Re: OT LDN & Lyme Disease - Me too! Sammy Jo

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SammyJo

LDN did nothing for me. I started it in April 2004. Was dx'd with MS in 2001. Then found positive for lyme in 2006, several months ago. I go to a LLMD (lyme literate doc) and he said that I may still have MS along with lyme.

I started with oral antibiotics, but am now on IV. I had a PICC line inserted and am now on a once daily IV. I was originally on a twice daily for 6 weeks. I will get a different one if this one doesn't seem to help.

As far as I know, LDN really does nothing for lyme, so you may have MS as well as lyme and the LDN helped with the MS.

There are about 13-14 people who were taking LDN, but since it did nothing for them, it turned out they actually had lyme.

If you have any other questions, please write me at arlizotte@...

be well

Arlene

-------------- Original message -------------- From: "redtruck99" <redtruck99@...>

> Has anyone here (taking LDN) been subsequently re-diagnosed with Lyme Disease from their original diagnosis of MSFeb 04 started LDN, and amazing recovery from SPMS. 2 yrs later still working on last few symptoms, fatigue after walking, and a limp.Apr 06 Igenex Western Blot negative, but a few bands "inconclusive". May-Aug did the cpn antibiotic protocol, described at cpnehlp.org, but also served as an antibiotic challenge for Lyme.Aug 18th 2nd WB comes back strong positive - the challenge worked. So I guesd that MS diagnosis back in 1995 was all wrong. This also means LDN alone was able to significantly impact Lyme. Also strong CD57 test for immune strength, 153.Sept-mid Dec went on stonger oral antibiotics to treat Lyme/Babesia/Bartonella, but didn't impact symptoms enough, so MD recommends stronger Lyme protocol, Penicillin injections or IV antibiotics.Not too excited about t

his. Would love to hear if anyone has made it all the way out of the Lyme woods just with LDN, or LDN plus oral antibiotics (sick of needles!)SammyJohttp://LDNers.org