Re: fillers; which is safe?

[Guest guest]

>

> I have a question regarding fillers. I started LDN with lactose

> filler, 4.5 mg. for Crohn's and so far, I am worse. I took a CRP

test

> (blood marker of inflammation) before and after a month on LDN, and

> before it was 8.59 (normal is <1) and after a month, it was 12.10!

My

> Crohn's symptoms haven't really changed, except perhaps I have more

> mucus and blood than before, but I'm not sure. I stopped taking LDN

a

> few days ago, after talking to Skip from Skip's pharmacy, and

another

> woman with Crohn's wrote to me saying that the lactose made her

worse

> too. I also went completely off dairy 3 days ago (when I stopped

LDN.)

> I am waiting for a new shipment of LDN with Avocel, but then I

read

> that was allergic to it, and I'm starting to wonder.

> Acidopholus makes the most sense, but Skip was going on about how he

> thought probiotics were not good for Crohn's, that they could

overgrow,

> despite the many probiotic double blind studies that show efficacy;

> I've turned flares around with acidopholus, so I don't really know

> where he's getting his information. But I don't know now if it was

the

> lactose that made things worse or the Naltrexone. Now I am

wondering

> if I'm going to react badly to the avocel, and shouldn't try to get

my

> local compounding pharmacy to remix it with acidopholus. (If he has

> it.) Since cutting out dairy completely, this morning I had an

> extremely mucusy and bloody loose bowel movement, which is the worst

> yet since I started LDN. Is it worsening now that I've stopped? Or

> did the lactose or naltrexone cause things to worsen, and its going

> down that road? Do you all think it was the lactose? , how

did

> you know you were allergic to the Avocel? I don't feel like I have

a

> lot longer to keep experimenting, especially if it is the naltrexone

> itself is worsening my symptoms. I see my GI this Friday, and I

know

> he is going to recommend an immunosuppresive, after a colonoscopy to

> assess where the disease is at. I suppose I have the time between

now

> and that colonoscopy to give LDN one more shot, but I don't know

which

> filler to try, and now am feeling very cautious about the medicine

> itself. What does everyone think?

>

>

> Debora

>

=============

I feel non-dairy, non-refrigerate acidophilus is the best choice

filler for those with crohn's. Much research has shown acidophilus

quite beneficial for crohn's and if you've had positive results with

acidophilus for your crohn's flare ups then you should try to get that

as your filler. Irmat in New York uses Acidophilus in the LDN

capsules if you ask for it. I had used lactose with great results for

several months but I wanted to try avicel to see if I could use Skip's

and get my LDN cheaper so I tried the switch and I experiece headache,

nausea and near vomiting on Avicel so after 3 weeks of misery I

switched back to lactose and all was great again.

I'd say go for the acidophilus as a filler and get a book

called...Prescription for Nutritional Healing third Edition by

F. Balch, M.D. and Phyllis A. Balch, C.N.C. The third edition book is

maroon in color. Do a google search. I have found this book to be a

great tool in improving my health. Its layout is wonderful. I don't

use everything that's recommended under each section but I pick out

what I feel would be the most beneficial supplements for me from their

lists.

[Guest guest]

> >

> > I have a question regarding fillers. I started LDN with lactose

> > filler, 4.5 mg. for Crohn's and so far, I am worse. I took a CRP

> test

> > (blood marker of inflammation) before and after a month on LDN,

and

> > before it was 8.59 (normal is <1) and after a month, it was

12.10!

> My

> > Crohn's symptoms haven't really changed, except perhaps I have

more

> > mucus and blood than before, but I'm not sure. I stopped taking

LDN

> a

> > few days ago, after talking to Skip from Skip's pharmacy, and

> another

> > woman with Crohn's wrote to me saying that the lactose made her

> worse

> > too. I also went completely off dairy 3 days ago (when I stopped

> LDN.)

> > I am waiting for a new shipment of LDN with Avocel, but then I

> read

> > that was allergic to it, and I'm starting to wonder.

> > Acidopholus makes the most sense, but Skip was going on about how

he

> > thought probiotics were not good for Crohn's, that they could

> overgrow,

> > despite the many probiotic double blind studies that show

efficacy;

> > I've turned flares around with acidopholus, so I don't really

know

> > where he's getting his information. But I don't know now if it

was

> the

> > lactose that made things worse or the Naltrexone. Now I am

> wondering

> > if I'm going to react badly to the avocel, and shouldn't try to

get

> my

> > local compounding pharmacy to remix it with acidopholus. (If he

has

> > it.) Since cutting out dairy completely, this morning I had an

> > extremely mucusy and bloody loose bowel movement, which is the

worst

> > yet since I started LDN. Is it worsening now that I've stopped?

Or

> > did the lactose or naltrexone cause things to worsen, and its

going

> > down that road? Do you all think it was the lactose? , how

> did

> > you know you were allergic to the Avocel? I don't feel like I

have

> a

> > lot longer to keep experimenting, especially if it is the

naltrexone

> > itself is worsening my symptoms. I see my GI this Friday, and I

> know

> > he is going to recommend an immunosuppresive, after a colonoscopy

to

> > assess where the disease is at. I suppose I have the time

between

> now

> > and that colonoscopy to give LDN one more shot, but I don't know

> which

> > filler to try, and now am feeling very cautious about the

medicine

> > itself. What does everyone think?

> >

> >

> > Debora

> >

> =============

>

> I feel non-dairy, non-refrigerate acidophilus is the best choice

> filler for those with crohn's. Much research has shown acidophilus

> quite beneficial for crohn's and if you've had positive results

with

> acidophilus for your crohn's flare ups then you should try to get

that

> as your filler. Irmat in New York uses Acidophilus in the LDN

> capsules if you ask for it. I had used lactose with great results

for

> several months but I wanted to try avicel to see if I could use

Skip's

> and get my LDN cheaper so I tried the switch and I experiece

headache,

> nausea and near vomiting on Avicel so after 3 weeks of misery I

> switched back to lactose and all was great again.

>

> I'd say go for the acidophilus as a filler and get a book

> called...Prescription for Nutritional Healing third Edition by

> F. Balch, M.D. and Phyllis A. Balch, C.N.C. The third edition book

is

> maroon in color. Do a google search. I have found this book to be

a

> great tool in improving my health. Its layout is wonderful. I

don't

> use everything that's recommended under each section but I pick out

> what I feel would be the most beneficial supplements for me from

their

> lists.

>

>

Thank you for this . I'm new to all of this and I was going to

get a prescription from Skips Pharmacy, but it looks like I would be

better off looking elsewhere. I dont want to have more problems than

I have now. It looks like some fillers are better than others. Do you

have a phone number for the Irmat Pharmacy you speak of?

>

[Guest guest]

>

> >

> >

>

> Thank you for this . I'm new to all of this and I was going to

> get a prescription from Skips Pharmacy, but it looks like I would be

> better off looking elsewhere. I dont want to have more problems than

> I have now. It looks like some fillers are better than others. Do

you

> have a phone number for the Irmat Pharmacy you speak of?

==========

Skip's pharmacy is a great pharmacy if you are not allergic to the

avicel filler he uses. Many people can tolerate the avicel filler but

there are some of us that have had trouble with it and we all seem to

have the same symptoms on it if we are allergic to it. Skip says if

you're allergic to avicel, you're allergic to paper. LOL, don't think

I've ever eaten paper, not even as a little kid. I do know that when

the grocery stores used paper sacks that my eyes would sometimes get

irritated when I carried groceries in, wonder if there's a connection

there.

You can find a list of reliable compounding pharmacies on the LDN

website, just go there and scroll down till you see them. Irmat

pharmacy is listed there.

LDN website link

www.ldninfo.org

[Guest guest]

I only know Skip's pharmacy, been using their LDN since 4/17/03 and he says that's the best filler, unless YOU are allergic. Apparently I'm not allergic, http://www.larrygc.com/mystory

wouldn't use any others

[low dose naltrexone] Re: fillers; which is safe?

Thank you for this . I'm new to all of this and I was going to get a prescription from Skips Pharmacy, but it looks like I would be better off looking elsewhere. I dont want to have more problems than I have now. It looks like some fillers are better than others. Do you have a phone number for the Irmat Pharmacy you speak of?>

[Guest guest]

> Thank you for this . I'm new to all of this and I was going to

> get a prescription from Skips Pharmacy, but it looks like I would be

> better off looking elsewhere. I dont want to have more problems than

> I have now. It looks like some fillers are better than others. Do you

> have a phone number for the Irmat Pharmacy you speak of?

> >

>

,

is NOT telling you not to use Skip's Pharmacy. She's saying they

use only one type of filler and if you're allergic to Avicel that may

cause you problems. I use Skip's and highly recommend them. Low price's

and fast, courteous service.

Artie

[Guest guest]

here is the deal with the acidophylus.

and please excuse any spelling errors-my email is screwed up and i'm doing this

online. skip can address this if i am wrong.

you are more than welcome to take acidophhus along with your ldn but it is not

inert.

In compounding it is frowned upon to put two active substances in one capsule

because you don't know what they will do with each other.

Do some pharmacies do this? Yes. am I gonna address that here. no. Dr Skip in

his own wisdom feels this is the case and I have to agree with him.

Advicil is paper. it is inert and it is used (and thats how we started using it)

by a doc we work with that treats people with immune disorders & chemical

sensativities. He uses advicil exclusively.

Now brenda had a stomach ache. and I won't deny that but we also know that

has issue with yeast and goodness we don't know what s stomach was

doing that particular day.

In fact -I would postulate that people that have this issue may possible need to

get their stomachs in order.

its not the filler

its the belly

now having said that a very few people have this problem. accross the board.

Cyndi

[low dose naltrexone] Re: fillers; which is safe?

>

>

>>

>> I have a question regarding fillers. I started LDN with lactose

>> filler, 4.5 mg. for Crohn's and so far, I am worse. I took a CRP

>test

>> (blood marker of inflammation) before and after a month on LDN, and

>> before it was 8.59 (normal is <1) and after a month, it was 12.10!

>My

>> Crohn's symptoms haven't really changed, except perhaps I have more

>> mucus and blood than before, but I'm not sure. I stopped taking LDN

>a

>> few days ago, after talking to Skip from Skip's pharmacy, and

>another

>> woman with Crohn's wrote to me saying that the lactose made her

>worse

>> too. I also went completely off dairy 3 days ago (when I stopped

>LDN.)

>> I am waiting for a new shipment of LDN with Avocel, but then I

>read

>> that was allergic to it, and I'm starting to wonder.

>> Acidopholus makes the most sense, but Skip was going on about how he

>> thought probiotics were not good for Crohn's, that they could

>overgrow,

>> despite the many probiotic double blind studies that show efficacy;

>> I've turned flares around with acidopholus, so I don't really know

>> where he's getting his information. But I don't know now if it was

>the

>> lactose that made things worse or the Naltrexone. Now I am

>wondering

>> if I'm going to react badly to the avocel, and shouldn't try to get

>my

>> local compounding pharmacy to remix it with acidopholus. (If he has

>> it.) Since cutting out dairy completely, this morning I had an

>> extremely mucusy and bloody loose bowel movement, which is the worst

>> yet since I started LDN. Is it worsening now that I've stopped? Or

>> did the lactose or naltrexone cause things to worsen, and its going

>> down that road? Do you all think it was the lactose? , how

>did

>> you know you were allergic to the Avocel? I don't feel like I have

>a

>> lot longer to keep experimenting, especially if it is the naltrexone

>> itself is worsening my symptoms. I see my GI this Friday, and I

>know

>> he is going to recommend an immunosuppresive, after a colonoscopy to

>> assess where the disease is at. I suppose I have the time between

>now

>> and that colonoscopy to give LDN one more shot, but I don't know

>which

>> filler to try, and now am feeling very cautious about the medicine

>> itself. What does everyone think?

>>

>>

>> Debora

>>

>=============

>

>I feel non-dairy, non-refrigerate acidophilus is the best choice

>filler for those with crohn's. Much research has shown acidophilus

>quite beneficial for crohn's and if you've had positive results with

>acidophilus for your crohn's flare ups then you should try to get that

>as your filler. Irmat in New York uses Acidophilus in the LDN

>capsules if you ask for it. I had used lactose with great results for

>several months but I wanted to try avicel to see if I could use Skip's

>and get my LDN cheaper so I tried the switch and I experiece headache,

>nausea and near vomiting on Avicel so after 3 weeks of misery I

>switched back to lactose and all was great again.

>

>I'd say go for the acidophilus as a filler and get a book

>called...Prescription for Nutritional Healing third Edition by

>F. Balch, M.D. and Phyllis A. Balch, C.N.C. The third edition book is

>maroon in color. Do a google search. I have found this book to be a

>great tool in improving my health. Its layout is wonderful. I don't

>use everything that's recommended under each section but I pick out

>what I feel would be the most beneficial supplements for me from their

>lists.

>

>

>

[Guest guest]

> has issue with yeast and goodness we don't know what s

> stomach was doing that particular day.

> In fact -I would postulate that people that have this issue may

> possible need to get their stomachs in order.

> its not the filler

> its the belly

Yes, but those of us taking it for Crohn's are trying to GET their

stomachs in order. Most likely those with Crohn's have yeast

overgrowth, among other organisms, and are hoping the LDN can boost the

immune system to better control the problem. So LDN alone isn't enough

to overcome any adversity to the filler? I'm surprised that at how

small the capsules are, that the lactose in them (or acidopholus, etc.)

can be enough to negate the LDN. The Crohn's disease study used a form

of sugar as filler, but it still seemed to work. Wouldn't sugar be as

bad as lactose? So those with yeast should take what filler?

[Guest guest]

its not that the acidophyllus (sic) will negate the ldn -i didn't say that. a

filler by its very being should do nothing but take up space. thats why its

called a filler.

thats why i want skip to explain this -i'm not explaining it very well. i'm

sure he'll do a better job tomorrow.

some poeple have bad reactions. brenda is one of these people.

I don't want to get into a yeast discussion but I do feeling strongly that LDN

helps you get yourself back into good working order and that makes the

toleration better

IF if you have an issue.

This group is only a small proportion of people that take ldn.

we are all different and if there is a problem then there is a way to figure

things out.

cyndi

Re: [low dose naltrexone] Re: fillers; which is safe?

>

>> has issue with yeast and goodness we don't know what s

>> stomach was doing that particular day.

>> In fact -I would postulate that people that have this issue may

>> possible need to get their stomachs in order.

>> its not the filler

>> its the belly

>

>Yes, but those of us taking it for Crohn's are trying to GET their

>stomachs in order. Most likely those with Crohn's have yeast

>overgrowth, among other organisms, and are hoping the LDN can boost the

>immune system to better control the problem. So LDN alone isn't enough

>to overcome any adversity to the filler? I'm surprised that at how

>small the capsules are, that the lactose in them (or acidopholus, etc.)

>can be enough to negate the LDN. The Crohn's disease study used a form

>of sugar as filler, but it still seemed to work. Wouldn't sugar be as

>bad as lactose? So those with yeast should take what filler?

>

[Guest guest]

> >

Debora:

Do you have any antispasmodics? If so, take them whether you feel

like you're cramping or not. I had some sublinguals and librex left

over from before so I started taking them when things started acting

up and it seems to be getting me back on track. I too had the blood,

mucus, etc. and all that stopped and now no cramping, blood or

anything. I go three times a day. I'm going to stay on the librex

even though I have no symptoms until I run out and see what happens.

Vicky

> > I have a question regarding fillers. I started LDN with lactose

> > filler, 4.5 mg. for Crohn's and so far, I am worse. I took a CRP

> test

> > (blood marker of inflammation) before and after a month on LDN,

and

> > before it was 8.59 (normal is <1) and after a month, it was

12.10!

> My

> > Crohn's symptoms haven't really changed, except perhaps I have

more

> > mucus and blood than before, but I'm not sure. I stopped taking

LDN

> a

> > few days ago, after talking to Skip from Skip's pharmacy, and

> another

> > woman with Crohn's wrote to me saying that the lactose made her

> worse

> > too. I also went completely off dairy 3 days ago (when I stopped

> LDN.)

> > I am waiting for a new shipment of LDN with Avocel, but then I

> read

> > that was allergic to it, and I'm starting to wonder.

> > Acidopholus makes the most sense, but Skip was going on about how

he

> > thought probiotics were not good for Crohn's, that they could

> overgrow,

> > despite the many probiotic double blind studies that show

efficacy;

> > I've turned flares around with acidopholus, so I don't really

know

> > where he's getting his information. But I don't know now if it

was

> the

> > lactose that made things worse or the Naltrexone. Now I am

> wondering

> > if I'm going to react badly to the avocel, and shouldn't try to

get

> my

> > local compounding pharmacy to remix it with acidopholus. (If he

has

> > it.) Since cutting out dairy completely, this morning I had an

> > extremely mucusy and bloody loose bowel movement, which is the

worst

> > yet since I started LDN. Is it worsening now that I've stopped?

Or

> > did the lactose or naltrexone cause things to worsen, and its

going

> > down that road? Do you all think it was the lactose? , how

> did

> > you know you were allergic to the Avocel? I don't feel like I

have

> a

> > lot longer to keep experimenting, especially if it is the

naltrexone

> > itself is worsening my symptoms. I see my GI this Friday, and I

> know

> > he is going to recommend an immunosuppresive, after a colonoscopy

to

> > assess where the disease is at. I suppose I have the time

between

> now

> > and that colonoscopy to give LDN one more shot, but I don't know

> which

> > filler to try, and now am feeling very cautious about the

medicine

> > itself. What does everyone think?

> >

> >

> > Debora

> >

> =============

>

> I feel non-dairy, non-refrigerate acidophilus is the best choice

> filler for those with crohn's. Much research has shown acidophilus

> quite beneficial for crohn's and if you've had positive results

with

> acidophilus for your crohn's flare ups then you should try to get

that

> as your filler. Irmat in New York uses Acidophilus in the LDN

> capsules if you ask for it. I had used lactose with great results

for

> several months but I wanted to try avicel to see if I could use

Skip's

> and get my LDN cheaper so I tried the switch and I experiece

headache,

> nausea and near vomiting on Avicel so after 3 weeks of misery I

> switched back to lactose and all was great again.

>

> I'd say go for the acidophilus as a filler and get a book

> called...Prescription for Nutritional Healing third Edition by

> F. Balch, M.D. and Phyllis A. Balch, C.N.C. The third edition book

is

> maroon in color. Do a google search. I have found this book to be

a

> great tool in improving my health. Its layout is wonderful. I

don't

> use everything that's recommended under each section but I pick out

> what I feel would be the most beneficial supplements for me from

their

> lists.

>

>

>

[Guest guest]

i used this same book (earlier edition) when i was first diagnosed with crohn's!! i thank God every day that i did!! my dr. never told me about the use of supplements, nor anything about mal-absorption syndrome!! i was actually getting fat from the steroids i was on, and starving myself to death from malnutrition!! until i read that book!! don't have the latest edition, but did purchase the one after my 1st!! will purchase the latest on asap!!! thanks for sharing that info!!

marshiris

[Guest guest]

> > >

> Debora:

> Do you have any antispasmodics? If so, take them whether you feel

> like you're cramping or not. I had some sublinguals and librex left

> over from before so I started taking them when things started acting

> up and it seems to be getting me back on track. I too had the

blood,

> mucus, etc. and all that stopped and now no cramping, blood or

> anything. I go three times a day. I'm going to stay on the librex

> even though I have no symptoms until I run out and see what happens.

> Vicky

==========

Vicky,

When you mention Librex do you mean Librium? There is a supplement

that acts in the same way as Librium if you are interested and that is

GABA(Gamma-aminobutyric acid). Also for the mucus N-A-G(N-

acetylglucosamine), a major constituent of the barrier layer that

protects the intestinal lining from digestive enzymes and other

potentially damaging intestinal contents.

Garlic(Kyolic), 2 capsules 3 times daily with meals, Combats free

radicals in Crohn's disease, aids in healing.

Vitamin K, Vital to colon health. Deficiency is common in those with

crohn's.

Eat an alkaline diet.

Vicky, how long have you been on LDN now and what filler is in your

LDN capsules?

[Guest guest]

: It's not Librium...It's an antispasmodic, generic name Chlord/Cldi 5.2mg, my Dr. calls is Lebrex or Librex ..not sure of the spelling. It really does help with cramping. I started LDN on Oct 19, 2006 while tapering off Predisone and Entocort. By Oct. 24, 06 I was off all steriods. I started with a lactose filler at 3 mg and I also had .5mg in order to up the dosage slowly. When I got to 4mg, that was three capsules I was taking and the .5mg had alot of filler in them, that's when the belching, nausea, gas, etc. started so you suggested the acidophilus. As soon as I switched all those symptoms went away and by the first week in Dec. I was completely symptom free of Crohns. That lasted until New Years Eve when I me my husband in OK City, ate something that didn't taste right, but ate it anyway because I was starving, and three hours later it came back at me. After that my Crohn's was trying

to creep back until finally it won. When the blood loss was becoming too much to handle I started the antispasmodics and I have no cramping or blood and everything seems normal again. I was taking four/day and recommended and now I think I'll start to cut back to see what happens. So far so good, today. I think I will just cut back by one pill a day and see how I'm doing each day. VickyBren <b63powell@...> wrote: > > >> Debora:> Do you have any antispasmodics? If so, take them whether you feel > like you're cramping or not. I had some sublinguals and librex left > over from before so I started taking them when things started acting > up and it seems to be getting me back on track. I too had the blood, > mucus, etc. and all that stopped and now no cramping, blood or > anything. I go three times a day. I'm going to stay on

the librex > even though I have no symptoms until I run out and see what happens.> Vicky==========Vicky,When you mention Librex do you mean Librium? There is a supplement that acts in the same way as Librium if you are interested and that is GABA(Gamma-aminobutyric acid). Also for the mucus N-A-G(N-acetylglucosamine), a major constituent of the barrier layer that protects the intestinal lining from digestive enzymes and other potentially damaging intestinal contents.Garlic(Kyolic), 2 capsules 3 times daily with meals, Combats free radicals in Crohn's disease, aids in healing.Vitamin K, Vital to colon health. Deficiency is common in those with crohn's.Eat an alkaline diet.Vicky, how long have you been on LDN now and what filler is in your LDN capsules?

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games.

[Guest guest]

>

> :

> It's not Librium...It's an antispasmodic, generic name Chlord/Cldi

5.2mg, my Dr. calls is Lebrex or Librex ..not sure of the spelling.

It really does help with cramping.

=========

Librax....is Librium, the reason I asked is I used to take it when I

was suspected of having crohn's.

MedlinePlus Drug Information: Chlordiazepoxide

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682078.html

[Guest guest]

Hello everyone, I was taking rebif and I'm looking for another

therapy to use. I have heard a lot about ldn. I'm from Texas. Does

anyone know a doctor who is ldn friendly in the Dallas,Texas area?

Octavia

>

> its not that the acidophyllus (sic) will negate the ldn -i didn't

say that. a filler by its very being should do nothing but take up

space. thats why its called a filler.

> thats why i want skip to explain this -i'm not explaining it very

well. i'm sure he'll do a better job tomorrow.

> some poeple have bad reactions. brenda is one of these people.

> I don't want to get into a yeast discussion but I do feeling

strongly that LDN helps you get yourself back into good working order

and that makes the toleration better

> IF if you have an issue.

> This group is only a small proportion of people that take ldn.

> we are all different and if there is a problem then there is a way

to figure things out.

> cyndi

>

>

> Re: [low dose naltrexone] Re: fillers; which is safe?

> >

> >> has issue with yeast and goodness we don't know what

s

> >> stomach was doing that particular day.

> >> In fact -I would postulate that people that have this issue may

> >> possible need to get their stomachs in order.

> >> its not the filler

> >> its the belly

> >

> >Yes, but those of us taking it for Crohn's are trying to GET their

> >stomachs in order. Most likely those with Crohn's have yeast

> >overgrowth, among other organisms, and are hoping the LDN can

boost the

> >immune system to better control the problem. So LDN alone isn't

enough

> >to overcome any adversity to the filler? I'm surprised that at

how

> >small the capsules are, that the lactose in them (or acidopholus,

etc.)

> >can be enough to negate the LDN. The Crohn's disease study used a

form

> >of sugar as filler, but it still seemed to work. Wouldn't sugar

be as

> >bad as lactose? So those with yeast should take what filler?

> >

>

[Guest guest]

Librium is also used for mood disorders. There is a significant connection between the gut and the brain/mood.

mjh

You are thinking of Lithium for Bi-polar/manic depression.Librium and Lithium sound alike just the way Naltrexone and Novantrone do.

[Guest guest]

: Thank you so much for bringing that to my attention. I always thought that Librium was for Bi-polar. I'd better stop thinking! Anyway, During BAD flares I would eat it like candy along with the sublinguals (hyocyianine?sp) It was the only relief from the pain I could get, altho very brief. Now I'm afraid to take it. Do I bleed to death or become addicted to this drug. I only started using it again last Thurs when I lost what seemed like a gallon of blood with blood clots. Never had that before. The odd thing is, the pain and cramping was nothing like what I had been used to, that's why when I saw all that blood (3X) I went back to the Librex, altho the Librex never stopped the bleeding before while of Predisone and Entocort. Now on LDN - very minimal cramping if any and none at all when adding Librex and no blood what so ever. Also, I have been taking the supplement you

mentioned along with the alfalfa. I also take coloidial calcium, Vit D, Folic Acid and another coloidial containing 17 minerals and also a high potency probiotic containing 6 different strains, aloe vera, mangosteen. I'm probably forgetting something, but thats the jest of it. You've been a tremendous help. Thank you vickyBren <b63powell@...> wrote: >> :> It's not Librium...It's an antispasmodic, generic name Chlord/Cldi 5.2mg, my Dr. calls is Lebrex or Librex ..not sure of the spelling. It really does help with cramping. =========Librax....is Librium, the reason I asked is I used to take it when I was suspected of having crohn's.MedlinePlus Drug Information: Chlordiazepoxidehttp://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682078.html

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[Guest guest]

>

> :

> Thank you so much for bringing that to my attention. I always

thought that Librium was for Bi-polar. I'd better stop thinking!

Anyway, During BAD flares I would eat it like candy along with the

sublinguals (hyocyianine?sp) It was the only relief from the pain I

could get, altho very brief. Now I'm afraid to take it. Do I bleed

to death or become addicted to this drug. I only started using it

again last Thurs when I lost what seemed like a gallon of blood with

blood clots. Never had that before. The odd thing is, the pain and

cramping was nothing like what I had been used to, that's why when I

saw all that blood (3X) I went back to the Librex, altho the Librex

never stopped the bleeding before while of Predisone and Entocort.

Now on LDN - very minimal cramping if any and none at all when adding

Librex and no blood what so ever.

> Also, I have been taking the supplement you mentioned along with

the alfalfa. I also take coloidial calcium, Vit D, Folic Acid and

another coloidial containing 17 minerals and also a high potency

probiotic containing 6 different strains, aloe vera, mangosteen. I'm

probably forgetting something, but thats the jest of it.

> You've been a tremendous help. Thank you

> vicky

===========

Vicky,

Remember, it's going to take some time for your gut to heal as it's in

pretty bad shape. Your diet needs to be as alkaline as possible. Get

the book Prescription for Nutritional Healing third edition by

F. Balch and Phyllis A. Balch and see the sections under Crohn's &

IBS. In your situation you were probably the candidate to start with

the transdermal LDN so you could bypass the gut altogether. You might

want to consider TD LDN next month.

You are thinking of Lithium for Bi-polar/manic depression.

Librium and Lithium sound alike just the way Naltrexone and Novantrone

do.

[Guest guest]

>

> i used this same book (earlier edition) when i was first diagnosed

with

> crohn's!! i thank God every day that i did!! my dr. never told me

about the use

> of supplements, nor anything about mal-absorption syndrome!! i was

actually

> getting fat from the steroids i was on, and starving myself to

death from

> malnutrition!! until i read that book!! don't have the latest

edition, but

> did purchase the one after my 1st!! will purchase the latest on

asap!!!

> thanks for sharing that info!!

>

> marshiris

>

============

I have the 2nd and 3rd editions of Prescription for Nutritional

Healing by the Balch's and even though I take LDN I consider those

books my Holy Nutritional Bible. I have improved my health greatly

with their book and LDN.

[Guest guest]

Maybe the switching back and forth between different fillers is causing the problems. You're putting you're body on a "roller coaster ride of sorts" you have to give your body a chance to get used to the medicine before you start changing it and then changing it again. Avicel is just paper and paper is just wood. There is nothing wrong with LDN from Skip's. Because one person has an allergic reaction doesn't mean that you will too. Wait and talk to your physician before you start switching fillers or any other medication or diet for that matter.Vypaul_freiss <paul_freiss@...> wrote: > > > > I have a question regarding fillers. I started LDN with lactose > > filler, 4.5 mg. for Crohn's and so far, I am worse. I took a CRP > test > > (blood marker of inflammation) before and after a month on LDN, and > > before it was 8.59 (normal is <1) and after a month, it was 12.10! > My > > Crohn's symptoms haven't really changed, except perhaps I have more > > mucus and blood than before, but I'm not sure. I stopped taking LDN >

a > > few days ago, after talking to Skip from Skip's pharmacy, and > another > > woman with Crohn's wrote to me saying that the lactose made her > worse > > too. I also went completely off dairy 3 days ago (when I stopped > LDN.) > > I am waiting for a new shipment of LDN with Avocel, but then I > read > > that was allergic to it, and I'm starting to wonder. > > Acidopholus makes the most sense, but Skip was going on about how he > > thought probiotics were not good for Crohn's, that they could > overgrow, > > despite the many probiotic double blind studies that show efficacy; > > I've turned flares around with acidopholus, so I don't really know > > where he's getting his information. But I don't know now if it was > the > > lactose that made things worse or the Naltrexone.

Now I am > wondering > > if I'm going to react badly to the avocel, and shouldn't try to get > my > > local compounding pharmacy to remix it with acidopholus. (If he has > > it.) Since cutting out dairy completely, this morning I had an > > extremely mucusy and bloody loose bowel movement, which is the worst > > yet since I started LDN. Is it worsening now that I've stopped? Or > > did the lactose or naltrexone cause things to worsen, and its going > > down that road? Do you all think it was the lactose? , how > did > > you know you were allergic to the Avocel? I don't feel like I have > a > > lot longer to keep experimenting, especially if it is the naltrexone > > itself is worsening my symptoms. I see my GI this Friday, and I > know > > he is going to recommend an

immunosuppresive, after a colonoscopy to > > assess where the disease is at. I suppose I have the time between > now > > and that colonoscopy to give LDN one more shot, but I don't know > which > > filler to try, and now am feeling very cautious about the medicine > > itself. What does everyone think? > > > > > > Debora > > > ============= > > I feel non-dairy, non-refrigerate acidophilus is the best choice > filler for those with crohn's. Much research has shown acidophilus > quite beneficial for crohn's and if you've had positive results with > acidophilus for your crohn's flare ups then you should try to get that > as your filler. Irmat in New York uses Acidophilus in the LDN > capsules if you ask for it. I had used lactose with great results for > several

months but I wanted to try avicel to see if I could use Skip's > and get my LDN cheaper so I tried the switch and I experiece headache, > nausea and near vomiting on Avicel so after 3 weeks of misery I > switched back to lactose and all was great again. > > I'd say go for the acidophilus as a filler and get a book > called...Prescription for Nutritional Healing third Edition by > F. Balch, M.D. and Phyllis A. Balch, C.N.C. The third edition book is > maroon in color. Do a google search. I have found this book to be a > great tool in improving my health. Its layout is wonderful. I don't > use everything that's recommended under each section but I pick out > what I feel would be the most beneficial supplements for me from their > lists. > > Thank you for this . I'm new to all of this and I was

going to get a prescription from Skips Pharmacy, but it looks like I would be better off looking elsewhere. I dont want to have more problems than I have now. It looks like some fillers are better than others. Do you have a phone number for the Irmat Pharmacy you speak of? >

Never Miss an EmailStay connected with on your mobile. Get started!

[Guest guest]

> >

> > :

> > Thank you so much for bringing that to my attention. I always

> thought that Librium was for Bi-polar. I'd better stop thinking!

> Anyway, During BAD flares I would eat it like candy along with the

> sublinguals (hyocyianine?sp) It was the only relief from the pain

I

> could get, altho very brief. Now I'm afraid to take it. Do I

bleed

> to death or become addicted to this drug. I only started using it

> again last Thurs when I lost what seemed like a gallon of blood

with

> blood clots. Never had that before. The odd thing is, the pain

and

> cramping was nothing like what I had been used to, that's why when

I

> saw all that blood (3X) I went back to the Librex, altho the Librex

> never stopped the bleeding before while of Predisone and Entocort.

> Now on LDN - very minimal cramping if any and none at all when

adding

> Librex and no blood what so ever.

> > Also, I have been taking the supplement you mentioned along

with

> the alfalfa. I also take coloidial calcium, Vit D, Folic Acid and

> another coloidial containing 17 minerals and also a high potency

> probiotic containing 6 different strains, aloe vera, mangosteen.

I'm

> probably forgetting something, but thats the jest of it.

> > You've been a tremendous help. Thank you

> > vicky

> ===========

>

> Vicky,

>

> Remember, it's going to take some time for your gut to heal as it's

in

> pretty bad shape. Your diet needs to be as alkaline as possible.

Get

> the book Prescription for Nutritional Healing third edition by

> F. Balch and Phyllis A. Balch and see the sections under Crohn's &

> IBS. In your situation you were probably the candidate to start

with

> the transdermal LDN so you could bypass the gut altogether. You

might

> want to consider TD LDN next month.

>

> You are thinking of Lithium for Bi-polar/manic depression.

>

> Librium and Lithium sound alike just the way Naltrexone and

Novantrone

> do.

>

>

:

I was under the impression that this antispasmodic, as my dr. calls

it, is harmless. I'm not sure what to do because it really has

stopped the malabsorption and bloody, cramping diarrhea along with

the LDN. I'm going to buy that book you suggested today and try to

back down on the 4X/day of Librex but feeling so well sure is hard

to give up. Hopefully I don't need the Librex anymore, we'll see.

I've only been taking it since Thurs. but I've seen no blood since

taking it. I just don't know what to do. I'm so tired of this * & ^%$

disease.

Vicky

>

[Guest guest]

I honestly don't know of any filler being used by any compounder that is not SAFE. The real issue is whether is its effective. Now without any question, Calcium Carbonate is NOT effective. We have data to prove that and even the LDN website agrees with us on this one. Now acidop. well this is a horse of a different color. Larry Frieders is a big proponent of this and I respectfully disagree. I believe that you are adding another active ingredient to the mix and the potential for problems is greater. Larry knows the deal with this and I respect his ability and would only get it from him, if I agreed with this issue. Otherwise I would take it separately if needed. Now lactose seems to be becoming a problem with IBD folks. If you read the posts about it, more people have a problem with it than anything else, problems like it stops working after 3 weeks, it didn't work at all. So then we get to avicel. We use this because it is HYPOALLERGENIC. That is less than 0.05% of the population has a problem with it. I know that does, and several other people have developed symptoms very simialar to hers. Other than maybe 3 people we have had no problems with it. So, it becomes a greater good issue versus the exceptional case. Thisis one of those re-occuring themes on this web site. Every 2-3 months some one has an issue and the debate begins.

Re: , we love and all of her good works. I don't think that she trashed us, I think that she stated her situation. Anyone on the "approved" list is going to give you what you want. I feel that in my professional judgement that I am going to give you what is right. Now that is a paternalistic concept, but in my opinion sometimes you do have to trust the experts.

Skip

[Guest guest]

>

> I honestly don't know of any filler being used by any compounder

that is not

> SAFE. The real issue is whether is its effective. Now without any

question,

> Calcium Carbonate is NOT effective. We have data to prove that and

even the

> LDN website agrees with us on this one. Now acidop. well this is a

horse of a

> different color. Larry Frieders is a big proponent of this and I

respectfully

> disagree. I believe that you are adding another active ingredient

to the mix

> and the potential for problems is greater. Larry knows the deal

with this

> and I respect his ability and would only get it from him, if I

agreed with this

> issue. Otherwise I would take it separately if needed. Now

lactose seems to

> be becoming a problem with IBD folks. If you read the posts about

it, more

> people have a problem with it than anything else, problems like it

stops working

> after 3 weeks, it didn't work at all. So then we get to avicel. We

use this

> because it is HYPOALLERGENIC. That is less than 0.05% of the

population has a

> problem with it. I know that does, and several other people

have

> developed symptoms very simialar to hers. Other than maybe 3 people

we have had no

> problems with it. So, it becomes a greater good issue versus the

exceptional

> case. Thisis one of those re-occuring themes on this web site.

Every 2-3

> months some one has an issue and the debate begins.

> Re: , we love and all of her good works. I don't

think that she

> trashed us, I think that she stated her situation. Anyone on

the " approved "

> list is going to give you what you want. I feel that in my

professional

> judgement that I am going to give you what is right. Now that is a

paternalistic

> concept, but in my opinion sometimes you do have to trust the

experts.

> Skip

>

Skip:

What potential problems would you anticipate with acidophilus as a

filler? I didn't have a problem with 3mg LDN with lactose until I

added the 3mg plus 2-.5mg LDN with lactose. I never knew what

lactose intolerance felt like until I started belching and you know

what like a sailor! I'm now using 4.5mg with acidophilus but I'm

also not in remission after a bout of food poisoning. If you think

the avicel would work better, I'll try it.

Vicky

[Guest guest]

Here Here! or is it Hear Hear?

Hearyee Hearyee?

What HE said.

Yep, every 2-3 months, like trains coming into Penn Station.

Sometimes I hear Bud and Lou saying THIRD BASE in unison.

*1392 days, er, nights, of LDN now (well, 1388, I missed 4 along the way)

Re: [low dose naltrexone] Re: fillers; which is safe?

I honestly don't know of any filler being used by any compounder that is not SAFE. The real issue is whether is its effective. Now without any question, Calcium Carbonate is NOT effective. We have data to prove that and even the LDN website agrees with us on this one. Now acidop. well this is a horse of a different color. Larry Frieders is a big proponent of this and I respectfully disagree. I believe that you are adding another active ingredient to the mix and the potential for problems is greater. Larry knows the deal with this and I respect his ability and would only get it from him, if I agreed with this issue. Otherwise I would take it separately if needed. Now lactose seems to be becoming a problem with IBD folks. If you read the posts about it, more people have a problem with it than anything else, problems like it stops working after 3 weeks, it didn't work at all. So then we get to avicel. We use this because it is HYPOALLERGENIC. That is less than 0.05% of the population has a problem with it. I know that does, and several other people have developed symptoms very simialar to hers. Other than maybe 3 people we have had no problems with it. So, it becomes a greater good issue versus the exceptional case. Thisis one of those re-occuring themes on this web site. Every 2-3 months some one has an issue and the debate begins.

Re: , we love and all of her good works. I don't think that she trashed us, I think that she stated her situation. Anyone on the "approved" list is going to give you what you want. I feel that in my professional judgement that I am going to give you what is right. Now that is a paternalistic concept, but in my opinion sometimes you do have to trust the experts.

Skip

[Guest guest]

I also do find it interesting that there's so much talk about fillers AND LDN, but never heard anyone discuss fillers in any other meds, not the CRABs, or any other pills, vitamins, minerals, aspirin, whatever. Every bottle lists the 'inert' ingredients.

If all you take is LDN, maybe that can come into play with certain allergies, but then for that person they should already be familiar with the fillers in their other meds.

Maybe because LDN is only 3.0 or 4.5 MG of active ingredient the filler is an issue. But a pill of 50 MG would have probably like 260 MG of filler material. How much is in an LDN capsule along with the 3.0 or 4.5 MG nalxtrexone?

The Homemade LDN site says: A 50mg "ReVia" Naltrexone Tablet actually weighs about 310mg - 16% Naltrexone and 84% Filler. So how much is in a 3 or 4.5 mg capsule?

[low dose naltrexone] Re: fillers; which is safe?

I thought a "filler" is supposed to be an inert substance which can'treact with the actual drug. What about people who take more pills thanLDN at the same time? What kind of fillers are used in these drugs?How would they react with naltrexone once they all get in the stomachand are all mixed up? How does naltrexone interact with the activeingredients of these other drugs?

[Guest guest]

>

> I honestly don't know of any filler being used by any compounder

that is not

> SAFE. The real issue is whether is its effective. Now without any

question,

> Calcium Carbonate is NOT effective. We have data to prove that and

even the

> LDN website agrees with us on this one. Now acidop. well this is a

horse of a

> different color. Larry Frieders is a big proponent of this and I

respectfully

> disagree. I believe that you are adding another active ingredient

to the mix

> and the potential for problems is greater. Larry knows the deal

with this

> and I respect his ability and would only get it from him, if I

agreed with this

> issue. Otherwise I would take it separately if needed. Now lactose

seems to

> be becoming a problem with IBD folks. If you read the posts about

it, more

> people have a problem with it than anything else, problems like it

stops working

> after 3 weeks, it didn't work at all. So then we get to avicel. We

use this

> because it is HYPOALLERGENIC. That is less than 0.05% of the

population has a

> problem with it. I know that does, and several other people

have

> developed symptoms very simialar to hers. Other than maybe 3 people

we have had no

> problems with it. So, it becomes a greater good issue versus the

exceptional

> case. Thisis one of those re-occuring themes on this web site.

Every 2-3

> months some one has an issue and the debate begins.

> Re: , we love and all of her good works. I don't think

that she

> trashed us, I think that she stated her situation. Anyone on

the " approved "

> list is going to give you what you want. I feel that in my

professional

> judgement that I am going to give you what is right. Now that is a

paternalistic

> concept, but in my opinion sometimes you do have to trust the

experts.

> Skip

>

============

I don't trash Skip's pharmacy anywhere, in fact I've never used his

pharmacy. My avicel filler trial was from my own pharmacy in Little

Rock, AR.

What I look at is a person's situation and I do not play any

favoritism with any pharmacy, if I did I'd be sending you all to my

pharmacy in Little Rock, AR. I am here for the patient seeking help,

I'm not here to help make any sale for any of the pharmacies. I

choose to suggest a pharmacy by what the person writes or has

experienced, etc. I am one who believes acidophilus is okay to use as

a filler with LDN, Larry F.(The Compounder) uses it, Berliner in

New York prefers acidophilus with LDN over all the fillers, Irmat

Pharmacy in New York will use acidophilus. I feel it or the

transdermal LDN is best for those with gut issues. I have so far not

run across anyone complain of the acidophilus filler nor have I heard

any complaints on gelatin as a filler. Someday it may happen.

This is to let you all know that when I recommend a pharmacy or

particular filler, I'm not thinking about the pharmacy that's going to

make the money, I'm thinking of the disease sufferer and I'm going to

suggest to you the pharmacy or filler that I hope and pray will fit

your situation. And if it's not the best for you, let's back up and

re-hammer this thing and go a different route. LDN is trial and error.