Introduction and question about helmet in Erie, PA

[Guest guest]

Hi. My daughter Corinne was diagnosed at 3 months with torticollis

and she is now 6 months (almost tilt free). She also has plagio and I

am in the process of getting her an evaluation for a helmet or band.

There are only two places within 2 hours of my home that I can find

that offer orthotic devices for plagio. One is Union Orthotics and

Prosthetics in Pittsburgh, PA (they use the StarBand) and the other is

Presque Isle Rehab in Erie, PA. I can find plenty of info on the

Starband but apparently the place in Erie makes their own device and

they only call it a helmet. Has anyone here had any experience with

Presque Isle Rehab? Any info will be very helpful (I would love a

picture of their helmet). I plan to call both places today, as her PT

just said yesterday she thinks she should be evaluated for head shape.

Right now I'm leaning toward just taking her for the Starband, but if

there have been positive experiences in Erie, it would be great to

hear about them. Thanks!

[Guest guest]

Hi and welcome to the group. I am fromt he Pittsburgh area. I

haven't had personal experiences with either place because I

repositioned my baby to get her correction, but I have heard good

things about Union Orthotics in Pittburgh. I have never heard of the

place you are talking about in Erie. So if you go there, even jsut

for a consult, I would love to know what you find out about their

product.

On a personal note, I am hesitant when I hear about places that have

developed their own product. There are companies with established

reputations in the field of cranial remolding orthoses. Judging by

what you have said are your geographical options, I gather that

Cranial Technologies is not an option for you unless you want to do

some significant travelling. That said, and again this is only my

personal opinion, I would definitely lean towards the more well-known

product. I would have to be really dazzled by someplace if I was

going to use a local-type band. If you do go for a consultation at

the place in Erie, please ask a lot of questions about their

product. And make sure youa re dazzled with whatever place you

choose.

Good luck and please let us know how it goes.

Becky, repo moderator

, repo grad

Pittsburgh, PA

>

> Hi. My daughter Corinne was diagnosed at 3 months with torticollis

> and she is now 6 months (almost tilt free). She also has plagio

and I

> am in the process of getting her an evaluation for a helmet or

band.

> There are only two places within 2 hours of my home that I can find

> that offer orthotic devices for plagio. One is Union Orthotics and

> Prosthetics in Pittsburgh, PA (they use the StarBand) and the other

is

> Presque Isle Rehab in Erie, PA. I can find plenty of info on the

> Starband but apparently the place in Erie makes their own device

and

> they only call it a helmet. Has anyone here had any experience

with

> Presque Isle Rehab? Any info will be very helpful (I would love a

> picture of their helmet). I plan to call both places today, as her

PT

> just said yesterday she thinks she should be evaluated for head

shape.

> Right now I'm leaning toward just taking her for the Starband, but

if

> there have been positive experiences in Erie, it would be great to

> hear about them. Thanks!

>