Re: Apraxia and Slow Processing & NACD

[Guest guest]

Along with NACD consider The Brain that Changes itself by Dr. Doidge.

So much hope.

Your child sounds amazing. The parenting I am sure:)

>

> Hi Janice,

>

>

>

> You have put it so well. The system has tried to fail our kids.

But our

> kids are strugglers.

>

>

>

> Thank you for guiding me to NACD. I just received the set of CD's

from

> them, and I am looking forward to hearing them. Our kids are

brilliant;

> there is so much locked wisdom in there. I yet have to find that

key to

> unlock it. I am hoping NACD will be it. I pray to God that it

is. Having

> said that I see some parents on this group are from NJ, and seem to

be

> working with NACD. Can you please share your experience with the

PA office?

> I will really appreciate it.

>

>

>

> Before I end this e-mail, I just have to add a tad bit to the

discussion of

> how some professionals don't understand our kids. One of the

doctors who

> our son sees mentioned the other day in a much generalized fashion

that with

> autism comes the disability of not being able to understand any

physical,

> mental, and emotional changes. Just a few minutes later after this

comment

> from her, our son just turned around and said Dr. your new haircut

looks

> cool, it looks like you got an tan, and why are you so happy today

while you

> were so sad the last time I was here. THEY STILL DON " T GET IT. I

used to

> cry when professionals made comments like this earlier,

underestimating our

> child. But now I just know that they don't know enough. And while

they

> think my child needs work, they need it more.

>

>

>

> Regards,

>

> Ambika

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of Janice

> Sent: Monday, February 04, 2008 8:39 PM

>

> Subject: Re:[ ] Re: Apraxia and Slow Processing

>

>

>

> ,

>

> Because we have older children and have experienced the 'stupidity'

of the

> 'system', we have a better understanding of the word 'slow' and the

> insidious nature to which many of the professionals out there use

it..... It

> is a one way ticket to special education..... and 'opportunities'

class....

>

> I say... Run Forest, RUN! Yes, I do jokingly call my boy Forest

Gump.... but

> I have to run myself for he gives me a chase & a threat at my joke.

(yes, he

> does get it!)

>

> In the educational system, SLOW processing is not used in a nice

way....

> Usually people use the word 'slow' to mean mental retardation of

some sort.

> In actuality, Marks original IQ tests in grade 2, described him as

being

> borderline mentally handicapped with regards to non-verbal

persuits. I have

> it in black and white.... Unbelievable!

>

> Now, once they state this about your child at the tender age of 8,

it is

> assumed to be never-changing and a testament to that childs

abilities....

> FOREVER!!! That is your child's life-promise as per the educational

system.

> This is a BAAAAAAD thing for it forever limits your child within

the system.

>

> This is sooooo wrong!

>

> I listened to these people who encouraged me to do 'nothing' for my

child

> and so my child did not improve. As soon as I researched and found

help for

> my child, everything turned around and he got better. His IQ has

definately

> changed and someday (when I have extra $$$), I shall have him

retested to

> prove it!

>

> So.... Liz and all of you with little ones..... if you wonder why

,

> myself and others 'react' so reflexively to the word slow as though

we have

> been back-handed across the face.... this is the reason. We have

had such

> aweful experiences with the system and with others (usually

complete idiots)

> who assume that our kids are stupid. They only see what is in front

of them

> and perform the 'easy' diagnosis. They do not look beneath the

surface to

> the diamond that sparkles and glows beneath the rough exterior....

our

> children are truly.... diamonds in the rough!

>

> Janice

> Mother of Mark, 13

>

> [sPAM][ ] Re: Apraxia and Slow Processing

>

> Liz there is much in the archives and in research about self-

> fulfilling prophecies and the research of Dr. Rosenthal. Please

> don't assume that it's OK because your child is younger to say your

> child is " slow " in three areas! There is a huge problem with many

> here assuming that apraxia and processing disorders co exist or

that

> children with apraxia have slow receptive/cognitive processing

skills

> which is also a sign of mental retardation. And the fact so many

> today are accepting this is very sad. Perhaps unlike the children

> here from over the years like my son Tanner -the children in the

> group today won't be mainstreamed. Is that the belief? Because

> belief becomes reality and you get to choose now. Your child's

> future depends in some part on your belief. Isn't it a mother and

> father's instinct to raise our child up?

>

> And to answer the question about therapy for another diagnosis

> working. Many here with autistic children found some of the methods

> used for apraxia to work as well. The Kaufman Kit can be used by

any

> late talker- even one that isn't apraxic.

>

> We tried various therapies for Tanner that are used for deaf

children

> including learning sign -that doesn't mean Tanner is deaf. Just

> because a therapy helps doesn't mean a child has the diagnosis that

> therapy was originally designed for.

>

> Please do some homework on the awesome Dr. Rosenthal and the

> work he has done. You will also find much about him in the

> archives. Sadly if you believe your child to be slow..in three

areas

> no less -you 'are' probably going to find out you are right. When

> nobody else believed in Tanner Glenn and I did and guess who proved

> everyone but us wrong -not us -but Tanner did! I loved sharing the

whole

> story with Dr. Rosenthal because he is brilliant and he is the one

> that inspired me. And I saw it work. They could have been right and

> Tanner would have been in special ed today.

> http://www.cherab.

> <http://www.cherab.org/information/familiesrelate/letter.html>

> org/information/familiesrelate/letter.html

>

> I know some of you don't understand this -but again don't assume

the

> worst and don't underestimate those that can't verbally prove you

> wrong...yet. Sometimes it's best to be wrong and if you believe

> apraxia and slow processing of receptive or cognitive skills go

hand

> in hand -then you 'are' wrong. Apraxia is not a cognitive disorder.

>

> And even if in your child's case you were right and for example

one's

> child has co existing mental retardation with the apraxia -you are

> still best to believe in your child and give the benefit of the

> doubt. Look at Robin's daughter -it's a hard pill to

swallow

> to be wrong -or assume others are right with bogus diagnosis about

> your child - years down the road.

> http://www.cherab. <http://www.cherab.org/news/.html>

> org/news/.html

>

> And while for ethical reasons Dr. Rosenthal's research was done in

> the positive -in speaking with him he agrees that it works both

> ways. If that's the case why think anything but the positive?

>

> http://www.facultyd

> <http://www.facultydirectory.ucr.edu/cgi-

bin/pub/public_individual.pl?facult

> y=534> irectory.ucr.edu/cgi-bin/pub/public_individual.pl?faculty=534

> http://www.pineforg

> <http://www.pineforge.com/newman4study/resources/rosenthal1.htm>

> e.com/newman4study/resources/rosenthal1.htm

> http://www.psichi.

<http://www.psichi.org/pubs/articles/article_121.asp>

> org/pubs/articles/article_121.asp

> http://www.accel- <http://www.accel-

team.com/pygmalion/prophecy_01.html>

> team.com/pygmalion/prophecy_01.html

> http://www.musicedm

> <http://www.musicedmagic.com/class-management/classroom-vision-and-

the-self-

> fulfilling-prophecy.html>

> agic.com/class-management/classroom-vision-and-the-self-fulfilling-

prophecy.

> html

> http://www.motivati

> <http://www.motivation-tools.com/workplace/social_prejudice.htm>

> on-tools.com/workplace/social_prejudice.htm

>

> tons more -just google it or search the archives here

>

> =====

>