Re: spontaneous speech---

[Guest guest]

I wrote this and then felt like a jerk. I do believe that but it does

not mean it should have been written that way. Saying things the

right way is a challenge for me at times. Not like it matters...who

am I, Liz, you don't know me, I am not a dr., and it is not like you

are giving me some sort of role in your life I should not have I just

felt bad leaving it at that. Someone on the board recently told me of

a book, Changing the face of autism, by Dr. Jepson that explains a

lot about immunity and how it can be such a big part of this. I think

what I was trying to get at is if your child's system was disrupted

somehow or is daily by allergy, immune disease, environment or the

combo then he'd react different to the same environment (like the

overheating) that was OK for his parents. Plus, environment, in NJ

especially, is always changing. Also, your husband has ulcerative

coloitis. A parent having something like that has been mentioned in

my reading as an immunity factor for these kids. I believe my

misdiagnosed IBS, which was actually celiac, played a big role in

this for my kids.

Lastly, military places have a lot of wierd metals, etc. I think they

buried stuff that we are only now, so many years later, seeing the

leeching effects of. I was just yesterday reading about uranium. It

is difficult to get out of water (reverse osmosis is the best that

can be done) and it does scarey things. One of the kids on this board

is high in it and it is in their well water. The strange thing is

that the emergency treatment for uranium exposure in soldiers is

simple...gastric lavage. It makes me look toward the metal and viral

component I see in my kids differently and I am considering something

simple...massage. Not deep pressure...just simple light touch

massage. I don't know if it will help but I doubt it will hurt. I

have tried it on my daughter and she now begs for it and it along

with fiber and probiotic (I did them separately to test) seem to be

helping with the poop. Son is tougher...more sensory lately, so I

have to keep trying. Their guts and livers and kidneys have beeen

overworked for far too long. I fear too many supplements, too much

crazy food, may worsen that despite my best intentions. So, back to

basics I suppose.

Sorry for the babble. His royal highness is sleep stealing. ,

I think you are an awesome mom and have high hopes for your child as

well as everyone's. My prayer is that one day we can all have a big

party and celebrate a victory over this thing that hurts our babies.

Let's hope gets funded as I think that would get things

going.

Best Wishes!

L

> > > > >

> > > > > My son is three with PDD-NOS, apraxia and sensory issues.

So

> > far

> > > > we are still nonverbal but have come sooooo far! It is hard

to

> > stay

> > > > positive sometimes but those days pass. We are just starting

to

> > get

> > > > good imitation and babbling now. He is trying to talk which

is

> > > > something he had stopped doing due to his own frustration. He

> is

> > > > also really improving at signing so this helps a lot. I too

am

> > > > waiting for him to say something---anything---on purpose for

> > > > communication. We will have a big party that day! We recently

> > tried

> > > > the GFCF diet and saw big changes. (I didn't really

understand

> > how

> > > > much it helped until we went off it.) I am now thinking of

> trying

> > > > SCD since I heard that is kind of like the next step up with

> diet

> > > and

> > > > a lot of people have had success with it. Yeast seems to be a

> > huge

> > > > issue for my son and I think this diet will be better for

him.

> > This

> > > > is a confusing journey as what works for one child won't work

> for

> > > > every child. We just have to keep looking for the answers

> > > > > for our own kids. I have to say it has gotten easier for me

> as

> > we

> > > > have come really far in the last few months. The changes I

see

> > now

> > > > keep me positive that there are more to come and that he will

> be

> > > > okay. There are still bad days and worse nights but I know we

> are

> > > > heading in the right direction. Hang in there!!!

> > > > >

> > > > >

> > > > >

> > > > > -------------- Original message --------------

> > > > > From: jennyjudy@

> > > > > My son is 4 years old with PDD NOS and Apraxia. I don't

> > > understand

> > > > how and

> > > > > when the connections are made in the brain so that the

child

> > just

> > > > starts

> > > > > spontaneously talking. My son has come a long way and he is

> > doing

> > > > great, he

> > > > > doesn't have but a few spontaneous words, I know that some

> > people

> > > > have shared

> > > > > their stories about how all of the sudden their child says

> > > > something they have

> > > > > been waiting to hear forever. Can anyone give me hope. My

son

> > is

> > > > very

> > > > > bright, he has good imitation skills, he is doing great

with

> > the

> > > > Kaufman cards

> > > > > and he is very attentive. I can tell he has so much to say

> but

> > it

> > > > is so hard

> > > > > to get out? Does it all of the sudden get easier?

> > > > >

> > > > > ************************************** See what's new at

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> > > > >

> > > > >