Re: LDN for more subtle or 'invisible' MS symptoms?

[Guest guest]

Mostly, yes, 1, 2, 3, 5, 6; never had 4. Have had some passing instances of them, usually in reaction to something else going on at the time, but that's what my chiropractors are there for, they've helped through the rest. 3. sometimes a nap is just in order anyway.

I've also toyed with chocolate here and there over the last few years and it hasn't killed me, like it used to. I get some reaction from it, but no exacerbations any more. That's amazing in itself. I want to go back to my allergist I went to in 2003, 2 months before starting LDN, and see if the results are different.

good luck

[low dose naltrexone] LDN for more subtle or 'invisible' MS symptoms?

I was wondering how well LDN deals with the following types of symptoms:1. numbness in extremities (feet, hands)2. balance problems and/or vertigo3. daily fatigue (either as a result of overdoing things or just theusual MS 'afternoon fatigue')4. vision problems/disturbances (ie. things in visual field appearing tomove or jump around and/or optical muscles - rather than actual opticneuritis as such)5. 'brain fog', cognitive functioning, memory6. buzzing or fizzing pins and needles in extremities or elsewhereIf anyone already on LDN can give any indication of whether it hashelped such symptoms, or similar ones, (rather than mobility and bladderproblems as have already been reported upon), I'd be grateful. I'm notyet on LDN but am hunting it down! (UK)Thanks all,n

[Guest guest]

Hello n, I have been on copaxone for almost 3 years with good results. But I have also started LDN as of November 06. My neuro would not prescribe it for me I had to go to a Homeopathic Dr. I feel sooo much better. Alot of the numbness in my hands and feet have subsided. The tingling in my legs that often kept me from sleeping is gone and I am sleeping so much better with great dreams. I don't know if it is a placebo effect or not, but overall I do feel better. I have more energy and I have been able to decrease my neurontin for back pain. Overall, it has been a very worthwhile endeavor and cheap too. Hope this helps you. Kim n T <callisto_11uk@...> wrote: I was wondering how well LDN deals with the following types of symptoms:1.

numbness in extremities (feet, hands)2. balance problems and/or vertigo3. daily fatigue (either as a result of overdoing things or just theusual MS 'afternoon fatigue')4. vision problems/disturbances (ie. things in visual field appearing tomove or jump around and/or optical muscles - rather than actual opticneuritis as such)5. 'brain fog', cognitive functioning, memory6. buzzing or fizzing pins and needles in extremities or elsewhereIf anyone already on LDN can give any indication of whether it hashelped such symptoms, or similar ones, (rather than mobility and bladderproblems as have already been reported upon), I'd be grateful. I'm notyet on LDN but am hunting it down! (UK)Thanks all,n

[Guest guest]

n, I've been on 4.5 for almost 2 months and it has done wonderful things for me. My balance has improved to where I've almost lost my limp of 7 years and the fatigue has lessened greatly.I also feel that I can focus much better mentally. Can I ask you what the "Good results" that you got from the capaxone were since I'm trying to decide whether or not to get on it with the LDN which I will stay on indefinately. kim sparks <one78bugfan@...> wrote: Hello

n, I have been on copaxone for almost 3 years with good results. But I have also started LDN as of November 06. My neuro would not prescribe it for me I had to go to a Homeopathic Dr. I feel sooo much better. Alot of the numbness in my hands and feet have subsided. The tingling in my legs that often kept me from sleeping is gone and I am sleeping so much better with great dreams. I don't know if it is a placebo effect or not, but overall I do feel better. I have more energy and I have been able to decrease my neurontin for back pain. Overall, it has been a very worthwhile endeavor and cheap too. Hope this helps you. Kim n T <callisto_11uk (DOT) co.uk> wrote: I was wondering how well LDN deals with the following types of symptoms:1. numbness in extremities (feet,

hands)2. balance problems and/or vertigo3. daily fatigue (either as a result of overdoing things or just theusual MS 'afternoon fatigue')4. vision problems/disturbances (ie. things in visual field appearing tomove or jump around and/or optical muscles - rather than actual opticneuritis as such)5. 'brain fog', cognitive functioning, memory6. buzzing or fizzing pins and needles in extremities or elsewhereIf anyone already on LDN can give any indication of whether it hashelped such symptoms, or similar ones, (rather than mobility and bladderproblems as have already been reported upon), I'd be grateful. I'm notyet on LDN but am hunting it down! (UK)Thanks all,n

[Guest guest]

Laurel, Im bumping this up the thread so Kim sees it and can answer your

Copaxone qustion - it was her who mentioned that.

Would love to hear more from anyone else about 'invisible symptom'

relief or improvement or indeed any negative reports about such things

as a result of using LDN - all things in balance huh?! I'd particularly

like to hear from anyone who's had visual disturbance symptoms (which

was my very first symptom, and is still with me more than a decade later

- see no.4 on my question list). I get this 'jumpy vision' quite a lot

of the time, particularly when I'm in an unfamiliar place or large room

like a theatre or big canteen/cafe/restaurant)

- n

>

> I was wondering how well LDN deals with the following types of

symptoms:

>

> 1. numbness in extremities (feet, hands)

> 2. balance problems and/or vertigo

> 3. daily fatigue (either as a result of overdoing things or just the

> usual MS 'afternoon fatigue')

> 4. vision problems/disturbances (ie. things in visual field appearing

to

> move or jump around and/or optical muscles - rather than actual optic

> neuritis as such)

> 5. 'brain fog', cognitive functioning, memory

> 6. buzzing or fizzing pins and needles in extremities or elsewhere

>

> If anyone already on LDN can give any indication of whether it has

> helped such symptoms, or similar ones, (rather than mobility and

bladder

> problems as have already been reported upon), I'd be grateful. I'm not

> yet on LDN but am hunting it down! (UK)

>

> Thanks all,

> n

>

>

>

>

>

>

[Guest guest]

Hi Laurel, I do feel that the Copaxone did stabilize me and I have had no attacks since. I've read alot about ldn the past two years. My brother was diagnosed with ms this past summer and really encouraged me to try the ldn. He is also using it with no CRABS drugs. I'm afraid to stop the copaxone...I don't want to rock the boat with anything. I feel good and can teach school full time (first grade). KimLaurel Forrest <lrlforrest@...> wrote: n, I've been on 4.5 for almost 2 months and it has done wonderful things for me. My balance has improved to where I've almost lost my limp of 7 years and the fatigue has lessened greatly.I also feel that I can focus much better mentally. Can I ask you what the "Good results" that you got from the

capaxone were since I'm trying to decide whether or not to get on it with the LDN which I will stay on indefinately. kim sparks <one78bugfan@...> wrote: Hello n, I have been on copaxone for almost 3 years with good results. But I have also started LDN as of November 06. My neuro would not prescribe it for me I had to go to a Homeopathic Dr. I feel sooo much better. Alot of the numbness in my hands and feet have subsided. The tingling in my legs that often kept me from sleeping is gone and I am sleeping so much better with great dreams. I don't know if it is a placebo effect or not, but overall I do feel better. I have more energy and I have been able to decrease my neurontin for back pain. Overall, it has

been a very worthwhile endeavor and cheap too. Hope this helps you. Kim n T <callisto_11uk (DOT) co.uk> wrote: I was wondering how well LDN deals with the following types of symptoms:1. numbness in extremities (feet, hands)2. balance problems and/or vertigo3. daily fatigue (either as a result of overdoing things or just theusual MS 'afternoon fatigue')4. vision problems/disturbances (ie. things in visual field appearing tomove or jump around and/or optical muscles - rather than actual opticneuritis as such)5. 'brain fog', cognitive functioning, memory6. buzzing or fizzing pins and needles in extremities or elsewhereIf anyone already on LDN can give any indication of whether it hashelped such symptoms, or similar ones, (rather than mobility and bladderproblems as have already

been reported upon), I'd be grateful. I'm notyet on LDN but am hunting it down! (UK)Thanks all,n

[Guest guest]

It is great to hear someone speak well about copaxone. Many consider using it with LDN. Other than statistical results you are the first anecdote that I have read professing benefits of copaxone.

Luigi

Re: [low dose naltrexone] LDN for more subtle or 'invisible' MS symptoms?

Hi Laurel,

I do feel that the Copaxone did stabilize me and I have had no attacks since. I've read alot about ldn the past two years. My brother was diagnosed with ms this past summer and really encouraged me to try the ldn. He is also using it with no CRABS drugs. I'm afraid to stop the copaxone...I don't want to rock the boat with anything. I feel good and can teach school full time (first grade).

KimLaurel Forrest <lrlforrest > wrote:

n,

I've been on 4.5 for almost 2 months and it has done wonderful things for me. My balance has improved to where I've almost lost my limp of 7 years and the fatigue has lessened greatly.I also feel that I can focus much better mentally. Can I ask you what the "Good results" that you got from the capaxone were since I'm trying to decide whether or not to get on it with the LDN which I will stay on indefinately. kim sparks <one78bugfan > wrote:

Hello n,

I have been on copaxone for almost 3 years with good results. But I have also started LDN as of November 06. My neuro would not prescribe it for me I had to go to a Homeopathic Dr. I feel sooo much better. Alot of the numbness in my hands and feet have subsided. The tingling in my legs that often kept me from sleeping is gone and I am sleeping so much better with great dreams. I don't know if it is a placebo effect or not, but overall I do feel better. I have more energy and I have been able to decrease my neurontin for back pain. Overall, it has been a very worthwhile endeavor and cheap too. Hope this helps you.

Kim n T <callisto_11uk (DOT) co.uk> wrote:

I was wondering how well LDN deals with the following types of symptoms:1. numbness in extremities (feet, hands)2. balance problems and/or vertigo3. daily fatigue (either as a result of overdoing things or just theusual MS 'afternoon fatigue')4. vision problems/disturbances (ie. things in visual field appearing tomove or jump around and/or optical muscles - rather than actual opticneuritis as such)5. 'brain fog', cognitive functioning, memory6. buzzing or fizzing pins and needles in extremities or elsewhereIf anyone already on LDN can give any indication of whether it hashelped such symptoms, or similar ones, (rather than mobility and bladderproblems as have already been reported upon), I'd be grateful. I'm notyet on LDN but am hunting it down! (UK)Thanks all,n

[Guest guest]

>

> It is great to hear someone speak well about copaxone. Many consider

using it with LDN. Other than statistical results you are the first

anecdote that I have read professing benefits of copaxone.

>

> Luigi

I don't think Copaxone is without risk. Some say it causes breast

cancer. One indepenent review says it does nothing to slow MS

progression.

[Guest guest]

>

> I don't think Copaxone is without risk. Some say it causes breast

> cancer. One indepenent review says it does nothing to slow MS

> progression.

>

In late 2003 I started Novantrone (at 10 mg, could not tolerate it any

higher), but my MS still continued to slowly progress. In June of 2005

I heard about the combo therapy of Novantrone and Copaxone, so my neuro

added Copaxone. On this combo therapy I stopped progressing for at

least a year. In Nov. 2006 I had my last Novantrone treatment and

without the blessings of my neuro I started LDN January 17, 2007. I've

had wonderful results so far with LDN - improved balance, less

spasticity, less fatigue. I will also continue the Copaxone. It was a

life-saver for me in 2005 and see no reason to stop it at this point.

It also helps that I have financial assistance for the Copaxone for at

least 2007.