New member- possible Plagio

[Guest guest]

Hello everyone. Please bear with my blabber and I appreciate you

reading this more than you will ever know.

My first child is nearing 4 months old. I think he has plagio. When

he was a few weeks old I noticed he always slept with is head pointed

to the right. Being a Pharmacist I know and have seen children with

helmets so I was proactive and did my best to do positional changes

and made sure he did lots of tummy time and exercises to turn his head

to the left. At his 2 month check up his doctor agreed he could see

some flattening, so Xrays were ordered. The radiologist did not find

any noticable flattening and didnt recommend a follow up until 4 months.

During the next 2 months my son has grown so much. He now shows no

favoritism towards one side or the other while sleeping or playing.

We are using a memory foam head support positioner like our doctor

recommended. His 4 month check up is in 1 week. I made the mistake

of looking at pictures online of children who needed a helmet to

correct their mishapen head... my sons head doesnt look any better (or

worse) than some of the heads. I am again obsessing about his head

shape. I know it is just a cosmetic thing for him at this point, but

Im worried that we are going to have the take the next step at

correcting his " crooked head " as we call it.

I feel like I have failed my son and that I should have/could have

done more to prevent this. I am so glad to have found this group, as

I know you all know exactly how I am feeling at this very moment. I

am so torn because I want my perfect little boy to have a perfect

little head therefore will welcome a helmet if needed, however I feel

like it cant possibly be bad enough to warrant such an intervention-

for is just cosmetic, right?

Anyways, thank you for reading and for any support or advice you can

offer me.

Janna and baby

[Guest guest]

Janna,I think we were all in your shoes at some point. There is no need to feel guilty, as you have done all you could to prevent plagio.I would suggest going to Cranial Technologies (or one of the other clinics mentioned on this board) for an evaluation. It is free , and though they are in the business of only bands, I did not find them to be pushy or sales oriented. For some, this may be purely cosmetic, but so are braces and acne - and we do all we can to correct those issues. Kids and teenagers are just mean sometimes, and my feeling is that if I can spend a few weeks "correcting" now while my daughter is a baby and will never remember this (and thus not have kids teasing her for a crooked head and face), then I should do what I can if I'm

able. I suspect you may be feeling the same, lest you may not have ever joined this board.Know that no matter what you decide, you can find plenty of support from this group. Good luck and best wishes!Sandymom to Lyla - 8 months - 9 weeks in Doc Bandand Owen 4 New member- possible PlagioHello everyone. Please bear with my blabber and I appreciate you

reading this more than you will ever know.

My first child is nearing 4 months old. I think he has plagio. When

he was a few weeks old I noticed he always slept with is head pointed

to the right. Being a Pharmacist I know and have seen children with

helmets so I was proactive and did my best to do positional changes

and made sure he did lots of tummy time and exercises to turn his head

to the left. At his 2 month check up his doctor agreed he could see

some flattening, so Xrays were ordered. The radiologist did not find

any noticable flattening and didnt recommend a follow up until 4 months.

During the next 2 months my son has grown so much. He now shows no

favoritism towards one side or the other while sleeping or playing.

We are using a memory foam head support positioner like our doctor

recommended. His 4 month check up is in 1 week. I made the mistake

of looking at pictures online of children who needed a helmet to

correct their mishapen head... my sons head doesnt look any better (or

worse) than some of the heads. I am again obsessing about his head

shape. I know it is just a cosmetic thing for him at this point, but

Im worried that we are going to have the take the next step at

correcting his "crooked head" as we call it.

I feel like I have failed my son and that I should have/could have

done more to prevent this. I am so glad to have found this group, as

I know you all know exactly how I am feeling at this very moment. I

am so torn because I want my perfect little boy to have a perfect

little head therefore will welcome a helmet if needed, however I feel

like it cant possibly be bad enough to warrant such an intervention-

for is just cosmetic, right?

Anyways, thank you for reading and for any support or advice you can

offer me.

Janna and baby

[Guest guest]

Welcome to the group Janna,

It sounds like you did a great job of staying on top of it, but it may

still be that a band is needed. I asked our doc about my daughter's

head at 2 mo and she just told me not to worry. At 4 mo she said " it

looks pretty bad " . My daughter ended up in a starband, and did really

well. She got used to it very quickly (it took me a little longer) and

made a lot of progress. Unfortunately her brachy (flat in back) was

pretty severe, so her head is still not perfect, but I'm probably the

only one that notices it.

Once you get started with a helmet it is really much easier than you

expect. 4 mo is a great age to band if needed. Since you're already

worked a lot on repositioning, I wouldn't really suggest continuing

that if you can band instead. Please let us know what your doctor

says. Some peds are comfortable writing the Rx for a band,but many

prefer to refer patients to a specialist who is more knowledgeable

about plagio. We saw a cranio facial plastic surgeon, and my daughter

got her band at 5 mo old.

-christine

sydney 2.5 yrs starband grad

>

> Hello everyone. Please bear with my blabber and I appreciate you

> reading this more than you will ever know.

>

> My first child is nearing 4 months old. I think he has plagio. When

> he was a few weeks old I noticed he always slept with is head pointed

> to the right. Being a Pharmacist I know and have seen children with

> helmets so I was proactive and did my best to do positional changes

> and made sure he did lots of tummy time and exercises to turn his head

> to the left. At his 2 month check up his doctor agreed he could see

> some flattening, so Xrays were ordered. The radiologist did not find

> any noticable flattening and didnt recommend a follow up until 4

months.

>

> During the next 2 months my son has grown so much. He now shows no

> favoritism towards one side or the other while sleeping or playing.

> We are using a memory foam head support positioner like our doctor

> recommended. His 4 month check up is in 1 week. I made the mistake

> of looking at pictures online of children who needed a helmet to

> correct their mishapen head... my sons head doesnt look any better (or

> worse) than some of the heads. I am again obsessing about his head

> shape. I know it is just a cosmetic thing for him at this point, but

> Im worried that we are going to have the take the next step at

> correcting his " crooked head " as we call it.

>

> I feel like I have failed my son and that I should have/could have

> done more to prevent this. I am so glad to have found this group, as

> I know you all know exactly how I am feeling at this very moment. I

> am so torn because I want my perfect little boy to have a perfect

> little head therefore will welcome a helmet if needed, however I feel

> like it cant possibly be bad enough to warrant such an intervention-

> for is just cosmetic, right?

>

> Anyways, thank you for reading and for any support or advice you can

> offer me.

>

> Janna and baby

>

[Guest guest]

Thank you for your support. It was a tough night as I guess I finally

accepted that will most likely need some outside intervention to

help correct his noggin. I am still swinging emotions about it, but

whatever the doctor says needs to be done we will do whole heartedly.

Whether ends up perfectly round or not I dont particularly care-

I just want him to feel as though he can shave his head if he wants to

without looking silly. Im so glad to hear your daughter took to the

band easily, that is good to know.

We see our pedi in a week, and Im guessing she will refer us to the

DeVos Childrens Hospital because they have pediatric orthopedic

specialists (I called, referral only and they see lots of patients for

plagio/brachy).

Im thinking of posting some pictures for you all to look at- realizing

you are not experts and I will still consult our pedi. Would you be

willing to look at them and give your honest opinion? I wont be

offended if you tell me Im crazy or that it looks like we need help.

Can you tell Im obsessing about this now??

>

> Welcome to the group Janna,

> It sounds like you did a great job of staying on top of it, but it may

> still be that a band is needed. I asked our doc about my daughter's

> head at 2 mo and she just told me not to worry. At 4 mo she said " it

> looks pretty bad " . My daughter ended up in a starband, and did really

> well. She got used to it very quickly (it took me a little longer) and

> made a lot of progress. Unfortunately her brachy (flat in back) was

> pretty severe, so her head is still not perfect, but I'm probably the

> only one that notices it.

>

> Once you get started with a helmet it is really much easier than you

> expect. 4 mo is a great age to band if needed. Since you're already

> worked a lot on repositioning, I wouldn't really suggest continuing

> that if you can band instead. Please let us know what your doctor

> says. Some peds are comfortable writing the Rx for a band,but many

> prefer to refer patients to a specialist who is more knowledgeable

> about plagio. We saw a cranio facial plastic surgeon, and my daughter

> got her band at 5 mo old.

>

> -christine

> sydney 2.5 yrs starband grad

>

>

[Guest guest]

Yes, please do post pictures and send another note. I'll take a look

and others will probably too.

-christine

sydney 2.5 yrs starband grad

> >

> > Welcome to the group Janna,

> > It sounds like you did a great job of staying on top of it, but it may

> > still be that a band is needed. I asked our doc about my daughter's

> > head at 2 mo and she just told me not to worry. At 4 mo she said " it

> > looks pretty bad " . My daughter ended up in a starband, and did really

> > well. She got used to it very quickly (it took me a little longer) and

> > made a lot of progress. Unfortunately her brachy (flat in back) was

> > pretty severe, so her head is still not perfect, but I'm probably the

> > only one that notices it.

> >

> > Once you get started with a helmet it is really much easier than you

> > expect. 4 mo is a great age to band if needed. Since you're already

> > worked a lot on repositioning, I wouldn't really suggest continuing

> > that if you can band instead. Please let us know what your doctor

> > says. Some peds are comfortable writing the Rx for a band,but many

> > prefer to refer patients to a specialist who is more knowledgeable

> > about plagio. We saw a cranio facial plastic surgeon, and my daughter

> > got her band at 5 mo old.

> >

> > -christine

> > sydney 2.5 yrs starband grad

> >

> >

>

[Guest guest]

I can't speak for everyone in the group, but I know I felt as if I had

let my son down and caused the plagio. We always try to do what is

best for our children and if things don't go as planned, we feel as if

we have let them down in some way. You sound like a very loving and

caring mom who will be a wonderful advocate for your son.

We felt that putting our son in the helmet at 5 months old (while he

was young) was better for him in the long run. Take it from me, a

former teacher, kids can be cruel to one another and it's easier to

fix the problem now then wait for them to go to school and be teased.

Our insurance company covered NOTHING, but we knew the investment in

our son's future was worth every penny. My son, Gavin, goes to STAR

Cranial Center in Columbia, MD and I highly recommend them (even if

you just are seeking a second opinion). My pediatrician told us that

his head looked " fine " and would " work itself out as he grew " , but we

just weren't convinced. Nothing wrong with seeking a second opinion.

We started our second opinion when our son was 9 weeks old with a

Pediatric Oral/Maxillofacial Surgeon (Dr. Caccames at UNIV of MD) who

gave us different repositioning techniques to try. On our return

visit at age 4 months, there were positive changes after the

repositioning strategies were put to use and home PT exercises, but

not enough change was visible. Dr. Caccames recommended the STAR

Cranial Center and we are so pleased with the results. By the time my

son was 5 months old, he was wearing his helmet and doing fine. Now,

at age 8 months and entering his 12th week of wearing the helmet, his

head looks as perfect as his 6 year old brother's head who had no

issues of plagio.

It's normal to feel sad and even cry a few times when you first see

your son with his helmet on because it's not what you had planned for

him. Kids are resiliant and at this age, they don't really know any

better and I truly think they just go with the flow of things.

Hang in there and be sure to check the message boards....we're all in

this together. You can also email me personally if you wish

(Lovingoz@...)

Good luck!

Griffith

[Guest guest]

Hi Jsnna,

I just wanted to add my opinion - my son just got his Starband

Wednesday. He took to it like a pro- and I really think it is

harder on us than on them. They adapt- and do not know any

difference- while we think about what we are " putting them through "

I am slowly starting to realize it is not that bad-like others have

said and to top it off- he looks really cute with his Harley Emblems

on his band. So far we haven't had any major red spots and he is

showing no discomfort. Like said- we are all in this

together- and here to help each other through the tough times.

Take care!

>

> I can't speak for everyone in the group, but I know I felt as if I

had

> let my son down and caused the plagio. We always try to do what is

> best for our children and if things don't go as planned, we feel

as if

> we have let them down in some way. You sound like a very loving

and

> caring mom who will be a wonderful advocate for your son.

>

> We felt that putting our son in the helmet at 5 months old (while

he

> was young) was better for him in the long run. Take it from me, a

> former teacher, kids can be cruel to one another and it's easier to

> fix the problem now then wait for them to go to school and be

teased.

> Our insurance company covered NOTHING, but we knew the investment

in

> our son's future was worth every penny. My son, Gavin, goes to

STAR

> Cranial Center in Columbia, MD and I highly recommend them (even if

> you just are seeking a second opinion). My pediatrician told us

that

> his head looked " fine " and would " work itself out as he grew " , but

we

> just weren't convinced. Nothing wrong with seeking a second

opinion.

> We started our second opinion when our son was 9 weeks old with a

> Pediatric Oral/Maxillofacial Surgeon (Dr. Caccames at UNIV of MD)

who

> gave us different repositioning techniques to try. On our return

> visit at age 4 months, there were positive changes after the

> repositioning strategies were put to use and home PT exercises, but

> not enough change was visible. Dr. Caccames recommended the STAR

> Cranial Center and we are so pleased with the results. By the

time my

> son was 5 months old, he was wearing his helmet and doing fine.

Now,

> at age 8 months and entering his 12th week of wearing the helmet,

his

> head looks as perfect as his 6 year old brother's head who had no

> issues of plagio.

>

> It's normal to feel sad and even cry a few times when you first see

> your son with his helmet on because it's not what you had planned

for

> him. Kids are resiliant and at this age, they don't really know

any

> better and I truly think they just go with the flow of things.

>

> Hang in there and be sure to check the message boards....we're all

in

> this together. You can also email me personally if you wish

> (Lovingoz@...)

>

> Good luck!

> Griffith

>

[Guest guest]

Thank you everyone for your kind words and support. I have had a busy

week so I havent had a chance to write back. sees the

pediatrician on Monday, I will keep you posted on what she says and if

we see a specialist. My plan is to keep my opinion out of it when I

ask her her opinion. That way I wont sway her one way or the other.

I just posted some pictures if anyone wants to give me their honest

opinion. They are titles AJP#- plagio? For example the first photo

is AJP1- plagio? The second is AJP2- plagio etc.

I see a bulge on his back left side, and a flat spot in this back

right side. I havent noticed facial asymmetry or ear asymmetry. The

curly-que on his hair pattern really accentuates the flat spot, and of

course the wear pattern in his hair (poor boy gets his head all

positioned by mommy each night so he rocks his head back and forth

until he is comfy. I think this is where the pattern comes from

because he is only on his back while sleeping)

Tell me what you think. Should I push for a consult if the

pediatrician is reluctant? Should I wait it out another month then go

back if no change? What is your honest opinion?

[Guest guest]

Hi,

's head looks like pretty typical plagio to me. It is sometimes

described as a parallelogram head shape, and I think that fits alex.

I think he would definitely benefit from banding. You should

definitely push for a consult if the doctor is reluctant. I would

consider his head to be at least moderate, so I don't see much sense

in the " wait and see " approach, when you can start correcting it with

a band. Here is a severity assessment from cranial tech:

http://cranialtech.com/medicalinfo/assessment/plagiocephaly.pdf

It shows you what to look for visually.

-christine

sydney 2.5 yrs starband grad

>

> Thank you everyone for your kind words and support. I have had a busy

> week so I havent had a chance to write back. sees the

> pediatrician on Monday, I will keep you posted on what she says and if

> we see a specialist. My plan is to keep my opinion out of it when I

> ask her her opinion. That way I wont sway her one way or the other.

>

> I just posted some pictures if anyone wants to give me their honest

> opinion. They are titles AJP#- plagio? For example the first photo

> is AJP1- plagio? The second is AJP2- plagio etc.

>

> I see a bulge on his back left side, and a flat spot in this back

> right side. I havent noticed facial asymmetry or ear asymmetry. The

> curly-que on his hair pattern really accentuates the flat spot, and of

> course the wear pattern in his hair (poor boy gets his head all

> positioned by mommy each night so he rocks his head back and forth

> until he is comfy. I think this is where the pattern comes from

> because he is only on his back while sleeping)

>

> Tell me what you think. Should I push for a consult if the

> pediatrician is reluctant? Should I wait it out another month then go

> back if no change? What is your honest opinion?

>

[Guest guest]

My daughter's head looks just like 's. We could not our pediatrician to give us a referral until a month ago, I kept hounding her. Chloe will be getting her helmet next week. I need to post pics but have been way too busy. I would push for the specialist, atleast that is what I did.

From: jannabelle2121 <jannabelle2121@...>Subject: Re: New member- possible PlagioPlagiocephaly Date: Saturday, August 16, 2008, 10:12 AM

Thank you everyone for your kind words and support. I have had a busyweek so I havent had a chance to write back. sees thepediatrician on Monday, I will keep you posted on what she says and ifwe see a specialist. My plan is to keep my opinion out of it when Iask her her opinion. That way I wont sway her one way or the other.I just posted some pictures if anyone wants to give me their honestopinion. They are titles AJP#- plagio? For example the first photois AJP1- plagio? The second is AJP2- plagio etc.I see a bulge on his back left side, and a flat spot in this backright side. I havent noticed facial asymmetry or ear asymmetry. Thecurly-que on his hair pattern really accentuates the flat spot, and ofcourse the wear pattern in his hair (poor boy gets his head allpositioned by mommy each night so he rocks his head back and forthuntil he is comfy. I think this is where the pattern comes

frombecause he is only on his back while sleeping)Tell me what you think. Should I push for a consult if thepediatrician is reluctant? Should I wait it out another month then goback if no change? What is your honest opinion?

[Guest guest]

It looks like moderate plagio, from the birds-eye view shots. Not to cause a panic but in the second photo I can see that the ears are not lined up. The ears are an easy way to check for asymmetry, it can be hard to tell in the face because babies faces are so chubby and adorable. I would treat ASAP. Your baby looks young enough to have great results. If you are under six months old you may be able to get 100% correction. If your new doctor won't give you and RX, I would call Cranial tech or whoever services your area and have them recommend a doctor for you.Best of luck,Mom to Elijah Doc Band Grad 8/11/08

From: jannabelle2121 <jannabelle2121>Subject: Re: New member- possible PlagioPlagiocephalyDate: Saturday, August 16, 2008, 10:12 AM

Thank you everyone for your kind words and support. I have had a busyweek so I havent had a chance to write back. sees thepediatrician on Monday, I will keep you posted on what she says and ifwe see a specialist. My plan is to keep my opinion out of it when Iask her her opinion. That way I wont sway her one way or the other.I just posted some pictures if anyone wants to give me their honestopinion. They are titles AJP#- plagio? For example the first photois AJP1- plagio? The second is AJP2- plagio etc.I see a bulge on his back left side, and a flat spot in this backright side. I havent noticed facial asymmetry or ear asymmetry. Thecurly-que on his hair pattern really accentuates the flat spot, and ofcourse the wear pattern in his hair (poor boy gets his head allpositioned by mommy each night so he rocks his head back and forthuntil he is comfy. I think this is where the pattern comes

frombecause he is only on his back while sleeping)Tell me what you think. Should I push for a consult if thepediatrician is reluctant? Should I wait it out another month then goback if no change? What is your honest opinion?

[Guest guest]

Regarding the ears, after inspecting the photo I do revise my first comment about them not lining up. However I think that on the same photo you would be able to see the ear tip if it was a normal head shape. I also think that one ear is sticking out more than the other.From: jannabelle2121 <jannabelle2121@...>Subject: Re: New member- possible PlagioPlagiocephaly Date: Saturday, August 16, 2008, 10:28 AM

Thank you everyone!

just turned 4 months old yesterday, so I agree if we need an

intervention now is the time.

Regarding his ears- I guess maybe because he is mine but they seem to

line up to me. Maybe I am naive but in our second photo you can even

see his left ear because Im standing on his right side looking down.

Do you know something I dont?

In any case, we see his pediatrician on Monday and we will ask for a

consult with DeVos Orthopedics.

Thank you for helping me in making the decision to push for a second

opinion (regardless of our pediatricians opinion).

I will keep you updated.

[Guest guest]

Here's a tip that I learned from our pt at CT. Hold on your lap facing you and have someone cup his ears so their hands stick out from 's head. This gives you a larger marker of where the ears sit.

Re: New member- possible PlagioPlagiocephalyDate: Saturday, August 16, 2008, 10:28 AM

Thank you everyone! just turned 4 months old yesterday, so I agree if we need anintervention now is the time.Regarding his ears- I guess maybe because he is mine but they seem toline up to me. Maybe I am naive but in our second photo you can evensee his left ear because Im standing on his right side looking down. Do you know something I dont?In any case, we see his pediatrician on Monday and we will ask for aconsult with DeVos Orthopedics. Thank you for helping me in making the decision to push for a secondopinion (regardless of our pediatricians opinion). I will keep you updated.

[Guest guest]

Hi there-

I'm sorry, I didn't have a chance to respond to your original post,

but I just wanted to say that you should not blame yourself. My

tort/plagio baby was my second child and I thought I knew everything

I needed to know about babies, but boy, was I wrong! It's great that

you're looking into possible options/treatment now while your son is

at such a great/young age.

I looked at the photos and I do think he is a great candidate for a

band. It looks like he has some mild forehead bossing on the right

side in addition to the flat spot. I would not be surprised though

if the ped recommends repositioning, since he is still young. But I

would also ask for a consult with a specialist and you could

reposition in the meantime (it took us 2 months to get an

appointment with a neurosurgeon). It would be great if your ped

could just write a script for you, but most are reluctant. I would

say if she's wishy washy about banding, definitely push for a

consult with a specialist.

Please let us know how the well visit goes on Monday. Good luck!

Jake-23m (tort resolved/rt plagio/DOCBand #2 10 weeks)

Jordan-4

>

> Thank you everyone for your kind words and support. I have had a

busy

> week so I havent had a chance to write back. sees the

> pediatrician on Monday, I will keep you posted on what she says

and if

> we see a specialist. My plan is to keep my opinion out of it when

I

> ask her her opinion. That way I wont sway her one way or the

other.

>

> I just posted some pictures if anyone wants to give me their honest

> opinion. They are titles AJP#- plagio? For example the first

photo

> is AJP1- plagio? The second is AJP2- plagio etc.

>

> I see a bulge on his back left side, and a flat spot in this back

> right side. I havent noticed facial asymmetry or ear asymmetry.

The

> curly-que on his hair pattern really accentuates the flat spot,

and of

> course the wear pattern in his hair (poor boy gets his head all

> positioned by mommy each night so he rocks his head back and forth

> until he is comfy. I think this is where the pattern comes from

> because he is only on his back while sleeping)

>

> Tell me what you think. Should I push for a consult if the

> pediatrician is reluctant? Should I wait it out another month

then go

> back if no change? What is your honest opinion?

>

[Guest guest]

Thank you again everyone. I did the " ear trick " and you are right-

his right ear is forward on his head about 1/2cm. I realize I was a

bit defensive in my earlier post, please forgive me Im still emotional

about this whole thing and cant help myself. My poor little boy. I

still cant help wondering what I could have done differently to

prevent this for him. Also about his ears, they are just like his

daddy's. The cartilage is turned in a bit to look like an elf ear.

I also have notice the bossing (as you call it) over his right eye.

It has been there since his 2 month check up when we began to be more

diligent about repositioning him. I believe his whole head shape has

not changed since then, its the same but growing bigger all over. I

guess we will see what they experts say. He as a bit of a droopy lid

on that side, but so do I. I wonder if his can be corrected whereas

mine could not (without surgery that is?).

I will definitely push for a referral at our appointment on Monday. I

will let you all know.

Thanks again so much for taking the time to look and for your patience

wiht me. Im really not a feisty person, this just has me thrown for a

loop.

[Guest guest]

Hi Janna,

I just wanted to give you some encouragement-because I noticed you

said " my poor little boy " - just like I did. Let me tell you- I was

emotional too- and felt guilty...but it is much harder on us than it

is them....my guy has avoided several bumps and bruises already- and

when we take it off for his hour a day- he touches his head as if to

say " hey- where did my hat go? " . He has had it on for 2 weeks

Wednesday- and we were lucky to have a great fit from the start- he

hardly notices it at all. He sleeps fine- and we have it decorated

really cute.

I hope this helps- this group is great for support and information.

Take care!

Kristy

Zachary R.

10 months

12 days in Starband- doing GREAT!

>

> Thank you again everyone. I did the " ear trick " and you are right-

> his right ear is forward on his head about 1/2cm. I realize I was

a

> bit defensive in my earlier post, please forgive me Im still

emotional

> about this whole thing and cant help myself. My poor little boy.

I

> still cant help wondering what I could have done differently to

> prevent this for him. Also about his ears, they are just like his

> daddy's. The cartilage is turned in a bit to look like an elf

ear.

>

> I also have notice the bossing (as you call it) over his right

eye.

> It has been there since his 2 month check up when we began to be

more

> diligent about repositioning him. I believe his whole head shape

has

> not changed since then, its the same but growing bigger all over.

I

> guess we will see what they experts say. He as a bit of a droopy

lid

> on that side, but so do I. I wonder if his can be corrected

whereas

> mine could not (without surgery that is?).

>

> I will definitely push for a referral at our appointment on

Monday. I

> will let you all know.

>

> Thanks again so much for taking the time to look and for your

patience

> wiht me. Im really not a feisty person, this just has me thrown

for a

> loop.

>

[Guest guest]

Thanks again! I wanted to give our little update.

First the good news- is right on target for height and weight and

is developing on track for motor skills and social skills.

In head related news our doctor did decide to refer us to the

specialists in our area. We are seeing a pediatric orthotics team at

Free Bed hospital. Their cranial facial physician will examine

our babe in 2 weeks at which time he will compare our Xrays and

decide if band therapy is needed. If it is we will cast at that

appointment and receive our band shortly after. The good news is that

there is a fitting office in our town so we wont have to do the big

travel for the fittings. Our doctor said that his head appears to

show no changes since his 2 month check up- for better or worse. She

agrees that the likelihood of his head rounding on its own is slim,

but that the specialist would know more. She said she wouldnt have

offered this treatment if I wasnt concerned for his degree of molding.

I have to wonder how many kids dont get treatment if their parents

dont notice??

Anyways, thats the scoop. Still a waiting game, but Im guessing we

will be banding our babe in the near future.

Thanks for reading!

[Guest guest]

I'm glad to hear that is healthy and that your ped has given you

a referral. I'm pretty sure Free Bed uses the starband. There

have been other parents who got bands there, so hopefully they'll

reply and tell you if they were pleased with the treatment there. With

banding the experience of the ortho is really key in getting a good

result.

-christine

sydney 2.5 yrs starband grad

>

> Thanks again! I wanted to give our little update.

>

> First the good news- is right on target for height and weight and

> is developing on track for motor skills and social skills.

>

> In head related news our doctor did decide to refer us to the

> specialists in our area. We are seeing a pediatric orthotics team at

> Free Bed hospital. Their cranial facial physician will examine

> our babe in 2 weeks at which time he will compare our Xrays and

> decide if band therapy is needed. If it is we will cast at that

> appointment and receive our band shortly after. The good news is that

> there is a fitting office in our town so we wont have to do the big

> travel for the fittings. Our doctor said that his head appears to

> show no changes since his 2 month check up- for better or worse. She

> agrees that the likelihood of his head rounding on its own is slim,

> but that the specialist would know more. She said she wouldnt have

> offered this treatment if I wasnt concerned for his degree of molding.

> I have to wonder how many kids dont get treatment if their parents

> dont notice??

>

> Anyways, thats the scoop. Still a waiting game, but Im guessing we

> will be banding our babe in the near future.

>

> Thanks for reading!

>