Re: New.....with some questions

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My daughter was diagnosed with positional plagiocephaly at her 4 months visit and the doctor didn't specify how to reposition her. So we kept guessing and didn't get anywhere. The situation just got worse. At around 6 months, I took my daughter to Scope and CT and they told how the helmet works and showed us her high points and low points. They showed us how the head looks like a parallelogram. So, the low points were "right back" and "left front" and we had to keep her off both these points which we didn't know till then. Based on the input from the ortho we repositioned her on her high points. They also recommended that I should take my daughter for physical therapy cause she had a preference to use only the flat side. At 9 months I took her again and her measurements had come down from 7.3 cranial symmetry to 5.7 cranial symmetry where 6 is considered normal. So, either the repositioning or the therapy helped. The evaluations helped

us a lot.. We got the correct picture of her plagio.Good luck,amyly2n <Amyly2n@...> wrote: Ok, I have a 18 week old daughter, Alice. At 2 months, we were told the right side of her head is slightly flat, make sure she sleeps on the other side and does tummy time. We did that. Monday was her 4 month check up, but the week prior, I had noticed some ridging along her coronal suture. I brought this up in our check up appt. Monday was our check up, the ped. said it could be plagiocephally or

craniosynostosis. He sent us for x-rays on Tuesday. He called back yesterdray and said that the x-ray showed no fusion of the sutures, but also said that craniosynostosis doesn't always show up in x- rays. He told us to keep her off of the right side of her head (the slightly flat side) and do lots of tummy time. He said we will take a look at her head in 2 months and then see what is happening. When I got home from work yesterday, I noticed that she does absolutely nothing on the right side... she hardly ever lays down on her back to play, if she does, she immediately flips over. Mainly, if she isn't doing tummy time, she is in an excersaucer, bumbo or jumperoo type thing to save her from getting trampled by her 20 month old brother. I even feed her with pressure on her left side. I also have woken up for the past 2 nights since we heard the plagiocephally term 5 or 6 times a night to check what

she is sleeping on. She is always on her left side (not just with her head to the left, completely on her left side). I called the nurse today to get some further instructions on how to fix her head if she doesn't really spend time on the side that is flat. She told me to let her do tummy time and keep her from sleeping/laying on that side of her head. Needless to say, I am about to pull my hair out. I want to fix my baby's head, but I am not getting any help. Her forehead and ears are already asymetrical and I can only see them getting worse if I don't know how to help reposition her. I need ideas! Maybe, I need to know whether or not to push this further with the ped. When I talked to the nurse today she gave me the impression that they weren't ruling out craniosynostosis yet, they just thought it less likely because of the x-ray. I just don't know how to fix my baby!

I have heard with either plagio or cranio that the earlier you catch and try to fix them, the better.... I just feel like I need to do something and the pediatrician's office just isn't helping me. Any ideas? Thanks in advance for your help.... any more info that you need, let me know.