Re: New to group...so confused!

[Guest guest]

Hi, 5 mo is a great time to get started with a docband and I recommend

starting immediately. 30mm is really severe. Our specialist (cranio

facial plastic surgeon) recommends banding at 10mm or above as a point

of reference. You may get some correction with Bryce's severity it

really won't be enough to avoid banding, and if you have to band

anyway sooner is better. My daughter wore a starband for brachy and

did great. She started at 5 mo, and although our doctor gave us the

option of waiting longer (and trying repo) I am really glad we got her

in a band quickly. She wore it for 5 mo, and got good correction. If

we started later it would have taken longer to get the same (or maybe

lesser) results).

At first the idea of banding is overwhelming, but it really is much

easier than you can imagine right now. Also for the CST if $ is

tight, I wouldn't continue. If the $65 is no big deal, then it doesn't

hurt to try it in conjunction with banding.

-christine

sydney 2 yrs starband grad

>

> My son, Bryce will be 5 months old on the 7th. He was initially dx

> with torticollis on the left side. Ped said to do stretches and

> reposition. he was not concerned with the flat spot on the back on

> the head. He says that he see's kids everyday with flat heads and

> has only put one kid in a helmet in ten years. Then at his 4 month

> appt, he was dx with severe plagiosephly (sp). He referred us to PT

> and a cranial sacral therapist. I am just sooooo stressed about this

> whole ordeal. I get such mixed information and opinions. I have

> got 4 opinions so far.

>

> Bryce just started PT last Thursday. The PT stated that he is

> surprised at Bryce's range of motion and the fact that he still has a

> pretty significant flat spot. She stated that it would not be bad to

> wait a month and keep doing PT and Cranial Sacral therapy and see if

> it makes a difference.

>

> Initially the cranial sacral therapist said that we have a chance at

> correcting the head with tx. He was not 100% on board, but felt that

> it was a good shot. He had been pleased with Bryce's progress. Then

> on Friday when I saw him, after my appt at Cranial Teach (which I

> will get to in a minute), then he said that there is a good chance

> that the tx that he is doing WON'T CORRECT HIS HEAD, but it will give

> him better range of motion. That is not what he initially said!!!

> He then went on to say that Bryce's case is severe and that he should

> have seen him within the first week of life. Well, NOBODY EVER ACTED

> LIKE IT WAS AN ISSUE UNTIL NOW! That cranial sacral tx is $65 a

> session and Bryce's goes 2x a week. I don't know what to do with

> that appt for the future.

>

> Lastly, the Cranial Tech people had a very strong opinion that Bryce

> needs a helmet. I went this past Fri, after PT recommended it and

> said that it couldn't hurt to get Bryce evaluated. Pt felt that

> Bryce's plagio he was a severe case also. They said that he needs a

> helmet and he needs it now. I will try and scan you pics and send

> them along after this message. They said that the younger he gets the

> band, the better the results. The said that Bryce's head is a 30mm

> and should be between a 5-10 if that makes sense. The thing that

> concerns me is the asymmetry that is noticeable in Bryce's face...his

> eye and ears. His one eye is open smaller and the ears are not

> aligned. You can see in the pic.

>

> Initially the Ped. stated that he believes that my sons head it will

> get better on his own. Then today he called and said.. " well how much

> better it will get on its own with PT is the question? " He called

> after he got the request from Cranial Tech to put my son in a

> helmet. NOW HE IS SAYING THAT BRYCE COULD BENEFIT FROM A HELMET. He

> is now referring me to a cranial facial surgeon to get one last

> opinion and perspective. I am pleased with that rec.

>

> I have just really started agrressively repositioning last week. We

> have been having him sleep on his side at daycare, but he won't do it

> during the night. I am going to try putting a blanket under the

> mattress and try to get him to sleep on his side starting tonight. I

> have tried the rolled blanket ON TOP in the past, but he rolls over

> onto his back within a few minutes. We have been doing the stretches

> and he has pretty good range of motion. He does prefer the flat

> side.

>

>

> I will try to post pics if i can figure it out. It will be under

> Bryce...if it works.

>

> Opinions, suggestions, etc are much appreciated.

>

> and Bryce

>

[Guest guest]

Hi and welcome to the group. I am so sorry about the

runaround you have gotten in the past months. It is especially sad

that no one made an issue about the severity of his plagio, and 30mm

is REALLY severe.

It is good that you are starting to reposition now and I would

suggest continuing to do so as aggresively as possible until Bryce

starts treatment with a band. You may get some degree of correction

if you are still repositioning through the growth spurt most babies

have at 6months. However, with the severity of your son's plagio, I

wouldn't count on repositioning providing satisfactory correction.

My suggestion would be to pursue band treatment and reposition him in

the meantime while you are waiting.

Please trust yourself on this.

Becky, repo moderator

, repo grad

>

> My son, Bryce will be 5 months old on the 7th. He was initially dx

> with torticollis on the left side. Ped said to do stretches and

> reposition. he was not concerned with the flat spot on the back on

> the head. He says that he see's kids everyday with flat heads and

> has only put one kid in a helmet in ten years. Then at his 4 month

> appt, he was dx with severe plagiosephly (sp). He referred us to PT

> and a cranial sacral therapist. I am just sooooo stressed about

this

> whole ordeal. I get such mixed information and opinions. I have

> got 4 opinions so far.

>

> Bryce just started PT last Thursday. The PT stated that he is

> surprised at Bryce's range of motion and the fact that he still has

a

> pretty significant flat spot. She stated that it would not be bad

to

> wait a month and keep doing PT and Cranial Sacral therapy and see

if

> it makes a difference.

>

> Initially the cranial sacral therapist said that we have a chance

at

> correcting the head with tx. He was not 100% on board, but felt

that

> it was a good shot. He had been pleased with Bryce's progress.

Then

> on Friday when I saw him, after my appt at Cranial Teach (which I

> will get to in a minute), then he said that there is a good chance

> that the tx that he is doing WON'T CORRECT HIS HEAD, but it will

give

> him better range of motion. That is not what he initially said!!!

> He then went on to say that Bryce's case is severe and that he

should

> have seen him within the first week of life. Well, NOBODY EVER

ACTED

> LIKE IT WAS AN ISSUE UNTIL NOW! That cranial sacral tx is $65 a

> session and Bryce's goes 2x a week. I don't know what to do with

> that appt for the future.

>

> Lastly, the Cranial Tech people had a very strong opinion that

Bryce

> needs a helmet. I went this past Fri, after PT recommended it and

> said that it couldn't hurt to get Bryce evaluated. Pt felt that

> Bryce's plagio he was a severe case also. They said that he needs

a

> helmet and he needs it now. I will try and scan you pics and send

> them along after this message. They said that the younger he gets

the

> band, the better the results. The said that Bryce's head is a 30mm

> and should be between a 5-10 if that makes sense. The thing that

> concerns me is the asymmetry that is noticeable in Bryce's

face...his

> eye and ears. His one eye is open smaller and the ears are not

> aligned. You can see in the pic.

>

> Initially the Ped. stated that he believes that my sons head it

will

> get better on his own. Then today he called and said.. " well how

much

> better it will get on its own with PT is the question? " He called

> after he got the request from Cranial Tech to put my son in a

> helmet. NOW HE IS SAYING THAT BRYCE COULD BENEFIT FROM A HELMET.

He

> is now referring me to a cranial facial surgeon to get one last

> opinion and perspective. I am pleased with that rec.

>

> I have just really started agrressively repositioning last week.

We

> have been having him sleep on his side at daycare, but he won't do

it

> during the night. I am going to try putting a blanket under the

> mattress and try to get him to sleep on his side starting tonight.

I

> have tried the rolled blanket ON TOP in the past, but he rolls over

> onto his back within a few minutes. We have been doing the

stretches

> and he has pretty good range of motion. He does prefer the flat

> side.

>

>

> I will try to post pics if i can figure it out. It will be under

> Bryce...if it works.

>

> Opinions, suggestions, etc are much appreciated.

>

> and Bryce

>