Re: PT here with questions

[Guest guest]

Hi - My pediatrician had to refer me to CT for the insurance to consider it. I ended up going with Hanger because they were in my network and they were the only ones I knew of that were doing the Insignia Laser scan instead of the plaster casting. Because my pediatrician had written the referral up for CT, I had to go back to them and get them to actually write out a prescription for the helmet. This is the only way that Hanger would see me. I'm sure it was because of insurance reasons. The Insignia scan was a 3-dimensional view of Gunnar's head. It showed every little detail of his head. Once the insurance company saw the scan they immediately set it up for approval, but needed more medical records first. The process started about 4 weeks ago, and I just rec'd a reimbursement from Hanger for the money that I had to pay up front. I hope this helps!Kristi Son Gunnar - 7 1/2 mos. Hanger Helmet - 7 weeksbarinm@... wrote: I am a pediatric physical therapist who treats at least one new torticollis or plagiocephaly a week. I also am involved in a preemie clinic and see a great deal of scaphocephaly. I am normally sending patients to CHOP neurosurg or craniofacial to eval for helmet, but out of all of my patients only one "qualified".I am wondering if CHOP is to conservative?If I send patients to CT must they have a scan first?Can they go to

CT without referral and will CT then request referral if helmet needed?Closest CT is Paramus.......not doable for some of my Camden patients :-( Walsh, RPT Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

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[Guest guest]

,

I go to Cranial Tech in Paramus, NJ. I went there with no referral from any doctors and no script. I was just really concerned and wanted a second opinion. There is no referral or script needed for the initial consult where they take measurements and photos to assess the asymmetry. They will write this all up and either tell you that the baby is a good candidate or if they don't believe the baby needs a band. They also will send the results (measurement & pictures) to whatever doctors you would like them to send them to. I had them send the results to my pediatrician and my neurosurgeon whom I saw for something not related to the plagio.

I think having your patients seen by cranial technologies is a great option and they are not pushy or anything, they just do the assessment and leave it up to the parents what to do. Once you decide to cast and get banded, they need a prescription from a doctor.

I hope this helps and that some of your patients can benefit from this.

Sybil

From: barinm@... <barinm@...>Subject: PT here with questionsPlagiocephaly Date: Wednesday, May 7, 2008, 1:19 PM

I am a pediatric physical therapist who treats at least one new torticollis or plagiocephaly a week. I also am involved in a preemie clinic and see a great deal of scaphocephaly. I am normally sending patients to CHOP neurosurg or craniofacial to eval for helmet, but out of all of my patients only one "qualified".I am wondering if CHOP is to conservative?If I send patients to CT must they have a scan first?Can they go to CT without referral and will CT then request referral if helmet needed?Closest CT is Paramus..... ..not doable for some of my Camden patients :-( Walsh, RPT

Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Wow, is this post right up my ally!

We had originally gone to CHOP when my daughter was 5 weeks old

and " they " wanted us to wait two months for the 3d cat scan to rule

out craniosynostosis - all good, not fused. While there the doc told

us to wait another 30 days then come back for another eval. To sleep

my daughter on foam - as been since she's 13 days old. AND to do

repositioning - also had been doing since she was 1 month old.

After we left and I got my mind back together - they basically pissed

me off;) I called and I talked with another doc on the phone, and he

basically told me I could have a band if I wanted one. He was not at

all interested in telling me that it would help - he said " it will

correct itself - you don't see any kindergarters going to school with

a bad head shape. " YES, he actually said this to me. Me - " Well, by

the time they are in school - they have hair and IT'S TOO LATE!! "

Obvoiusly, I did not follow his recomendation and contacted CT and

went in for our eval. We get our DOC band on May 15th.

My daughter is pretty severe scapho in utero - and according to CT,

scapho is difficult to correct along with being in utero. I don't

think we've had any time to waste.

OK, now that I've gotten that out of my system - they have upset me

so much I am not going back to them. I gave CT my peds info and my

ped was able to provided the script. Anything to wash my hands of

these jerks;)

So, yes, I think they are way too conservative and have your patients

parents follow their gut instincts!

We are in Flemington and using Paramus CT.

Good luck!

starting DOC 5/15/08

[Guest guest]

We went through the process as instructed: ped>ct>cranio-

facial>rhs. We were told ct was needed for cranio-facial doc to see

him and for insurance to cover. After seeing measurements on this

forum, I inquired about those. I was told insurance would go by ct.

>

> Wow, is this post right up my ally!

> We had originally gone to CHOP when my daughter was 5 weeks old

> and " they " wanted us to wait two months for the 3d cat scan to

rule

> out craniosynostosis - all good, not fused. While there the doc

told

> us to wait another 30 days then come back for another eval. To

sleep

> my daughter on foam - as been since she's 13 days old. AND to do

> repositioning - also had been doing since she was 1 month old.

>

> After we left and I got my mind back together - they basically

pissed

> me off;) I called and I talked with another doc on the phone, and

he

> basically told me I could have a band if I wanted one. He was not

at

> all interested in telling me that it would help - he said " it will

> correct itself - you don't see any kindergarters going to school

with

> a bad head shape. " YES, he actually said this to me. Me - " Well,

by

> the time they are in school - they have hair and IT'S TOO LATE!! "

>

> Obvoiusly, I did not follow his recomendation and contacted CT and

> went in for our eval. We get our DOC band on May 15th.

>

> My daughter is pretty severe scapho in utero - and according to

CT,

> scapho is difficult to correct along with being in utero. I don't

> think we've had any time to waste.

>

> OK, now that I've gotten that out of my system - they have upset

me

> so much I am not going back to them. I gave CT my peds info and

my

> ped was able to provided the script. Anything to wash my hands of

> these jerks;)

>

> So, yes, I think they are way too conservative and have your

patients

> parents follow their gut instincts!

>

> We are in Flemington and using Paramus CT.

>

> Good luck!

>

> starting DOC 5/15/08

>

[Guest guest]

Hi ,

what we need to these stupid doctors is a photo study of

kindergarteners with bad head shapes. I know one four year old who

will be a candidate next year. I'm sure they wouldn't be hard to find

if you looked. It is so frustrating that doctors can be so ignorant.

-christine

sydney 2 yrs starband grad

>

> Wow, is this post right up my ally!

> We had originally gone to CHOP when my daughter was 5 weeks old

> and " they " wanted us to wait two months for the 3d cat scan to rule

> out craniosynostosis - all good, not fused. While there the doc told

> us to wait another 30 days then come back for another eval. To sleep

> my daughter on foam - as been since she's 13 days old. AND to do

> repositioning - also had been doing since she was 1 month old.

>

> After we left and I got my mind back together - they basically pissed

> me off;) I called and I talked with another doc on the phone, and he

> basically told me I could have a band if I wanted one. He was not at

> all interested in telling me that it would help - he said " it will

> correct itself - you don't see any kindergarters going to school with

> a bad head shape. " YES, he actually said this to me. Me - " Well, by

> the time they are in school - they have hair and IT'S TOO LATE!! "

>

> Obvoiusly, I did not follow his recomendation and contacted CT and

> went in for our eval. We get our DOC band on May 15th.

>

> My daughter is pretty severe scapho in utero - and according to CT,

> scapho is difficult to correct along with being in utero. I don't

> think we've had any time to waste.

>

> OK, now that I've gotten that out of my system - they have upset me

> so much I am not going back to them. I gave CT my peds info and my

> ped was able to provided the script. Anything to wash my hands of

> these jerks;)

>

> So, yes, I think they are way too conservative and have your patients

> parents follow their gut instincts!

>

> We are in Flemington and using Paramus CT.

>

> Good luck!

>

> starting DOC 5/15/08

>

[Guest guest]

And really, the demographic is just now in Kindergarten! My son is in 2nd grade, and the back-to-the-back campaign had just started. There were only 24 members on this list when I joined in spring of 2000. since then thre have been thousands -- members have come and gone of course -- but my point is that was just 8 years ago. And that is only the people who ended up finding the list, and who may or may not have chosen molding therapy.>------- Original Message ------->From : christineashok[mailto:christineashok@...]>Sent : 5/8/2008 12:16:02 AM>To : Plagiocephaly >Cc : >Subject : RE: Re: PT here with questions>>Hi ,what we need to these stupid doctors is a photo study ofkindergarteners with bad head shapes. I know one four

year old whowill be a candidate next year. I'm sure they wouldn't be hard to findif you looked. It is so frustrating that doctors can be so ignorant.-christinesydney 2 yrs starband grad>> Wow, is this post right up my ally!> We had originally gone to CHOP when my daughter was 5 weeks old > and "they" wanted us to wait two months for the 3d cat scan to rule > out craniosynostosis - all good, not fused. While there the doc told > us to wait another 30 days then come back for another eval. To sleep > my daughter on foam - as been since she's 13 days old. AND to do > repositioning - also had been doing since she was 1 month old.> > After we left and I got my mind back together - they basically pissed > me off;) I called and I talked with another doc on the phone, and he > basically told me I c

ould have a band if I wanted one. He was not at > all interested in telling me that it would help - he said "it will > correct itself - you don't see any kindergarters going to school with > a bad head shape." YES, he actually said this to me. Me - "Well, by > the time they are in school - they have hair and IT'S TOO LATE!!" > > Obvoiusly, I did not follow his recomendation and contacted CT and > went in for our eval. We get our DOC band on May 15th.> > My daughter is pretty severe scapho in utero - and according to CT, > scapho is difficult to correct along with being in utero. I don't > think we've had any time to waste.> > OK, now that I've gotten that out of my system - they have upset me > so much I am not going back to them. I gave CT my peds info and my > ped was able to provided the script. Anything to wash my hands of > these jerks;)> > So, y

es, I think they are way too conservative and have your patients > parents follow their gut instincts!> > We are in Flemington and using Paramus CT.> > Good luck!> > starting DOC 5/15/08>------------------------------------For more plagio info

[Guest guest]

Again, another comment on Doctor's from me. As I have stated before,

Aiden was very severe Plagio, banded from End of May to beginning of

early November 06, second band after that with absolutely no

result, 'graduated' on January 3rd 07.

Well it just kept bugging me that he still had so much deformation.

every time I saw him I would touch his little head and think 'this

can't be it for the rest of his life'. So, when in February I went

along to the Ped to help my daughter with a dual appointment for the

two babies (sorry new baby Abbey for being ingnored in all these

posts) I asked the Ped for another script for the band.

His reply: HE LOOKS ALRIGHT FROM A MEDICAL STANDPOINT. This is a

man who has 5 children of his own and I truly can't believe that he

would be telling this to his wife if one of their children had

Plagio. Then he replied, if you want another band I will have to

refer you to a specialist. That must be standard Doctor cop-out not

to deal with anything. If you try to make a specialist appointment

you generally have to wait for months. Meanwhile the Ped has his

butt covered " I referred to a specialist'. Well, when all was said

and done he DID write the script. I was armed and ready with tons of

articles, including the award of $2,000.000.00 against a Ped for not

referring a baby in a timely manner, but did not have to use that

weapon.

So, that's my vent. It seems our Peds need more education than we do.

Good luck to everyone and BE PERSISTENT!!!

Heidrun

Aiden's proud Grandma

> >

> > Wow, is this post right up my ally!

> > We had originally gone to CHOP when my daughter was 5 weeks old

> > and " they " wanted us to wait two months for the 3d cat scan to

rule

> > out craniosynostosis - all good, not fused. While there the doc

told

> > us to wait another 30 days then come back for another eval. To

sleep

> > my daughter on foam - as been since she's 13 days old. AND to do

> > repositioning - also had been doing since she was 1 month old.

> >

> > After we left and I got my mind back together - they basically

pissed

> > me off;) I called and I talked with another doc on the phone, and

he

> > basically told me I could have a band if I wanted one. He was not

at

> > all interested in telling me that it would help - he said " it

will

> > correct itself - you don't see any kindergarters going to school

with

> > a bad head shape. " YES, he actually said this to me. Me - " Well,

by

> > the time they are in school - they have hair and IT'S TOO LATE!! "

> >

> > Obvoiusly, I did not follow his recomendation and contacted CT

and

> > went in for our eval. We get our DOC band on May 15th.

> >

> > My daughter is pretty severe scapho in utero - and according to

CT,

> > scapho is difficult to correct along with being in utero. I don't

> > think we've had any time to waste.

> >

> > OK, now that I've gotten that out of my system - they have upset

me

> > so much I am not going back to them. I gave CT my peds info and

my

> > ped was able to provided the script. Anything to wash my hands of

> > these jerks;)

> >

> > So, yes, I think they are way too conservative and have your

patients

> > parents follow their gut instincts!

> >

> > We are in Flemington and using Paramus CT.

> >

> > Good luck!

> >

> > starting DOC 5/15/08

> >

>

>

>

> ------------------------------------

>

> For more plagio info