Re: LDN & Lyme Disease - Me too!

[Guest guest]

> Has anyone here (taking LDN) been subsequently re-diagnosed with

Lyme Disease from their original diagnosis of MS

Feb 04 started LDN, and amazing recovery from SPMS. 2 yrs later

still working on last few symptoms, fatigue after walking, and a

limp.

Apr 06 Igenex Western Blot negative, but a few bands " inconclusive " .

May-Aug did the cpn antibiotic protocol, described at cpnehlp.org,

but also served as an antibiotic challenge for Lyme.

Aug 18th 2nd WB comes back strong positive - the challenge worked.

So I guesd that MS diagnosis back in 1995 was all wrong. This also

means LDN alone was able to significantly impact Lyme. Also strong

CD57 test for immune strength, 153.

Sept-mid Dec went on stonger oral antibiotics to treat

Lyme/Babesia/Bartonella, but didn't impact symptoms enough, so MD

recommends stronger Lyme protocol, Penicillin injections or IV

antibiotics.

Not too excited about this. Would love to hear if anyone has made it

all the way out of the Lyme woods just with LDN, or LDN plus oral

antibiotics (sick of needles!)

SammyJo

http://LDNers.org

[Guest guest]

Hi, I have Lyme as the cause of my severe pelvic pain and fibro. I test positive through Igenex and negative through Quest. I have been on LDN for 3 months and it hasn't helped. I will do the antibiotics, but since I have wicked Candida I am terrified. Another option that a few studies show as more effective than antibiotics is TOA free Cat's Claw aka Samento. I go to the Fibro and Fatigue Center and my doc there seems pretty knowledgable re Lyme. The herxheimer reaction can happen from both the antibiotics and the Cat's claw and that is what I dread most. I am looking for some way to help get rid of the neurotoxins since I usually end up on morphine when I take antibiotics. I am thinking of Bentonite clay. My doc at FFC says to use Benicar for the herxing but other sites such as the Marshall protocol say Benicar can intensify herxing. ANyway, I hope you look into the TOA free Cat's claw. ANd if anyone knows anything about helping with herx reactions please let me know. THANKS, Sandi __________________________________________________

[Guest guest]

Hi Sandi,

I am by no means knowledgeable about Lymes Disease or Candida, but from listening to this chat site over the past 2.5 years I would suggest taking care of your Candida first and then seeing about antibiotic or other therapies for Lymes. There is also something called a Rife machine which I think kills the little guys that make Lymes a problem. That may be an option. I will send you some earlier posts that I have saved regarding Lymes and regarding Candida.

I don't think I have ever heard of anyone having success with LDN and Lymes.

My best

Aletha

Re: [low dose naltrexone] Re: LDN & Lyme Disease - Me too!

Hi,

I have Lyme as the cause of my severe pelvic pain and fibro. I test positive through Igenex and negative through Quest. I have been on LDN for 3 months and it hasn't helped. I will do the antibiotics, but since I have wicked Candida I am terrified. Another option that a few studies show as more effective than antibiotics is TOA free Cat's Claw aka Samento. I go to the Fibro and Fatigue Center and my doc there seems pretty knowledgable re Lyme.

The herxheimer reaction can happen from both the antibiotics and the Cat's claw and that is what I dread most. I am looking for some way to help get rid of the neurotoxins since I usually end up on morphine when I take antibiotics. I am thinking of Bentonite clay. My doc at FFC says to use Benicar for the herxing but other sites such as the Marshall protocol say Benicar can intensify herxing.

ANyway, I hope you look into the TOA free Cat's claw. ANd if anyone knows anything about helping with herx reactions please let me know.

THANKS,

Sandi

__________________________________________________

[Guest guest]

>

>

> Not too excited about this. Would love to hear if anyone has made it

> all the way out of the Lyme woods just with LDN, or LDN plus oral

> antibiotics (sick of needles!)

>

> SammyJo

========

SammyJo

Check out site below.

Lyme Disease relief...without antibiotics

http://cassia.org/

[Guest guest]

From an ealier post:

-- In low dose naltrexone , Martha Burton <mburtonakod@e...> wrote:> I was diagnosed with MS three years ago. LDN did not stop progression, > and diet revision and supplementation did not help with > symptoms--nothing I tried helped. A few months ago I tested positive for > borreliosis (Lyme). After seven weeks of the antibiotic Zithromax (soon > to change to Ceftin, along with Samento, an herbal antibiotic), an > antifungal for candida avoidance, oral phosphatidylcholine, hyperbaric > oxygen therapy, nutritional IVs with glutathione pushes, rhythmic > massage and Rolfing, blood ozonation, twice weekly subcutaneous > injections of homeopathic aconite (for spasms) and bee venom, and > homeopathic human growth hormones, I'm walking almost normally, can stay > on my feet longer, leg spasms are almost gone, and I can work a > full-time job. Doing so much, it's hard to tell what's working, but > something is. Antibiotics, whether herbal or pharmaceutical, are the > key. Everything else I'm doing is supplementary and supportive of both > MS and Lyme, if indeed they're separate conditions.> > After I tested positive for Lyme, an MS friend also tested positive. She > is Herxing, which means the abx are working. Her Lyme-literate doctor, > and other doctors and researchers, think MS IS Lyme. The affects of the > borrelia bacteria can relapse and remit. Sound familiar? One source says > that 350+ conditions, including Parkinson's, ALS, RA, CFS, FM and MS, > are misdiagnosed and are actually Lyme. Another source says 600.> > Do yourself a huge favor and get tested. Don't bother with an ELISA test > from a "regular" lab; that test often gives false negatives. Cut to the > chase and get Western Blots IgG and IgM from a tick-only lab like IGeneX.> > Because I'm making up time missed at work for health treatments, > maintaining a household while living alone, and taking care of an > elderly parent, please be patient if you respond to this with questions. > I don't have much time for emailing. Google "multiple sclerosis and > Lyme" and see what you get.> > Martha

Re: [low dose naltrexone] Re: LDN & Lyme Disease - Me too!

Hi,

I have Lyme as the cause of my severe pelvic pain and fibro. I test positive through Igenex and negative through Quest. I have been on LDN for 3 months and it hasn't helped. I will do the antibiotics, but since I have wicked Candida I am terrified. Another option that a few studies show as more effective than antibiotics is TOA free Cat's Claw aka Samento. I go to the Fibro and Fatigue Center and my doc there seems pretty knowledgable re Lyme.

The herxheimer reaction can happen from both the antibiotics and the Cat's claw and that is what I dread most. I am looking for some way to help get rid of the neurotoxins since I usually end up on morphine when I take antibiotics. I am thinking of Bentonite clay. My doc at FFC says to use Benicar for the herxing but other sites such as the Marshall protocol say Benicar can intensify herxing.

ANyway, I hope you look into the TOA free Cat's claw. ANd if anyone knows anything about helping with herx reactions please let me know.

THANKS,

Sandi

__________________________________________________

[Guest guest]

To

prevent die-off reaction (herxheimer

reaction) when trying to rid your body of Candida, look up Candex

by Pure Essence Labs. I found it at a

good price at www.iherb.com Good luck!

J. Baillargeon, RD,

LDN

Positive Nutrition

P.O. Box 506

Mendon, Ma. 01756

Phone and Fax#: (508)

883-7322

email: bbaillargeon@...

Cell#: (508) 369-9119

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