Hello everyone!

[Guest guest]

Hi,

My name is Lou Ann. My son Zachary is 6.5 months old and has Trisomy

21. He has had his helmet for approximately 3 weeks. He honestly has

worn it about a week of that time. Even though he's not been wearing

it 23 hours a day yet I've already seen improvement.

I've put up some pictures and included in these his results from Star

cranial in Dallas Texas. We decided to not go with Star just because

of the distance we had to travel to get to them. At that time we

were living in Odessa Texas and it was a 6 hour drive each way. This

was not practical, especially since neither myself or my husband have

any family in Texas and my husband's boss would not let him off work

to drive with me. So my son and I came back to my home town of Selma

IN and are currently having his band/helmet done at Advanced Orthopro

Inc in Indianapolis IN.

As you can see in his pics Zachary has torticollis along with his

plagiocephaly. We are currently working on getting him a PT to help

resolve this.

Issues Zack has had with the helmet include having to go back 5 days

in a row for adjustments for the red marks on his head. Two

different ortho's at AOI told me that we could not alter the neck of

his helmet because he needed the support. I kept going back till I

got ortho number three that cut it up about 2 inches on visit number

six. My son could not wear the helmet for extended periods because

it hurt his neck so badly. Now he can move his head freely and is

more comfy and will start wearing it for extended periods. (After his

current heat rash fades)

It has helped me greatly to read your posts and see what other

parent's think. I'll be adding my thoughts and experiences, hoping

to help someone else.

Thank you

Lou Ann