Re: Just joined and I have a few questions - San

[Guest guest]

I don't think plagio is genetic, although large heads are genetic, and

larger heads are more prone to getting plagio (according to our

specialist). But it does sound like his plagio and tort started in

utero. Medical professionals are horrible at sharing this info.

However looking back we did get a paper about plagio from the hospital

where my daughter was born - I found it ages after she finished with

her band. We adopted her so we had lots and lots of papers coming home

from the hospital :-)

As for severity, you said your son was 93. That might be his cepahlic

index, which is the measure for brachy (flat in back). This is

measured by dividing head width by length. Normal is around 80. Plagio

measures asymmetry, and 30mm is the worst measurement I've seen.

Usually babies above 10 mm should be banded.

I don't know about the san antonio locations. Cranial Tech

(www.cranialtech.com) has offices in Austin, Dallas and Houston. They

do only banding, so their staff is well trained. With other bands such

as Hanger or Starband the ortho may do many kinds of orthotics, so

experience levels vary. We went to a very good starband ortho in

california.Hopefully you'll get some feedback on San .

The band is pretty easy to deal with after the first week or so. It

just becomes part of your routine, and usually you can see improvement

in the first few weeks.

take care. -christine

sydney 2 yrs starband grad

>

> When I was in my 7th month my son dropped and I suffered from

> pressure pains all day everyday till the first day of my 38th week. I

> had to have a repeat c-section and after the birth my son james

> went to the NICU for 8 hours for fluid in his lungs. From the time I

> first saw he when they brought him to me after his stay in NICU I

> noticed his head. I was really worried about it because my daughter

> had a perfectly round head (she was a c-section), she never made to

> the birth canal. So my first question is Is Plagio genetic?

> My son has been in and out of the hospital for various reasons since

> he was 2 weeks old. Second question Why didn't any of the staff or

> DOCTORS tell my anything about his head why did they look over it,

> should things like this be incorparated in there routine check ups?

> has been going to PT since 2 months old and we worked on

> repostioning and streching! has torticolis and his measurments

> for his Plagio was a 93! How severe is his case of plagio? I've been

> worried about it since he was born cause he had a large bump looking

> spot on his forhead and his ears were way off from each other (one

> was push up far and the other was pushed more back) and the right

> side of the back of his head is really flat. We went to the Hanger

> here in San antonio and I just wanted to know how good they were and

> if anyone has gone to them. And my last question is How much does the

> day to day routine change in a houshold that has a child or children

> with Plagio and that wear a band (helment)?

> Sorry for all the questions but I would greatly apprieciate it if

> someone would get back to me with some answers. It would relieve alot

> of stress and tension in my life right now.

>

> Mother of a Jenasis Starr a 2year old and a 4 month old

> Thank you

>

>

[Guest guest]

(or anyone who knows), I read what you said about how to

measure brachy and the most severe plagio measurement you've seen.

But, how do they measure plagio? How did they come to the 30mm for

plagio? I asked my son's orthotist and he didn't know what I was

talking about. I'm praying that's because I didn't know how to

communicate my question. Just curious! Thanks!

> >

> > When I was in my 7th month my son dropped and I suffered from

> > pressure pains all day everyday till the first day of my 38th

week. I

> > had to have a repeat c-section and after the birth my son

james

> > went to the NICU for 8 hours for fluid in his lungs. From the

time I

> > first saw he when they brought him to me after his stay in NICU I

> > noticed his head. I was really worried about it because my

daughter

> > had a perfectly round head (she was a c-section), she never made

to

> > the birth canal. So my first question is Is Plagio genetic?

> > My son has been in and out of the hospital for various reasons

since

> > he was 2 weeks old. Second question Why didn't any of the staff

or

> > DOCTORS tell my anything about his head why did they look over

it,

> > should things like this be incorparated in there routine check

ups?

> > has been going to PT since 2 months old and we worked on

> > repostioning and streching! has torticolis and his

measurments

> > for his Plagio was a 93! How severe is his case of plagio? I've

been

> > worried about it since he was born cause he had a large bump

looking

> > spot on his forhead and his ears were way off from each other

(one

> > was push up far and the other was pushed more back) and the right

> > side of the back of his head is really flat. We went to the

Hanger

> > here in San antonio and I just wanted to know how good they were

and

> > if anyone has gone to them. And my last question is How much does

the

> > day to day routine change in a houshold that has a child or

children

> > with Plagio and that wear a band (helment)?

> > Sorry for all the questions but I would greatly apprieciate it if

> > someone would get back to me with some answers. It would relieve

alot

> > of stress and tension in my life right now.

> >

> > Mother of a Jenasis Starr a 2year old and a 4 month old

> > Thank you

> >

> >

>

[Guest guest]

I've heard that some orthos don't measure at all. Which I guess is

fine, because it's probably not always great to get stuck on the

numbers. But you would think they are at least good as a notable

starting point.

I think just threw out 30mm as an example. But they measure

(with calipers) from the right temple to the back left of the head

(there's a specific spot they look for, but I can't remember the

official name of it), and then from the left temple to the back right

of the head. Then they subtract the lower number (the flat sides)

from the higher number (the bossed/prominent sides) and you get the

cranial vault asymmetry. My son's was 15mm at the start of treatment

and was considered borderline moderate-severe (at CT, other orthos

might judge it differently). They can also measure the skull base

asym (ear misalignment) by measuring from the right ear to the nose,

then from the left ear to the nose, and subtracting those numbers. My

son's skull base asym was also 15mm.

We also went to a StarBand ortho before banding and she just took

measurements of the top of the head and gave me a measurement of

11/16 of an inch, which doesn't equal 15mm, so it seems orthos must

measure differently.

I think explained how the brachy measurement is obtained.

Hope that helps!

Jake-20m (tort resolved/rt plagio/DOCBand)

Jordan-4

> > >

> > > When I was in my 7th month my son dropped and I suffered from

> > > pressure pains all day everyday till the first day of my 38th

> week. I

> > > had to have a repeat c-section and after the birth my son

> james

> > > went to the NICU for 8 hours for fluid in his lungs. From the

> time I

> > > first saw he when they brought him to me after his stay in NICU

I

> > > noticed his head. I was really worried about it because my

> daughter

> > > had a perfectly round head (she was a c-section), she never

made

> to

> > > the birth canal. So my first question is Is Plagio genetic?

> > > My son has been in and out of the hospital for various reasons

> since

> > > he was 2 weeks old. Second question Why didn't any of the staff

> or

> > > DOCTORS tell my anything about his head why did they look over

> it,

> > > should things like this be incorparated in there routine check

> ups?

> > > has been going to PT since 2 months old and we worked on

> > > repostioning and streching! has torticolis and his

> measurments

> > > for his Plagio was a 93! How severe is his case of plagio? I've

> been

> > > worried about it since he was born cause he had a large bump

> looking

> > > spot on his forhead and his ears were way off from each other

> (one

> > > was push up far and the other was pushed more back) and the

right

> > > side of the back of his head is really flat. We went to the

> Hanger

> > > here in San antonio and I just wanted to know how good they

were

> and

> > > if anyone has gone to them. And my last question is How much

does

> the

> > > day to day routine change in a houshold that has a child or

> children

> > > with Plagio and that wear a band (helment)?

> > > Sorry for all the questions but I would greatly apprieciate it

if

> > > someone would get back to me with some answers. It would

relieve

> alot

> > > of stress and tension in my life right now.

> > >

> > > Mother of a Jenasis Starr a 2year old and a 4 month

old

> > > Thank you

> > >

> > >

> >

>

[Guest guest]

Plagio is usually measured by measuring two diagonals on the head -

left front to right back, and right front to left back. They are

measured on a 30 degree angle - like a big " X " . The measurements

should be the same. 0-3mm different is normal. if the difference is

10mm or greater most doctors would recommend banding. Anything above

15 is considered severe.

Some doctors also use a percent, but this is less common. For example

100% would mean that both sides are the same. If they two sides were

off by 10%, then the symmetry ratio would be 90%. It possible that

your doctor is using these numbers, but they aren't used as frequently.

If you post some pictures I can tell you what I think. The top of the

head usually shows it the most (but not always, depending on the

baby's head).

-christine

sydney 2 yrs starband grad

> > >

> > > When I was in my 7th month my son dropped and I suffered from

> > > pressure pains all day everyday till the first day of my 38th

> week. I

> > > had to have a repeat c-section and after the birth my son

> james

> > > went to the NICU for 8 hours for fluid in his lungs. From the

> time I

> > > first saw he when they brought him to me after his stay in NICU I

> > > noticed his head. I was really worried about it because my

> daughter

> > > had a perfectly round head (she was a c-section), she never made

> to

> > > the birth canal. So my first question is Is Plagio genetic?

> > > My son has been in and out of the hospital for various reasons

> since

> > > he was 2 weeks old. Second question Why didn't any of the staff

> or

> > > DOCTORS tell my anything about his head why did they look over

> it,

> > > should things like this be incorparated in there routine check

> ups?

> > > has been going to PT since 2 months old and we worked on

> > > repostioning and streching! has torticolis and his

> measurments

> > > for his Plagio was a 93! How severe is his case of plagio? I've

> been

> > > worried about it since he was born cause he had a large bump

> looking

> > > spot on his forhead and his ears were way off from each other

> (one

> > > was push up far and the other was pushed more back) and the right

> > > side of the back of his head is really flat. We went to the

> Hanger

> > > here in San antonio and I just wanted to know how good they were

> and

> > > if anyone has gone to them. And my last question is How much does

> the

> > > day to day routine change in a houshold that has a child or

> children

> > > with Plagio and that wear a band (helment)?

> > > Sorry for all the questions but I would greatly apprieciate it if

> > > someone would get back to me with some answers. It would relieve

> alot

> > > of stress and tension in my life right now.

> > >

> > > Mother of a Jenasis Starr a 2year old and a 4 month old

> > > Thank you

> > >

> > >

> >

>

[Guest guest]

/, Thanks for explaining the measurements. That will

help me communicate with the ortho next visit. Another concern: I

mentioned that the helmet seemed loose. I asked him how the helmet

could function as an active device (because I thought it was supposed

to be) if it was loose. He said that DOC and STARbands were mostly

passive, just there to provide a concave surface for the head to lay

on. I told him the D in DOC stood for Dynamic because it was

supposed to be using gentle pressure to facilitate progress. I

looked on the Orthoamerica website and they called the STARband an

active orthosis. Sooooo...isn't that kind of a basic thing? Would

you be disturbed if you had had this conversation with the one

responsible for your child's banding? Welcome feedback from anybody!

Thanks!

*8mo*tort resolved*lft. plagio*STARband 5wks

Conner 2yrs

Eastern NC

> > > >

> > > > When I was in my 7th month my son dropped and I suffered from

> > > > pressure pains all day everyday till the first day of my 38th

> > week. I

> > > > had to have a repeat c-section and after the birth my son

> > james

> > > > went to the NICU for 8 hours for fluid in his lungs. From the

> > time I

> > > > first saw he when they brought him to me after his stay in

NICU

> I

> > > > noticed his head. I was really worried about it because my

> > daughter

> > > > had a perfectly round head (she was a c-section), she never

> made

> > to

> > > > the birth canal. So my first question is Is Plagio genetic?

> > > > My son has been in and out of the hospital for various

reasons

> > since

> > > > he was 2 weeks old. Second question Why didn't any of the

staff

> > or

> > > > DOCTORS tell my anything about his head why did they look

over

> > it,

> > > > should things like this be incorparated in there routine

check

> > ups?

> > > > has been going to PT since 2 months old and we worked on

> > > > repostioning and streching! has torticolis and his

> > measurments

> > > > for his Plagio was a 93! How severe is his case of plagio?

I've

> > been

> > > > worried about it since he was born cause he had a large bump

> > looking

> > > > spot on his forhead and his ears were way off from each other

> > (one

> > > > was push up far and the other was pushed more back) and the

> right

> > > > side of the back of his head is really flat. We went to the

> > Hanger

> > > > here in San antonio and I just wanted to know how good they

> were

> > and

> > > > if anyone has gone to them. And my last question is How much

> does

> > the

> > > > day to day routine change in a houshold that has a child or

> > children

> > > > with Plagio and that wear a band (helment)?

> > > > Sorry for all the questions but I would greatly apprieciate

it

> if

> > > > someone would get back to me with some answers. It would

> relieve

> > alot

> > > > of stress and tension in my life right now.

> > > >

> > > > Mother of a Jenasis Starr a 2year old and a 4

month

> old

> > > > Thank you

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hi -

I wouldn't be as concerned that the ortho referred to the DOC and

STAR bands as passive, if he wasn't, in fact, a STARband ortho (if he

was a Hanger ortho for instance, you could chalk it up to not knowing

much about other brands). That, to me, is a little scary. They are

most certainly both active bands. Orthomerica does make 1 or 2

passive bands but the STARBand is not. A passive band is just a

plastice shell, and just like he said, a concave shape for the head

to grow into. Active bands provide very gentle pressure to hold the

prominent areas in place and promote growth in the flat areas, and

need adjustments throughout treatment.

Where are you going for your STARBand. I know we've chatted before

and you're in Eastern NC, but where exactly do you travel for the

band. Maybe someone can let you know what they think if they've used

the same ortho office before.

Jake-20m (tort resolved/rt plagio/DOCBand)

Jordan-4

> > > > >

> > > > > When I was in my 7th month my son dropped and I suffered

from

> > > > > pressure pains all day everyday till the first day of my

38th

> > > week. I

> > > > > had to have a repeat c-section and after the birth my son

>

> > > james

> > > > > went to the NICU for 8 hours for fluid in his lungs. From

the

> > > time I

> > > > > first saw he when they brought him to me after his stay in

> NICU

> > I

> > > > > noticed his head. I was really worried about it because my

> > > daughter

> > > > > had a perfectly round head (she was a c-section), she never

> > made

> > > to

> > > > > the birth canal. So my first question is Is Plagio genetic?

> > > > > My son has been in and out of the hospital for various

> reasons

> > > since

> > > > > he was 2 weeks old. Second question Why didn't any of the

> staff

> > > or

> > > > > DOCTORS tell my anything about his head why did they look

> over

> > > it,

> > > > > should things like this be incorparated in there routine

> check

> > > ups?

> > > > > has been going to PT since 2 months old and we worked

on

> > > > > repostioning and streching! has torticolis and his

> > > measurments

> > > > > for his Plagio was a 93! How severe is his case of plagio?

> I've

> > > been

> > > > > worried about it since he was born cause he had a large

bump

> > > looking

> > > > > spot on his forhead and his ears were way off from each

other

> > > (one

> > > > > was push up far and the other was pushed more back) and the

> > right

> > > > > side of the back of his head is really flat. We went to the

> > > Hanger

> > > > > here in San antonio and I just wanted to know how good they

> > were

> > > and

> > > > > if anyone has gone to them. And my last question is How

much

> > does

> > > the

> > > > > day to day routine change in a houshold that has a child or

> > > children

> > > > > with Plagio and that wear a band (helment)?

> > > > > Sorry for all the questions but I would greatly apprieciate

> it

> > if

> > > > > someone would get back to me with some answers. It would

> > relieve

> > > alot

> > > > > of stress and tension in my life right now.

> > > > >

> > > > > Mother of a Jenasis Starr a 2year old and a 4

> month

> > old

> > > > > Thank you

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

/, Thank you both again for the info. I did post

some pictures of 's head. I thought I put them in an album,

but I don't see them there. They are in the new photos space, so if

the before picture of 's head helps, you can really see the

flat spot. I'm pretty sure the ortho took right front to left back

and vice versa measurements. Now all I should have to do is ask him

to give them to me and I can do the math myself. That will help me

compare what I hear on these boards to what I see in . You can

tell from the pictures that he is making progress. That's

encouraging!

Thanks again,

*8mo*tort resolved*lft plagio*STARband 5 weeks

Conner *2yrs

Am I really suppposed to type all that every time I post, or only

when I start a new topic?

> > > >

> > > > When I was in my 7th month my son dropped and I suffered from

> > > > pressure pains all day everyday till the first day of my 38th

> > week. I

> > > > had to have a repeat c-section and after the birth my son

> > james

> > > > went to the NICU for 8 hours for fluid in his lungs. From the

> > time I

> > > > first saw he when they brought him to me after his stay in

NICU I

> > > > noticed his head. I was really worried about it because my

> > daughter

> > > > had a perfectly round head (she was a c-section), she never

made

> > to

> > > > the birth canal. So my first question is Is Plagio genetic?

> > > > My son has been in and out of the hospital for various

reasons

> > since

> > > > he was 2 weeks old. Second question Why didn't any of the

staff

> > or

> > > > DOCTORS tell my anything about his head why did they look

over

> > it,

> > > > should things like this be incorparated in there routine

check

> > ups?

> > > > has been going to PT since 2 months old and we worked on

> > > > repostioning and streching! has torticolis and his

> > measurments

> > > > for his Plagio was a 93! How severe is his case of plagio?

I've

> > been

> > > > worried about it since he was born cause he had a large bump

> > looking

> > > > spot on his forhead and his ears were way off from each other

> > (one

> > > > was push up far and the other was pushed more back) and the

right

> > > > side of the back of his head is really flat. We went to the

> > Hanger

> > > > here in San antonio and I just wanted to know how good they

were

> > and

> > > > if anyone has gone to them. And my last question is How much

does

> > the

> > > > day to day routine change in a houshold that has a child or

> > children

> > > > with Plagio and that wear a band (helment)?

> > > > Sorry for all the questions but I would greatly apprieciate

it if

> > > > someone would get back to me with some answers. It would

relieve

> > alot

> > > > of stress and tension in my life right now.

> > > >

> > > > Mother of a Jenasis Starr a 2year old and a 4

month old

> > > > Thank you

> > > >

> > > >

> > >

> >

>

[Guest guest]

Our ortho was very good but had an odd bedside manner. I remember

asking him about active/passive once and he was pretty dismissive of

it. However my daughter's band (Starband) did fit snugly where her

head needed to be held, so in my opinion it was active. Also we were

getting good results at each visit.

I'm not saying our ortho was right, just that he didn't take that

terminology too seriously. I'm not sure what the deal is with your ortho.

-christine

sydney 2 yrs starband grad

> > > > >

> > > > > When I was in my 7th month my son dropped and I suffered from

> > > > > pressure pains all day everyday till the first day of my 38th

> > > week. I

> > > > > had to have a repeat c-section and after the birth my son

>

> > > james

> > > > > went to the NICU for 8 hours for fluid in his lungs. From the

> > > time I

> > > > > first saw he when they brought him to me after his stay in

> NICU

> > I

> > > > > noticed his head. I was really worried about it because my

> > > daughter

> > > > > had a perfectly round head (she was a c-section), she never

> > made

> > > to

> > > > > the birth canal. So my first question is Is Plagio genetic?

> > > > > My son has been in and out of the hospital for various

> reasons

> > > since

> > > > > he was 2 weeks old. Second question Why didn't any of the

> staff

> > > or

> > > > > DOCTORS tell my anything about his head why did they look

> over

> > > it,

> > > > > should things like this be incorparated in there routine

> check

> > > ups?

> > > > > has been going to PT since 2 months old and we worked on

> > > > > repostioning and streching! has torticolis and his

> > > measurments

> > > > > for his Plagio was a 93! How severe is his case of plagio?

> I've

> > > been

> > > > > worried about it since he was born cause he had a large bump

> > > looking

> > > > > spot on his forhead and his ears were way off from each other

> > > (one

> > > > > was push up far and the other was pushed more back) and the

> > right

> > > > > side of the back of his head is really flat. We went to the

> > > Hanger

> > > > > here in San antonio and I just wanted to know how good they

> > were

> > > and

> > > > > if anyone has gone to them. And my last question is How much

> > does

> > > the

> > > > > day to day routine change in a houshold that has a child or

> > > children

> > > > > with Plagio and that wear a band (helment)?

> > > > > Sorry for all the questions but I would greatly apprieciate

> it

> > if

> > > > > someone would get back to me with some answers. It would

> > relieve

> > > alot

> > > > > of stress and tension in my life right now.

> > > > >

> > > > > Mother of a Jenasis Starr a 2year old and a 4

> month

> > old

> > > > > Thank you

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi ,

too funny about the signature - you can do whatever you want. Some

people put it in their signature file, but then I think it would get

sent no matter which group you send too (assuming you are in multiple

groups).

I looked at 's pics. I would say was probably severe. I don't

really know how many mm. You should ask your doc or ortho for the

measurements. Here is a link to my daughter's starscan output as an

example of measurements.

http://health.ph./group/Plagiocephaly/photos/view/e3ac?b=51 & m=f & \

o=0

If you look at this you see Diag1 and Diag2. The difference was 4.5mm

and went down to 3.5 mm (we were really only trying to fix the brachy,

so the asymmetry didn't change much).

-christine

sydney 2 yrs starband grad

> > > > >

> > > > > When I was in my 7th month my son dropped and I suffered from

> > > > > pressure pains all day everyday till the first day of my 38th

> > > week. I

> > > > > had to have a repeat c-section and after the birth my son

>

> > > james

> > > > > went to the NICU for 8 hours for fluid in his lungs. From the

> > > time I

> > > > > first saw he when they brought him to me after his stay in

> NICU I

> > > > > noticed his head. I was really worried about it because my

> > > daughter

> > > > > had a perfectly round head (she was a c-section), she never

> made

> > > to

> > > > > the birth canal. So my first question is Is Plagio genetic?

> > > > > My son has been in and out of the hospital for various

> reasons

> > > since

> > > > > he was 2 weeks old. Second question Why didn't any of the

> staff

> > > or

> > > > > DOCTORS tell my anything about his head why did they look

> over

> > > it,

> > > > > should things like this be incorparated in there routine

> check

> > > ups?

> > > > > has been going to PT since 2 months old and we worked on

> > > > > repostioning and streching! has torticolis and his

> > > measurments

> > > > > for his Plagio was a 93! How severe is his case of plagio?

> I've

> > > been

> > > > > worried about it since he was born cause he had a large bump

> > > looking

> > > > > spot on his forhead and his ears were way off from each other

> > > (one

> > > > > was push up far and the other was pushed more back) and the

> right

> > > > > side of the back of his head is really flat. We went to the

> > > Hanger

> > > > > here in San antonio and I just wanted to know how good they

> were

> > > and

> > > > > if anyone has gone to them. And my last question is How much

> does

> > > the

> > > > > day to day routine change in a houshold that has a child or

> > > children

> > > > > with Plagio and that wear a band (helment)?

> > > > > Sorry for all the questions but I would greatly apprieciate

> it if

> > > > > someone would get back to me with some answers. It would

> relieve

> > > alot

> > > > > of stress and tension in my life right now.

> > > > >

> > > > > Mother of a Jenasis Starr a 2year old and a 4

> month old

> > > > > Thank you

> > > > >

> > > > >

> > > >

> > >

> >

>