Becky Re: Introduction and question about helmet in Erie, PA

[Guest guest]

Thanks, Becky. I am sort of leaning toward Union Orthotics, for the same reason

you mentioned. I think that it is a more proven product and that makes me more

comfortable. That being said, since you have had success with repo, could I ask

you a few questions? A little background: My daugter is now 6.5 months old and

in my opinion, her plagio is very mild. I really think that once she has hair

that you won't be able to tell at all unless you're really looking. I want to

take her for the evaluation, though, because I'm afraid that if I don't do it

now, I may regret it in the future. She did have some facial asymmetry and that

is almost gone. I'm really the only one who can see it. We repositioned her

from about 3 months till now and did see an improvement. But in the last month

or two, Corinne has been resisting us turning her head once she's asleep and her

progress has stopped. She was so good about it before and as soon as we'd put

her in the crib we could turn her head easily. Now,even while asleep she

resists us. But in the last few weeks she started turning on her side while

asleep, and luckily its not the flat side she turns to. So I am wondering, at

almost 7 months old, does repositioning still help? And can you give me any

more repo advice aside from just turning her head at night? Another thing to

mention is that the plagio is definitely not getting worse. She sits up very

well and is only on her head in the carseat or crib, and very occasionally in a

bouncer seat. Should I maybe wait another month before taking her to be

evaluated or should I do it now? Thanks so much!

Amber

Brookville, PA

Corinne, left tort

>

> From: " Becky " <res103198@...>

> Date: 2008/06/28 Sat AM 12:41:28 EDT

> Plagiocephaly

> Subject: Re: Introduction and question about helmet in Erie, PA

>

> Hi and welcome to the group. I am fromt he Pittsburgh area. I

> haven't had personal experiences with either place because I

> repositioned my baby to get her correction, but I have heard good

> things about Union Orthotics in Pittburgh. I have never heard of the

> place you are talking about in Erie. So if you go there, even jsut

> for a consult, I would love to know what you find out about their

> product.

>

> On a personal note, I am hesitant when I hear about places that have

> developed their own product. There are companies with established

> reputations in the field of cranial remolding orthoses. Judging by

> what you have said are your geographical options, I gather that

> Cranial Technologies is not an option for you unless you want to do

> some significant travelling. That said, and again this is only my

> personal opinion, I would definitely lean towards the more well-known

> product. I would have to be really dazzled by someplace if I was

> going to use a local-type band. If you do go for a consultation at

> the place in Erie, please ask a lot of questions about their

> product. And make sure youa re dazzled with whatever place you

> choose.

>

> Good luck and please let us know how it goes.

>

> Becky, repo moderator

> , repo grad

> Pittsburgh, PA

>

>

> >

> > Hi. My daughter Corinne was diagnosed at 3 months with torticollis

> > and she is now 6 months (almost tilt free). She also has plagio

> and I

> > am in the process of getting her an evaluation for a helmet or

> band.

> > There are only two places within 2 hours of my home that I can find

> > that offer orthotic devices for plagio. One is Union Orthotics and

> > Prosthetics in Pittsburgh, PA (they use the StarBand) and the other

> is

> > Presque Isle Rehab in Erie, PA. I can find plenty of info on the

> > Starband but apparently the place in Erie makes their own device

> and

> > they only call it a helmet. Has anyone here had any experience

> with

> > Presque Isle Rehab? Any info will be very helpful (I would love a

> > picture of their helmet). I plan to call both places today, as her

> PT

> > just said yesterday she thinks she should be evaluated for head

> shape.

> > Right now I'm leaning toward just taking her for the Starband, but

> if

> > there have been positive experiences in Erie, it would be great to

> > hear about them. Thanks!

> >

>

>

>

>