Re: LDN for Crohn's disease

[Guest guest]

Deborah,

I would not wait. I will send you what I have saved from earlier chats on this site regarding Crohn's.

I would start as soon as you can get the pills.

Aletha

[low dose naltrexone] LDN for Crohn's disease

My naturopathic oriented MD just prescribed LDN for me for Crohn's, citing he had a lot of information with cancer patients, but wasn't aware of the studies with Crohn's. But he said there is no danger in trying it, as he feels it to be a very benign drug, with regards to side-effects. I have 4.5 mg. tablets with lactose as a filler. I currently only consume lactose in my probiotics, which I am planning to take with the LDN, in case the lactose causes me upset. Does anyone know if it's OK to take with probiotics?I am leaving on a road trip tomorrow, in an RV with my mother, husband, and two children, so I am not planning on taking it until I arrive at my brother's house in 3 days. Is there any reason for caution that should make me wait until I return home (12 days from now?) I am eager to try it after hearing about the Penn State study with Crohn's. It doesn't seem like there is any danger in trying it, but wanted to get other's opinions as to timing. (Wait until I'm not traveling?) My Crohn's is not currently sever, but I have high CRP levels, with mucus and a little nagging pain. I had surgery two years ago to remove my scarred descending colon, and was symptom free until last December, when I received an antibiotic shot for an unnecessary procedure. Since then, I've had inflammation, mucus, and can no longer tolerate fruit, honey, cashews, or peanuts, despite large doses of probiotics and natural antibiotics. It seemed like LDN was something to try before I spoke with my gastroenterologist this January, who will probably recommend immunosuppressives, and I really don't want to go there. Has anyone had a negative effect on their Crohn's? I want to try it, but my family is advising caution, since we're traveling, but if it helps....I'd rather not wait!thanks,Debora

[Guest guest]

Oh, Deborah,

If the antibiotic is to blame for bring about your symptoms again, I would suggest looking into Candida. See if you have this condition. I will send you the posts on that as well.

Aletha

[low dose naltrexone] LDN for Crohn's disease

My naturopathic oriented MD just prescribed LDN for me for Crohn's, citing he had a lot of information with cancer patients, but wasn't aware of the studies with Crohn's. But he said there is no danger in trying it, as he feels it to be a very benign drug, with regards to side-effects. I have 4.5 mg. tablets with lactose as a filler. I currently only consume lactose in my probiotics, which I am planning to take with the LDN, in case the lactose causes me upset. Does anyone know if it's OK to take with probiotics?I am leaving on a road trip tomorrow, in an RV with my mother, husband, and two children, so I am not planning on taking it until I arrive at my brother's house in 3 days. Is there any reason for caution that should make me wait until I return home (12 days from now?) I am eager to try it after hearing about the Penn State study with Crohn's. It doesn't seem like there is any danger in trying it, but wanted to get other's opinions as to timing. (Wait until I'm not traveling?) My Crohn's is not currently sever, but I have high CRP levels, with mucus and a little nagging pain. I had surgery two years ago to remove my scarred descending colon, and was symptom free until last December, when I received an antibiotic shot for an unnecessary procedure. Since then, I've had inflammation, mucus, and can no longer tolerate fruit, honey, cashews, or peanuts, despite large doses of probiotics and natural antibiotics. It seemed like LDN was something to try before I spoke with my gastroenterologist this January, who will probably recommend immunosuppressives, and I really don't want to go there. Has anyone had a negative effect on their Crohn's? I want to try it, but my family is advising caution, since we're traveling, but if it helps....I'd rather not wait!thanks,Debora

[Guest guest]

>

Debra:

It's good to hear other Crohn's patients here on this forum. I'm

glad the word is finally getting out to us. You sound like me. I

too have the most activity in my descending colon, but thru entire

colon. Probiotics put me in complete remission for two years but due

to other circumstances, the Crohn's went wild for the last year and a

half. For seven months very severe; 24/7 vomiting, bloody diarrhea,

103 fever, etc. until I came across LDN. PLEASE start it NOW. I

began Oct 14, 06 at 3 mg with Lactose filler. Never being lactose

intolerant before, I began those symptoms and switched to a pharmacy

in NY that uses acidophilus as a filler. What a differences. I

upped my dosage by .5 mg until I reached 4mg and realizing

immediately that that is my magic number. After five weeks I am

officially in remission. Not a single symptom or sign of Crohn's!!!

Please start the LDN NOW, regardless of your travel plans. I have no

reason to believe you will have any problems whatsoever travelling

and starting LDN. Also, I will continue to take the probiotics

forever. There are so many positives associated with probiotics. I

take mega doses (6 strain powder containing 180 billion live cultures

per gram)...good stuff.

Vicky

> My naturopathic oriented MD just prescribed LDN for me for Crohn's,

> citing he had a lot of information with cancer patients, but wasn't

> aware of the studies with Crohn's. But he said there is no danger

in

> trying it, as he feels it to be a very benign drug, with regards to

> side-effects. I have 4.5 mg. tablets with lactose as a filler. I

> currently only consume lactose in my probiotics, which I am

planning to

> take with the LDN, in case the lactose causes me upset. Does

anyone

> know if it's OK to take with probiotics?

>

> I am leaving on a road trip tomorrow, in an RV with my mother,

husband,

> and two children, so I am not planning on taking it until I arrive

at

> my brother's house in 3 days. Is there any reason for caution that

> should make me wait until I return home (12 days from now?) I am

eager

> to try it after hearing about the Penn State study with Crohn's.

It

> doesn't seem like there is any danger in trying it, but wanted to

get

> other's opinions as to timing. (Wait until I'm not traveling?) My

> Crohn's is not currently sever, but I have high CRP levels, with

mucus

> and a little nagging pain. I had surgery two years ago to remove

my

> scarred descending colon, and was symptom free until last December,

> when I received an antibiotic shot for an unnecessary procedure.

Since

> then, I've had inflammation, mucus, and can no longer tolerate

fruit,

> honey, cashews, or peanuts, despite large doses of probiotics and

> natural antibiotics. It seemed like LDN was something to try

before I

> spoke with my gastroenterologist this January, who will probably

> recommend immunosuppressives, and I really don't want to go there.

Has

> anyone had a negative effect on their Crohn's? I want to try it,

but

> my family is advising caution, since we're traveling, but if it

> helps....I'd rather not wait!

>

> thanks,

> Debora

>

[Guest guest]

>

My theory is that the probiotics were keeping her symptoms under

control until the antibiotics destroyed them. This happened to me.

After the probiotics initially put me in remission, one round of

antibiotics for a sinus infection caused my symptoms to return on the

third day on them. I doubled up on the probiotics and was fine again

once off the antibiotics.

Vicky

Oh, Deborah,

>

> If the antibiotic is to blame for bring about your symptoms again,

I would suggest looking into Candida. See if you have this

condition. I will send you the posts on that as well.

>

> Aletha

> [low dose naltrexone] LDN for Crohn's disease

>

>

> My naturopathic oriented MD just prescribed LDN for me for

Crohn's,

> citing he had a lot of information with cancer patients, but

wasn't

> aware of the studies with Crohn's. But he said there is no danger

in

> trying it, as he feels it to be a very benign drug, with regards

to

> side-effects. I have 4.5 mg. tablets with lactose as a filler. I

> currently only consume lactose in my probiotics, which I am

planning to

> take with the LDN, in case the lactose causes me upset. Does

anyone

> know if it's OK to take with probiotics?

>

> I am leaving on a road trip tomorrow, in an RV with my mother,

husband,

> and two children, so I am not planning on taking it until I

arrive at

> my brother's house in 3 days. Is there any reason for caution

that

> should make me wait until I return home (12 days from now?) I am

eager

> to try it after hearing about the Penn State study with Crohn's.

It

> doesn't seem like there is any danger in trying it, but wanted to

get

> other's opinions as to timing. (Wait until I'm not traveling?) My

> Crohn's is not currently sever, but I have high CRP levels, with

mucus

> and a little nagging pain. I had surgery two years ago to remove

my

> scarred descending colon, and was symptom free until last

December,

> when I received an antibiotic shot for an unnecessary procedure.

Since

> then, I've had inflammation, mucus, and can no longer tolerate

fruit,

> honey, cashews, or peanuts, despite large doses of probiotics and

> natural antibiotics. It seemed like LDN was something to try

before I

> spoke with my gastroenterologist this January, who will probably

> recommend immunosuppressives, and I really don't want to go

there. Has

> anyone had a negative effect on their Crohn's? I want to try it,

but

> my family is advising caution, since we're traveling, but if it

> helps....I'd rather not wait!

>

> thanks,

> Debora

>

[Guest guest]

Debra and ,

I am on LDN for MS. My daughter is 10 and just diagnosed this year with Crohn's. She is taking Asacol and I debate about starting on LDN. I have absolutely no problems and I'm sure she wouldn't either-it's just that she's a kid. Hang in there guys. I am glad the LDN works so well for you .

-- [low dose naltrexone] Re: LDN for Crohn's disease

>Debra:It's good to hear other Crohn's patients here on this forum. I'm glad the word is finally getting out to us. You sound like me. I too have the most activity in my descending colon, but thru entire colon. Probiotics put me in complete remission for two years but due to other circumstances, the Crohn's went wild for the last year and a half. For seven months very severe; 24/7 vomiting, bloody diarrhea, 103 fever, etc. until I came across LDN. PLEASE start it NOW. I began Oct 14, 06 at 3 mg with Lactose filler. Never being lactose intolerant before, I began those symptoms and switched to a pharmacy in NY that uses acidophilus as a filler. What a differences. I upped my dosage by .5 mg until I reached 4mg and realizing immediately that that is my magic number. After five weeks I am officially in remission. Not a single symptom or sign of Crohn's!!!Please start the LDN NOW, regardless of your travel plans. I have no reason to believe you will have any problems whatsoever travelling and starting LDN. Also, I will continue to take the probiotics forever. There are so many positives associated with probiotics. I take mega doses (6 strain powder containing 180 billion live cultures per gram)...good stuff.Vicky> My naturopathic oriented MD just prescribed LDN for me for Crohn's, > citing he had a lot of information with cancer patients, but wasn't > aware of the studies with Crohn's. But he said there is no danger in > trying it, as he feels it to be a very benign drug, with regards to > side-effects. I have 4.5 mg. tablets with lactose as a filler. I > currently only consume lactose in my probiotics, which I am planning to > take with the LDN, in case the lactose causes me upset. Does anyone > know if it's OK to take with probiotics?> > I am leaving on a road trip tomorrow, in an RV with my mother, husband, > and two children, so I am not planning on taking it until I arrive at > my brother's house in 3 days. Is there any reason for caution that > should make me wait until I return home (12 days from now?) I am eager > to try it after hearing about the Penn State study with Crohn's. It > doesn't seem like there is any danger in trying it, but wanted to get > other's opinions as to timing. (Wait until I'm not traveling?) My > Crohn's is not currently sever, but I have high CRP levels, with mucus > and a little nagging pain. I had surgery two years ago to remove my > scarred descending colon, and was symptom free until last December, > when I received an antibiotic shot for an unnecessary procedure. Since > then, I've had inflammation, mucus, and can no longer tolerate fruit, > honey, cashews, or peanuts, despite large doses of probiotics and > natural antibiotics. It seemed like LDN was something to try before I > spoke with my gastroenterologist this January, who will probably > recommend immunosuppressives, and I really don't want to go there. Has > anyone had a negative effect on their Crohn's? I want to try it, but > my family is advising caution, since we're traveling, but if it > helps....I'd rather not wait!> > thanks,> Debora>

[Guest guest]

i am making a copy of the web sites, with all the information about ldn for my dr. he's a stickler for new meds too!! i pray for the best for all of us, with our doctors!!

marshiris

[Guest guest]

>

> Debra and ,

> I am on LDN for MS. My daughter is 10 and just diagnosed this year

with

> Crohn's. She is taking Asacol and I debate about starting on LDN.

I have

> absolutely no problems and I'm sure she wouldn't either-it's just

that she's

> a kid. Hang in there guys. I am glad the LDN works so well for you

> .

>

==========

,

LDN would be the perfect drug for your daughter, her having Crohn's at

such a young age means her immune system is low. I started having

chronic diarrhea at age 10 and I went on to develop chronic

progressive MS by age 26. By starting your daughter on LDN you could

be attacking the Crohn's and protecting her from develping MS or some

other autoimmune system disease or cancer later down the road. Many

children younger than two years of age are taking LDN and doing well.

[Guest guest]

Aletha. Could you please send me also your earlier chats on chrons Im

on ldn for ms and my friends daughter has crohns. thank you carol.

Aletha Wittmann wrote:

Deborah,

I would not wait. I will send you

what I have saved from earlier chats on this site regarding Crohn's.

I would start as soon as you can get

the pills.

Aletha

-----

Original Message -----

From:

Debora

Wade

To:

low dose naltrexone

Sent:

Tuesday, December 19, 2006 9:36 PM

Subject:

[low dose naltrexone] LDN for Crohn's disease

My naturopathic oriented MD just prescribed LDN for me for

Crohn's,

citing he had a lot of information with cancer patients, but wasn't

aware of the studies with Crohn's. But he said there is no danger in

trying it, as he feels it to be a very benign drug, with regards to

side-effects. I have 4.5 mg. tablets with lactose as a filler. I

currently only consume lactose in my probiotics, which I am planning to

take with the LDN, in case the lactose causes me upset. Does anyone

know if it's OK to take with probiotics?

I am leaving on a road trip tomorrow, in an RV with my mother, husband,

and two children, so I am not planning on taking it until I arrive at

my brother's house in 3 days. Is there any reason for caution that

should make me wait until I return home (12 days from now?) I am eager

to try it after hearing about the Penn State study with Crohn's. It

doesn't seem like there is any danger in trying it, but wanted to get

other's opinions as to timing. (Wait until I'm not traveling?) My

Crohn's is not currently sever, but I have high CRP levels, with mucus

and a little nagging pain. I had surgery two years ago to remove my

scarred descending colon, and was symptom free until last December,

when I received an antibiotic shot for an unnecessary procedure. Since

then, I've had inflammation, mucus, and can no longer tolerate fruit,

honey, cashews, or peanuts, despite large doses of probiotics and

natural antibiotics. It seemed like LDN was something to try before I

spoke with my gastroenterologist this January, who will probably

recommend immunosuppressives, and I really don't want to go there. Has

anyone had a negative effect on their Crohn's? I want to try it, but

my family is advising caution, since we're traveling, but if it

helps....I'd rather not wait!

thanks,

Debora

[Guest guest]

Go to www.low dose naltrexone.org and look for the area on research. Some is currently being conducted in the US on Chron's disease.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Posted by: "Arceneaux" KMArceneaux@... love_nfp

Wed Dec 20, 2006 11:56 am (PST)

Hi and ,Thanks for sharing that. Do you have any references (websites or studies) that and I could show to our doctors? I know my doctor will definitely want to see some sort of study before prescribing LDN. He will be open to it if he has some sort of guideline on dosaging, etc.Thanks,Michele7 yr. old son with Crohn's

[Guest guest]

Hi and ,

Thanks for sharing that. Do you have any references (websites or studies) that and I could show to our doctors? I know my doctor will definitely want to see some sort of study before prescribing LDN. He will be open to it if he has some sort of guideline on dosaging, etc.

Thanks,

Michele

7 yr. old son with Crohn's

[low dose naltrexone] Re: LDN for Crohn's disease

>> Debra and ,> I am on LDN for MS. My daughter is 10 and just diagnosed this year with> Crohn's. She is taking Asacol and I debate about starting on LDN. I have> absolutely no problems and I'm sure she wouldn't either-it's just that she's> a kid. Hang in there guys. I am glad the LDN works so well for you> .> ==========,LDN would be the perfect drug for your daughter, her having Crohn's at such a young age means her immune system is low. I started having chronic diarrhea at age 10 and I went on to develop chronic progressive MS by age 26. By starting your daughter on LDN you could be attacking the Crohn's and protecting her from develping MS or some other autoimmune system disease or cancer later down the road. Many children younger than two years of age are taking LDN and doing well.

[Guest guest]

>

> Hi and ,

>

> Thanks for sharing that. Do you have any references (websites or

studies) that and I could show to our doctors? I know my doctor

will definitely want to see some sort of study before prescribing

LDN. He will be open to it if he has some sort of guideline on

dosaging, etc.

>

> Thanks,

>

> Michele

> 7 yr. old son with Crohn's

============

Dr. Jill 's Crohn's trial and Dr. Jaquelyn McCandless' use of LDN

in children with autism would be good to show LDN works for crohn's

and is safe to use in children. All of this info can be copied from

the LDN website.

[Guest guest]

Debra and Bren: I am suspicious about the age you noticed symptoms...age 10. I say this because at the age of 42, I was diagnosed with Crohn's. I never had a symptom in my life. It was 13 days after I received an MMR vaccination (I was trying to take one class at the university and they required it since I had no childhood records). Kids have to get the booster MMR about that age. I found a study done in Scotland which showed the exact strain of measel from that shot in the biopsies of Crohn's patients. Needless to say, the CDC jumped all over that, but the center for reporting adverse reactions to vaccinations knows all about the connection. VickyBren <b63powell@...> wrote: >> Debra and ,> I am on LDN for MS. My daughter is 10 and just diagnosed this year with> Crohn's. She is taking Asacol and I debate about starting on LDN. I have> absolutely no problems and I'm sure she wouldn't either-it's just that she's> a kid. Hang in there guys. I am glad the LDN works so well for you> .> ==========,LDN would be the perfect drug for your daughter, her having Crohn's at such a young age means her immune system is low. I started having chronic

diarrhea at age 10 and I went on to develop chronic progressive MS by age 26. By starting your daughter on LDN you could be attacking the Crohn's and protecting her from develping MS or some other autoimmune system disease or cancer later down the road. Many children younger than two years of age are taking LDN and doing well. __________________________________________________

[Guest guest]

Vicky,

I understand your comment but..when my daughter was about 6 she had a tiny, tiny bit of blood on the toilet paper after a bowel movement. I told her to tell me if it happened again the next time she went to the bathroom. It did. I brought her to the pediatrician. I told him what happened. He wanted to get a strep screen on her. She did NOT have a sore throat of fever. It was positive. It happened more over the years. He sent me to the gastro. He wanted to do a colonoscopy. I was not in a hurry. To me she was a baby and that it a big test. This past January she had A LOT of blood with a bowel movement. That had never happened before. We went back to the gastro and he Sid the same thing. It took until this September to have the colonoscopy. He told me it looked like Crohn's. She has only had blood one time in 2006. We have since had more test done and it keeps pointing at Crohn's. Thankfully we don't have many problems.

I do wonder if there is a relationship.

-- Re: [low dose naltrexone] Re: LDN for Crohn's disease

Debra and Bren:

I am suspicious about the age you noticed symptoms...age 10. I say this because at the age of 42, I was diagnosed with Crohn's. I never had a symptom in my life. It was 13 days after I received an MMR vaccination (I was trying to take one class at the university and they required it since I had no childhood records). Kids have to get the booster MMR about that age. I found a study done in Scotland which showed the exact strain of measel from that shot in the biopsies of Crohn's patients. Needless to say, the CDC jumped all over that, but the center for reporting adverse reactions to vaccinations knows all about the connection.

VickyBren <b63powell > wrote:

>> Debra and ,> I am on LDN for MS. My daughter is 10 and just diagnosed this year with> Crohn's. She is taking Asacol and I debate about starting on LDN. I have> absolutely no problems and I'm sure she wouldn't either-it's just that she's> a kid. Hang in there guys. I am glad the LDN works so well for you> .> ==========,LDN would be the perfect drug for your daughter, her having Crohn's at such a young age means her immune system is low. I started having chronic diarrhea at age 10 and I went on to develop chronic progressive MS by age 26. By starting your daughter on LDN you could be attacking the Crohn's and protecting her from develping MS or some other autoimmune system disease or cancer later down the road. Many children younger than two years of age are taking LDN and doing well.

__________________________________________________

[Guest guest]

>

> From: victoria schofield

> Date: 12/20/2006 10:05:30 PM

> low dose naltrexone

> Subject: Re: [low dose naltrexone] Re: LDN for Crohn's disease

>

> Debra and Bren:

> I am suspicious about the age you noticed symptoms...age 10. I say

this

> because at the age of 42, I was diagnosed with Crohn's. I never had

a

> symptom in my life. It was 13 days after I received an MMR

vaccination (I

> was trying to take one class at the university and they required it

since I

> had no childhood records). Kids have to get the booster MMR about

that age.

> I found a study done in Scotland which showed the exact strain of

measel

> from that shot in the biopsies of Crohn's patients. Needless to

say, the

> CDC jumped all over that, but the center for reporting adverse

reactions to

> vaccinations knows all about the connection.

> Vicky

>

========

Vicky,

My chronic diarrhea was not from crohn's, mine was from MS. Diarrhea

can be a complication of MS. I started having symptoms that I noticed

and my parents noticed at age 9. My parents questioned a few odd

things with me from birth and the oddness kept building. My doctor

swears I'm wired wrong. Never got any shots for my entering college.

I'm sure the childhood vaccines I had to take was not good on an

already wacky immune system from birth, I had bad intestinal problems

as an infant and was born spastic in all 4 extremeties and later X-

rays as an adult showed some spina bifida and scoliosis, I have to

wear a half an inch lift on my shoe due to leg length difference.

[Guest guest]

Children eat alot of food that may or may not agree with their digestive

systems. One in particular that causes the problems/symptoms described

below believe it or not are " nuts " any kind of nuts. They can get lodged in

the digestive tract and cause symptoms similar to diverticulitis which

occurs when the digestive tract or bowels are inflamed due to an obstruction

as small as a piece of a nut that wasn't chewed thoroughly before

swallowing. Those package of " trail mix " for humans, stay away from those.

VV

>From: " and Iselborn " <camjak@...>

>Reply-low dose naltrexone

><low dose naltrexone >

>Subject: Re: [low dose naltrexone] Re: LDN for Crohn's disease

>Date: Wed, 20 Dec 2006 22:17:28 -0500 (Eastern Standard Time)

>

>

>Vicky,

>I understand your comment but..when my daughter was about 6 she had a tiny,

>tiny bit of blood on the toilet paper after a bowel movement. I told her

>to

>tell me if it happened again the next time she went to the bathroom. It

>did

> I brought her to the pediatrician. I told him what happened. He wanted

>to get a strep screen on her. She did NOT have a sore throat of fever. It

>was positive. It happened more over the years. He sent me to the gastro.

>He wanted to do a colonoscopy. I was not in a hurry. To me she was a baby

>and that it a big test. This past January she had A LOT of blood with a

>bowel movement. That had never happened before. We went back to the

>gastro

>and he Sid the same thing. It took until this September to have the

>colonoscopy. He told me it looked like Crohn's. She has only had blood

>one

>time in 2006. We have since had more test done and it keeps pointing at

>Crohn's. Thankfully we don't have many problems.

>

>I do wonder if there is a relationship.

>-- Re: [low dose naltrexone] Re: LDN for Crohn's disease

>

>Debra and Bren:

>I am suspicious about the age you noticed symptoms...age 10. I say this

>because at the age of 42, I was diagnosed with Crohn's. I never had a

>symptom in my life. It was 13 days after I received an MMR vaccination (I

>was trying to take one class at the university and they required it since I

>had no childhood records). Kids have to get the booster MMR about that

>age.

> I found a study done in Scotland which showed the exact strain of measel

>from that shot in the biopsies of Crohn's patients. Needless to say, the

>CDC jumped all over that, but the center for reporting adverse reactions to

>vaccinations knows all about the connection.

>Vicky

>

>Bren <b63powell@...> wrote:

>

> >

> > Debra and ,

> > I am on LDN for MS. My daughter is 10 and just diagnosed this year

>with

> > Crohn's. She is taking Asacol and I debate about starting on LDN.

>I have

> > absolutely no problems and I'm sure she wouldn't either-it's just

>that she's

> > a kid. Hang in there guys. I am glad the LDN works so well for you

> > .

> >

>==========

>

>,

>

>LDN would be the perfect drug for your daughter, her having Crohn's at

>such a young age means her immune system is low. I started having

>chronic diarrhea at age 10 and I went on to develop chronic

>progressive MS by age 26. By starting your daughter on LDN you could

>be attacking the Crohn's and protecting her from develping MS or some

>other autoimmune system disease or cancer later down the road. Many

>children younger than two years of age are taking LDN and doing well.

>

>

>

>

>

>

>__________________________________________________

>

[Guest guest]

Hi Vicky;

I too have periodic bleeding with considerable blood. I have had a colonoscopy, and just about every other test I can imagine. I am 57 years old and have had this problem for the past 10 years. Local doctors have no idea what causes it. I have been unable to correlate it with any particular activities but have adjusted my diet to minimize the stress on my system - no junk food, no oily food, no sweets. It seems to help. I started taking LDN about 3 weeks ago because I know it won't hurt me and just might help.

I suggest that you manage your daughter's eating habits very closely so that she developes good eating habits.

Luigi

Re: [low dose naltrexone] Re: LDN for Crohn's disease>>Debra and Bren:>I am suspicious about the age you noticed symptoms...age 10. I say this>because at the age of 42, I was diagnosed with Crohn's. I never had a>symptom in my life. It was 13 days after I received an MMR vaccination (I>was trying to take one class at the university and they required it since I>had no childhood records). Kids have to get the booster MMR about that >age.> I found a study done in Scotland which showed the exact strain of measel>from that shot in the biopsies of Crohn's patients. Needless to say, the>CDC jumped all over that, but the center for reporting adverse reactions to>vaccinations knows all about the connection.>Vicky>>Bren <b63powell > wrote:>> >> > Debra and ,> > I am on LDN for MS. My daughter is 10 and just diagnosed this year>with> > Crohn's. She is taking Asacol and I debate about starting on LDN.>I have> > absolutely no problems and I'm sure she wouldn't either-it's just>that she's> > a kid. Hang in there guys. I am glad the LDN works so well for you> > .> > >==========>>,>>LDN would be the perfect drug for your daughter, her having Crohn's at>such a young age means her immune system is low. I started having>chronic diarrhea at age 10 and I went on to develop chronic>progressive MS by age 26. By starting your daughter on LDN you could>be attacking the Crohn's and protecting her from develping MS or some>other autoimmune system disease or cancer later down the road. Many>children younger than two years of age are taking LDN and doing well.>>>>>>>__________________________________________________>

[Guest guest]

i am a crohn's patient, and notice blood when wiping, after eating fibrous foods like - popcorn, corn, and some other foods. i guess the feces become too thick on the walls of the intestines! also, having too many bowel movements can cause it too!! what i've learned to do is put vaseline on the toilet paper, it really helps, too. sometimes, the toilet paper can cause little abrasions on the anus!! also, straining the pass the bowels can cause blood on the paper!!

marshiris

[Guest guest]

>

> I am looking for a safe and reliable way to obtain LDN to treat my Crohn's

disease. GI doc does not feel " comfortable " prescribing it (but will put me on

steroids). I'm willing to go to a doctor who will prescribe it (I live in

southeastern WI), or will go direct to pharmacy. Thanks.

>

Contact Crystal, in the " Contact " link on her webpage:

http://www.freewebs.com/crystalangel6267/index.htm

Also point your GI in the direction of the paper:

Am J Gastroenterol. 2007 Apr;102(4):820-8. Epub 2007 Jan 11.

Low-dose naltrexone therapy improves active Crohn's disease.

JP, Stock H, Bingaman S, Mauger D, Rogosnitzky M, Zagon IS.

Send me an email if you want a .pdf for you to print out for your doctor. They

may still decline to prescribe it, as it's just one study, but there are

alternatives in terms of getting a prescription for the stuff. Failing that, it

may be purchased from overseas pharmacies.