Guest guest]

see this is where I am confused. Because Connie and I were at the

same point (we actually met off the kp.org board), everything had

been submitted by our PCP's, we got the intial acceptance letter from

SSF, that also said we were being transfered to Richmond. My first

appt is with a psychologist, and hers is orientation

why the differences?

> > >

> > > Whoohoo...I finally got an orientation date! Its for July 11th

in

> > > Richmond. Anyone else with the same date?

> > >

> > > Connie

> > > Sacramento

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Okay, I don't know, unless they just schedule whatever appt they have available at the time. So you have already gone through the preleminary stuff and you are on your second round of psych and nutrition? Now I'm confused. If you have a number to call, I'd call to get it straight. Let me know.Misty wrote: see this is where I am confused. Because Connie and I were at the same point (we actually met off the kp.org board), everything had been

submitted by our PCP's, we got the intial acceptance letter from SSF, that also said we were being transfered to Richmond. My first appt is with a psychologist, and hers is orientationwhy the differences?> > >> > > Whoohoo...I finally got an orientation date! Its for July 11th in > > > Richmond. Anyone else with the same date? > > > > > > Connie> > > Sacramento> > >> > > > > > > > > > > > __________________________________________________> >

[Guest guest]

yeah I think I need to call LOL

will let you know what Richmond tells me

> > > >

> > > > Whoohoo...I finally got an orientation date! Its for July

11th

> in

> > > > Richmond. Anyone else with the same date?

> > > >

> > > > Connie

> > > > Sacramento

> > > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Called Richmond and they were extremely nice. Said that the type of

first appt varies on what pops up as available when they go to make

an appointment. In my case the first appt they had available was for

the psych eval, she said they will schedule my orientation before I

leave after my psych eval.

I'm grateful that I got someone nice who explained it well, just wish

Kaiser could stay consistant and have the process for everyone be the

same LOL

> > > >

> > > > Whoohoo...I finally got an orientation date! Its for July

11th

> in

> > > > Richmond. Anyone else with the same date?

> > > >

> > > > Connie

> > > > Sacramento

> > > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

well I guess I'm at the bottom I'm just getting to see the nutriniest don't know what to expect after that maybe they just do it different here in the central valley wish i could meet some one in the same stage asI to sort of go through It with . Rhinehart wrote: Okay, I don't know, unless they just schedule whatever appt they have available at the time. So you have already gone through the preleminary stuff and you are on your second round of psych and nutrition? Now I'm confused. If you have a number to call, I'd call to get it straight. Let me know.Misty wrote: see this is where I am confused. Because Connie and I were at the same point (we actually met off the kp.org board), everything had been submitted by our PCP's, we got the intial acceptance letter from SSF, that also said we were being transfered to Richmond. My first appt is with a psychologist, and hers is orientationwhy the differences?> > >> > > Whoohoo...I finally got an orientation date! Its for July 11th in > > > Richmond. Anyone else with the same date? > > > > > > Connie> > > Sacramento> > >> > > > > > > > > > > >

__________________________________________________> >

[Guest guest]

This is where I was confused also. When I asked the girl kind of gave

me the brush off saying everyone needs different stuff and different

times.

Rhinehart wrote:

Okay, I don't know, unless they just schedule whatever appt they

have available at the time. So you have already gone through the

preleminary stuff and you are on your second round of psych and

nutrition? Now I'm confused. If

you have a number to call, I'd call to get it straight. Let me know.

Misty wrote:

see this is where I am confused. Because Connie and I were at

the

same point (we actually met off the kp.org board), everything had

been submitted by our PCP's, we got the intial acceptance letter from

SSF, that also said we were being transfered to Richmond. My first

appt is with a psychologist, and hers is orientation

why the differences?

[Guest guest]

Oh good Im glad you got an answer. Last time I called they weren't

very nice to me but oh well. When is your psych eval again? I have to

be down in Richmond at 7:30am...that means leaving here around

4:30-5am..ugh! Now I just gotta find someone to watch the kid!

Misty wrote:

Called Richmond and they were extremely nice. Said that the type

of

first appt varies on what pops up as available when they go to make

an appointment. In my case the first appt they had available was for

the psych eval, she said they will schedule my orientation before I

leave after my psych eval.

I'm grateful that I got someone nice who explained it well, just wish

Kaiser could stay consistant and have the process for everyone be the

same LOL

[Guest guest]

7/12 at 9am, which puts me leaving Sac around 6am fun fun

> >

> > Called Richmond and they were extremely nice. Said that the type

of

> > first appt varies on what pops up as available when they go to

make

> > an appointment. In my case the first appt they had available was

for

> > the psych eval, she said they will schedule my orientation before

I

> > leave after my psych eval.

> >

> > I'm grateful that I got someone nice who explained it well, just

wish

> > Kaiser could stay consistant and have the process for everyone be

the

> > same LOL

> >

>

[Guest guest]

You know, if you ever get to talk with , she is

super nice. I am not sure what her name is but she is

very helpful and patient.

Pam Marsh

--- Connie Brenner wrote:

> Oh good Im glad you got an answer. Last time I

> called they weren't very

> nice to me but oh well. When is your psych eval

> again? I have to be

> down in Richmond at 7:30am...that means leaving here

> around

> 4:30-5am..ugh! Now I just gotta find someone to

> watch the kid!

>

> Misty wrote:

> >

> > Called Richmond and they were extremely nice. Said

> that the type of

> > first appt varies on what pops up as available

> when they go to make

> > an appointment. In my case the first appt they had

> available was for

> > the psych eval, she said they will schedule my

> orientation before I

> > leave after my psych eval.

> >

> > I'm grateful that I got someone nice who explained

> it well, just wish

> > Kaiser could stay consistant and have the process

> for everyone be the

> > same LOL

> >

>

>

__________________________________________________

[Guest guest]

I think it was that I talked to. First time I talked to her

she was very nice but the last time she was down right rude!

Pamela A Marsh wrote:

You know, if you ever get to talk with , she is

super nice. I am not sure what her name is but she is

very helpful and patient.

Pam Marsh

--- Connie Brenner <yorkiemom76 (AT) comcast (DOT) net>

wrote:

> Oh good Im glad you got an answer. Last time I

> called they weren't very

> nice to me but oh well. When is your psych eval

> again? I have to be

> down in Richmond at 7:30am...that means leaving here

> around

> 4:30-5am..ugh! Now I just gotta find someone to

> watch the kid!

>

> Misty wrote:

> >

> > Called Richmond and they were extremely nice. Said

> that the type of

> > first appt varies on what pops up as available

> when they go to make

> > an appointment. In my case the first appt they had

> available was for

> > the psych eval, she said they will schedule my

> orientation before I

> > leave after my psych eval.

> >

> > I'm grateful that I got someone nice who explained

> it well, just wish

> > Kaiser could stay consistant and have the process

> for everyone be the

> > same LOL

> >

>

>

__________________________________________________

[Guest guest]

thats who I talked to when I called earlier LOL - maybe she was nice,

since she looked me up and already saw I had an appt scheduled?

> > > >

> > > > Called Richmond and they were extremely nice. Said

> > > that the type of

> > > > first appt varies on what pops up as available

> > > when they go to make

> > > > an appointment. In my case the first appt they had

> > > available was for

> > > > the psych eval, she said they will schedule my

> > > orientation before I

> > > > leave after my psych eval.

> > > >

> > > > I'm grateful that I got someone nice who explained

> > > it well, just wish

> > > > Kaiser could stay consistant and have the process

> > > for everyone be the

> > > > same LOL

> > > >

> > >

> > >

> >

> > __________________________________________________

> >

[Guest guest]

Robynn, this was wonderful and thank you for putting

this into words. Love you girlie. You are truly

beautiful on all accounts.

Pam Marsh

--- Robynn VanPatten wrote:

> Amen, Randy. I guess I just always took the, " Ok,

> this is MY process, and this is the route that my

> process is taking. " I trust my medical staff to

> know what is best for me. Yes, losing the 10

> percent was tough. Yes, I felt a lot of stress

> trying to make sure I wasn't up even one little lb.

> the day of surgery. Yes, I felt sorry for myself

> sometimes.

>

> I wound up havnig two psych exams, because

> Richmond brought on their own specialist. Others

> didn't have to do that. Some people had to go

> through a more extensive lifestyles class than I

> did, because they started seeing that people were

> having difficulty sticking to the guidelines.

>

> I guess here is the way I see it: this surgery,

> medical knowledge, anecdotal knowledge, and

> individuals themselves are always evolving and

> changing. As the different Kaiser programs learn

> more, experience different things...they start

> adding new steps to the program. I don't view it as

> an impediment...rather, I view it as a sturdier

> ladder that they are creating for us to make a

> successful climb to success.

>

> Folks at SSF don't always have to lose 10%, it

> depends upon the person. On the other hand, they

> have a follow up class every week that's more

> extensive. Kaiser leaves care, for the most part,

> in the hands of doctors. THat's why there are some

> variances from program to program. Dr. Fisher has

> been doing this a long time, and he has some pretty

> strong ideas about which patients are the most

> successful and why. So, how can some other doctor

> dictate another protocol to him, when he doesn't

> feel convinced that it is the best route to take,

> based upon his own training and experience?

>

> Oftentimes, the " child " part of our personalities

> get all riled up when somebody tells us what to do,

> how to do something, when to do it. We always think

> we know what is best for us.

>

> I'm not advocating that one blindly put one's

> health into the hands of a doctor. On the other

> hand, if we were such flipping experts, why are we

> MORBIDLY OBESE. The bottom line: we don't know

> better. We just don't. And letting go, and

> listening and learning...well, I think that's an

> important step to take in our process. It's that

> cutting our noses off to spite our faces attitudes

> that got us into this position in the first place.

> ( " He doesn't like me. He thinks I'm fat. I'll show

> him...give me some cookies and ice cream so I can

> drown my sorrows.. " ).

>

> I don't mean to be rude, and I absolutely think

> that we all need to be our own advocates to make

> sure we don't fall through the cracks, and to make

> sure our doctors know everything they need to know

> in order to help us.

>

> But, part of maturity is learning to accept that

> we don't always have all of the answers.

>

> My process took a while, although I was put on a

> fast track for certain medical reasons. But, I had

> to lose 26.5 lbs. I got accepted at the end of

> November, I think. I had my surgery 6/08/06 (one

> year ago today.) It took me a little over six

> months to get that weight off.

>

> But you know what? That six months was an

> important time. I got frustrated at my lack of

> progress, but I learned to quit blaming everybody

> else. Instead, I realized that maybe I was blocking

> my own process because of fear. Or because of

> unresolved issues that I needed to delve into. I

> used that time productively. I got back into a

> steady exercise routine, and I learned to enjoy the

> PROCESS. It wasn't just a means to an end...it was

> a journey.

>

> I did a lot of writing, talking to others on the

> board, listening to those who had been successful.

> I listened to the folks who struggled emotionally

> with coming to grips with their new bodies

> afterwards. I gave it all a lot of thought.

>

> By the time my surgery came, I was ready to change

> my life...with all that such change requires of me.

> I'm not a military disciplinary kind of person. So,

> I adjust here and there...eat more one day, cut back

> the next...eat crap one meal, make sure I get

> nutrition in me from the next one. Slack a few

> days, make sure I diligently get back on the

> exercise wagon the next couple of days.

>

> It's about balance. It's about figuring out why

> you let yourself get so out of control in the first

> place. It's about figuring out who you are, what

> your boundaries are, what your triggers are. It's

> about learning to love yourself. It's about working

> with your support system and the people who love you

> most. I asked my loved ones, " Look, what behaviours

> have you seen in me that you think might contribute

> to my obesity? " The answers were hard to hear, but

> bless these people for talking turkey to me.

>

> I spent the time watching my skinny friends.

> Realizing that they couldn't honestly eat anything

> they wanted all of the time with no worries about

> gaining. NO. There were many times when they took

> one bite of dessert, and that was all. Or, heaven

> forbid, they didn't order dessert because they were

> full...or they had elected a fattening entree. I

> heard things (for the first time, because i hadn't

> paid close attention before), " hmmm...I think I'm

> going to get a salad, because I'm wanting to have a

> dessert tonight. " I noticed that they didn't scarf

> down all of the bread. I noticed that if they did

> eat a lot, they made a commitment to eat less the

> next few days, and they exercised an extra amount.

>

> I hear people say post surgery that after the

> initial honeymoon is over, they feel like they have

> to diet every day of their lives. I think that's

> not a very good way to look at it, because it makes

> you feel resentful and deprived. The reality is

> that post honeymoon period...you are NORMAL. And as

> a normal person, without as much of an advantage

> because maybe your tummy has healed up a bit, and

> has stretched a bit...and maybe your intestines have

> healed and are absorbing more calories..., you need

> to watch what you eat. Everybody does. EVERYBODY

> DOES>

>

> I used to think that relatively thin people were

> just showing off and trying to make me feel bad when

> they talked about feeling bloated, or needing to run

> 5 miles...or whatever.

>

> But now I am a thin person, and I know what they

> are saying. When you wear a size 8, you only need

> to gain 3 or 4 lbs, and you might be wearing a 10.

> Thus, if you overeat for a day or two...you are

> really uncomfortable. It's easier to monitor your

> weight in terms or 1 or 2 or 3 lbs., rather than

> waiting until you are struggling with 10 lbs or more

> to lose.

>

> And so, after I eat too much...I realize I need to

> modify my behaviour for a bit. More exercise. More

> water. More protein. More vitamins.

>

> Just like a normal person.

>

> But, it took me some good, reflective time during

> my pre-surgery weightloss for me to really GET that.

>

>

> And so now, I don't feel upset about this

> " dieting " . I don't think of it as a diet. It's

> just my life. It's the way I keep my weight under

> control. Just like all of the thin chicks in the

> Marina who are out walking or running every a.m.

>

> So...relish this time pre-surgery. Use it to find

> equilibrium...to make a plan...to come to peace with

> yourself. It will prepare you for the rest of the

> journey. And maybe, just maybe...when you feel that

> your path is taking a different direction than

> someone at one of the other Kaiser's, or not at

> Kiaser at all, you will breathe deeply and realize

> that this is YOUR path, and YOUR path only...and

> maybe, this is exactly the direction you need to be

> taking at this point.

>

> Food for thought.

>

> Robynn

> 5'6 "

> Surgery date 6/8/05

> Highest weight: 261.5

> Pre-surgery: 235.5

> Current: 155 (been there since January. Happy to

> stay here, but wouldn't mind losing another 10 or 15

> lbs.)

> Size: 8

> Age: 42

>

> jackpoint_94401 wrote:

>

> > I'm grateful that I got someone nice who explained

> it well, just

> wish

> > Kaiser could stay consistant and have the process

> for everyone be

>

=== message truncated ===

__________________________________________________

[Guest guest]

HI EVERYONE JUST A LITTLE UPDATE, I HAVE BEEN APPROVED FOR IVIG INFUSIONS! THIS

IS FOR THE SMALL FIBER NEUROPATHY. PROB HAVE TO HAVE PORT IN CHEST PUT IN AGAIN

SINCE IT TURNED ON ITS SIDE! FOUND A LUMP UNDER BREAST THAT NEEDS SONO AND MAMMO

TOMORROW! WISH ME LUCK ! I HOPE AND PRAY THAT EVERYONE IS FEELING GOOD THESE

DAYS! I AM GOOD ONE DAY , DOWN ON COUCH THE NEXT TWO! THIS SFN IS WHAT IS GIVING

ME ALL THE TROUBLE NOW! SARC IS QUIET, WELL IT CAN STAY THAT WAY!!!!!!!!

[Guest guest]

Congratulations and good luck.

To: Neurosarcoidosis From: beautybarnweber@...Date: Wed, 14 Apr 2010 17:38:05 +0000Subject: FINALLY!

HI EVERYONE JUST A LITTLE UPDATE, I HAVE BEEN APPROVED FOR IVIG INFUSIONS! THIS IS FOR THE SMALL FIBER NEUROPATHY. PROB HAVE TO HAVE PORT IN CHEST PUT IN AGAIN SINCE IT TURNED ON ITS SIDE! FOUND A LUMP UNDER BREAST THAT NEEDS SONO AND MAMMO TOMORROW! WISH ME LUCK ! I HOPE AND PRAY THAT EVERYONE IS FEELING GOOD THESE DAYS! I AM GOOD ONE DAY , DOWN ON COUCH THE NEXT TWO! THIS SFN IS WHAT IS GIVING ME ALL THE TROUBLE NOW! SARC IS QUIET, WELL IT CAN STAY THAT WAY!!!!!!!!

[Guest guest]

Good Luck and Prayers from Wisconsin.

Jackie

FINALLY!

> HI EVERYONE JUST A LITTLE UPDATE, I HAVE BEEN APPROVED FOR IVIG INFUSIONS!

> THIS IS FOR THE SMALL FIBER NEUROPATHY. PROB HAVE TO HAVE PORT IN CHEST

> PUT IN AGAIN SINCE IT TURNED ON ITS SIDE! FOUND A LUMP UNDER BREAST THAT

> NEEDS SONO AND MAMMO TOMORROW! WISH ME LUCK ! I HOPE AND PRAY THAT

> EVERYONE IS FEELING GOOD THESE DAYS! I AM GOOD ONE DAY , DOWN ON COUCH THE

> NEXT TWO! THIS SFN IS WHAT IS GIVING ME ALL THE TROUBLE NOW! SARC IS

> QUIET, WELL IT CAN STAY THAT WAY!!!!!!!!

>

>

>

> ------------------------------------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

>

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

Will be keeping you in my prayers......good luck on that lump!

Hugs,

Darlene

NS Co-Owner/Moderator

FINALLY!

> HI EVERYONE JUST A LITTLE UPDATE, I HAVE BEEN APPROVED FOR IVIG INFUSIONS!

> THIS IS FOR THE SMALL FIBER NEUROPATHY. PROB HAVE TO HAVE PORT IN CHEST

> PUT IN AGAIN SINCE IT TURNED ON ITS SIDE! FOUND A LUMP UNDER BREAST THAT

> NEEDS SONO AND MAMMO TOMORROW! WISH ME LUCK ! I HOPE AND PRAY THAT

> EVERYONE IS FEELING GOOD THESE DAYS! I AM GOOD ONE DAY , DOWN ON COUCH THE

> NEXT TWO! THIS SFN IS WHAT IS GIVING ME ALL THE TROUBLE NOW! SARC IS

> QUIET, WELL IT CAN STAY THAT WAY!!!!!!!!

>

>

>

> ------------------------------------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

>

>

> Message Archives:-

> http://groups.yahoo.com/group/Neurosarcoidosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups.yahoo.com/group/Neurosarcoidosis/database

>

>

[Guest guest]

I will keep you in my prayers that all goes well.MattSubject: Re: FINALLY!To: Neurosarcoidosis Date: Wednesday, April 14, 2010, 5:11 PM

Good Luck and Prayers from Wisconsin.

Jackie

FINALLY!

> HI EVERYONE JUST A LITTLE UPDATE, I HAVE BEEN APPROVED FOR IVIG INFUSIONS!

> THIS IS FOR THE SMALL FIBER NEUROPATHY. PROB HAVE TO HAVE PORT IN CHEST

> PUT IN AGAIN SINCE IT TURNED ON ITS SIDE! FOUND A LUMP UNDER BREAST THAT

> NEEDS SONO AND MAMMO TOMORROW! WISH ME LUCK ! I HOPE AND PRAY THAT

> EVERYONE IS FEELING GOOD THESE DAYS! I AM GOOD ONE DAY , DOWN ON COUCH THE

> NEXT TWO! THIS SFN IS WHAT IS GIVING ME ALL THE TROUBLE NOW! SARC IS

> QUIET, WELL IT CAN STAY THAT WAY!!!!!!!!

>

>

>

> ------------ --------- --------- ------

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

>

>

> Message Archives:-

> http://groups. yahoo.com/ group/Neurosarco idosis/messages

>

> Members Database:-

> Listings of locations, phone numbers, and instant messengers.

> http://groups. yahoo.com/ group/Neurosarco idosis/database

>

>