Re: Next step

[Guest guest]

Ron, are there specific lesions they can see on the brain? I know this is the scariest procedure, as it is determinent only if they hit the exact spot where there is a problem. I know you are an extreme case, and that you have alot going on.

Have they ever done xrays of your lungs, gallium scans where they inject the dye and then do the ct scan? If there is a problem spot the gallium dye hangs around there. If you have lung involvement, they can do a bronchoscopy and get samples there-- if it's positive for sarc, then if they have ruled out all the other autoimmune diseases, it pretty much leaves neurosarcoidosis as the answer by default.

I know you've probably answered the lung question previously, but my brain is mush right now-- so refresh my memory please.

Take care,

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Saturday, December 6, 2008 6:32:14 AMSubject: Next step

Now the drs are back to wanting me to see a neurosurgeon and have a brain biopsy. Not sure about that.