RE: New to Group - Hip Displacement. Also, any fellow Canadians?

[Guest guest]

My little girl is now 19 mos. She was banded at 7 mos. and helmet came off

at 13 mos. She started crawling weeks after the helmet came off. In my

opinion, the helmet did hinder her development. She also has low muscle

tone which usually goes along with Torticollis. Once she became mobile she

had an " awakening " . She is still behind and sees a PT. We are working on

an OT for her as well. Kaiser was not much of a help so we turned to our

local " Early Start Program " . They are now working with us to resolve her

developmental issues. Hope this helps...

Kristi Yates (Ellie's mother, 19 mos.)

New to Group - Hip Displacement. Also, any fellow

Canadians?

Hello I'm new to this group and I live in Canada. I'm just

wondering if there any other fellow Canadian's out there who are

going through the headbanding experience with their child?

Wondering also if there is a difference between what happens in

Canada vs the USA regarding the headbanding or the type of helmut.

I do searches on the internet and always wonder if the information I

see there can be applicable to us here in Canada.

My son is now 9 1/2 months old and we are waiting for our first

appointment with the Orthotist this Wednesday (today is Monday). We

first started noticing flattening of his head on the left side when

he was about 5 months (can't completely remember?). At his 6 month

check up, our GP reffered him to a Pediatrician for his flattening,

and then after assessment from the Pediatrician we were reffered to

Children's to see an OT, and now we have set the appointment with

the Orthotist which has taken 2 1/2 weeks to get in. That's 4 1/2

months later. Anyways, perhaps this is normal, and I think they

wanted to wait it out to see if there were going to be any

improvements before they jumped the gun with it all.

Anyways, my son's story is that he had a hip displacement when he

was first born and he wore a full-body brace to help heal his hip

displacement which he wore 23 hrs a day for the first 2 1/2 months

of his life. (It was a difficult delivery with him and they had to

use the vacuum to get him out. He was really stuck.)

He also seemed to have Torticolis and would only turn his head to

the left, hence the flattening on the left side.

I am nervous about his appointment on Wednesday and praying that the

whole experience will not be too traumatizing for him. I am not

looking forward to the cast molding process at all. But I hear that

it goes quick. I am also afraid of skin irritation with the head

band as he deals with excema at times. Is there anything that can

help with trying to prevent irriations, or are they inevitable, and

you just deal with them as they come?

I am also wondering if people have noticed any developmental delays

in their children as a result of wearing the helmut. My son is 9

1/2 months old and just sitting now and still slightly unstable at

it. He's a big kid - 24 lbs. I hear that some kids who are bigger

don't begin to crawl until later on. Will the helmut cause it to be

a bit more delayed? Every kid is different I understand, but I am

just wondering other's experiences with this.

Anyways, a loaded message I know. I'm looking forward to doing some

more reading of the many posts in this group. Perhaps some of my

questions are already answered there.

Shari

Mom to:

Nolan - 9 1/2 months

Olivia - 2 1/2 months

[Guest guest]

Hi Kristi! Thanks for your response! I'm sorry to hear about your daughters developmental delays. I'm almost certain we will have the similar issues. He is now 9 1/2 months old and sitting is still an issue. He falls over and falls forward in half. He manages to get himself back up, but he tends to bob his head around quite a bit at times when he is tired especially. At other times he looks quite stable. His head measures 48cm (not sure what that is in inches). Apparently it's a big nogin! ) I am curious what you mean when your daughter has poor muscle control. Do you mean in her neck due to the Torticollis? Perhaps that's what my Nolan has too. I really think I need to see a Physiotherapist for him. We have never had his Torticollis officially seen by a PT and we think it has worked itself out, but perhaps there are still some issues hindering him in his

development. I'm curious what Kaiser is and also the "Early Start Program" you refer to. Thanks so much Kristi. Shari Dick(mom to Nolan 9 1/2 months)Kristi Yates <kyates@...> wrote: My little girl is now 19 mos. She was banded at 7 mos. and helmet came offat 13 mos. She started crawling weeks after the helmet came off. In myopinion, the helmet did hinder her development. She also has low muscletone which usually goes along with Torticollis. Once she became

mobile shehad an "awakening". She is still behind and sees a PT. We are working onan OT for her as well. Kaiser was not much of a help so we turned to ourlocal "Early Start Program". They are now working with us to resolve herdevelopmental issues. Hope this helps...Kristi Yates (Ellie's mother, 19 mos.) -----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of shari_dickSent: Monday, May 26, 2008 7:00 AMPlagiocephaly Subject: New to Group - Hip Displacement. Also, any fellowCanadians?Hello I'm new to this group and I live in Canada. I'm just wondering if there any other fellow Canadian's out there who are going through the headbanding

experience with their child? Wondering also if there is a difference between what happens in Canada vs the USA regarding the headbanding or the type of helmut. I do searches on the internet and always wonder if the information I see there can be applicable to us here in Canada.My son is now 9 1/2 months old and we are waiting for our first appointment with the Orthotist this Wednesday (today is Monday). We first started noticing flattening of his head on the left side when he was about 5 months (can't completely remember?). At his 6 month check up, our GP reffered him to a Pediatrician for his flattening, and then after assessment from the Pediatrician we were reffered to Children's to see an OT, and now we have set the appointment with the Orthotist which has taken 2 1/2 weeks to get in. That's 4 1/2 months later. Anyways, perhaps this is normal, and I think they wanted to wait it out to see if there were going

to be any improvements before they jumped the gun with it all. Anyways, my son's story is that he had a hip displacement when he was first born and he wore a full-body brace to help heal his hip displacement which he wore 23 hrs a day for the first 2 1/2 months of his life. (It was a difficult delivery with him and they had to use the vacuum to get him out. He was really stuck.) He also seemed to have Torticolis and would only turn his head to the left, hence the flattening on the left side. I am nervous about his appointment on Wednesday and praying that the whole experience will not be too traumatizing for him. I am not looking forward to the cast molding process at all. But I hear that it goes quick. I am also afraid of skin irritation with the head band as he deals with excema at times. Is there anything that can help with trying to prevent irriations, or are they inevitable, and you just deal with

them as they come?I am also wondering if people have noticed any developmental delays in their children as a result of wearing the helmut. My son is 9 1/2 months old and just sitting now and still slightly unstable at it. He's a big kid - 24 lbs. I hear that some kids who are bigger don't begin to crawl until later on. Will the helmut cause it to be a bit more delayed? Every kid is different I understand, but I am just wondering other's experiences with this. Anyways, a loaded message I know. I'm looking forward to doing some more reading of the many posts in this group. Perhaps some of my questions are already answered there. ShariMom to:Nolan - 9 1/2 months Olivia - 2 1/2 monthsShari

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