RE: New to group...so confused!

[Guest guest]

- WELCOME! I would love to see pics of Bryce. 1st of all relax... :-) It has been caught in time... you still have plenty of time to get correction. Can you imagine posting this in a year after listen to the drs 1st response! How wonderful of the Dr to go back on what he said and getting Bryce the treatment he needs instead of saving face. :-)

I have not done cranial sacral, so I cannot speak to that... If you have the $ then i can't hurt to try, but I have heard of CST practitioners who do not like thier patients to wear a band so talk to them about that.

Your story is not unlike alot here... many are told it will get better on it's own. You are lucky your dr was proactive about it. :-)

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

New to group...so confused!

My son, Bryce will be 5 months old on the 7th. He was initially dx

with torticollis on the left side. Ped said to do stretches and

reposition. he was not concerned with the flat spot on the back on

the head. He says that he see's kids everyday with flat heads and

has only put one kid in a helmet in ten years. Then at his 4 month

appt, he was dx with severe plagiosephly (sp). He referred us to PT

and a cranial sacral therapist. I am just sooooo stressed about this

whole ordeal. I get such mixed information and opinions. I have

got 4 opinions so far.

Bryce just started PT last Thursday. The PT stated that he is

surprised at Bryce's range of motion and the fact that he still has a

pretty significant flat spot. She stated that it would not be bad to

wait a month and keep doing PT and Cranial Sacral therapy and see if

it makes a difference.

Initially the cranial sacral therapist said that we have a chance at

correcting the head with tx. He was not 100% on board, but felt that

it was a good shot. He had been pleased with Bryce's progress. Then

on Friday when I saw him, after my appt at Cranial Teach (which I

will get to in a minute), then he said that there is a good chance

that the tx that he is doing WON'T CORRECT HIS HEAD, but it will give

him better range of motion. That is not what he initially said!!!

He then went on to say that Bryce's case is severe and that he should

have seen him within the first week of life. Well, NOBODY EVER ACTED

LIKE IT WAS AN ISSUE UNTIL NOW! That cranial sacral tx is $65 a

session and Bryce's goes 2x a week. I don't know what to do with

that appt for the future.

Lastly, the Cranial Tech people had a very strong opinion that Bryce

needs a helmet. I went this past Fri, after PT recommended it and

said that it couldn't hurt to get Bryce evaluated. Pt felt that

Bryce's plagio he was a severe case also. They said that he needs a

helmet and he needs it now. I will try and scan you pics and send

them along after this message. They said that the younger he gets the

band, the better the results. The said that Bryce's head is a 30mm

and should be between a 5-10 if that makes sense. The thing that

concerns me is the asymmetry that is noticeable in Bryce's face...his

eye and ears. His one eye is open smaller and the ears are not

aligned. You can see in the pic.

Initially the Ped. stated that he believes that my sons head it will

get better on his own. Then today he called and said.."well how much

better it will get on its own with PT is the question?" He called

after he got the request from Cranial Tech to put my son in a

helmet. NOW HE IS SAYING THAT BRYCE COULD BENEFIT FROM A HELMET. He

is now referring me to a cranial facial surgeon to get one last

opinion and perspective. I am pleased with that rec.

I have just really started agrressively repositioning last week. We

have been having him sleep on his side at daycare, but he won't do it

during the night. I am going to try putting a blanket under the

mattress and try to get him to sleep on his side starting tonight. I

have tried the rolled blanket ON TOP in the past, but he rolls over

onto his back within a few minutes. We have been doing the stretches

and he has pretty good range of motion. He does prefer the flat

side.

I will try to post pics if i can figure it out. It will be under

Bryce...if it works.

Opinions, suggestions, etc are much appreciated.

and Bryce

Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

[Guest guest]

Hi - I would DEFINITELY get the helmet. My daughter was 6 mo when she went in the helmet and was 14.8 mm off diag diff and out of helmet at 14 mo and down to 4.5 mm off. We are STILL battling the tort - she sometimes tilts and sometimes does not - and is still in PT. I tried cranial sacral therapy and my baby screamed over and over and would NEVER recommend it - it did NOTHING.

laura

New to group...so confused!

My son, Bryce will be 5 months old on the 7th. He was initially dx

with torticollis on the left side. Ped said to do stretches and

reposition. he was not concerned with the flat spot on the back on

the head. He says that he see's kids everyday with flat heads and

has only put one kid in a helmet in ten years. Then at his 4 month

appt, he was dx with severe plagiosephly (sp). He referred us to PT

and a cranial sacral therapist. I am just sooooo stressed about this

whole ordeal. I get such mixed information and opinions. I have

got 4 opinions so far.

Bryce just started PT last Thursday. The PT stated that he is

surprised at Bryce's range of motion and the fact that he still has a

pretty significant flat spot. She stated that it would not be bad to

wait a month and keep doing PT and Cranial Sacral therapy and see if

it makes a difference.

Initially the cranial sacral therapist said that we have a chance at

correcting the head with tx. He was not 100% on board, but felt that

it was a good shot. He had been pleased with Bryce's progress. Then

on Friday when I saw him, after my appt at Cranial Teach (which I

will get to in a minute), then he said that there is a good chance

that the tx that he is doing WON'T CORRECT HIS HEAD, but it will give

him better range of motion. That is not what he initially said!!!

He then went on to say that Bryce's case is severe and that he should

have seen him within the first week of life. Well, NOBODY EVER ACTED

LIKE IT WAS AN ISSUE UNTIL NOW! That cranial sacral tx is $65 a

session and Bryce's goes 2x a week. I don't know what to do with

that appt for the future.

Lastly, the Cranial Tech people had a very strong opinion that Bryce

needs a helmet. I went this past Fri, after PT recommended it and

said that it couldn't hurt to get Bryce evaluated. Pt felt that

Bryce's plagio he was a severe case also. They said that he needs a

helmet and he needs it now. I will try and scan you pics and send

them along after this message. They said that the younger he gets the

band, the better the results. The said that Bryce's head is a 30mm

and should be between a 5-10 if that makes sense. The thing that

concerns me is the asymmetry that is noticeable in Bryce's face...his

eye and ears. His one eye is open smaller and the ears are not

aligned. You can see in the pic.

Initially the Ped. stated that he believes that my sons head it will

get better on his own. Then today he called and said.."well how much

better it will get on its own with PT is the question?" He called

after he got the request from Cranial Tech to put my son in a

helmet. NOW HE IS SAYING THAT BRYCE COULD BENEFIT FROM A HELMET. He

is now referring me to a cranial facial surgeon to get one last

opinion and perspective. I am pleased with that rec.

I have just really started agrressively repositioning last week. We

have been having him sleep on his side at daycare, but he won't do it

during the night. I am going to try putting a blanket under the

mattress and try to get him to sleep on his side starting tonight. I

have tried the rolled blanket ON TOP in the past, but he rolls over

onto his back within a few minutes. We have been doing the stretches

and he has pretty good range of motion. He does prefer the flat

side.

I will try to post pics if i can figure it out. It will be under

Bryce...if it works.

Opinions, suggestions, etc are much appreciated.

and Bryce

Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

[Guest guest]

Hi there, I couldn’t find the

pictures of Bryce, but if he has 30mm of asymmetry, I would band as soon as

possible while his head is still growing quickly. I know banding

seems like a really big deal right now, but I promise that your son will grow

accustomed to it in no time at all and soon you will be used to seeing him in a

helmet too. It seems so daunting, but becomes easy so fast!

As for all of the conflicting advice, doctors

often believe the head will round out on its own and then if it hasn’t

improved by around 5 or 6 months, then are more willing to recommend a band.

Cranio Sacral therapy alone is very unlikely to correct 30mm of asymmetry which

would be considered severe plagio. Maybe it can help the band to work

faster, though.

Good luck with it all – I am sure it

is overwhelming at the moment, but once you make a decision it just gets easier

from there. You have found a good support group here.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of llcoler@...

Sent: Wednesday, May 07, 2008 2:51

AM

Plagiocephaly

Subject: Re: New to

group...so confused!

Hi - I would DEFINITELY get the helmet. My daughter

was 6 mo when she went in the helmet and was 14.8 mm off diag diff and out of

helmet at 14 mo and down to 4.5 mm off. We are STILL battling the tort - she

sometimes tilts and sometimes does not - and is still in PT. I tried cranial

sacral therapy and my baby screamed over and over and would NEVER recommend it

- it did NOTHING.

laura

New to group...so confused!

My son, Bryce will be 5

months old on the 7th. He was initially dx

with torticollis on the left side. Ped said to do stretches and

reposition. he was not concerned with the flat spot on the back on

the head. He says that he see's kids everyday with flat heads and

has only put one kid in a helmet in ten years. Then at his 4 month

appt, he was dx with severe plagiosephly (sp). He referred us to PT

and a cranial sacral therapist. I am just sooooo stressed about this

whole ordeal. I get such mixed information and opinions. I have

got 4 opinions so far.

Bryce just started PT last Thursday. The PT stated that he is

surprised at Bryce's range of motion and the fact that he still has a

pretty significant flat spot. She stated that it would not be bad to

wait a month and keep doing PT and Cranial Sacral therapy and see if

it makes a difference.

Initially the cranial sacral therapist said that we have a chance at

correcting the head with tx. He was not 100% on board, but felt that

it was a good shot. He had been pleased with Bryce's progress. Then

on Friday when I saw him, after my appt at Cranial Teach (which I

will get to in a minute), then he said that there is a good chance

that the tx that he is doing WON'T CORRECT HIS HEAD, but it will give

him better range of motion. That is not what he initially said!!!

He then went on to say that Bryce's case is severe and that he should

have seen him within the first week of life. Well, NOBODY EVER ACTED

LIKE IT WAS AN ISSUE UNTIL NOW! That cranial sacral tx is $65 a

session and Bryce's goes 2x a week. I don't know what to do with

that appt for the future.

Lastly, the Cranial Tech people had a very strong opinion that Bryce

needs a helmet. I went this past Fri, after PT recommended it and

said that it couldn't hurt to get Bryce evaluated. Pt felt that

Bryce's plagio he was a severe case also. They said that he needs a

helmet and he needs it now. I will try and scan you pics and send

them along after this message. They said that the younger he gets the

band, the better the results. The said that Bryce's head is a 30mm

and should be between a 5-10 if that makes sense. The thing that

concerns me is the asymmetry that is noticeable in Bryce's face...his

eye and ears. His one eye is open smaller and the ears are not

aligned. You can see in the pic.

Initially the Ped. stated that he believes that my sons head it will

get better on his own. Then today he called and said.. " well how much

better it will get on its own with PT is the question? " He called

after he got the request from Cranial Tech to put my son in a

helmet. NOW HE IS SAYING THAT BRYCE COULD BENEFIT FROM A HELMET. He

is now referring me to a cranial facial surgeon to get one last

opinion and perspective. I am pleased with that rec.

I have just really started agrressively repositioning last week. We

have been having him sleep on his side at daycare, but he won't do it

during the night. I am going to try putting a blanket under the

mattress and try to get him to sleep on his side starting tonight. I

have tried the rolled blanket ON TOP in the past, but he rolls over

onto his back within a few minutes. We have been doing the stretches

and he has pretty good range of motion. He does prefer the flat

side.

I will try to post pics if i can figure it out. It will be under

Bryce...if it works.

Opinions, suggestions, etc are much appreciated.

and Bryce

Plan your next roadtrip with MapQuest.com: America's #1

Mapping Site.