Re: MS & ALS

[Guest guest]

Hello Everyone,I am newly diagnosed with RRMS, and have begun taking 3mg of LDN at night. My mother has had a mild case of RRMS since the 70's. In addition to her MS, she was diagnosed with bulbar ALS in November. Does anyone have experience with LDN and bulbar ALS, or know of research on LDN and ALS?Peace,Kathleen in Seattleps Terms of Use |

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[Guest guest]

Kathleen,

Have you thought about testing for heavy metal toxicity?

The files in these lists are good sources of information.

/

A basic hair test can give you/your mother much information re a heavy

metal burden. Directions can be found @

http://home.earthlink.net/~moriam/

frequent-dose-chelation/?

I found this list when I was researching ldn for our daughter,who has

vaccine induced injury that negatively impacts many body systems,

including the immune system. Many of her labels are on the autism

spectrum. She began ldn about 12 mos ago. It has been helpful enough

that I've kept her on it beyond the initial study time frame. This

group has parents/children who are using ldn for such problems.

Autism_LDN/

I've been amazed at the similarity of symptom patterns that I read

here and on the lists devoted to autism.

A beloved Aunt had a label of ALS. Shortly before her death in 2003,

she consented to a hair test. It showed a heavy burden of metal

toxicity. I would urge you to look at some of this information.

[Guest guest]

,

Thank you for your quick response to my query regarding LDN, MS & ALS.

I forwarded your response to my mother. She and I will both have heavy

metal testing done. I appreciated that you included information about

your daughter with the vaccine-induced injury. I was first told about

LDN by my friend who attends DAN (defeat autism now) conferences

because her daughter's labels are on the autism spectrum. She learned

of LDN for inflammatory conditions at the conference.

Peace,

Kathleen

[Guest guest]



Kathleen, the bulbar type of ALS is more aggressive than the type that affects either upper or lower motor neurons. I would try LDN, it can't hurt and also look into injectible calcium EAP. I personally know two people it worked for. You can get more info by calling 608-647-6513. It is a library with LDN info and info on calcium EAP. Best, Kathy

Re: [low dose naltrexone] MS & ALS

Hello Everyone,I am newly diagnosed with RRMS, and have begun taking 3mg of LDN at night. My mother has had a mild case of RRMS since the 70's. In addition to her MS, she was diagnosed with bulbar ALS in November. Does anyone have experience with LDN and bulbar ALS, or know of research on LDN and ALS?Peace,Kathleen in Seattle

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[Guest guest]

Hi Kathleen,

Like almost all conditions no specific research has been done into LDN

and ALS, but as someone who has a form of motor neurone disease (PLS)

and knows lots of others who have ALS I say get your mother onto LDN

ASAP. It has significantly helped a couple of people I know with ALS,

although others haven't thought it helped with their ALS. That said,

/most /of the ones it didn't help weren't getting LDN from a recommended

supplier (see http://www.low dose naltrexone.org/comp_pharm.htm) and/or

didn't give it 9 months as suggested before giving up.

Kathleen Lynch wrote:

> Hello Everyone,

>

> I am newly diagnosed with RRMS, and have begun taking 3mg of LDN at

> night. My mother has had a mild case of RRMS since the 70's. In

> addition to her MS, she was diagnosed with bulbar ALS in November.

> Does anyone have experience with LDN and bulbar ALS, or know of

> research on LDN and ALS?

>

> Peace,

> Kathleen in Seattle

[Guest guest]

Have no idea whether this would be a useful comment, but I know Lyme disease can mimic MS and ALS. Has she been tested for Lyme disease? Western blot test for specificity.