Re: Digest Number 318

[Guest guest]

In a message dated 11/9/99 6:45:56 AM Eastern Standard Time,

onelist writes:

> From: " Barbara Herskovitz " <bherk@...>

> Subject: How Can We Help a List Member Get Appropriate Medical Treatment?

>

> Dear SB Group: I received the following e-mail from a member who wishes

> (for obvious reasons) to remain anonymous. She is a teacher in Arizona and

> is suffering from MCS and other health problems caused by a sick classroom.

> She has tried repeatedly to work with her school district to no avail.

They

> keep giving her the royal run around. At present, she is paying for her

own

> medical treatment with Dr. Rapp out of her meager salary because the

> district will not authorize medical treatment - except to send her to their

> usual allergist who says there is nothing wrong with her.

>

barbara,

my experience with a worker's comp attorney, even in the notoriously-anti-WC

state of florida, has been both bad and good. the attorney helped when i

requested an appointment with dr. eckardt johanning in albany, new york, who

is a stachy expert (also, unfortunately, at a worker's comp clinic), and with

reimbursement for mileage, expenses, etc. that was the good part. the bad

part: he left me high and dry when worker's comp suddenly and unexpectedly

closed my case. he said " i told you last year that they don't see your

illnesses as related to the work setting, and i can't help you. " so poof, we

were done. maybe your anonymous sufferer will have better luck where she

lives.

a knotty problem: a worker cannot sue his/her own employer, so worker's comp

is often the only answer, aside from private insurance, for medical

assistance. i was lucky, since my employer (a university) did not maintain

the building i worked in on a college campus, so i was able to institute a

law suit against the college. these attorneys, though, have been totally

ineffective in helping me to get medical treatment. they tell me to do that

through the worker's comp attorney. since i no longer have one......

mello

[Guest guest]

In a message dated 11/9/99 6:45:56 AM Eastern Standard Time,

onelist writes:

> As if the caller were overreacting to her exposure.

barbara, i have encountered blank stares so many times from the medical

community that i have seriously doubted myself. " am i over-reacting? " " am i

being paranoid? " " am i a hypochondriac? " strange, i never used to be that

way. how did i suddenly change?

I can't help but believe there is a political movement

> afoot to stifle research and information about just how serious exposure to

> stachy and other mycotoxins is.

i agree. imagine the tiger that would be unleashed if the medical, legal,

and political communities public acknowledged the facts about stachy--not to

mention businessmen who pollute or allow employees to remain in sick

buildings. their responsibilities to help many victims, currently and in the

future, would be staggering. i believe that the key to changing this picture

is through legislation. once appropriations are earmarked for research, the

research will be done. i have found plenty of stachy research on

agricultural products and animals, but scarcely any on human beings. just

depends on who wants to fund the research, i suppose. this reminds me of the

government's long-term cover-up of the effects of agent orange. maybe things

will move along a bit faster for gulf war syndrome (roredin [sp?], mycotoxins

and trichothecenes), but i doubt it. i think we need a concerted and

organized effort to gain legislative support.

People are getting sick from their exposure and, for

> all we know, they are dying while never knowing what it was that caused

> their illnesses.

i don't want to be one of those people.

Until we can get recognition of this fact and protection

> for our citizens, I will continue to rant. As long as employers keep

hiding

> the results of IAQ testing from their employees, I will scream. And as

long

> as we have to go through our lives not knowing the truth about our

exposures

> and our prognosis - I will do my part to change things.

>

>

count me in, too, barbara, and thank you for being here. you are an oasis.

[Guest guest]

>As for Moran,if you REALLY care about what happens to the people in

>this group and if you really have done some good work in the area of

>finding the " true scams and quacks " , (not just your opinion or

>dislike of a particualr treatment that you consider unproven; not

>everything unproven by your standards are scams/quakery), that are

>out there, instead of attacking why not try being a helpmate to the

>members of this group by politely and compassionately sharing what

>you " factually " know to be false that we should be wary of.

A fair ask. I have tried not to do this, out of respect for the aspirations

of any here who may be using treatments I feel are dubious. It can be

very hard to know for sure that some of them may not help, anyway. Vince

has mentioned one that we know is a fraud. I could mention some others I am

certain or virtually certain are invalid offlist, but you may not like what

I have to say. You might tell me which ones you believe in first.

I have tried to convey two things that I think are of extreme importance --

1. That nearly everything that alternative medicine seems to believe about

conventional medicine is wrong or a distortion, and that such beliefs pose

real risks to people's lives if they become persuaded thereby to avoid

proven treatments of curable cancers. I have given reasons why I know this

to be true, even giving twenty year disease free survival rates for some

cancers. I have been prepared to hang around and defend any challenge to

what I have said.

2. That you are being let down by the very people you trust. Everyone

within AM wants more sure information about all the alternative cancer

treatments that are available, but they have forgotten that the onus of

proof in matters of what does what is always on the proponent. One can

think of no more crucial area where this should hold than in the sale of

treatments to hopeful cancer sufferers. In my last post I have indicated why

I believe it is within the capacity of anyone treating cancer patients or

selling a cancer product to obtain useful data as to what their treatments

do.

I have spoken to some of them myself without success. Perhaps only a grass

roots movement will be enough. What do you think?

Moran

[Guest guest]

Dr. Moran,

RE: [ ] Digest Number 318

> 1. That nearly everything that alternative medicine seems to believe

about

> conventional medicine is wrong or a distortion, and that such beliefs pose

> real risks to people's lives if they become persuaded thereby to avoid

> proven treatments of curable cancers.

***I'd like to suggest that perhaps you could be far more effective for all

concerned if you forgot about alternative medicine's concern for

conventional medicine, and, instead, turned your discussion to alternative

medicine's concern for cancer.

***I think it is more important what alternative medicine believes and

claims about cancer; not so much what it believes about conventional

medicine. In order to de-bunk alternative medicine, you need to de-bunk

what it claims about its ability to deal with cancer. So, do you think we

could get going on that any time soon?

***You indicated (I thought) that alternative medicine was operating on some

faulty premises, regarding treatment of cancers. Since you likely have

more training in the sciences than most of the rest of us, you should be

well-equipped (or could get that way pretty quickly) for de-bunking these.

I'm talking generally, not, necessarily, specifically. Although, I don't

think specifics could hurt, if you can provide them without investing a lot

of additional time.

***You got a start on this when you mentioned bolstering the immune system

as possibly not being a valid means for meeting the objective of dealing

with DNA mutation as a cause of some cancers. I posed you some pointed

questions that could lead us deeper into this very important issue, but have

not seen the response, if there's been one, to date.

> 2. That you are being let down by the very people you trust.

***I don't think most people who use alternative medicine really trust it.

They often come to it dragging precisely the opposite from their experiences

with medicine, and alternative is still a form of medicine. That means

there's more opportunity for you to make some clear points to rational minds

on the subject of alternative medicine than you may have thought.

***Also, it is my viewpoint that when people surrender to guidance outside

their own wisdom, on the basis of this " trust " you suggest, there is a base

of self-betrayal operative that presents a high probability of all

participants in the interaction dramatizing that betrayal. This would mean

any fault does not lie with alternative medicine any more than it would or

did with conventional, that both are just necessary players in a client's

personal dramatic production.

***If you are insisting that alternative medicine get out of religion and

confine itself to science, this will probably not happen through your

efforts within this group, and we may find ourselves going nowhere for a

long time.

***But you could get going on showing us where and how AM is non-compliant

with science, so we could be clear which modalities from AM, in the

meantime, would equate to choosing religion.

*** In so doing, I think we should agree to stay away from the issue that

the science we know today could be made obsolete by a single discovery

tomorrow and just stick with where you can safely demonstrate AM to be

deliberately or innocently misleading and exploiting the science as we know

it today.

[Guest guest]

Re. walking -- That was our biggest hurdle. Eli started tentatively taking

steps just before he was 3, last September , and only really started walking

more than crawling around New Years. It was a LLLLLLOOOOOOONNNNNNNGGGGGGG

SSSSSSSSLLLLLLLLOOOOOOOOWWWWWWWWW process that I have to admit I found

extremely frustrating. He was the world's fastest crawler, so why walk? But

at his weight, carrying him was too hard. But he walked when he was good and

ready, and now he's very steady on his feet (still weight shifting side to

side rather than forward/back, but we're working on it). By the time he

started really walking I was more relieved and impatient ( " It's about time " )

than happy, which of course I felt guilty about.

The therapists felt that his extremely late walking was for a couple of

reasons: his size, in that his height and weight combined with low tone made

it harder for him, and his personality, in that he's stubborn (wonder where

he gets that, hmmmmm), not wanting to do what you want him to do. He was

also perfectly happy crawling, never really missing out, so there was no

reason for him to inconvenience himself. (His big brother, non-DS, didn't

walk until almost 16 months for pretty much the same reasons, but once he

walked he ran. Never toddled.)

Waiting for him to get up and do it was so hard, even maddening at times. Of

course I'm happy that he's walking (so is my back), of course! But so many

other feelings have come into play.

So that's our long answer to a short question, when did your child walk.

Hello to all from Debbi, mom to Logan (almost 6), Eli (DS) and Milo 3 1/2

[Guest guest]

Hi, ...

Saw your note to Fabio and just as a point of interest, I have had three

levels fused in my neck. Two surgeries were done with bone chips taken out of

both hips to correct deteriorating disc disease. No pain like neck pain ...

Also had lower back surgery in 1978 ... Now I have been diagnosed with CMT.

Like Job, sometimes I sometimes look outside to see if the locusts have

arrived ... )

[Guest guest]

Fabio,

you asked what kind of fusion was used the first time....nothing.....the

Doctor told me my neck was short enough that it would fuse together

without putting any bone in...needless to say that did not happen...the

pain was terrible I also went home from the hospital with no neck

brace....they evidently didn't think I needed it....After 10 months of

pain and misery I went to another Dr. who was not happy with the whole

situation and did another surgery and used bone from my hip.....this did

the trick......I still have a stiff neck at times and can only turn my

head so far. But was much much better after the second surgery.

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

[Guest guest]

if you would like me to email privately I will enclose a bunch of sites I

have , we are not allowed to post any with supplier info , so when I hear

from you, I will be

happy to send you some; going out of town for the day but will be back

tomorrow, just let me know, have a great day.

Love nad god Bless,

[Guest guest]

At 10:11 AM 7/8/00 +0000, you wrote:

>can one add a bit of potporri oil to the ready to pour cold process soap

>for a bit of fragrance? Is there any one who has tried it? Is there any

>problems with it?

PotPourri oil is not designed for use on the skin; you would really do much

better to buy Fragrance oils that are safe for cosmetic/toiletries use.

Your source for superb Essential Oils, Aromatherapy

Accessories, Information, Books and more!

Visit us at: <http://www.naturesgift.com>

[Guest guest]

In a message dated 07/08/2000 3:15:35 AM Pacific Daylight Time,

egroups writes:

<< >I can't find my recipe at the moment but I would like to know where you

>got the Pine Tar??? >>

Ok- I know I should have been paying attention- but pine tar soap is good for

.....????? I know I should know this by now . Please e-mail me privately as

I don't want to bring up an old subject. )

Marilyn

[Guest guest]

I am new to this list and I am finding it very interesting. Thanks,

Lynn, for telling about your nausea. I wake up every morning with

nausea. I am a " Keen-ager " . When I told a doctor about this condition,

he replied " You are too old to have " morning sickness. " I was beginning

to think that I am the only person my age who has this nausea.

Beadie

[Guest guest]

Dear AlleyPat:

Just keep thinking positive, and I'll bet your viral load will still

be down in another month. Marty

[Guest guest]

' ' wrote:

====

-

- There are 4 messages in this issue.

-

- Topics in this ...'

> Take a look to the attachment.

[Guest guest]

Hi. I think your groups are fantastic and I'm learning alot from them. My

daughter 4yrs. old, has a gross motor delay and some fine motor issues as

well. She does not, however, have verbal apraxia, Is there a group for

physical apraxia? Are the benefits of the EFA's used on the physical issues

as well? I'm new here and still finding my way, but I'd love some help or

direction. Thanks. You can e-mail me @ Emery6@... Lorraine

(mom to Mike 8 and Allie 4)

[Guest guest]

> Hi, I have not read carefully most of these posts as I do not even know what

> NAET is (in fact I haven't even received my enzymes yet). Sorry to be

> ignorant. As the UK people know I have a sister who is dying to to multiple

> allergies, some with an anyphalictic reaction, some otherwise. Could someone

> point me to the site?

> Thanks

> Jacqui

Hi Jacqui,

Www.naet.com for NAET therapy.

I would also check out EPD therapy for someone with such severe allergies.

It is available in the UK. The only site I know is from a Dutch doctor, but

she has a clinic in London and an English language site. Please check it out

at <http://www.wellness.demon.co.uk/>

There's also a Yhoo group: epd

Good luck.

[Guest guest]

Thank you . I will look into those links and hopefully at some

point my Sis will do something rather than just accept her lot. At the

moment she has her immune system supressed with cyclosporin and a portocath

with an infusion of steroids. I am sure there must be a better answer

somewhere.

Jacqui

Re: [ ] Digest Number 318

> > Hi, I have not read carefully most of these posts as I do not even know

what

> > NAET is (in fact I haven't even received my enzymes yet). Sorry to be

> > ignorant. As the UK people know I have a sister who is dying to to

multiple

> > allergies, some with an anyphalictic reaction, some otherwise. Could

someone

> > point me to the site?

> > Thanks

> > Jacqui

> Hi Jacqui,

>

> Www.naet.com for NAET therapy.

>

> I would also check out EPD therapy for someone with such severe allergies.

> It is available in the UK. The only site I know is from a Dutch doctor,

but

> she has a clinic in London and an English language site. Please check it

out

> at <http://www.wellness.demon.co.uk/>

> There's also a Yhoo group: epd

>

> Good luck.

>

>

>

>

>

[Guest guest]

There's quite a bit of talk about cover ups, but in looking back on the THIMEROSAL subject the biggest coverup is right in front of us .. and it lies within the leader of our country and his father and grandfather. Why else would anyone think Thimerosal would last with the last 5 yrs of Lobbying against it. I spent the year of 2001 in NY through to the DC Corridor... lobbying the Thimerosal issue. We thought we had victory in late August and our small group from OAAC broke apart... luckily I flew back to New York and then left again to California....but didn't quite make it. My flight for the 8th of Sept. 2001 was delayed, I rebooked for the 12th. A living nighmare awaited. I didn't start working again until early 2002 as my asst. was one of the lost. We argued in our usual OAAC way with the Peace For Kids Logo and Peace signs on our shirts with Peace for Kids in white on the back. We really thought that they had or were going to come to a conclusion to take it off the market... we were wrong.....that time at least.

My son was a normal child up until he was given 5 vaccinations in one day one being the MMR. He spiked a fever to 105 we took him to the hospital. The doctors were so unaware of anything. They treated the fever but couldn't answer our questions about why he was spinning in circles all of a sudden and lining up everything he could find. Now this is quite basic. Anyone should know this by know... Key factors in front of this guys face and he did nothing but treat a fever.... with tylenol for kids. After that lil Mikey started wanting to watch video's but stopped asking by name instead he grunted it and you could barely understand him. By the 5th day he was hiding behind furniture with his lil blankey and his poo bear... which he would never give up. His last real words were gone. Our hope and dream was gone. Our marriage was gone after my ex wife would not support my move to Lobby and Advocate instead of work as a Mortgage broker... I had recently retired from Nascar... S.W. Tour... bad wreck. She was used to 6 digit income and could not get used to me going out and spending money I made working doing loans on becoming a Lobbyist and starting The Office of Advocacy for Autistic Children TM. 96. . So .. there is my brief story of how Thimerosal really destroyed a happy family. I have no regrets for leaving such a materialistic person, because I live exactly the oppisite now... Last year was a stellar year for OAAC... we worked on 118 cases and made a total of -2,212.22 . easy number to remember. I've only taken one professional contract for a special interest.... but I didn't like it. I wanted to do nothing but work on ASD's and proposing legislation where needed... making change where needed. I've been challenged by many states attorneys and have even been sued for 'practicing without a license', but none has ever prevailed against me. My name is ....I'm Roman Catholic... and I take my name, named after the Arch Angel, very seriously. I'm far from perfect. Thats for sure. But one thing for sure those that know ME and not something they heard, etc.... KNOW that I do NOT play and I will literally thrash on any school district and state that fails to comply with multiple civil rights laws including IDEA, ADA 504a, Title 2 and Title 3 complaints which many times do lead to a US Attorney being assigned the case.

With a growing child, there's no time to waste in my opinion. Every day thrown away without the proper educational program is like a day that child has a lesser chance of being able to someday care for him/herself.

This is why OAAC and I take such a HARD INTENSIVE approach to our work, and it works.. out of last years cases.... all settles.... same for 2003, 2002 I did 4 due process cases in Chicago 2 in NYC and about a dozen in Sacramento, Ca.. taking the cases to hearing... in victory.

We don't lose... that means the child loses and I won't stand for that. It's very important that everyone has their educational program together..... I know it's off topic a bit, but being the advocate I am I had to state it.

Anyway...sorry for the long post !

E. , Sr. Peaceforkids2005@...

~~The Office Of Advocacy for Children with Disabilities (specializing in Autism...but we can handle anything)~~

E. , Sr. U.S. Civil Rights Lobbyist Peaceforkids2005@...

Specializing in Professional Educational Advocacy

But, We will look to help all

" We speak for those that can not, and with POWER"

ADVOCATING NATIONALLY IN PERSON AND BY TELECONFERENCE - Over 200 state advocates>From: EOHarm >Reply-EOHarm >EOHarm >Subject: Digest Number 318>Date: 21 Jun 2005 03:05:14 -0000>>There are 25 messages in this issue.>>Topics in this digest:>> 1. HH Fudenberg> From: Wutsername@...> 2. Re: Has contacted the daily show> From: "annalily2005" <annalily2005@...>> 3. Re: HH Fudenberg> From: "blaxillmark" <blaxill.mark@...>> 4. RE: Re: Has contacted the daily show> From: " M. Webster" <jwebs94@...>> 5. RE: More on Fudenberg> From: "persistentC" <persistentC@...>> 6. Re: Re: Reply: anybody e-mail or write to Frist> From: "Tim Ziegeweid" <rdurano@...>> 7. Re: Has contacted the daily show> From: " Nanstiel" <erik@...>> 8. Hoax?/Re: Fudenberg says there was a cover up.> From: " Nanstiel" <erik@...>> 9. Re: HH Fudenberg> From: "wutsername" <Wutsername@...>> 10. Re: Has contacted the daily show> From: "christinablakey" <gunkville@...>> 11. test> From: "wowsablink" <wowsa@...>> 12. Re: Fundenberg says there was a cover up> From: "nevergiveup883" <ynot2@...>> 13. Re: test> From: " Nanstiel" <erik@...>> 14. Re: More on Fudenberg> From: "wutsername" <Wutsername@...>> 15. RE: Re: Has contacted the daily show> From: " M. Webster" <jwebs94@...>> 16. Re: HH Fudenberg> From: "blaxillmark" <blaxill.mark@...>> 17. Re: Re: Fudenberg says there was a cover up.> From: "Kerbob" <robertbloch@...>> 18. Re: Re: Has contacted the daily show> From: Fund <susan_fund@...>> 19. HOLY MOLE-y !!! wasRE: Re: Fundenberg says there was a cover up> From: " M. Webster" <jwebs94@...>> 20. Hoax?/Re: Fudenberg says there was a cover up.> From: " Kasemodel" <tkasemodel@...>> 21. Re: Re: Get Evidence of Harm ON THE MAJOR NETWORKS!> From: "Kerbob" <robertbloch@...>> 22. Re: Re: Bridges--Congrats, Welcome, and Thank You!> From: "Kerbob" <robertbloch@...>> 23. RE: Re: Fudenberg says there was a cover up.> From: " M. Webster" <jwebs94@...>> 24. RE: Re: HH Fudenberg> From: "persistentC" <persistentC@...>> 25. Re: HH Fudenberg> From: "wutsername" <Wutsername@...>>>>________________________________________________________________________>________________________________________________________________________>>Message: 1> Date: Mon, 20 Jun 2005 22:33:06 EDT> From: Wutsername@...>Subject: HH Fudenberg>>>I met Hugh Fudenberg at the first DAN! conference I attended in 1997. He>was very involved in the early DAN! movement. For anyone that might have>concerns regarding his credibility, please see the partial list of his papers>below. He is well published and considered brilliant in his field.>>Ricci>>>_Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8993773 & query_hl=2)>>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8993773 & itool=iconabstr & query_hl=2) Dialysable lymphocyte>extract (DLyE) in infantile onset autism: a pilot study.>Biotherapy. 1996;9(1-3):143-7.>PMID: 8993773 [PubMed - indexed for MEDLINE] 2: _De Vinci C, Levine>PH, Pizza G, Fudenberg HH, Orens P, Pearson G, Viza D._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8993764 & >query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8993764 & itool=iconabstr & query_hl=2) Lessons>from a pilot study of transfer factor in chronic fatigue syndrome.>Biotherapy. 1996;9(1-3):87-90.>PMID: 8993764 [PubMed - indexed for MEDLINE] 3: _Pizza G, Chiodo F,>Colangeli V, Gritti F, Raise E, Fudenberg HH, De Vinci C, Viza D._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_ui>ds=8993756 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8993756 & itool=iconabstr & query_hl=2)> Preliminary observations using HIV-specific transfer factor in AIDS.>Biotherapy. 1996;9(1-3):41-7.>PMID: 8993756 [PubMed - indexed for MEDLINE] 4: _Fudenberg NH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & l>ist_uids=7848475 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7848475 & itool=iconnoabstr & que>ry_hl=2) Treatment for chronic fatigue syndrome.>Am J Med. 1994 Nov;97(5):493-4. No abstract available.>PMID: 7848475 [PubMed - indexed for MEDLINE] 5: _Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & l>ist_uids=7888107 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7888107 & itool=iconnoabstr & que>ry_hl=2) Heterogeneity of Alzheimer's disease. An interpretive review.>Mol Neurobiol. 1994 Aug-Dec;9(1-3):55-71. No abstract available.>PMID: 7888107 [PubMed - indexed for MEDLINE] 6: _Pizza G, De Vinci C,>Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8085013 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8085013 & >itool=iconnoabstr & query_hl=2) Transfer factor in malignancy.>Prog Drug Res. 1994;42:401-21. Review. No abstract available.>PMID: 8085013 [PubMed - indexed for MEDLINE] 7: _Fudenberg HH, Pizza>G._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8085011 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=8085011 & itool=iconno>abstr & query_hl=2) Transfer factor 1993: new frontiers.>Prog Drug Res. 1994;42:309-400. Review. No abstract available.>PMID: 8085011 [PubMed - indexed for MEDLINE] 8: _Fudenberg HH,>Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=2658777 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=2658777 & itool=i>connoabstr & query_hl=2) Transfer factor: past, present and future.>Annu Rev Pharmacol Toxicol. 1989;29:475-516. Review. No abstract available.>PMID: 2658777 [PubMed - indexed for MEDLINE] 9: _Tsang KY, Fudenberg>HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=2425441 & query_hl=2) _,_>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Display & dopt=pubmed_pubmed & from_uid=2425441)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abst>ract & list_uids=2425441 & itool=iconnoabstr & query_hl=2) Transfer factor and>other T cell products.>Springer Semin Immunopathol. 1986;9(1):19-32. Review. No abstract available.>>PMID: 2425441 [PubMed - indexed for MEDLINE] 10: _Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & >list_uids=3883363 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Display & dopt=pubmed_pubmed & from_uid=3883363)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uid>s=3883363 & itool=iconnoabstr & query_hl=2) "Transfer factor": an update.>Proc Soc Exp Biol Med. 1985 Mar;178(3):327-32. Review. No abstract>available.>PMID: 3883363 [PubMed - indexed for MEDLINE] 11: _Tsang KY, Fudenberg>HH, Pan JF._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=3855389 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=3855389 & it>ool=iconabstr & query_hl=2) Transfer of osteosarcoma-specific cell-mediated>immunity in hamsters by rabbit dialyzable leukocyte extracts.>Cell Immunol. 1985 Feb;90(2):295-302.>PMID: 3855389 [PubMed - indexed for MEDLINE] 12: _Vasily DB, >OF, Fudenberg HH, Goust JM, GB._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6086930 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abst>ract & list_uids=6086930 & itool=iconabstr & query_hl=2) Epidermodysplasia>verruciformis: response to therapy with dialyzable leukocyte extract (transfer>factor) derived from household contacts.>J Clin Lab Immunol. 1984 May;14(1):49-57.>PMID: 6086930 [PubMed - indexed for MEDLINE] 13: _ GB, Fudenberg>HH, Keller RH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6202873 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=620287>3 & itool=iconabstr & query_hl=2) Guidelines for immunotherapy of>antigen-specific defects with transfer factor.>J Clin Lab Immunol. 1984 Feb;13(2):51-8.>PMID: 6202873 [PubMed - indexed for MEDLINE] 14: _ GB, Metcalf>JF, Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7049471 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=70494>71 & itool=iconnoabstr & query_hl=2) Treatment of Mycobacterium fortuitum>pulmonary infection with "transfer factor" (TF): new methodology for evaluating TF>potency and predicting clinical response.>Clin Immunol Immunopathol. 1982 May;23(2):478-91. No abstract available.>PMID: 7049471 [PubMed - indexed for MEDLINE] 15: _ GB, Paddock>GV, Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6191411 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=61914>11 & itool=iconabstr & query_hl=2) Bovine 'transfer factor': an>oligoribonucleopeptide which initiates antigen-specific lymphocytes responsiveness.>Thymus. 1982;4(6):335-50.>PMID: 6191411 [PubMed - indexed for MEDLINE] 16: _Nekam K,>Strelkauskas AJ, Fudenberg HH, Donnan GG, Goust JM._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6972906 & query_hl=2)> (http://www.ncbi.nlm.n>ih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6972906 & itool=iconabstr & query_hl=2) Evidence for the>presence of a low molecular-weight activator of suppressor monocytes (LASM) in>dialysates of T lymphocytes.>Immunology. 1981 May;43(1):75-80.>PMID: 6972906 [PubMed - indexed for MEDLINE] 17: _Nekam K, Fudenberg>HH, Mandi B, Lang I, Gergely P, Petranyi G._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7228654 & query_hl=2)>>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=7228654 & itool=iconabstr & query_hl=2) Resynthesis of>trypsinized sheep red blood cell receptors on human lymphocytes: comparison of>the effects of immunopotentiators of biological and synthetic origin in vitro.>Immunopharmacology. 1981 Feb;3(1):31-9.>PMID: 7228654 [PubMed - indexed for MEDLINE] 18: _ GB, Paddock>GV, Fudenberg HH._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6165106 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=61651>06 & itool=iconabstr & query_hl=2) Effects of dialyzable leukocyte extracts with>transfer factor activity on leukocyte migration in vitro. V.>Antigen-specific lymphocyte responsiveness can be initiated by two structurally distinct>polyribonucleopeptides.>Thymus. 1981 Feb;2(4-5):257-6.>PMID: 6165106 [PubMed - indexed for MEDLINE] 19: _Fudenberg HH,>Strelkauskas AJ, Goust JM, Osborne D, Fort D, Vasily D._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6979820 & quer>y_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6979820 & itool=iconnoabstr & query_hl=2) "Discoid">lupus erythematosus: dramatic clinical and immunological response to>dialyzable leukocyte extract (transfer factor).>Trans Assoc Am Physicians. 1981;94:279-91. No abstract available.>PMID: 6979820 [PubMed - indexed for MEDLINE] 20: _Fudenberg HH, >GB, CL._>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6270691 & query_hl=2)>(http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=6270691> & itool=iconnoabstr & query_hl=2) Immunotherapy with dialyzable leukocyte>extracts and studies of their antigen-specific (transfer factor) activity.>Proc Virchow Pirquet Med Soc. 1980 Dec;34:3-87. Review. No abstract>available.>PMID: 6270691 [PubMed - indexed for MEDLINE]>>>[This message contained attachments]>>>>________________________________________________________________________>________________________________________________________________________>>Message: 2> Date: Tue, 21 Jun 2005 02:37:06 -0000> From: "annalily2005" <annalily2005@...>>Subject: Re: Has contacted the daily show>>Yes, I'm pretty sure DK mentioned here that they had contacted the>Daily Show.>I think they said Autism wasn't funny. Unless that was some other>show I'm thinking of. (someone please correct me if I'm wrong here)>>> >> > I know claims to be a comedian doing the fake news, but> he> > knows how many people watch his show and how seriously it is> taken....> > (he's my idol)> > Anyway, he is always getting authors on the show, and not always> mainstream.> >> > Any thought/talk of this?> >> > jenny>>>>>---------------------------------------------------------------------------->-->

[Guest guest]

> I failed to let you know that we prevailed in a 150,000.00 lawsuit

against the Doctor who ordered the multiple vaccinations for my

child. I have found that suing the Doctor that did it and should have

known better and should have read up on something other then Golf

digest.

In California at least we were able to use the statute of Limitations

for my child... which would be until he was 21.. It was a fast easy

settlement.. That Doctor wanted NO PART of a Media Nightmare ...which

he knew I would throw at him. As it was the settlement still made

local papers and we used our lil time to once again push that

childhood immunizations are 'not what the seem to be' and that

parents BETTER KNOW what is being shot into their children. I wish

someone would have emailed me this before I let this happen to him.

I'll work until the day I die fighting the pharmie lobby and contuing

to Lobby for our children in every way... and trying to ensure their

Civil Rights are not trampled on by broke states with terrible school

systems.

E. , Sr. U.S. Civil Rights Lobbyist, DC,CA,DoD

Dir, The Office of Advocacy for Disabled/Autistic Children

Peaceforkids2005@... if you ever need help email me.

[Guest guest]

Tracie, Sorry to hear you are still having problems. Like you, I had only PB'd and slimmed once before my fill and have done it numerous times since my fill. I tried drinking some Slimfast the second morning after my fill and slimmed. So I stayed on clear fluids, like I was supposed to be doing anyway:) for the rest of the day. I was having problems eating breakfast before anyway. I tried a bite of soft chicken last night and chewed and chewed, but still slimmed. I did Ok with mashed paotatoes and gravy at noon today but tried to eat a couple of saltine crackers this evening and PB'd. So I guess we just have to take it real easy for a while. Thank goodness I have not had the heartburn, I feel for you. I had it a few times during pregnancy and do not think I could handle it all the time.

Hope things get better for you real soon.

Nina, I was asked at Dr. Dobson's if my band was a 4cc or a 10cc. ??? Can you find out for me?

Thanks wrote:

[Guest guest]

Tempe-

I really agree with Tony here. In these long term

infections it helps to have some reference point in

addition to how you feel, or how long a course you've

been on. Either you have no symptoms left and no

die-off type reactions to abx, or you have negative

tests of a number of variables over a long enough

period of time. Granted a lot of the tests are not of

great reliability, but there are also inflammatory

markers (CRP, sed rate, etc) along with various immune

markers that can help if you know your own pattern

over time. Even cholesterol spikes (since LDL is used

to detox bacterial endotoxins) can give you an

indicator if your usual rates are lower.

On the question of is this herx vs immune vs

infection. I know that Flagyl pulses produce continued

herx (die off) in Cpn treatment, sometimes, according

to Wheldon, for weeks after a pulse. He sees this as

an influence of immune cells being cleared of bacteria

and finally functioning. But there is also a study

that shows that, again in Cpn, the endotoxin (LPS- I

think the same as in Lyme's) from the dead bacterial

" envelopes " can remain in tissue causing inflammation

for up to 4 weeks! The reference is on the

www.cpnhelp.org site in the research section.

Maybe I don't understand cysts, but as I understand

the action of Flagyl, it doesn't break the cyst, it

kills anything of anearobic metabolism. So it should

kill the borrelia in cystic form, which would not

" liberate chetes " but prevent them from transforming

to free living. Isn't there a transformation that must

occur before they convert back to bacterial form? Or

am I misreading? Maybe, unlike Cpn, there isn't any

transformation biologically when borrelia comes out of

cystic form. Can anyone correct my notions here?

Jill- your comments on glutamate and the opportunity

to test it out with magnesium and benzo's is a really

smart suggestion. It gives not just a hypothesis but

an easily testable treatment approach.

Jim

Message: 8

Date: Fri, 23 Sep 2005 05:13:39 -0000

From: " dumbaussie2000 "

<dumbaussie2000@...>

Subject: Re: Relapse? Immune system kicking on? ABX

withdrawal?

Tempe

What makes your doctor think you have done enough of

anything to

start and stop your therapies.I think infections need

some tracking

to make them possable to treat correctly. Ramping up

ramping down

and getting off drugs means nothing if your guessing.

running

pristine blood counts for X amount of time may give

you an

indication to say your made good inroads into your

infection.You

need to track something , anything is better than

nothing.Look

around at low lkevels of anything and monitor there

fluctuations?

Just find anything basically and try and return it to

completely

normal.

tony

> I was on Rocephin with Actigall for 9 wks, 2 days. I

took flagyl

for

> 3 weeks during that time.

>

> Had to go off because several small gallstones

formed.

>

> I tried to ramp down -- ala Barb Peck -- with the

last dose of

> rocephin, then by taking ceftin in reducing doses

until I got to

just

> 250 gram per day. Then I stopped. The 1st 3 days

after being off

all

> abx, I went around the house singing, " I feel

normal. I feel

> normal. " My husband and I were SO hopeful!

>

> Now, only 9 days after the last rocephin & only 3

days after the

last

> ceftin, I have been feeling tremors & various pains

moving around

my

> head & spine. Yesterday I began feeling burning pain

in my spine,

and

> electric-like feelings in my feet & hands. My legs

tingled like

they

> had fallen " asleep " and just " woke up. " My knees &

eyes started

> burning, vibrating began behind my eyes and pressure

began in my

head

> & right ear. Lymph nodes in my neck are swollen.

>

> Today, I feel weak & tired.

>

> Is this a neurolyme relapse already?!!!

>

> Could it possibly be, instead, that these symptoms

are from my

> central nervous system adjusting to the absence of

rocephin?

>

> Or, could it be my immune system kicking in?? the

lymph nodes &

sore

> joints felt a little like that.

>

> Please, God, not a relapse. I know people will say

you have to go

on

> orals after IV. But my LLMD started me on oral abx

20 months ago --

> he usually has patients try orals first. When I was

80% better,

but

> not completely well, this spring, he thought IV

might finish the

lyme

> off. So we had high hopes I would not relapse!

>

> Tempe

[Guest guest]

Tempe-

I really agree with Tony here. In these long term

infections it helps to have some reference point in

addition to how you feel, or how long a course you've

been on. Either you have no symptoms left and no

die-off type reactions to abx, or you have negative

tests of a number of variables over a long enough

period of time. Granted a lot of the tests are not of

great reliability, but there are also inflammatory

markers (CRP, sed rate, etc) along with various immune

markers that can help if you know your own pattern

over time. Even cholesterol spikes (since LDL is used

to detox bacterial endotoxins) can give you an

indicator if your usual rates are lower.

On the question of is this herx vs immune vs

infection. I know that Flagyl pulses produce continued

herx (die off) in Cpn treatment, sometimes, according

to Wheldon, for weeks after a pulse. He sees this as

an influence of immune cells being cleared of bacteria

and finally functioning. But there is also a study

that shows that, again in Cpn, the endotoxin (LPS- I

think the same as in Lyme's) from the dead bacterial

" envelopes " can remain in tissue causing inflammation

for up to 4 weeks! The reference is on the

www.cpnhelp.org site in the research section.

Maybe I don't understand cysts, but as I understand

the action of Flagyl, it doesn't break the cyst, it

kills anything of anearobic metabolism. So it should

kill the borrelia in cystic form, which would not

" liberate chetes " but prevent them from transforming

to free living. Isn't there a transformation that must

occur before they convert back to bacterial form? Or

am I misreading? Maybe, unlike Cpn, there isn't any

transformation biologically when borrelia comes out of

cystic form. Can anyone correct my notions here?

Jill- your comments on glutamate and the opportunity

to test it out with magnesium and benzo's is a really

smart suggestion. It gives not just a hypothesis but

an easily testable treatment approach.

Jim

Message: 8

Date: Fri, 23 Sep 2005 05:13:39 -0000

From: " dumbaussie2000 "

<dumbaussie2000@...>

Subject: Re: Relapse? Immune system kicking on? ABX

withdrawal?

Tempe

What makes your doctor think you have done enough of

anything to

start and stop your therapies.I think infections need

some tracking

to make them possable to treat correctly. Ramping up

ramping down

and getting off drugs means nothing if your guessing.

running

pristine blood counts for X amount of time may give

you an

indication to say your made good inroads into your

infection.You

need to track something , anything is better than

nothing.Look

around at low lkevels of anything and monitor there

fluctuations?

Just find anything basically and try and return it to

completely

normal.

tony

> I was on Rocephin with Actigall for 9 wks, 2 days. I

took flagyl

for

> 3 weeks during that time.

>

> Had to go off because several small gallstones

formed.

>

> I tried to ramp down -- ala Barb Peck -- with the

last dose of

> rocephin, then by taking ceftin in reducing doses

until I got to

just

> 250 gram per day. Then I stopped. The 1st 3 days

after being off

all

> abx, I went around the house singing, " I feel

normal. I feel

> normal. " My husband and I were SO hopeful!

>

> Now, only 9 days after the last rocephin & only 3

days after the

last

> ceftin, I have been feeling tremors & various pains

moving around

my

> head & spine. Yesterday I began feeling burning pain

in my spine,

and

> electric-like feelings in my feet & hands. My legs

tingled like

they

> had fallen " asleep " and just " woke up. " My knees &

eyes started

> burning, vibrating began behind my eyes and pressure

began in my

head

> & right ear. Lymph nodes in my neck are swollen.

>

> Today, I feel weak & tired.

>

> Is this a neurolyme relapse already?!!!

>

> Could it possibly be, instead, that these symptoms

are from my

> central nervous system adjusting to the absence of

rocephin?

>

> Or, could it be my immune system kicking in?? the

lymph nodes &

sore

> joints felt a little like that.

>

> Please, God, not a relapse. I know people will say

you have to go

on

> orals after IV. But my LLMD started me on oral abx

20 months ago --

> he usually has patients try orals first. When I was

80% better,

but

> not completely well, this spring, he thought IV

might finish the

lyme

> off. So we had high hopes I would not relapse!

>

> Tempe

[Guest guest]

Jim:

You made several good suggestions. As I replied to Tony, I will go

in to see what blood tests show at this point. I've noted your

comment about cholesterol spikes -- my LDL WAS unusually high in

2003, but hasn't been tested since then.

Your information about " endotoxin (LPS- I think the same as in

Lyme's) from the dead bacterial " envelopes " can remain in tissue

causing inflammation for up to 4 weeks " is really crucial. It is

definitely inflammation in the CNS that I am feeling. Your thought

about the cause seems more likely than reduction of brain swelling

that I just posed in my reply to Jill1313.

If that is the case, are there markers in the blood that would show

up differently when continuing inflammation is caused by dead

bacterial envelopes than when caused by live bacteria? Or should a

person wait 4 weeks after going off of abx to have blood tested?

I didn't feel these parathesias on days 1-5 off of rocephin, though;

not until about day 6 off. Would that be relevant?

My current LLMD agrees with you, by the way, that flagyl kills

borrelia in cystic form.

Thank you. Tempe

Jim Kepner <jimk192002@y...> wrote: Tempe-

> I really agree with Tony here. In these long term

> infections it helps to have some reference point in

> addition to how you feel, or how long a course you've

> been on. Either you have no symptoms left and no

> die-off type reactions to abx, or you have negative

> tests of a number of variables over a long enough

> period of time. Granted a lot of the tests are not of

> great reliability, but there are also inflammatory

> markers (CRP, sed rate, etc) along with various immune

> markers that can help if you know your own pattern

> over time. Even cholesterol spikes (since LDL is used

> to detox bacterial endotoxins) can give you an

> indicator if your usual rates are lower.

>

> On the question of is this herx vs immune vs

> infection. I know that Flagyl pulses produce continued

> herx (die off) in Cpn treatment, sometimes, according

> to Wheldon, for weeks after a pulse. He sees this as

> an influence of immune cells being cleared of bacteria

> and finally functioning. But there is also a study

> that shows that, again in Cpn, the endotoxin (LPS- I

> think the same as in Lyme's) from the dead bacterial

> " envelopes " can remain in tissue causing inflammation

> for up to 4 weeks! The reference is on the

> www.cpnhelp.org site in the research section.

>

> Maybe I don't understand cysts, but as I understand

> the action of Flagyl, it doesn't break the cyst, it

> kills anything of anearobic metabolism. So it should

> kill the borrelia in cystic form, which would not

> " liberate chetes " but prevent them from transforming

> to free living. Isn't there a transformation that must

> occur before they convert back to bacterial form? Or

> am I misreading? Maybe, unlike Cpn, there isn't any

> transformation biologically when borrelia comes out of

> cystic form. Can anyone correct my notions here?

>

> Jill- your comments on glutamate and the opportunity

> to test it out with magnesium and benzo's is a really

> smart suggestion. It gives not just a hypothesis but

> an easily testable treatment approach.

>

> Jim

>

> Message: 8

> Date: Fri, 23 Sep 2005 05:13:39 -0000

> From: " dumbaussie2000 "

> <dumbaussie2000@y...>

> Subject: Re: Relapse? Immune system kicking on? ABX

> withdrawal?

>

> Tempe

> What makes your doctor think you have done enough of

> anything to

> start and stop your therapies.I think infections need

> some tracking

> to make them possable to treat correctly. Ramping up

> ramping down

> and getting off drugs means nothing if your guessing.

> running

> pristine blood counts for X amount of time may give

> you an

> indication to say your made good inroads into your

> infection.You

> need to track something , anything is better than

> nothing.Look

> around at low lkevels of anything and monitor there

> fluctuations?

> Just find anything basically and try and return it to

> completely

> normal.

> tony

>

>

>

>

>

>

>

> > I was on Rocephin with Actigall for 9 wks, 2 days. I

> took flagyl

> for

> > 3 weeks during that time.

> >

> > Had to go off because several small gallstones

> formed.

> >

> > I tried to ramp down -- ala Barb Peck -- with the

> last dose of

> > rocephin, then by taking ceftin in reducing doses

> until I got to

> just

> > 250 gram per day. Then I stopped. The 1st 3 days

> after being off

> all

> > abx, I went around the house singing, " I feel

> normal. I feel

> > normal. " My husband and I were SO hopeful!

> >

> > Now, only 9 days after the last rocephin & only 3

> days after the

> last

> > ceftin, I have been feeling tremors & various pains

> moving around

> my

> > head & spine. Yesterday I began feeling burning pain

> in my spine,

> and

> > electric-like feelings in my feet & hands. My legs

> tingled like

> they

> > had fallen " asleep " and just " woke up. " My knees &

> eyes started

> > burning, vibrating began behind my eyes and pressure

> began in my

> head

> > & right ear. Lymph nodes in my neck are swollen.

> >

> > Today, I feel weak & tired.

> >

> > Is this a neurolyme relapse already?!!!

> >

> > Could it possibly be, instead, that these symptoms

> are from my

> > central nervous system adjusting to the absence of

> rocephin?

> >

> > Or, could it be my immune system kicking in?? the

> lymph nodes &

> sore

> > joints felt a little like that.

> >

> > Please, God, not a relapse. I know people will say

> you have to go

> on

> > orals after IV. But my LLMD started me on oral abx

> 20 months ago --

>

> > he usually has patients try orals first. When I was

> 80% better,

> but

> > not completely well, this spring, he thought IV

> might finish the

> lyme

> > off. So we had high hopes I would not relapse!

> >

> > Tempe

[Guest guest]

I have tried Hornsby's, Wyder's and Magner's and just bought some Blackthorn Fermented Cider but have not tried it yet. All of the ciders I have looked at thus far have been GF but that is not to say that all ciders are GF. As far as the caramel coloring goes, I have never had a problem and was pretty sure that if the product was made in the US, caramel coloring is ok. Am I mistaken? As nice as cider is, I'm still looking for some GF beer. I heard that Bard's Tale had to stop it's distribution due to bottles exploding on the shelves (a common problem for homebrews). To my knowledge, it was the most widely distributed and commercially available GF beer on the market. Hopefully, my local BevMo can order some of the Ramapo Honey Beer. Even if it tastes disgusting at least my curiosity will be satisfied.- in Castro Valley__________________________________________________Do

You ?Tired of spam? has the best spam protection around http://mail.

[Guest guest]

UTI's:

The urinary tract painkiller I believe you folks were talking about is called pyridium, or AZO by tradename.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Dear All,

Thank you so much for your advice re: holding/cuddling my little girl. I am wondering if it would be worth the investment to put a television in my bedroom? Right now, there is only a t.v. in the LR & the only way both of us will "comfortably" fit on the couch is if I take all the back cushions off. Of course, this leaves the LR cluttered & ends up being just one more thing I have to pick up. Not a problem with the bed though.

Also had another question: Does anyone on this list know a Dr. Brigham of Charlotte, NC? I was referred to him indirectly by the orthopedist for the Pittsburg Steelers. THANKS

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...