Re: neurologists and LDN

January 12, 2007

Thank you I will give this a shot with GP too. What have 'we' got to lose but nothing and everything to gain.

in Iowa

On 1/12/07, Luigi <Luigi@...> wrote:

Hi ;

You wrote " He either wants clinical trials or Dr's proof. "

I am unaware of any clinical trials for naltrexone treatment of ms. The drug is so cheap there is no money in proving that it works. I suspect that your neurologist would reject a single clinical trial at any rate. I am not sure what a " Dr's proof " would consist of but Doctor Bihari has been studying naltrexone use for many years.

My son was diagnosed with MS last June and we went through the process of neurologist rejections. A 10 year clincal trial of copaxone shows at least 64 of 108 patients were " helped " by the injections. (not real good odds or results) Copaxone is expensive and neurologists will readily prescribe it. It is really tough to find anyone who states that it definetly helps them.

I eventually approached my GP with the comment " It won't hurt and just might help " . (Naltrexone has been clincally tested for treatment of alcoholism and shows no bad side effects). My son now takes both naltrexone and copaxone but does not discuss the naltrexone with his neurologist.

He showed symptom relief during the first week that he started naltrexone.

Luigi

January 12, 2007

I am director of the Consortium for MindBrain Studies at NEOUCOM medical

school and Summa health systems in Akron. We have submitted to the

institional review board our study of LDN and MS. We are funded and will

be proceeding in February. WE also have other LDN studies in the

pipeline. Some are immune related LDN effects, others have to do with

LDN and emotional issues. Hope you are encouraged by the fact that

people are getting it done. Best, Pincus

>

> Hi ;

>

> You wrote " He either wants clinical trials or Dr's proof. "

>

> I am unaware of any clinical trials for naltrexone treatment of ms.

The drug is so cheap there is no money in proving that it works. I

suspect that your neurologist would reject a single clinical trial at

any rate. I am not sure what a " Dr's proof " would consist of but Doctor

Bihari has been studying naltrexone use for many years.

>

> My son was diagnosed with MS last June and we went through the process

of neurologist rejections. A 10 year clincal trial of copaxone shows at

least 64 of 108 patients were " helped " by the injections. (not real good

odds or results) Copaxone is expensive and neurologists will readily

prescribe it. It is really tough to find anyone who states that it

definetly helps them.

>

> I eventually approached my GP with the comment " It won't hurt and

just might help " . (Naltrexone has been clincally tested for treatment of

alcoholism and shows no bad side effects). My son now takes both

naltrexone and copaxone but does not discuss the naltrexone with his

neurologist.

> He showed symptom relief during the first week that he started

naltrexone.

>

> Luigi

>

January 13, 2007

Dr.(/Mr.)Pincus,

Thank you for sharing this wonderful news. Yes, we find this

information very encouraging. Please keep us updated as the studies

progress, if possible.

It has been a mystery that insurance companies offering medical

coverage have not pursued LDN as a low cost alternative to the

interferons/etc. It seems that it would be the branch of health care

that could benefit sufficiently to be willing to promote the

necessary research. Not only would the cost saving be immediate, but

long term in avoiding health problems that quite possibly will arise

from the extended use of those drugs. Do you have any thoughts on

this? Have any of these issues encouraged the upcoming studies?

>

> I am director of the Consortium for MindBrain Studies at NEOUCOM

medical

> school and Summa health systems in Akron. We have submitted to the

> institional review board our study of LDN and MS. We are funded and

will

> be proceeding in February. WE also have other LDN studies in the

> pipeline. Some are immune related LDN effects, others have to do

with

> LDN and emotional issues. Hope you are encouraged by the fact that

> people are getting it done. Best, Pincus

January 13, 2007

for those who do not know there is a dvd of the last conference which was help on the grounds of NIHThe trailor is herehttp://skipspharmacy.com/vid/flikr.php?flik=ldnatnihTrailerif you want it you can go here or call the pharmacyhttp://store.skipspharmacy.com/its made a huge differencecyndiOn Jan 12, 2007, at 10:09 AM, Luigi wrote:Hi ; You wrote "He either wants clinical trials or Dr's proof." I am unaware of any clinical trials for naltrexone treatment of ms. The drug is so cheap there is no money in proving that it works. I suspect that your neurologist would reject a single clinical trial at any rate. I am not sure what a "Dr's proof" would consist of but Doctor Bihari has been studying naltrexone use for many years. My son was diagnosed with MS last June and we went through the process of neurologist rejections. A 10 year clincal trial of copaxone shows at least 64 of 108 patients were "helped" by the injections. (not real good odds or results) Copaxone is expensive and neurologists will readily prescribe it. It is really tough to find anyone who states that it definetly helps them. I eventually approached my GP with the comment " It won't hurt and just might help". (Naltrexone has been clincally tested for treatment of alcoholism and shows no bad side effects). My son now takes both naltrexone and copaxone but does not discuss the naltrexone with his neurologist.He showed symptom relief during the first week that he started naltrexone. Luigi

January 13, 2007

Dr Pincus--Your post is indeed very good news for all of us here. I have been taking LDN since last April for MS and am very satisfied with the results. Although I can hardly walk without assistance, the progression of the disease seems to be stopped and so I am able to practice law full time here in NYC and do most of the things I want. I often recommend LDN to others whose condition and progression are heartbreaking, but their doctors are not as forward thinking as mine, and always turn them down.

I am very encouraged by your work and focus on LDN.

I have a few questions about your study, if you have the time to answer them. Who is funding it? What are your inclusion criteria for subjects? What dose LDN are you studying? And what are your end points?

Please keep us posted as we are all anxious to hear what your findings are.

Joyce

January 14, 2007

Dr Evers ran a trial of LDN for MS the details are on www.low dose naltrexone.org and here is the link to the PDF file with the results

http://www.klinik-dr-evers.de/downloads/LDN-Study_eng.pdf It was a trial which basically ignored most of Dr Bharies' recommendations and still comes up with the conclusion that LDN works for some. It is a double blind trial so no one can say that there is no scientific evidence that LDN works. It is all a bit of a game because the vast majority of treatments are not evidence based anyway - a recent article for the British medical Journal stated that only 15% of the treatments they evaluated were evidence based - the rest well who knows.

http://www.clinicalevidence.com:80/ceweb/about/knowledge.jsp

So most treatments are off label use of drugs just like LDN for MS, the difference is that the money men behind the drug industry push them. Our government health committee wrote a lot of these things down in their report ''The Influence Of the Pharmaceutical Industry''

http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/42/42.pdf

Trouble is of course the money men own the media and have a large influence on western governments so know one will act on the report, indeed CODEX backed by the world health authority are trying to make western medicine our only choice. www.welltv.com

Hope the above is some help. Best of luck.

January 14, 2007

There have been questions about our study

on MS and I do not feel free to discuss in great detail at this

time. We are using pilot moneys that exist within our hospital

organization. Jill ’s work is a nice template for what we are

doing, with some modifications. I’ll be sure to post further once

we have data to report, and may create an online questionnaire which might

guide us in our further efforts. Thanks much. Dr. Pincus

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of DollsEsq@...

Sent: Saturday, January 13, 2007

8:41 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

neurologists and LDN

Dr Pincus--Your

post is indeed very good news for all of us here. I have been taking LDN

since last April for MS and am very satisfied with the results. Although

I can hardly walk without assistance, the progression of the disease

seems to be stopped and so I am able to practice law full time here in NYC

and do most of the things I want. I often

recommend LDN to others whose condition and progression are

heartbreaking, but their doctors are not as forward thinking as mine, and

always turn them down.

I am very

encouraged by your work and focus on LDN.

I have a few

questions about your study, if you have the time to answer them. Who is

funding it? What are your inclusion criteria for subjects? What

dose LDN are you studying? And what are your end points?

Please keep us

posted as we are all anxious to hear what your findings are.

Joyce

January 15, 2007

In regards to about the clinical trial thing.....I always

think.....Dr. Bihari has done the clinical trials for over 20

years.....well so to speak. Not the way science/FDA would have it,

but the proof is in the patient. I know the " New Oral MS Drug " is

coming really soon. You know the one that has had the clinical

trials and the money thrown at it for research? As it should

be....but ya know....I don't see/read where the side affects are any

better then the CRABS and I don't see/read that it works much better

then the CRABS.....and most of all.....I would be really curious how

much this new drug will cost? I cannot recall it's name now...but I

know it is about to make it's grand showing soon! What is the name

of it? Someone?

Oh, I go to a neurologists in Orlando, Florida that prescribes

LDN...he did it first time I asked him....but I had to leave my first

neuro because he wouldn't. If someone needs a doctor for LDN, email

me as well.....donygirl41@... might be able to help.....I

will try.

Peace and Stay Strong All! donna

www.freewebs.com/lovelaugh/

>

> >

> > Hi ;

> >

> > You wrote " He either wants clinical trials or Dr's proof. "

> >

> > I am unaware of any clinical trials for naltrexone treatment of

ms.

> > The drug is so cheap there is no money in proving that it works.

I

> > suspect that your neurologist would reject a single clinical

trial

> > at any rate. I am not sure what a " Dr's proof " would consist of

but

> > Doctor Bihari has been studying naltrexone use for many years.

> >

> > My son was diagnosed with MS last June and we went through the

> > process of neurologist rejections. A 10 year clincal trial of

> > copaxone shows at least 64 of 108 patients were " helped " by the

> > injections. (not real good odds or results) Copaxone is

expensive

> > and neurologists will readily prescribe it. It is really tough

to

> > find anyone who states that it definetly helps them.

> >

> > I eventually approached my GP with the comment " It won't hurt

and

> > just might help " . (Naltrexone has been clincally tested for

> > treatment of alcoholism and shows no bad side effects). My son

now

> > takes both naltrexone and copaxone but does not discuss the

> > naltrexone with his neurologist.

> > He showed symptom relief during the first week that he started

> > naltrexone.

> >

> > Luigi

> >

>

January 15, 2007