Guest guest Posted June 22, 2008 Report Share Posted June 22, 2008 Maybe Maury Povich would be the person to start with in getting the word out there. Just thought I would throw that in there. I am with you all!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Not counting myself there are about 18 people between the older plagio and the plagio group that are willing to get involved. Dare I hope that someone might actually listen to us? Tammy Merkel From: denasiegel <denasiegel (DOT) com>Subject: Re: Making People AwarePlagiocephalyDate: Wednesday, June 25, 2008, 12:37 AM I think the key to getting a producer at one of these television showsto take notice is to present the story in their language. They aren'tinterested in bleeding heart or "woe is me" stories as much as theyare interested in a story that has tension and controversy.Fortunately, this story (our stories) DO have tension: it is themedical establishment inadvertently causing a medical condition whichthey then later say is unnecessary to treat; its parents vs insurance;and perhaps parents being taken in by pseudo-medical companies withdubious claims of success in their desperation to find a "cure" (notmy opinion, but it could be construed that way).I think the story is complex enough and controversial enough to be ofmore interest to 60 Minutes than Oprah or Maury. The format of thetalk shows might make it difficult to represent all sides of the issueto the audience.>[portion of post deleted]> This brings me to the reason for my post. Maybe it's a long shot, but > perhaps if all the parents got together and wrote letters and sent > pictures to someone like Oprah then maybe it would open the publics > eyes. People need to be aware of the fact that this is a growing > problem and doctors aren't treating it. So far there are 2 other > people from the Older Plagio group that are willing to write leters. > Please consider it. I look forward to any feed back you may have.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 I would love to make people aware also. I wrote our local news and had no response :-( Tell me where to write and I am in too. Re: Making People Aware I also think that is a great idea. Let us know if there is anything we can do. Getting this out to as many people as possible is so important. So many don't know of it until it's already happening.> >> [portion of post deleted]> > This brings me to the reason for my post. Maybe it's a long shot, but > > perhaps if all the parents got together and wrote letters and sent > > pictures to someone like Oprah then maybe it would open the publics > > eyes. People need to be aware of the fact that this is a growing > > problem and doctors aren't treating it. So far there are 2 other > > people from the Older Plagio group that are willing to write leters. > > Please consider it. I look forward to any feed back you may have.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 I'll let you know her response. We can also write Oprah at http://www2.oprah.com/tows/intheworks/tows_works_main.jhtml - click on "we want your show ideas" to submit. Re: Making People AwarePlagiocephalyDate: Wednesday, June 25, 2008, 12:37 AM I think the key to getting a producer at one of these television showsto take notice is to present the story in their language. They aren'tinterested in bleeding heart or "woe is me" stories as much as theyare interested in a story that has tension and controversy.Fortunately, this story (our stories) DO have tension: it is themedical establishment inadvertently causing a medical condition whichthey then later say is unnecessary to treat; its parents vs insurance;and perhaps parents being taken in by pseudo-medical companies withdubious claims of success in their desperation to find a "cure" (notmy opinion, but it could be construed that way).I think the story is complex enough and controversial enough to be ofmore interest to 60 Minutes than Oprah or Maury. The format of thetalk shows might make it difficult to represent all sides of the issueto the audience.>[portion of post deleted]> This brings me to the reason for my post. Maybe it's a long shot, but > perhaps if all the parents got together and wrote letters and sent > pictures to someone like Oprah then maybe it would open the publics > eyes. People need to be aware of the fact that this is a growing > problem and doctors aren't treating it. So far there are 2 other > people from the Older Plagio group that are willing to write leters. > Please consider it. I look forward to any feed back you may have.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Me too!!!! Just let me know! I am with you guys 100%!From: Chrissy Mc <cdm11382@...>Subject: Re: Re: Making People AwarePlagiocephaly Date: Thursday, June 26, 2008, 2:04 PM I would love to make people aware also. I wrote our local news and had no response :-( Tell me where to write and I am in too. Re: Making People Aware I also think that is a great idea. Let us know if there is anything we can do. Getting this out to as many people as possible is so important. So many don't know of it until it's already happening.> >> [portion of post deleted]> > This brings me to the reason for my post. Maybe it's a long shot, but > > perhaps if all the parents got together and wrote letters and sent > > pictures to someone like Oprah then maybe it would open the publics > > eyes. People need to be aware of the fact that this is a growing > > problem and doctors aren't treating it. So far there are 2 other > > people from the Older Plagio group that are willing to write leters. > > Please consider it. I look forward to any feed back you may have.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 Sounds good to me. It doesn't matter who does the show, just that it's out in the publics eye. Ellen would be just as good as Oprah. If you could get a hold of him that would be great. From: Gardner <tinkmommyof3@...>Subject: Re: Re: Making People AwarePlagiocephaly Date: Sunday, June 29, 2008, 2:48 PM i think this idea is awsome and i would love to be included. i was also wondering maybe Ellen Degenrese would be willing to do on show on this. i have a number to a guy at her show so if you all think its sounds good i will try to get a hold of him. Bradley 14 months ( starbamd for 5 months) Madison 3 yrs 7yrs Re: Making People Aware I wrote to Oprah. We'll see what happens! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 We don't start until next week and I am on board. Even I am just learning the lingo etc. Heck, I always thought(and my sister told me the same thing) that the bands were helmets for kids who banged their heads too much. I say the TODAY show and the View are good for these kinds of things. Lots of the correspondents on the Today show have recently had babies or are having them soon and I bet they'd be great ones to contact. Also, on the View has a young baby so she would be the one to contact there. Pulling on the heartstrings of the Mom's can get help us get the word out. Plagiocephaly From: elanderson75@...Date: Sun, 6 Jul 2008 13:52:12 -0500Subject: Re: Re: Making People Aware Count me in! has only had his DOC band a week and I feel likeI've gone through this explanation so much. It would be so nice tobring awareness to the issue. I have to admit, before this happenedwith , I knew nothing about plagio - not even the name. We needto spread the word.I would be happy to send out letters. Let me know what else I can do. Roderick, mom of , 6 months old, 5 days in DOC band!On Sat, Jul 5, 2008 at 11:42 PM, Tammy Merkel <merk_woman > wrote:>> Ok, had a friend give me an idea. She suggested the March of Dimes. While> on their website I noticed a link to a fund raiser that was being done by> Regis and for the March of Dimes. What do you think? Would Regis and> be interested?>>>> Do you want to start with one show, or do several shows at once? I'm think> Regis and , Oprah, Ellen and Parents Magazine. Suggestions? Comments?> I'm open to anything.>>>> I also think that we shold not only e-mail them but send letters along with> pictures. You can't really get as detailed in an e-mail because they only> give you a little space to write. Also with the letters we can send> pictures.>>>> If we're going to do this then we need to band together. It will have more> effect if they see that we come from not only different states, but also> different countries.>>>> What do you think? If you're ready then I will post the links and> addresses. All you have to do is create one e-mail and just copy and past> to all of them. Same with the letters. Print the same letter for all of> them. I would suggest that you sign the letters personally rather than> printed signature. Include a before, during and (if your litttle one has> graduated) after pic.>>>> I'm ready to start are you?>>>> Tammy Merkel mother of 8 1/2 months starband 2 1/2 months>> Quote Link to comment Share on other sites More sharing options...
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