Re: Anyone using a special Doctor? ie. Cranial facial?

[Guest guest]

We were first referred to a neurosurgeon who ordered a CT scan to

rule out cranio. Once cranio was ruled out, he said my son wouldn't

need a helmet and sent us on our way. A year later, I decided to go

to a craniofacial surgeon for another opinion and he wrote the

script for the band. My son does have some plagio caused by inutero

constriction, he has a dent/slope on the left side above his

forehead. But the rest of it was caused by the torticollis he had.

The cranial surgeon saw us for a 3 month follow up a few weeks back

and said that the dent part of the plagio was " just the way he was

born " and it may or may not round out as he gets older. It has not

changed since he started wearing the band 4 months ago, and the

therapist at CT also said that it won't be corrected by the band,

but may round out as he gets older and the skull becomes thicker.

Which CT do you go to? I'm having a hard time understanding what

kind of movement you are referring to. Do you mean something

different from her head rounding out from the band?

Jake-20m (tort resolved/rt plagio/DOCband 15 weeks)

Jordan-4

>

> My daughter is 5 1/2 months old. She is scaphy/in utero. She has

a DOC

> band and it will be two weeks tomorrow.

>

> We have had a 3d cat scan to make sure she's not fused and the

> neurosurgeon was not much help after that. Her head is quite

misshapen.

>

> At her casting, the clinic lady, don't remember their title was

feeling

> 's head and asked if she had been seen by a doctor, she had

> never felt another head like hers.

>

> Last week I had her feel her head again. I had felt some changes

> before the band had gone on. She agreed that things have moved.

Not

> that this is a bad thing, just movement.

>

> So, we have an appointment with a cranial facial doctor for June

17th.

>

> So why am I blathering on? Does anyone else have in utero

plagio?

> Severe plagio being followed by a specialist? And what kind of

> specialist?

>

>

> 5 1/2 months old

> almost 2 weeks in DOC band

>

[Guest guest]

,

We're using the CT in Paramus NJ. They have been fantastic! We went

today - 2 weeks in and already see improvement! I know I've read that

it's possible, I just can't believe it with my own eyes!

The movement I'm talking about is her back " triangle " plate,where the

three are meeting. There is a more prominant " ridge " forming an upward

arrow. I don't know the medical terms for all of it.

Guess we'll have to wait for our cranialfacial appt.

R