Hello and Quick Update

[Guest guest]

Hey Everyone,

Haven't posted in the group for a few weeks. So I thought it was about

time I did. Just a quick history:

My son, Spencer developed brachycephaly a few months ago, due to

reflux, not liking tummy time aswell as having slight torticollis. We were

seeing a paediatric physio and doing all the excercises aswell as counter

positioning, but nothing seemed to work. So we were referred to orthotics.

So since then we have been to orthotics and Spencer was casted and then

we had to wait for his helmet to be made. So we recieve the helmet and

Spencer starts wearing it immediatly. He has never had an issue with the

helmet. After 3 or 4 days of getting used to the helmet we noticed a very

red pressure sore on the side of Spencer's face. So we left the helmet off

so the sore could clear up and until we saw orthotics. They took a bit of

foam out from the side and everything has been fine since. Built him back

up to wearing it for long periods and now Spencer is wearing the helmet to

bed of a night. My only issue is that the helmet rides up at the back and

then falls down towards his eyes, when he is lying on his back in bed,

which is leaving a gap at the top on the inside. Make sense? I am forever

re-adjusting the helmet and pushing it back down when I get him out of

bed. I also find the helmet so bloody annoying when it comes to cuddling

my baby while giving him his bottle, that eventually I end up pulling the

helmet off for the bottle feed and putting it back on afterwards. I guess the

really good thing is that the helmet has not affected his great sleeping of a

night I think that the great routine I already had Spencer in has certainly

helped. So Spencer is now 8 months old and has been wearing his helmet

for about 3 weeks now and I can see his head starting to change shape

already.

Cheers,

Alison (TAS, Australia)

Spencer, 8 months, brachy

Fletcher, 4 years old, CHD Graduate

[Guest guest]

Hi,

I'm glad spencer is doing well. Sydney had brachy too, but her band

didn't slip much. I also left it on for feeding, but i remember it

used to dig into my arm where I rested her head - ouch.

I'm glad you're seeing a change. Keep us posted on his progress.

-christine

sydney 2.5 yrs starband grad

>

> Hey Everyone,

> Haven't posted in the group for a few weeks. So I thought it was about

> time I did. Just a quick history:

>

> My son, Spencer developed brachycephaly a few months ago, due to

> reflux, not liking tummy time aswell as having slight torticollis.

We were

> seeing a paediatric physio and doing all the excercises aswell as

counter

> positioning, but nothing seemed to work. So we were referred to

orthotics.

>

> So since then we have been to orthotics and Spencer was casted and then

> we had to wait for his helmet to be made. So we recieve the helmet and

> Spencer starts wearing it immediatly. He has never had an issue with

the

> helmet. After 3 or 4 days of getting used to the helmet we noticed a

very

> red pressure sore on the side of Spencer's face. So we left the

helmet off

> so the sore could clear up and until we saw orthotics. They took a

bit of

> foam out from the side and everything has been fine since. Built him

back

> up to wearing it for long periods and now Spencer is wearing the

helmet to

> bed of a night. My only issue is that the helmet rides up at the

back and

> then falls down towards his eyes, when he is lying on his back in bed,

> which is leaving a gap at the top on the inside. Make sense? I am

forever

> re-adjusting the helmet and pushing it back down when I get him out of

> bed. I also find the helmet so bloody annoying when it comes to

cuddling

> my baby while giving him his bottle, that eventually I end up

pulling the

> helmet off for the bottle feed and putting it back on afterwards. I

guess the

> really good thing is that the helmet has not affected his great

sleeping of a

> night I think that the great routine I already had Spencer in has

certainly

> helped. So Spencer is now 8 months old and has been wearing his helmet

> for about 3 weeks now and I can see his head starting to change shape

> already.

>

> Cheers,

> Alison (TAS, Australia)

> Spencer, 8 months, brachy

> Fletcher, 4 years old, CHD Graduate

>

[Guest guest]

My son's helmet also moved around over his eyes. Our ortho put a pad on the inside by his forehead and adjusted the size. It fits perfect now, he seems a lot more comfortable.

Hello and Quick Update

Hey Everyone,Haven't posted in the group for a few weeks. So I thought it was about time I did. Just a quick history:My son, Spencer developed brachycephaly a few months ago, due to reflux, not liking tummy time aswell as having slight torticollis. We were seeing a paediatric physio and doing all the excercises aswell as counter positioning, but nothing seemed to work. So we were referred to orthotics.So since then we have been to orthotics and Spencer was casted and then we had to wait for his helmet to be made. So we recieve the helmet and Spencer starts wearing it immediatly. He has never had an issue with the helmet. After 3 or 4 days of getting used to the helmet we noticed a very red pressure sore on the side of Spencer's face. So we left the helmet off so the sore could clear up and until we saw orthotics. They took a bit of foam out from the side and everything has been fine since.

Built him back up to wearing it for long periods and now Spencer is wearing the helmet to bed of a night. My only issue is that the helmet rides up at the back and then falls down towards his eyes, when he is lying on his back in bed, which is leaving a gap at the top on the inside. Make sense? I am forever re-adjusting the helmet and pushing it back down when I get him out of bed. I also find the helmet so bloody annoying when it comes to cuddling my baby while giving him his bottle, that eventually I end up pulling the helmet off for the bottle feed and putting it back on afterwards. I guess the really good thing is that the helmet has not affected his great sleeping of a night I think that the great routine I already had Spencer in has certainly helped. So Spencer is now 8 months old and has been wearing his helmet for about 3 weeks now and I can see his head starting to change shape already.

Cheers,Alison (TAS, Australia)Spencer, 8 months, brachyFletcher, 4 years old, CHD Graduate

[Guest guest]

During feedings I use a boppy pillow to support my sons head. We can still snuggle without the helmet digging into my arm :-)

Re: Hello and Quick Update

Hi,I'm glad spencer is doing well. Sydney had brachy too, but her banddidn't slip much. I also left it on for feeding, but i remember itused to dig into my arm where I rested her head - ouch.I'm glad you're seeing a change. Keep us posted on his progress.-christinesydney 2.5 yrs starband grad>> Hey Everyone,> Haven't posted in the group for a few weeks. So I thought it was about > time I did. Just a quick history:> > My son, Spencer developed brachycephaly a few months ago, due to > reflux, not liking tummy time aswell as having slight torticollis.We were > seeing a paediatric physio and doing all the excercises aswell ascounter >

positioning, but nothing seemed to work. So we were referred toorthotics.> > So since then we have been to orthotics and Spencer was casted and then > we had to wait for his helmet to be made. So we recieve the helmet and > Spencer starts wearing it immediatly. He has never had an issue withthe > helmet. After 3 or 4 days of getting used to the helmet we noticed avery > red pressure sore on the side of Spencer's face. So we left thehelmet off > so the sore could clear up and until we saw orthotics. They took abit of > foam out from the side and everything has been fine since. Built himback > up to wearing it for long periods and now Spencer is wearing thehelmet to > bed of a night. My only issue is that the helmet rides up at theback and > then falls down towards his eyes, when he is lying on his back in bed, > which is leaving a gap at

the top on the inside. Make sense? I amforever > re-adjusting the helmet and pushing it back down when I get him out of > bed. I also find the helmet so bloody annoying when it comes tocuddling > my baby while giving him his bottle, that eventually I end uppulling the > helmet off for the bottle feed and putting it back on afterwards. Iguess the > really good thing is that the helmet has not affected his greatsleeping of a > night I think that the great routine I already had Spencer in hascertainly > helped. So Spencer is now 8 months old and has been wearing his helmet > for about 3 weeks now and I can see his head starting to change shape > already. > > Cheers,> Alison (TAS, Australia)> Spencer, 8 months, brachy> Fletcher, 4 years old, CHD Graduate>