Re: GOOD EARLY MORNING!

[Guest guest]

>

> I AM TENA/DIAMOND OR SOME KNOW ME AS DADDIESGIRL AND I AM NEW TO

THE

> GROUP. I STARTED LDN APPROX 2 MONTHS AGO NOW AND AM ON 3 MG

CAP./DAY

> @NITGHT TIME.

>

> I WENT THRU HORRIBLE NIGHTMARES AND STILL ARE BOTHERED BY THEM AT

> TIMES AND THE FEELING OF BUGS AND MAGGETS CRAWLING AND EATING AT

> ME . IT WAS GROSS AND DISGUSTING PERIOD OF TWO WEEKS BEFORE IT

> STARTED TO SETTLE DOWN.

>

> I HAD /HAVE DIZZINESS AND BLURRED VISION AND MIGRAINES PRIOR TO

> TAKING MED, BUT IT HASN'T IMPROVED THAT AT ALL. I HAVE FOUND THAT I

> AM HAVING MORE COGNITIVE PROBLEMS AND A FOG LIKE STATE THAT I NEVER

> EXPERIENCED BEFORE EVER. IT SEEMS TO BE MORE OF A SHORT TERM

MERMORY

> THAT IS AFFECTED THAN LONG TERM AND THIS IS MORE THAN JUST

> EMBARRASSING TO ME.

>

> I HAVE FOUND THAT I AM ABLE TO MOVE A BIT MORE WITHOUT FALLING BUT

> THEN SINCE I DON'T HAVE MY NARCOTIC THE PAIN LEVEL IS SO HIGH THAT

I

> AM UNABLE TO DO THE SIMPLEST OF THINGS. WALKING ON MY LEGS IS LIKE

> WALKING ON 2 WOODEN POST THAT EXPERIENCE SEVERE PAIN . I AM UNABLE

> TO BEND NOW AND GENERAL MOVEMENT IS LIMITED.

>

> SO I AM AT A LOST HERE FOR I AM NOT SURE HOW LONG THAT I AM TO TAKE

> THIS MEDICATION BEFORE I SEE ANY KIND OF PROMISING EFFECT TO ME.

IT

> SEEMS TO HAVE CAUSED MORE PROBLEMS THAN GOOD. IF I AM NOT ABLE TO

> GET AROUND AND MOVE ABOUT THAN IT IS A PROBLEM WITH MY MUSCLES !

>

> THE OTHER THING IS THIS PROFOUND EXHAUSTION I HAVE ALL DAY WHEN I

> TAKE IT. I AM BEDRIDDEN AND UNABLE TO FIX MYSELF A SIMPLE MEAL ,

LET

> ALONE ANYTHING ELSE AND REQUIRE HELP! I NEVER WAS LIKE THIS PRIOR.

>

> I OBVIOUSLY WAS NOT WELL , THAT IS WHY I WENT ON IT BUT I WILL NOT

> TELL SOMEONE TO TAKE THIS MEDICATION IF I DON'T SEE ANY PROMISING

> RESULTS.

>

> ANY KIND OF HELP, SUGGESTIONS, LENGHT OF TIME MOST PPL TAKE THE

> MEDICATION , ANYONE HAVING ANY OF MY PROBLEMS.

>

> I AM TAKING IT FOR M.S. THAT IS PROGESSIVE AND WE , HUSBAND AND I

> ARE LOOKING TO JUST STOP THE PROGESSION. WE WERE TOLD THAT THERE IS

> NOT CURE OR TREATMENT AND THE RAPID PROGESSION OF THE DISEASE HAS

> THE SPECIALIST WORRIED AS WELL AS MY SELF.

>

> PLEASE HELP SHED SOME LIGHT ON THIS PROBLEM FOR ME.

>

> THANK YOU IN ADVANCE

>

> TENA/DIAMOND

>

Go here and read:

http://www.low dose naltrexone.org/

[Guest guest]

Tena, For the first month, I didn't sleep well. I was in a w/c to begin with and still am. Spasms & spacticity at night are really bad, but I'll deal with it. LDN offers the most hope for halting/slowing progression. JMHO, but I think your specialist is using the 'fear factor' with you. The CRABs or chemo or Tysabri most likely won't help change your progression. What else is there? If he talks you into something, ask for a GUARANTEE! Fat chance! I know what you're going through. I feel for you and hope & pray for a miracle. I've taken LDN for 3 1/2 years with slight bladder improvement. That's

all. Try to get through this difficult time as positively as you can. Marcie

[Guest guest]

In a message dated 3/9/07 5:15:01 AM Eastern Standard Time, daddiesgirl567_2006@... writes:

AM TAKING IT FOR M.S. THAT IS PROGESSIVE AND WE , HUSBAND AND I

ARE LOOKING TO JUST STOP THE PROGESSION

Off topic but do you have mercury dental fillings? Have you been thoroughly tested for lyme?************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

-Tena,

Are you on the BBD(best bet diet)? If not I would recommend you start it

immediately. Go to Direct MS and it will tell all about it.

This can only help along with the LDN.

Hope you feel better soon.

--- DIAMOND <daddiesgirl567_2006@...> wrote:

> I AM TENA/DIAMOND OR SOME KNOW ME AS DADDIESGIRL AND I AM NEW TO THE

> GROUP. I STARTED LDN APPROX 2 MONTHS AGO NOW AND AM ON 3 MG CAP./DAY

> @NITGHT TIME.

>

> I WENT THRU HORRIBLE NIGHTMARES AND STILL ARE BOTHERED BY THEM AT

> TIMES AND THE FEELING OF BUGS AND MAGGETS CRAWLING AND EATING AT

> ME . IT WAS GROSS AND DISGUSTING PERIOD OF TWO WEEKS BEFORE IT

> STARTED TO SETTLE DOWN.

>

> I HAD /HAVE DIZZINESS AND BLURRED VISION AND MIGRAINES PRIOR TO

> TAKING MED, BUT IT HASN'T IMPROVED THAT AT ALL. I HAVE FOUND THAT I

> AM HAVING MORE COGNITIVE PROBLEMS AND A FOG LIKE STATE THAT I NEVER

> EXPERIENCED BEFORE EVER. IT SEEMS TO BE MORE OF A SHORT TERM MERMORY

> THAT IS AFFECTED THAN LONG TERM AND THIS IS MORE THAN JUST

> EMBARRASSING TO ME.

>

> I HAVE FOUND THAT I AM ABLE TO MOVE A BIT MORE WITHOUT FALLING BUT

> THEN SINCE I DON'T HAVE MY NARCOTIC THE PAIN LEVEL IS SO HIGH THAT I

> AM UNABLE TO DO THE SIMPLEST OF THINGS. WALKING ON MY LEGS IS LIKE

> WALKING ON 2 WOODEN POST THAT EXPERIENCE SEVERE PAIN . I AM UNABLE

> TO BEND NOW AND GENERAL MOVEMENT IS LIMITED.

>

> SO I AM AT A LOST HERE FOR I AM NOT SURE HOW LONG THAT I AM TO TAKE

> THIS MEDICATION BEFORE I SEE ANY KIND OF PROMISING EFFECT TO ME. IT

> SEEMS TO HAVE CAUSED MORE PROBLEMS THAN GOOD. IF I AM NOT ABLE TO

> GET AROUND AND MOVE ABOUT THAN IT IS A PROBLEM WITH MY MUSCLES !

>

> THE OTHER THING IS THIS PROFOUND EXHAUSTION I HAVE ALL DAY WHEN I

> TAKE IT. I AM BEDRIDDEN AND UNABLE TO FIX MYSELF A SIMPLE MEAL , LET

> ALONE ANYTHING ELSE AND REQUIRE HELP! I NEVER WAS LIKE THIS PRIOR.

>

> I OBVIOUSLY WAS NOT WELL , THAT IS WHY I WENT ON IT BUT I WILL NOT

> TELL SOMEONE TO TAKE THIS MEDICATION IF I DON'T SEE ANY PROMISING

> RESULTS.

>

> ANY KIND OF HELP, SUGGESTIONS, LENGHT OF TIME MOST PPL TAKE THE

> MEDICATION , ANYONE HAVING ANY OF MY PROBLEMS.

>

> I AM TAKING IT FOR M.S. THAT IS PROGESSIVE AND WE , HUSBAND AND I

> ARE LOOKING TO JUST STOP THE PROGESSION. WE WERE TOLD THAT THERE IS

> NOT CURE OR TREATMENT AND THE RAPID PROGESSION OF THE DISEASE HAS

> THE SPECIALIST WORRIED AS WELL AS MY SELF.

>

> PLEASE HELP SHED SOME LIGHT ON THIS PROBLEM FOR ME.

>

> THANK YOU IN ADVANCE

>

> TENA/DIAMOND

>