Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 ALL anyone needs to know, to be safe, year round, is to take LDN After 10PM and before 3AM... Does it really matter why water quenches our thirst? we still drink it when we're thirsty. I think from now on, nobody should try to explain anything. LDN works for me, LDN works for a great majority. Of course, a great majority in this group are going to think you're full-of-Juice, but that's beside the point. My new attitude going forward will be, Take LDN at your own Risk, it works for me, if it works for you, GFY; if not, GFY, and Have a Nice Day. [low dose naltrexone] When to take LDN-SKIP?? Geeez! I am REALLY confused now and I have been on this site for over a year! I can only imagine what the new people must think....For the record Skip PLEASE set it straight what is the actual theory of taking LDN between 9pm and 2am as now I am utterly confused because of the time change 10pm-3am. I have read it is your BODIES rhythm of your sleep cycle yet then the theory to still take it 9pm-2am even if you work the night shift is blown?? Now you have telling everyone it has to do with the planets? And she is also saying if YOU DO NOT take it according to the new time change LDN is out of your system by 2am and therefore IS NOT WORKING at all??? What gives? I am almost ready to give up LDN because nobody can seem to get it straight and according to the almighty it must not be working for me because A- I have yeast in my system B- I am not on the proper diet and now C- because it is out of my system by 2am therefore not working anyhow!!!! Yeah I am feeling a little cranky, this webgroup is starting to sound a little loopy and I can only say it is not good review for new people! By the way seeing as I do have MS I sometimes am in bed by 8pm so I guess I just shouldn't take it all then at the time because LDN is sooo smart I cannot fool it by not taking it at the exact proper time! There have been studies taken in the morning and although not as substantial as taking it at "night" it is still proven to DO SOMETHING so please stop discouraging by telling people things that in YOUR OPINION makes LDN not beneficial to each and EVERY individual.<stepping off my soapbox> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 according to the almighty it must not be working > for me because A- I have yeast in my system B- I am not on the proper > diet and now C- because it is out of my system by 2am therefore not > working anyhow!!!! please stop discouraging by telling > people things that in YOUR OPINION makes LDN not beneficial to each > and EVERY individual.<stepping off my soapbox> > ========== Let's get one thing straight. I only make suggestions for people to try if their LDN is not working. Now, I've never told anyone for a fact that they have yeast or lyme, etc, all I ever give are suggestions. You came in here asking for advice I suppose, I must have given you some possibilities to look at. If you don't want suggestions as to what might be causing your LDN to perform poperly, then don't come in here asking for help because you will get many suggestions from me and others. From now on I'll remember your name and if you need further suggestions on why your LDN is not performing up to par, you won't be getting them from me. My mom and I did a 90 minute phone consultation with Dr. Bihari and I have spoken to him on other occasions before his fall. Isn't it strange that 3 people on this forum which are me, and Larry all say the same thing that Dr. Bihari told all 3 of us. Larry is from New York, is in California and I am in Arkansas, all 3 on different time zones. Read what Larry is saying. Larry's success with LDN is the reason I started LDN and we've both been doing great on LDN for over 3 years and getting very near 4 years. We also do other things to compliment what LDN has done. Try setting an alarm clock for 10:15pm if you go to sleep at 8pm and take your LDN at 10:15pm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 > > ALL anyone needs to know, to be safe, year round, is to take LDN After 10PM and before 3AM... > > Does it really matter why water quenches our thirst? we still drink it when we're thirsty. > > I think from now on, nobody should try to explain anything. > > LDN works for me, LDN works for a great majority. > > Of course, a great majority in this group are going to think you're full-of-Juice, but that's beside the point. > > > My new attitude going forward will be, Take LDN at your own Risk, it works for me, if it works for you, GFY; if not, GFY, and Have a Nice Day. =========== When you go to another country, you are to switch to that country's time zone to take your LDN, you may have to skip a dose of LDN to keep from taking it twice in a 24 hour period. If you are traveling from the USA to Australia, you take your LDN between 9pm and 3 am Australian time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 This group can also do without cranky emails! Any advice you got here was free, & freely given. That doesn’t give you any rights to be so critical. And like everybody else you have to take your own personal responsibility for what you decide to do or not to do. Tommy From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of michelline_stewart Sent: 30 March 2007 11:54 To: low dose naltrexone Subject: [low dose naltrexone] When to take LDN-SKIP?? Yeah I am feeling a little cranky, this webgroup is starting to sound a little loopy and I can only say it is not good review for new people! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 TOMMY I would have to disagree with you. You are correct that advice was free and freely given but if the advice is erroneous or incorrect then someone should point it out. I have been on the group for about 2 weeks and have mostly been reading the many posts. During that time I would swear that most people on here must be medical professionals based on the advice they give out and instructions they give to others (no offense intended to any particular person). I take responsibility for what I decide to do but others may not based on their own circumstances and the diseases they are fighting. PeeblesAtlanta, GAemail: isiinc@... RE: [low dose naltrexone] When to take LDN-SKIP?? This group can also do without cranky emails! Any advice you got here was free, & freely given. That doesn’t give you any rights to be so critical. And like everybody else you have to take your own personal responsibility for what you decide to do or not to do. Tommy From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of michelline_stewartSent: 30 March 2007 11:54low dose naltrexone Subject: [low dose naltrexone] When to take LDN-SKIP?? Yeah I am feeling a little cranky, this webgroup is starting to sound a little loopy and I can only say it is not good review for new people! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Honestly I did not mean to be sooo cranky but I really do read into giving a lot of reasons why LDN does not work, I realize it is advice but nothing on the LDN page says it won't work if you don't do this and that, I feel it is giving the wrong impression..I have NO problem with LDN and I have been on it for 2 years...I am happy about LDN and don't like reading discouraging posts that some people may take wrong or be wary of..........and for the record Larry I am not Juice...could I make up a name like mine? and you can verify it with Skip because I get my prescription through him. > > This group can also do without cranky emails! > > Any advice you got here was free, & freely given. That doesn't give you any > rights to be so critical. > > And like everybody else you have to take your own personal responsibility > for what you decide to do or not to do. > > Tommy > > > > _____ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of michelline_stewart > Sent: 30 March 2007 11:54 > low dose naltrexone > Subject: [low dose naltrexone] When to take LDN-SKIP?? > > > > Yeah I am feeling a little cranky, this webgroup > is starting to sound a little loopy and I can only say it is not good > review for new people! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 thank you ...AMEN > > TOMMY > > I would have to disagree with you. You are correct that advice was free and freely given but if the advice is erroneous or incorrect then someone should point it out. I have been on the group for about 2 weeks and have mostly been reading the many posts. During that time I would swear that most people on here must be medical professionals based on the advice they give out and instructions they give to others (no offense intended to any particular person). > > I take responsibility for what I decide to do but others may not based on their own circumstances and the diseases they are fighting. > > > Peebles > Atlanta, GA > > email: isiinc@... > > [low dose naltrexone] When to take LDN-SKIP?? > > > > Yeah I am feeling a little cranky, this webgroup > is starting to sound a little loopy and I can only say it is not good > review for new people! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Due to HIPPA , Skip or any other pharmacist or doctor or EMS crew can't dispense that type of info, so people, don't bombard Skip with questions that he can't answer! Marcie michelline_stewart <hairstylst73@...> wrote: Honestly I did not mean to be sooo cranky but I really do read into giving a lot of reasons why LDN does not work, I realize it is advice but nothing on the LDN page says it won't work if you don't do this and that, I feel it is giving the wrong impression..I have NO problem with LDN and I have been on it for 2 years...I am happy about LDN and don't like reading discouraging posts that some people may take wrong or be wary of..........and for the record Larry I am not Juice...could I make up a name like mine? and you can verify it with Skip because I get my prescription through him. >> This group can also do without cranky emails!> > Any advice you got here was free, & freely given. That doesn't give you any> rights to be so critical.> > And like everybody else you have to take your own personal responsibility> for what you decide to do or not to do.> > Tommy> > > > _____ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of michelline_stewart> Sent: 30 March 2007 11:54> low dose naltrexone > Subject: [low dose naltrexone] When to take LDN-SKIP??> > > > Yeah I am feeling a little cranky, this webgroup > is starting to sound a little loopy and I can only say it is not good > review for new people!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 > > Honestly I did not mean to be sooo cranky but I really do read into > giving a lot of reasons why LDN does not work, I realize it is > advice but nothing on the LDN page says it won't work if you don't do > this and that, I feel it is giving the wrong impression..I have NO > problem with LDN and I have been on it for 2 years...I am happy about > LDN and don't like reading discouraging posts that some people may > take wrong or be wary of..........and for the record Larry I am not > Juice...could I make up a name like mine? and you can verify it with > Skip because I get my prescription through him. > > ============== Why only cover half your bases. I prefer to cover all the bases and be on the safe side and hope that I didn't miss something of vital importance. EXAMPLE: Now I live in Twister Alley, am I going to get in the storm cellar and stand there holding the door open as the tornado approaches, HECK NO, I'm going to close that door and chain it down to be on the safe side. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Right. So no more posts from me, even with my JMHO, OC, YMMV disclaimers. I should just walk away and go enjoy my new found freedom and health. Bye all... I'm going to join Captain Caveman in his cave, maybe we'll have some flush free niacin, echenacia, and camomile tea. LOL Re: [low dose naltrexone] When to take LDN-SKIP?? TOMMY I would have to disagree with you. You are correct that advice was free and freely given but if the advice is erroneous or incorrect then someone should point it out. I have been on the group for about 2 weeks and have mostly been reading the many posts. During that time I would swear that most people on here must be medical professionals based on the advice they give out and instructions they give to others (no offense intended to any particular person). I take responsibility for what I decide to do but others may not based on their own circumstances and the diseases they are fighting. PeeblesAtlanta, GAemail: isiinc@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 , I am not sure what you disagree with, as I too believe that if someone has information or an opinion that is contrary to what someone else has offered, then s/he should put forward that information or opinion. However in my opinion it is not acceptable to make a personal attack or to be unnecessarily sharp in responding. Michelline, I am sorry if I offended you, as that was not my attention. You yourself recognised that you were being cranky on this occasion, & I have no problem in accepting that any of us can have a bad day. My exclamation mark was intended to take the sting out of my response, and the word “so” in front of criticism was to indicate that there is a line between acceptable criticism, and that which is unacceptable. Perhaps I expected that 3 small characters could communicate far more than is possible ! (i.e. !, s, o) The problem is that when someone goes a little over the top, someone like me, makes a response, someone like adds a little, & the matter can get out of hand, and we all end up doing what we are criticising someone else for. More important though is the point that this kind of bickering is a disincentive to people who are doing their best to help, and will discourage others from joining in. , the point you make, that some people may act on advice without recognising the need to check what they read and accept personal responsibility, is a valid one. It would be a bit unwieldy for everyone who gives advice, to include a disclaimer. However perhaps such a disclaimer could be displayed prominently on the website, and included automatically in each email. Is this something that should take on board? , I should mention that in one point you made, you included the phrase “advice is erroneous or incorrect”; and in another point you included the phrase “must be medical professionals” in a disparaging way. Some people will read this as meaning that erroneous advice is being given, and that some people are falsely passing themselves off as medical professionals. I know this is not what you attended, but when you write to an audience of over 3000 people, there will be many different interpretations. Also I think it is unfair to make the comment in a general way, and expect that no particular person will be offended. If you do in fact think that someone has given erroneous advice, or given the advice in a way that suggests that that person is a medical professional, then I think you should be specific in your response. Finally can I say to those of you (Bren & Larry on this occasion, but many more of you as well), who try so hard to help, do not to be put off by the detractors. I have no mandate to speak for anyone but myself, but I feel sure that the majority of the 3000 plus members of this forum appreciate what you are doing. I don’t intend to waste the members’ time in responding to any further responses, so if anyone wants a response from me please send an email to me privately. Tommy From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of isiinc@... Sent: 30 March 2007 14:49 low dose naltrexone Subject: Re: [low dose naltrexone] When to take LDN-SKIP?? TOMMY I would have to disagree with you. You are correct that advice was free and freely given but if the advice is erroneous or incorrect then someone should point it out. I have been on the group for about 2 weeks and have mostly been reading the many posts. During that time I would swear that most people on here must be medical professionals based on the advice they give out and instructions they give to others (no offense intended to any particular person). I take responsibility for what I decide to do but others may not based on their own circumstances and the diseases they are fighting. Peebles Atlanta, GA email: isiincbellsouth (DOT) net [low dose naltrexone] When to take LDN-SKIP?? Yeah I am feeling a little cranky, this webgroup is starting to sound a little loopy and I can only say it is not good review for new people! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 It's amazing how many people leave their brains at the door when they join this group and can't follow instructions to unsubscribe, expecting instead someone else to do it for them....... :-( I've been on groups like this for close to 10 years (prior to groups' existence), including as a moderator, and virtually can't remember anybody in other groups expecting other people to look after their unsubscribing for them. I know the mail link given to unsubscribe is not 100% reliable but people can always go to their membership page to unsubscribe. Marcie wrote: > YOU have to unsubscribe at the bottom of the e-mail. See the > settings?? Just replying to every e-mail won't get you off of the > e-mail list. > > Marcie > > > */EPSaraLV@.../* wrote: > > Please Please take my name off your e-mail. Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 or just turn off the emails, or change to Special Notices: AS THEY ARE TOLD TO DO, IN THE WELCOME EMAIL, NO???????? You're right though. I'm in 5 or 6 PAGES of . Many are Special Notice, but I still get about 10 groups or so a day, of the 20 or so I have emails turned on, some are quite dead. But in NONE of them have I EVER seen anyone ask to unsubscribe them, or even say they were going to, they just seem to disappear. What makes this group any different? If the servers queue up people's request, like at most doctor's offices, First In, First Out, when someone unsubscribes they may be the 950,000th request of an Edit Membership in any of the billion groups has..... so if any emails are sent through THIS group between the time THEY requested to Unsubscribe, and processes their request, they may get some emails... If there's a problem, why aren't they email ???? Why other MEMBERS of this group who have NOTHING to do with the actual group? We got here the same way they did, and would leave the same way too. What REALLY puzzles me though is, ONE person asks the other 3000 of us to remove him, and then 2,3,4,5,10 OTHERS ask also. WTF is up with that? Maybe there are people who join this group as their First experience? Is that possible? I would think most people who sign up for this group are already in one of the growing number of other groups. Everyone and their cousin has a group nowadays. Re: [low dose naltrexone] When to take LDN-SKIP?? It's amazing how many people leave their brains at the door when they join this group and can't follow instructions to unsubscribe, expecting instead someone else to do it for them....... :-( I've been on groups like this for close to 10 years (prior to groups' existence), including as a moderator, and virtually can't remember anybody in other groups expecting other people to look after their unsubscribing for them. I know the mail link given to unsubscribe is not 100% reliable but people can always go to their membership page to unsubscribe.Marcie wrote:> YOU have to unsubscribe at the bottom of the e-mail. See the > settings?? Just replying to every e-mail won't get you off of the > e-mail list.> > Marcie>>> */EPSaraLV@.../* wrote:>> Please Please take my name off your e-mail. Thank you> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007  If I could inject just a few things. 1. Some people respond to ldn very quickly , some it takes a few weeks and some it takes months. When I interviewed Dr Crowly he talked in length about how steroids and LDN were not a good combination. I'm not telling anyone not to take them if they need -I'm just saying things might take a little longer. One thing I encourage everyone to do is to keep a short diary of their symptoms before they start and then as they go on. Sometimes things are very subtle but even these can be positive changes.2. Many if you have absorptions problems and most of your immune system is connected to your stomach. There are a few simple things you can do to put that in order before you turn your life upside down. You can email me off list and I'm more than happy to answer your questions.3. For new people I would highly recommend you read 1.the low dose naltrexone webpage at www.low dose naltrexone.org, read Boyle Bradley's "Up the Creek with a Paddle" We have it at the pharmacy or you can buy it online. You can see her interview here.http://skipspharmacy.com/movie.phpCyndi___________________________ You came in here asking for advice I suppose, I must have given you some possibilities to look at. If you don't want suggestions as to what might be causing your LDN to perform poperly, then don't come in here asking for help because you will get many suggestions from me and others.From now on I'll remember your name and if you need further suggestions on why your LDN is not performing up to par, you won't be getting them from me.My mom and I did a 90 minute phone consultation with Dr. Bihari and I have spoken to him on other occasions before his fall. Isn't it strange that 3 people on this forum which are me, and Larry all say the same thing that Dr. Bihari told all 3 of us.Larry is from New York, is in California and I am in Arkansas, all 3 on different time zones. Read what Larry is saying. Larry's success with LDN is the reason I started LDN and we've both been doing great on LDN for over 3 years and getting very near 4 years. We also do other things to compliment what LDN has done. Try setting an alarm clock for 10:15pm if you go to sleep at 8pm and take your LDN at 10:15pm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Cyndi, I just tried again to watch the videos on the skips pharmacy website. I never have any luck....first it will tell me to download Quicktime...I do...nothing happens. Then I get a pop-up about Ativex ?...I click it....it says done....nothing happens. I end up with a page about dog care??? This has always been the case whenever I have have tried to watch the videos. This is the only site where I have ever had a problem....I can watch all other clips, videos anywhere else??? Any idea what the problem is??? thanks, nancy > > If I could inject just a few things. > 1. Some people respond to ldn very quickly , some it takes a few > weeks and some it takes months. When I interviewed Dr Crowly he > talked in length about how steroids and LDN were not a good > combination. I'm not telling anyone not to take them if they need - > I'm just saying things might take a little longer. One thing I > encourage everyone to do is to keep a short diary of their symptoms > before they start and then as they go on. Sometimes things are very > subtle but even these can be positive changes. > 2. Many if you have absorptions problems and most of your immune > system is connected to your stomach. There are a few simple things > you can do to put that in order before you turn your life upside > down. You can email me off list and I'm more than happy to answer > your questions. > 3. For new people I would highly recommend you read 1.the low dose > naltrexone webpage at www.low dose naltrexone.org, read Boyle > Bradley's " Up the Creek with a Paddle " We have it at the pharmacy or > you can buy it online. You can see her interview here. > http://skipspharmacy.com/movie.php > Cyndi > > > > > > ___________________________ > > You came in here asking for advice I suppose, I must > > have given you some possibilities to look at. If you don't want > > suggestions as to what might be causing your LDN to perform poperly, > > then don't come in here asking for help because you will get many > > suggestions from me and others. > > > > From now on I'll remember your name and if you need further > > suggestions on why your LDN is not performing up to par, you won't be > > getting them from me. > > > > My mom and I did a 90 minute phone consultation with Dr. Bihari and I > > have spoken to him on other occasions before his fall. Isn't it > > strange that 3 people on this forum which are me, and Larry all > > say the same thing that Dr. Bihari told all 3 of us. > > > > Larry is from New York, is in California and I am in Arkansas, > > all 3 on different time zones. Read what Larry is saying. Larry's > > success with LDN is the reason I started LDN and we've both been doing > > great on LDN for over 3 years and getting very near 4 years. We also > > do other things to compliment what LDN has done. Try setting an alarm > > clock for 10:15pm if you go to sleep at 8pm and take your LDN at > > 10:15pm. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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