Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Hi all, I have never come across any specific link between AIH and Sjogren's disease and my doctor said the same. For a time, my doctor thought I was developing Sjogren's and all he said was that the presence of one autoimmune illness made it more likely that I either had or would develop other autoimmune disorders. The link between these different disorders is the fact that they are all autoimmune in nature. The problem lies in our immune system. I know my doctors keep saying that lupus and AIH don't go together. They have also said that celiac and lupus don't go together. My own line of thinking on this is that they have merely classified symptoms so that they can call it something....I have an immune system illness and my body is subjected to onslaught in various locations. When it is in my liver they call it AIH, when it is in my lungs they call it lupus, etc, etc. I find it easier to think about one problem rather than consider myself as having 5 different autoimmune illnesses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Dr. McCandless, So glad to hear the update on your patient. Sincerely, Rorison Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Folks, I remember reading 20 years ago in Judy Graham's book about Evening Primrose Oil how it helps arthritis, MS and Sjogrens, among others. It has really been the saving grace for me through the years of a " healthy denial " . Now, I am reading about celiac disease, thinking that might be what I have, only to find out that Evening Primrose is quite helpful for that. I strted LDN a year ago (I have a MS dx) hopong it would help the cognitive difficulties. One thing I do think it has helped with is that I have dropped 15 lbs (quickly) since starting the gluten free diet. My input is: Research Evening Primrose Oil with your LDN. Make that body happier! MAG > > > > Hi, Listmates: Several months ago I queried whether > > LDN had been beneficial for Sjogren's Disease, and I > > did receive some positive responses, thank all of you > > very much. 55 yr old athletic previously healthy > > woman but under a lot of business stress starting to > > get extremely fatigued and started with dry eyes, dry > > mouth, having to wake up every hour all night to drink > > water - feeling terrible, got the diagnosis of > > Sjogren's from local GP with no real help other than > > supportive fluids for eyes, etc. I put her on LDN one > > month ago; after two days she called me and said, > > " Could this possibly be working so fast, I feel like a > > different person!!! " She had 6 days of insomnia, I > > told her to hang in with some supportive sleep > > measures (Epsom Salts baths, GABA, etc). I saw her > > today after one month on LDN 4.5mg each night, she is > > completely well, no fatigue, no symptoms whatsover, > > feels wonderful, says, " This is incredible stuff! I > > never want to stop taking it!! " > > Just thought I would report. Dr. JM > > > Hi Dr. JM, > > I can't tell you how encouraging all this information is -- wow! > > Is it OK if I share this post with the members of the Sjogren's forum > that I participate in --??-- > > Many thanks... > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Hear hear. I started taking EPO years back for my hormonal imbalance, but it has helped all sorts, even bought my B/P under control. I am so glad I could carry on taking it with LDN. Helen ~ UK Diabetes type 1 Ankylosing spondylitis Multiple sclerosis and other wonderful things like IBS! magdowser wrote: Folks, I remember reading 20 years ago in Judy Graham's book about Evening Primrose Oil how it helps arthritis, MS and Sjogrens, among others. It has really been the saving grace for me through the years of a "healthy denial". Now, I am reading about celiac disease, thinking that might be what I have, only to find out that Evening Primrose is quite helpful for that. I strted LDN a year ago (I have a MS dx) hopong it would help the cognitive difficulties. One thing I do think it has helped with is that I have dropped 15 lbs (quickly) since starting the gluten free diet. My input is: Research Evening Primrose Oil with your LDN. Make that body happier! MAG --- In low dose naltrexone , "jannz2" <jbreslin@...> _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 very good news from Dr. McCandless - my daughter-in-law was diagnosed with sjogren's disease some years ago. will try to pass this on to her!! thanx marshirisSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.