Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I think what you have experienced has been experienced by quite a few, including myself. I do remember reading in the beginning (of this group) that this does happen. I remember walking without a cane or not holding the first week and then back to my "normal!" The only hope this gives me is that ...I may actually be able to do it again some day because it was possible. It did happen again when my dose was raised, but that also faded. We also found that we felt better in the evenings, as though a switch was turned on , that too faded. I do not have the answers as to why this occurs but I do know that I have basically remained the same after almost 4 yrs on LDN. I would not stop the LDN unless an actual cure was found for MS. KikiAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 This sounds very disheartening. Have you talked to your doctor? Is he aware of this medication and the results of different doses? Does he offer any encouragement or other options? Jim J. tdonner1 <tdonner1@...> wrote: I have been taking LDN for over 2 years now but I am unsure of the results I have been getting. When I first started taking LDN I started at the 3mg dose for about 3-4 weeks with absolutly no results. Then I started taking the 4.5mg dose and the second day I was on it I felt better(balance, walking spasticity, etc.) than I had felt for 10 years.To my disappointment this only lasted for that 1 day. I have been on this same dose for over 2 years just hoping I can return to that feeling I got ONCE! Does anyone have similar results? TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 When I first read this, I thought to myself, someone else with unreal expectations, and I was just going to ignore it. But I feel compelled to remind some that slowing/halting of progression is the main goal. Any symptomatic improvement is the icing on the cake. Also, LDN, like any drug, will not work for everyone. I've been taking it for 3 1/2 years, and honestly, it's hard to tell much difference, but I was very progressed to begin with. I truly believe the worst of my problems are from lack of mobility, and a UTI nearly killed me last summer. I'm still trying to get my strength back. I've been in a wheelchair for nearly 8 years. I'm past the denial and desperation. I just trust that the LDN is helping. Avonex didn't. Marcie tdonner1 <tdonner1 > wrote: I have been taking LDN for over 2 years now but I am unsure of the results I have been getting. When I first started taking LDN I started at the 3mg dose for about 3-4 weeks with absolutly no results. Then I started taking the 4.5mg dose and the second day I was on it I felt better(balance, walking spasticity, etc.) than I had felt for 10 years.To my disappointment this only lasted for that 1 day. I have been on this same dose for over 2 years just hoping I can return to that feeling I got ONCE! Does anyone have similar results? TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 > > I have been taking LDN for over 2 years now but I am unsure of the > results I have been getting. When I first started taking LDN I started > at the 3mg dose for about 3-4 weeks with absolutly no results. Then I > started taking the 4.5mg dose and the second day I was on it I felt > better(balance, walking spasticity, etc.) than I had felt for 10 years. > To my disappointment this only lasted for that 1 day. I have been on > this same dose for over 2 years just hoping I can return to that > feeling I got ONCE! Does anyone have similar results? > The purpose of LDN is to halt progression of the disease's listed on the main website. Any symptom improvement is considered a bonus. Artie -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Hi Kiki, I just wonder if maybe the large dosage would not be a good idea and then back down to the norm. I don't know why, but just maybe it would be helpful. I will send you the message where someone did this rather by accident. My best Aletha Re: [low dose naltrexone] Results on LDN I think what you have experienced has been experienced by quite a few, including myself. I do remember reading in the beginning (of this group) that this does happen. I remember walking without a cane or not holding the first week and then back to my "normal!" The only hope this gives me is that ...I may actually be able to do it again some day because it was possible. It did happen again when my dose was raised, but that also faded. We also found that we felt better in the evenings, as though a switch was turned on , that too faded. I do not have the answers as to why this occurs but I do know that I have basically remained the same after almost 4 yrs on LDN. I would not stop the LDN unless an actual cure was found for MS. Kiki AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
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