Re: Anyone using a special Doctor? ie. Cranial facial?

[Guest guest]

With our insurance we had to see a specialist before we could get a

prescription for the band. We were referred to a plastic surgeon who wrote

the prescription and also ordered a CT scan to rule out cranio.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5

, 8.5

Anyone using a special Doctor? ie. Cranial facial?

My daughter is 5 1/2 months old. She is scaphy/in utero. She has a DOC

band and it will be two weeks tomorrow.

We have had a 3d cat scan to make sure she's not fused and the

neurosurgeon was not much help after that. Her head is quite misshapen.

At her casting, the clinic lady, don't remember their title was feeling

's head and asked if she had been seen by a doctor, she had

never felt another head like hers.

Last week I had her feel her head again. I had felt some changes

before the band had gone on. She agreed that things have moved. Not

that this is a bad thing, just movement.

So, we have an appointment with a cranial facial doctor for June 17th.

So why am I blathering on? Does anyone else have in utero plagio?

Severe plagio being followed by a specialist? And what kind of

specialist?

5 1/2 months old

almost 2 weeks in DOC band

------------------------------------

For more plagio info

[Guest guest]

Same here in TN. Ped had CT done. Then referred to plastic surgeon

who sent us to orthotist.

>

> With our insurance we had to see a specialist before we could get a

> prescription for the band. We were referred to a plastic surgeon

who wrote

> the prescription and also ordered a CT scan to rule out cranio.

>

> Molly

> Novato, California

> Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-

9/12/06,

> Graduate!

> , 5

> , 8.5

>

> Anyone using a special Doctor? ie. Cranial

facial?

>

> My daughter is 5 1/2 months old. She is scaphy/in utero. She has

a DOC

> band and it will be two weeks tomorrow.

>

> We have had a 3d cat scan to make sure she's not fused and the

> neurosurgeon was not much help after that. Her head is quite

misshapen.

>

> At her casting, the clinic lady, don't remember their title was

feeling

> 's head and asked if she had been seen by a doctor, she had

> never felt another head like hers.

>

> Last week I had her feel her head again. I had felt some changes

> before the band had gone on. She agreed that things have moved.

Not

> that this is a bad thing, just movement.

>

> So, we have an appointment with a cranial facial doctor for June

17th.

>

> So why am I blathering on? Does anyone else have in utero

plagio?

> Severe plagio being followed by a specialist? And what kind of

> specialist?

>

>

> 5 1/2 months old

> almost 2 weeks in DOC band

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

My daughter sees a craniofacial doc at Seattle Children's Hospital. She has congenital plagio and is closely followed for possible early fusion. Our cranio doc works closely with plastic surgeons.Good luck finding some answers.

Norah, 5/20 (Hangar helmet since 2/08)

[Guest guest]

My dd's plagio was caused in utero. We did see a craniofacial team. Is the dr you are seeing a genetisist? If there are any genetic things going on, that can be a help.

Let us know what the drs say!

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

Anyone using a special Doctor? ie. Cranial facial?

My daughter is 5 1/2 months old. She is scaphy/in utero. She has a DOC

band and it will be two weeks tomorrow.

We have had a 3d cat scan to make sure she's not fused and the

neurosurgeon was not much help after that. Her head is quite misshapen.

At her casting, the clinic lady, don't remember their title was feeling

's head and asked if she had been seen by a doctor, she had

never felt another head like hers.

Last week I had her feel her head again. I had felt some changes

before the band had gone on. She agreed that things have moved. Not

that this is a bad thing, just movement.

So, we have an appointment with a cranial facial doctor for June 17th.

So why am I blathering on? Does anyone else have in utero plagio?

Severe plagio being followed by a specialist? And what kind of

specialist?

5 1/2 months old

almost 2 weeks in DOC band

Stay informed, get connected and more with AOL on your phone.