RE: [SPAM]Re: Pediatrician and Neuro surgeon are not ready to give prescription for Helmet - IRVINE

[Guest guest]

I would call the CT office in Pasadena or San Diego and see if

they can recommend to you a band friendly pediatrician/plastic surgeon/neurosurgeon

in your area.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 5.5

, 8.5

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of Chanda Mama

Sent: 12 August 2008 09:29

Plagiocephaly

Subject: [sPAM]Re: Pediatrician and Neuro surgeon are not ready

to give prescription for Helmet

Hi Sandy

Thanks for understanding. My pediatrician has a good name. That is why

I have second thoughts about changing her. But I am so desperate to get a

helmet for my son . I don't want to get it delayed because of what the

doctors believe in. I am going to talk with the neuro surgeon again

tomorrow.

We live in Irvine, california. And I think there is a cranial tech in San

Deigo which is abt 2 hrs drive for us. One thing we are really concerned

about is since the time my baby got diagnosed with flat head, we dont dare to

put him on the floor . As soon as I put him on the floor, he is lying on his

flat head . So through out the day I try to hold him as much as possible. I

think thats why my baby is neither rolling over ( he does once in a

while), nor crawling .

Do any of you guys know a pediatrician who has prescribed for helmets in past

? Pls help.

Thanks

From: Sandy Ruff

<sandysruff@...>

Subject: Re: Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Plagiocephaly

Date: Wednesday, August 13, 2008, 3:39 AM

I am so sorry! What city are you in? If you

are close to a Cranial Technologies, I would suggest going for a free

evaluation. They will provide a photo study and measurements you can

give to both your neuro and ped. Perhaps the numbers and photos would

convince them to provide the referral. If not, I would ask Cranial Tech

(or whatever clinic you are close to - Star, Hanger, etc) for a list of a few

pediatricians in your area who have made previous referrals - and then I

would SWITCH!

You are doing the right thing by being a strong advocate for your

child. It sounds as though you have a couple of " old school "

doctors who believe the head will round itself out on its own. I

believe this may have been true twenty years ago when babies slept on their

tummies most of the time, but I sadly hear case after case of parents who

were told it would remedy itself - and then it didn't. Just tonight we

were in a restaurant and a family stopped us to say they were happy we had

our baby in a band - because they listened to their pediatrician and now it's

too late to correct their son's flat head.

Please list your city and perhaps someone else on this board can refer you to

their pediatrician so you can get the referral you need.

Kindly,

Sandy

mom to Lyla - 8 months (10 weeks in DocBand)

and Owen 4

Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Hi

My 6 1/2 month son has very bad flat head on his back and also has

some flatness on his right side. We noticed it when he was 2 months

old. Our pediatrician asked me to do aggressive repositioning . At

that time, I was completely ignorant of this flat head problem and

could not do aggressive repositioning. But I made sure he was not on

his back in the day time. My baby started sleeping through the nights

from his second month itself and this increased his flat head a lot.

At his 4th month check up, the pediatrician referred him to a neuro

surgeon. The neuro surgeon asked us to reposition the baby's head and

see if it changes anything . We have been repositioning him at night

times too. I have been making him sleep on his left side .

Now he is 61/2 months old and we don't see any significant change in

his head shape. He has severe flat head on the back and some flatness

on the right. So we asked the neuro surgeon to give prescription for a

helmet hoping that we will get our baby start on helmet ASAP and he

would have a nice round head in 3-4 months. To our surprise, the neuro

surgeon is not ready to put the baby on helmet. Moreover he says by

the time the baby goes to school, the flat head would be unnoticeable.

We are not convinced with it because he has severe flat head. So I

contacted my pediatrician hoping she will understand and give

prescription for helmet. But she said she would not do that and asked

me to contact the neuro surgeon again to see he if he will agree this

time. This is so frustrating .

I don't have any family here for support . I am really frustrated and

depressed. I want to do what ever I can do for my baby to help with

his flat head. Has any of you guys ever had such a situation? Any

advise would be very helpful.

Thanks

[Guest guest]

Okay. We talked to the neuro surgeon again today hoping he would get convinced. But he was upset and explained to us again that no one would notice the flatness by the time the baby goes to school. He said the ear alignment is absolutely fine( which we also agree) so we don't need to worry about the flatness. He said it would round out slowly. Told us just to reposition the head on left side 100% of the time so that the flatness on right side would improve. Just FYI, his cephalic ratio was 100.6 % when he was 4 months old and is 98.4 % right now . I think he has a assymentry value of 8mm. I don't remember the exact terminology but that was the biggest number I saw on the measurement sheet from Laser analysis we did lats month. What do you guys think about the numbers ?We do not have any more hopes from this neuro surgeon. So I asked CT , Pasadena to

give me a band friendly dr's contact number . Will post you with any updates. Thank you all for your valuable information and support. -Chanda From: Sandy Ruff

<sandysruff@...>

Subject: Re: Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Plagiocephaly

Date: Wednesday, August 13, 2008, 3:39 AM

I am so sorry! What city are you in? If you

are close to a Cranial Technologies, I would suggest going for a free

evaluation. They will provide a photo study and measurements you can

give to both your neuro and ped. Perhaps the numbers and photos would

convince them to provide the referral. If not, I would ask Cranial Tech

(or whatever clinic you are close to - Star, Hanger, etc) for a list of a few

pediatricians in your area who have made previous referrals - and then I

would SWITCH!

You are doing the right thing by being a strong advocate for your

child. It sounds as though you have a couple of "old school"

doctors who believe the head will round itself out on its own. I

believe this may have been true twenty years ago when babies slept on their

tummies most of the time, but I sadly hear case after case of parents who

were told it would remedy itself - and then it didn't. Just tonight we

were in a restaurant and a family stopped us to say they were happy we had

our baby in a band - because they listened to their pediatrician and now it's

too late to correct their son's flat head.

Please list your city and perhaps someone else on this board can refer you to

their pediatrician so you can get the referral you need.

Kindly,

Sandy

mom to Lyla - 8 months (10 weeks in DocBand)

and Owen 4

Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Hi

My 6 1/2 month son has very bad flat head on his back and also has

some flatness on his right side. We noticed it when he was 2 months

old. Our pediatrician asked me to do aggressive repositioning . At

that time, I was completely ignorant of this flat head problem and

could not do aggressive repositioning. But I made sure he was not on

his back in the day time. My baby started sleeping through the nights

from his second month itself and this increased his flat head a lot.

At his 4th month check up, the pediatrician referred him to a neuro

surgeon. The neuro surgeon asked us to reposition the baby's head and

see if it changes anything . We have been repositioning him at night

times too. I have been making him sleep on his left side .

Now he is 61/2 months old and we don't see any significant change in

his head shape. He has severe flat head on the back and some flatness

on the right. So we asked the neuro surgeon to give prescription for a

helmet hoping that we will get our baby start on helmet ASAP and he

would have a nice round head in 3-4 months. To our surprise, the neuro

surgeon is not ready to put the baby on helmet. Moreover he says by

the time the baby goes to school, the flat head would be unnoticeable.

We are not convinced with it because he has severe flat head. So I

contacted my pediatrician hoping she will understand and give

prescription for helmet. But she said she would not do that and asked

me to contact the neuro surgeon again to see he if he will agree this

time. This is so frustrating .

I don't have any family here for support . I am really frustrated and

depressed. I want to do what ever I can do for my baby to help with

his flat head. Has any of you guys ever had such a situation? Any

advise would be very helpful.

Thanks

[Guest guest]

Go to your family doctor. From: Sandy Ruff

<sandysruff (DOT) com>

Subject: Re: Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Plagiocephaly

Date: Wednesday, August 13, 2008, 3:39 AM

I am so sorry! What city are you in? If you

are close to a Cranial Technologies, I would suggest going for a free

evaluation. They will provide a photo study and measurements you can

give to both your neuro and ped. Perhaps the numbers and photos would

convince them to provide the referral. If not, I would ask Cranial Tech

(or whatever clinic you are close to - Star, Hanger, etc) for a list of a few

pediatricians in your area who have made previous referrals - and then I

would SWITCH!

You are doing the right thing by being a strong advocate for your

child. It sounds as though you have a couple of "old school"

doctors who believe the head will round itself out on its own. I

believe this may have been true twenty years ago when babies slept on their

tummies most of the time, but I sadly hear case after case of parents who

were told it would remedy itself - and then it didn't. Just tonight we

were in a restaurant and a family stopped us to say they were happy we had

our baby in a band - because they listened to their pediatrician and now it's

too late to correct their son's flat head.

Please list your city and perhaps someone else on this board can refer you to

their pediatrician so you can get the referral you need.

Kindly,

Sandy

mom to Lyla - 8 months (10 weeks in DocBand)

and Owen 4

Pediatrician and Neuro surgeon are not ready to give

prescription for Helmet

Hi

My 6 1/2 month son has very bad flat head on his back and also has

some flatness on his right side. We noticed it when he was 2 months

old. Our pediatrician asked me to do aggressive repositioning . At

that time, I was completely ignorant of this flat head problem and

could not do aggressive repositioning. But I made sure he was not on

his back in the day time. My baby started sleeping through the nights

from his second month itself and this increased his flat head a lot.

At his 4th month check up, the pediatrician referred him to a neuro

surgeon. The neuro surgeon asked us to reposition the baby's head and

see if it changes anything . We have been repositioning him at night

times too. I have been making him sleep on his left side .

Now he is 61/2 months old and we don't see any significant change in

his head shape. He has severe flat head on the back and some flatness

on the right. So we asked the neuro surgeon to give prescription for a

helmet hoping that we will get our baby start on helmet ASAP and he

would have a nice round head in 3-4 months. To our surprise, the neuro

surgeon is not ready to put the baby on helmet. Moreover he says by

the time the baby goes to school, the flat head would be unnoticeable.

We are not convinced with it because he has severe flat head. So I

contacted my pediatrician hoping she will understand and give

prescription for helmet. But she said she would not do that and asked

me to contact the neuro surgeon again to see he if he will agree this

time. This is so frustrating .

I don't have any family here for support . I am really frustrated and

depressed. I want to do what ever I can do for my baby to help with

his flat head. Has any of you guys ever had such a situation? Any

advise would be very helpful.

Thanks