Re: Introduction

[Guest guest]

>>I am blessed to have insurance that will cover everything (BCBS Federal PPO

and Medicare). My beautifull daughter is also hoping to have the surgery

over the Christmas holidays.

Well, I guess this all for now, God bless you all

today...........................Shelly in ville Florida

>>

Shelly, welcome! I'll let you know how our mother-daughter act goes next

week. lol

Regards,

Debbie in IL

MGB 8/10 Cigna (1st appeal)--BMI 40

Daughter (age 16) MGB 8/9 Cigna (3rd appeal)--BMI 45

[Guest guest]

In a message dated 08/04/2000 11:58:18 AM Eastern Daylight Time,

moorebr5@... writes:

<< I am blessed to have insurance that will cover everything (BCBS Federal

PPO

and Medicare). My beautifull daughter is also hoping to have the surgery

over the Christmas holidays. She also has poly cystic ovaries like her

mother. She was a cheerleader and played sports but her weight has continued

to climb inspite of everything. I am wishing you loads of luck and I think

you will be very happy if you decide to have the MGB. It has already made me

feel much better. I have arthritis and Fibromyalgia and I am hoping to be

able to exercise better after I get some weight off, thats why I had to stop.

If there is anything I can do for you or answer I would be happy to help. I

had my MGB on July 26th. Take Care and God Bless, Keep me posted,

Margie Vickers :0)

Well, I guess this all for now, God bless you all

today...........................Shelly in ville Florida >>

Dear Shelly

welcome to The Most Wonderful group of supportive people

On the Web!! Yes, you are blessed with your insurance.

[Guest guest]

In a message dated 8/4/00 11:10:55 AM Pacific Daylight Time,

smootgen@... writes:

<<

817/ 577-0919. I wish you all the best. Tell your daughter I used to be a

cheerleader too.

Love,

Genz ( Genzel in Keller, Texas)

>>

Me, too, Genz, but that was about 100 pounds ago! lol!

Regards,

Debbie in IL

MGB 8/10 Cigna (1st appeal)--BMI 40

Daughter (age 16) MGB 8/9 Cigna (3rd appeal)--BMI 45

[Guest guest]

Welcome Shelly! It sounds like you have a blessed life, and it's about to

get much better! I'm so happy you found the MGB. It has been the answer to

my prayers!

God bless you and your beautiful family.

~Amy.

_____________________________________________

Amy S. Poe

MGB 5/22/2000 *I made it!*

280/236/140

<http://onhealth.com/women/in-depth/item/item,91744_1_1.asp>

http://onhealth.com/women/in-depth/item/item,91744_1_1.asp

introduction

Dear Group,

I have posted a couple of times but have lurked for maybe 8 months. Thru

your posts I have gotten to know alot of you and seen most of the gals that

were pre op become post op. I have finally sent in my patient information

form which Dr R has sent on to the insurance company so I guess it is about

time I start posting for real. As an introduction: I am a 46 yr old mother

of a son 22. at Oklahoma State University and a daughter 20 at Florida State

University. My Hubby, Tim is a federal civil servant (dept of defense) and

I am a disabled Licensed Practical Nurse (back problems initially). I

worked in the newborn nursery, neonatal intensive care, labor and delivery

as well as post partum. I did alot of new mommy teaching, primarily breast

feeding. I also, years ago taught my children at home and was a district

director of home education in the state of Florida etc....But the best thing

I've ever done is be mommy to my children. I was a chubby child and slimmed

down in high school. Married 6 months after I graduated to a uttly handsome

marine who loves me svelt or 330. (that's on a 5'2 " small boned frame).

The last 4 years of been trying as far as my health is concerned. I

developed pericarditis which is inflammation in the sac that surrounds the

heart. And could not get off anti-inflmmatorys till April of this year. I

praise God that I feel better and I am ready to procede with the surgery. I

also live with a lot of chronic pain due to arthritis, fibromyalgia,

myofascial pain syndrome and I was wondering if others experience this type

of pain and how they were doing with exercise etc.

I am blessed to have insurance that will cover everything (BCBS Federal PPO

and Medicare). My beautifull daughter is also hoping to have the surgery

over the Christmas holidays. She also has poly cystic ovaries like her

mother. She was a cheerleader and played sports but her weight has continued

to climb inspite of everything.

Well, I guess this all for now, God bless you all

today...........................Shelly in ville Florida

_____

<http://click.egroups.com/1/7750/3/_/453517/_/965404565/>

<http://adimg.egroups.com/img/7750/3/_/453517/_/965404565/benefitsblue_new5.

gif>

_____

This message is from the Mini-Gastric Bypass Mailing List at Onelist.com

Please visit our web site at http://clos.net <http://clos.net>

Get the Patient Manual at http://clos.net/get_patient_manual.htm

<http://clos.net/get_patient_manual.htm>

To Unsubscribe Send and Email to: MiniGastricBypass-unsubscribe (AT) egroups (DOT) com

[Guest guest]

Dear Shelly-

I don't post much - only once or twice. I am going to the clinic

Tuesday morning ( my insurance requires a visit with the doc before they

will even consider my claim) but I'm getting excited!! I just wanted to

welcome you to the group. Feel free to e-mail directly I would love to keep

in touch!

introduction

> Dear Group,

>

> I have posted a couple of times but have lurked for maybe 8 months. Thru

> your posts I have gotten to know alot of you and seen most of the gals

that

> were pre op become post op. I have finally sent in my patient information

> form which Dr R has sent on to the insurance company so I guess it is

about

> time I start posting for real. As an introduction: I am a 46 yr old

mother

> of a son 22. at Oklahoma State University and a daughter 20 at Florida

State

> University. My Hubby, Tim is a federal civil servant (dept of defense)

and

> I am a disabled Licensed Practical Nurse (back problems initially). I

> worked in the newborn nursery, neonatal intensive care, labor and delivery

> as well as post partum. I did alot of new mommy teaching, primarily

breast

> feeding. I also, years ago taught my children at home and was a district

> director of home education in the state of Florida etc....But the best

thing

> I've ever done is be mommy to my children. I was a chubby child and

slimmed

> down in high school. Married 6 months after I graduated to a uttly

handsome

> marine who loves me svelt or 330. (that's on a 5'2 " small boned frame).

>

> The last 4 years of been trying as far as my health is concerned. I

> developed pericarditis which is inflammation in the sac that surrounds the

> heart. And could not get off anti-inflmmatorys till April of this year.

I

> praise God that I feel better and I am ready to procede with the surgery.

I

> also live with a lot of chronic pain due to arthritis, fibromyalgia,

> myofascial pain syndrome and I was wondering if others experience this

type

> of pain and how they were doing with exercise etc.

>

> I am blessed to have insurance that will cover everything (BCBS Federal

PPO

> and Medicare). My beautifull daughter is also hoping to have the surgery

> over the Christmas holidays. She also has poly cystic ovaries like her

> mother. She was a cheerleader and played sports but her weight has

continued

> to climb inspite of everything.

>

> Well, I guess this all for now, God bless you all

> today...........................Shelly in ville Florida

>

>

>

>

> This message is from the Mini-Gastric Bypass Mailing List at Onelist.com

> Please visit our web site at http://clos.net

> Get the Patient Manual at http://clos.net/get_patient_manual.htm

>

> To Unsubscribe Send and Email to:

MiniGastricBypass-unsubscribe (AT) egroups (DOT) com

>

>

>

[Guest guest]

Hi Shelly,

Like Genz and you will probably find many of us, I also was a cheerleader.I

played sports and wore a size 5 wedding dress 27 years ago. Today I am a 43 year

old mother of two (boys 20 & 18), I am 5'4 and weigh 318 lbs. Like you I met and

married a wonderfully handsome man, only mine was a sailor. He has loved me and

supported me when I wore a size 5 and when I have weighed 318. I am in the

process of completing my packet, I need PCP letter and getting it this week. I

am working on giving that man of mine back his size 5 cheerleader. I can't wait.

We are from Jax as well, we now live about 2 hours north of Jax in a SMALL

Georgia town.We get back to Jax every couple of months or so, if for nothing

else to shop. We go to the Pastors Conference at First Baptist Jax when we can.

Not our home church but very fond of it.

I wish you the best of luck in your venture to dance with Dr R.

Thoughts and Prayers

Gwen

Still seeking the other side

- TEST

Hoping to see that my 8 month update had come through

earlier. It takes a while for the e-mails to post on

E-Groups. 102lbs gone Forever! Hope to hear from you

guys soon!

D

__________________________________________________

[Guest guest]

Welcome to the list , good to have you back on board for some

straight to the edge comment on the world and the yogurt gang;

Which Caroline? (!)

Caro Heyworth

Cranleigh & Villages

> a few faces. I met Caroline at a coffee get together at her house.

>

I've yet to see if I can cope with the volume of mail, along with

> everything else in my life

ruthless use of delete key makes it possible...!!

[Guest guest]

> Welcome to the list , good to have you back on board for

some

> straight to the edge comment on the world and the yogurt

gang;

>

> Which Caroline? (!)

>

> Caro Heyworth

> Cranleigh & Villages

Me!

Caroline P

[Guest guest]

I've yet to see if I can cope with the volume of mail, along with

> everything else in my life so please bear with me if I'm quiet!

> Rabin-

I am " No-Mail " so I just look at the web site to read messages and I

don't get the E-Mail digests sent to me. I look when I want to and

reply sometimes, but when I was on the E-Mail list (briefly) by

mistake for a while, I found I had to delete each one individually

when I had read them all, which took ages and spoilt my enjoyment. I

am used to clicking " next " to view each one in turn, and when

replying I disconnect the Internet so as not to waste too much money.

Works well for me!

Ruth

[Guest guest]

Welcome , We are all quite friendly around here, and there are

some interesting threads!

Enjoy

Kirsten

Mum to (2 years, just!) Step-mom to Shelby (6yrs)

Trainee ANT, and Memb-sec Woking and Knaphill Branches.

Introduction

> Hi,

>

> just thought I would introduce myself. I am a new member of the NCT

> and a new first-time mum. My little boy is 10 weeks old and so far

so

> good. We live in Norfolk and belong to the Norwich branch. I work

in

> computing (when I am not on maternity leave) so this seemed a

natural

> place to gravitate to.

>

> I look forward to making friends and picking up useful tips.

>

>

>

>

>

>

[Guest guest]

Small world. I grew up just over the border in Lincolnshire - Wisbech

was our local town, altouhgh I went to school in Spalding. Mum still

lives there.

Hannah Hamer wrote:

>

> > Hi,

> >

> > just thought I would introduce myself. I am a new member of the NCT

> > and a new first-time mum. My little boy is 10 weeks old and so far so

> > good. We live in Norfolk and belong to the Norwich branch. I work in

> > computing (when I am not on maternity leave) so this seemed a natural

> > place to gravitate to.

> >

> > I look forward to making friends and picking up useful tips.

> >

> >

>

> Hi ,

>

> Welcome to the list. I'm not that far from you, in north Cambridgeshire,

> near Wisbech.

>

> Hannah, 27

> Mum to Bethany 7, Lawrence 5 1/2, Verity 3, Alfie 7 months

>

> Visit me on the web at :-

> http://hannahshome.20m.com

>

>

> *** NCT enquiry line - 0 ***

>

> Live chat http://www.yahoogroups.com/chat/nct-coffee

>

> Have you found out about all the other groups for the NCT online?

>

>

[Guest guest]

Hi from Norfolk (lucky!)

Sure you'll enjoy the list, it's fun...feel free to ask any questions

and cry on our shoulders as well as LOL with us!

Caro

[Guest guest]

Welcome to the group, Gordon. Congrats on your great success.

Jeanne in WI

Age 39 - Dr. T. Chua

Open RNY - 5/21/02

314/208/199 or less

djgraves@...

[Guest guest]

Welcome Gordon.

Lori Owen - Denton, Texas

SRVG 7/16/01

Dr. Ritter/Dr. Bryce

479/335/???

On Wed, 11 Jun 2003 15:44:42 -0000 " gord558 "

writes:

> I have been lurking for a few weeks, and even replied to a post, but

>

> realized I never formally intoduced myself to the group.

>

> I had Lap RNY on 7/23/01. Weighed 425 pre-op and am now at 200.

> Although I thought I would be able to get down to 185-190, I have

> found that this weight is comfortable and easy for me to sustain. I

>

> have had no problems with the surgery or post-op.

>

> I had a TT with hernia repair 11/12/02. Again, I had no problems

> with the surgery or post-op except that I had a dog ear repaired on

>

> my right side and am waiting for the same touch-up on the left side

>

> until fall (after beach and golf season).

>

> I exercise 5-7 days per week (3 miles on the treadmill), which I

> have

> been doing since 5 months post-op. I am able to eat anything, but

> bread and sugar have caused me to dump at times. Dumping for me is

>

> having the sweats for a few minutes.

>

> I think this group is great and am looking forward to learning and

> sharing with everyone.

>

> Gordon Remer

> Lap RNY

> 7/23/01

> 425/200

> Abdominoplasty

> 11/12/02

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

Welcome to the list. Becoming weak and breaking into a cold sweat are

not common symptoms of dehydration, see

http://womenshealth.about.com/library/symptoms/blsymptoms_dehydration.htm

and

http://www.aging-parents-and-elder-care.com/Pages/Signs_of_Dehydration.html

Those symptoms are associated with dumping. Foods other than sugar can

cause dumping, i.e., carbohydrates.

Ray Hooks

For WLS nutrition info, visit

http://www.bariatricsupplementsystem.com

kobee2556 wrote:

>

> Hi all.

>

> My name is Cindy and I just discovered this list yesterday. I had

> laproscopic RNY in December 2001. I started at 342 and am now 225.

> I'm a bit discouraged because I've gained and lost the same 5 lbs for

> the last 6 months!

>

> Something is going on that has me worried. Once in awhile I get weak

> feeling and break out into a cold sweat and feel like I might pass

> out. Sometimes I can link it to sugar consumption but at others I

> can't. I've read some of your posts and have begun to wonder if the

> problem may be hydration. I probably only drink about a cup of water

> a day and 2 cups of coffee. I just recently started some medication

> that has me peeing all the time no matter what I drink. What are the

> symptoms of dehydration??

>

> I am very excited to find this list and look forward to meeting you

> all.

>

> Cindy

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

[Guest guest]

Tina,

My understanding on the medical insurance is if she goes without insurance for

even 1 day she can be denied the rest of her life because she will no longer be

covered under the pre-existing clause....Please check into it before your

coverage on her elapses.

mother to Amy 14yowcf/cfrd

introduction

Hello! I wanted to send a short message to introduce myself. I am mother

of Steph who will soon be 18 in November. She was diagnosed with CF when

she was 5. She also has episodic arthritis and asthma. She is a very

active girl. Until last year at this time she had been involved in

dance(tap,ballet,jazz,point and competition team). She also is involved in

drill team at her school. Last year was a bad year for us. She had to give

up her dancing except for point class because she just wasn't able to keep

up.

She thought that this was the beginning of the down hill of CF. She was

sick allot with colds and coughing and her arthritis stuff.

She just went into the hospital for her first tune-up in June. We found out

when she was in that all of these problems were asthma related. She has

been feeling a little better since then but is still struggling with getting

the asthma in check. We really are to very lucky and I find it hard

sometimes to see her struggle. All these kids want is to just be like all

the rest of the kids. What they just don't know is that those kids have

something they are having to deal with also. Just different. I am looking

forward to being a part of this group. I know in the next few years it will

be a change for us. The not having medical insurance, if she chooses not to

go to college, and can't be on my insurance, scares me to death. Thanks for

listening.

Tina

[Guest guest]

Margaret,

In your email you mention that will be getting a port-a-cath. How often

is he receiving I.V. antibotics? My daughter is 14 yrs and we are thinking

about her getting a port-a-cath but I'm not sure if she is needing one just

yet...she is only averaging a hospitalization 2x per year...

We have an awful time with picc lines but twice a year dosen't seem that bad

yet....

mother of Amy 14yowcf/cfrd

Introduction

Hi! My name is Margaret and I'm Mum to who is 4 and has CF, as well

as a wicked sense of humour and an answer for everything!! We live with

's dad, Simon, and a cat called in Glasgow, Scotland.

was dx'd last year at the age of 3.5 despite having been trotted to

every consultant we could get access to since he was born - asthma, ENT,

allergy, etc -. We had an incredibly hard 3.5 years prior to dx so we had

mixed emotions when we discovered that he had CF. We were obviously appalled

and frightened but were amazed that within days the pale, exhausted, cranky

little boy we knew was blossoming into a bright, energetic and funny little

person - friends came to visit us in hopsital and were so surprised to see

him jumping up and down on the bed when they had hardly ever seen him run or

jump around.

We now do physio twice a day, nebuliser and inhaler twice a day,

antibiotics, vitamins, enzymes and 2-monthly IV which we do at home.

has been showing pseudomonas since dx and is now on zithromax - after a long

series of discussions with very hesitant Drs. He hates the long line

insertion and always seems to encounter problems so he will be getting a

portacath over the next few months - I will be picking your brains very soon

about ports for small people!! 's late dx has obviously taken a toll

on his body but at the moment he is happier and healthier than he has ever

been - he has sprouted up, is piling on the pounds (favourite dishes being

beefburgers and chips and pancakes, bacon and maple syrup!) and doesn't look

as though there is anything wrong with him. I am also piling on the pounds

and have about a tenth of the energy he has!

I have been a member of Cystic-l mailing list since 's dx and have

found it really helpful and made some good friends there - tho recent flames

there have prompted me to join this group. I really look forward to getting

to know you, learning more about CF and helping other CF parents if I can.

Best wishes

Margaret - Mum of 4yo wcf

[Guest guest]

,

Thanks for the information. I know that she can't be without it. We are

checking into some options. I just know that it is a concern. On my

insurance as long as she is in school, (high school or college) she is

covered under our policy. We went through this with our older daughter who

is now 27 w/nocf.

Tina

Re: introduction

Tina,

My understanding on the medical insurance is if she goes without insurance

for even 1 day she can be denied the rest of her life because she will no

longer be covered under the pre-existing clause....Please check into it

before your coverage on her elapses.

mother to Amy 14yowcf/cfrd

introduction

Hello! I wanted to send a short message to introduce myself. I am mother

of Steph who will soon be 18 in November. She was diagnosed with CF when

she was 5. She also has episodic arthritis and asthma. She is a very

active girl. Until last year at this time she had been involved in

dance(tap,ballet,jazz,point and competition team). She also is involved

in

drill team at her school. Last year was a bad year for us. She had to

give

up her dancing except for point class because she just wasn't able to keep

up.

She thought that this was the beginning of the down hill of CF. She was

sick allot with colds and coughing and her arthritis stuff.

She just went into the hospital for her first tune-up in June. We found

out

when she was in that all of these problems were asthma related. She has

been feeling a little better since then but is still struggling with

getting

the asthma in check. We really are to very lucky and I find it hard

sometimes to see her struggle. All these kids want is to just be like all

the rest of the kids. What they just don't know is that those kids have

something they are having to deal with also. Just different. I am

looking

forward to being a part of this group. I know in the next few years it

will

be a change for us. The not having medical insurance, if she chooses not

to

go to college, and can't be on my insurance, scares me to death. Thanks

for

listening.

Tina

[Guest guest]

Welcome Margaret!!

The good thing about this list is that most of all of us are parents

with small children that have cf. I am still very new at all this

but I have learned a lot from this list and always learning.

Love to you and your family,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> Hi! My name is Margaret and I'm Mum to who is 4 and has CF,

as well

> as a wicked sense of humour and an answer for everything!! We live

with

> 's dad, Simon, and a cat called in Glasgow, Scotland.

>

> was dx'd last year at the age of 3.5 despite having been

trotted to

> every consultant we could get access to since he was born -

asthma, ENT,

> allergy, etc -. We had an incredibly hard 3.5 years prior to dx so

we had

> mixed emotions when we discovered that he had CF. We were

obviously appalled

> and frightened but were amazed that within days the pale,

exhausted, cranky

> little boy we knew was blossoming into a bright, energetic and

funny little

> person - friends came to visit us in hopsital and were so

surprised to see

> him jumping up and down on the bed when they had hardly ever seen

him run or

> jump around.

>

> We now do physio twice a day, nebuliser and inhaler twice a day,

> antibiotics, vitamins, enzymes and 2-monthly IV which we do at

home.

> has been showing pseudomonas since dx and is now on zithromax -

after a long

> series of discussions with very hesitant Drs. He hates the long

line

> insertion and always seems to encounter problems so he will be

getting a

> portacath over the next few months - I will be picking your brains

very soon

> about ports for small people!! 's late dx has obviously

taken a toll

> on his body but at the moment he is happier and healthier than he

has ever

> been - he has sprouted up, is piling on the pounds (favourite

dishes being

> beefburgers and chips and pancakes, bacon and maple syrup!) and

doesn't look

> as though there is anything wrong with him. I am also piling on

the pounds

> and have about a tenth of the energy he has!

>

> I have been a member of Cystic-l mailing list since 's dx

and have

> found it really helpful and made some good friends there - tho

recent flames

> there have prompted me to join this group. I really look forward

to getting

> to know you, learning more about CF and helping other CF parents

if I can.

>

> Best wishes

>

> Margaret - Mum of 4yo wcf

>

>

>

[Guest guest]

Welcome Tina!

I have a really hard time dealing with all this issues of insurance

in our country. I can't believe that we are one of the richest

nations in the world, but insurance sucks. We are heavely taxed,

our public schools stink and public health does not exist, go figure.

Well, one thing is that there are a lot of people on this list that

if they can help they will help you, so hang in there.

By the way what state do you live in?

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

>

>

>

>

> Hello! I wanted to send a short message to introduce myself. I

am mother

> of Steph who will soon be 18 in November. She was diagnosed

with CF when

> she was 5. She also has episodic arthritis and asthma. She is

a very

> active girl. Until last year at this time she had been involved

in

> dance(tap,ballet,jazz,point and competition team). She also is

involved in

> drill team at her school. Last year was a bad year for us. She

had to give

> up her dancing except for point class because she just wasn't

able to keep

> up.

> She thought that this was the beginning of the down hill of CF.

She was

> sick allot with colds and coughing and her arthritis stuff.

> She just went into the hospital for her first tune-up in June.

We found out

> when she was in that all of these problems were asthma related.

She has

> been feeling a little better since then but is still struggling

with getting

> the asthma in check. We really are to very lucky and I find it

hard

> sometimes to see her struggle. All these kids want is to just

be like all

> the rest of the kids. What they just don't know is that those

kids have

> something they are having to deal with also. Just different. I

am looking

> forward to being a part of this group. I know in the next few

years it will

> be a change for us. The not having medical insurance, if she

chooses not to

> go to college, and can't be on my insurance, scares me to

death. Thanks for

> listening.

> Tina

>

>

>

[Guest guest]

We live in Iowa. I would have to agree with you that insurance sucks.

However, the insurance that I have here at my job has been great. We have

been extremely lucky and if something is denied I give them a call and

usually it is because of the way it was submitted. They cover it! I am

very thankful I even have insurance. I know there are many out there that

don't.

Tina mother of Steph 17 wcf

Re: introduction

Welcome Tina!

I have a really hard time dealing with all this issues of insurance

in our country. I can't believe that we are one of the richest

nations in the world, but insurance sucks. We are heavely taxed,

our public schools stink and public health does not exist, go figure.

Well, one thing is that there are a lot of people on this list that

if they can help they will help you, so hang in there.

By the way what state do you live in?

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

>

>

>

>

> Hello! I wanted to send a short message to introduce myself. I

am mother

> of Steph who will soon be 18 in November. She was diagnosed

with CF when

> she was 5. She also has episodic arthritis and asthma. She is

a very

> active girl. Until last year at this time she had been involved

in

> dance(tap,ballet,jazz,point and competition team). She also is

involved in

> drill team at her school. Last year was a bad year for us. She

had to give

> up her dancing except for point class because she just wasn't

able to keep

> up.

> She thought that this was the beginning of the down hill of CF.

She was

> sick allot with colds and coughing and her arthritis stuff.

> She just went into the hospital for her first tune-up in June.

We found out

> when she was in that all of these problems were asthma related.

She has

> been feeling a little better since then but is still struggling

with getting

> the asthma in check. We really are to very lucky and I find it

hard

> sometimes to see her struggle. All these kids want is to just

be like all

> the rest of the kids. What they just don't know is that those

kids have

> something they are having to deal with also. Just different. I

am looking

> forward to being a part of this group. I know in the next few

years it will

> be a change for us. The not having medical insurance, if she

chooses not to

> go to college, and can't be on my insurance, scares me to

death. Thanks for

> listening.

> Tina

>

>

>

[Guest guest]

Many colleges have insurance plans through their health clinics on

campus. You should contact the Dean of Student Life or Student

Services office or the Campus Health Clinic to get more information

about it. They are used to dealing with these kinds of situations.

> We live in Iowa. I would have to agree with you that insurance

sucks.

> However, the insurance that I have here at my job has been great.

We have

> been extremely lucky and if something is denied I give them a call

and

> usually it is because of the way it was submitted. They cover it!

I am

> very thankful I even have insurance. I know there are many out

there that

> don't.

> Tina mother of Steph 17 wcf

>

> Re: introduction

>

>

> Welcome Tina!

>

> I have a really hard time dealing with all this issues of insurance

> in our country. I can't believe that we are one of the richest

> nations in the world, but insurance sucks. We are heavely taxed,

> our public schools stink and public health does not exist, go

figure.

> Well, one thing is that there are a lot of people on this list that

> if they can help they will help you, so hang in there.

> By the way what state do you live in?

>

> mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

>

>

>

> >

> >

> >

> >

> > Hello! I wanted to send a short message to introduce myself.

I

> am mother

> > of Steph who will soon be 18 in November. She was diagnosed

> with CF when

> > she was 5. She also has episodic arthritis and asthma. She is

> a very

> > active girl. Until last year at this time she had been

involved

> in

> > dance(tap,ballet,jazz,point and competition team). She also is

> involved in

> > drill team at her school. Last year was a bad year for us.

She

> had to give

> > up her dancing except for point class because she just wasn't

> able to keep

> > up.

> > She thought that this was the beginning of the down hill of

CF.

> She was

> > sick allot with colds and coughing and her arthritis stuff.

> > She just went into the hospital for her first tune-up in June.

> We found out

> > when she was in that all of these problems were asthma

related.

> She has

> > been feeling a little better since then but is still struggling

> with getting

> > the asthma in check. We really are to very lucky and I find it

> hard

> > sometimes to see her struggle. All these kids want is to just

> be like all

> > the rest of the kids. What they just don't know is that those

> kids have

> > something they are having to deal with also. Just different.

I

> am looking

> > forward to being a part of this group. I know in the next few

> years it will

> > be a change for us. The not having medical insurance, if she

> chooses not to

> > go to college, and can't be on my insurance, scares me to

> death. Thanks for

> > listening.

> > Tina

> >

> >

> >

[Guest guest]

Hi ,

This isn't entirely true. A person with any pre-existing condition who

is currently covered by a employer's group health insurance plan has a

62-day grace period to find new group insurance, not one day.

This means you have 62 days to get on another *group* health plan

without having to meet pre-existing condition clauses.

This 62-day grace period does *not* apply if the person goes from a

group plan to an individual plan. It's known as HIPAA: Health

Insurance Portability and Accountability Act. The government web link

is http://www.dol.gov/dol/topic/health-plans/portability.htm

And even if the 62-day period lapses before the person gets on another

group plan, their new employer's insurance *will* cover them BUT the

employer's insurance company can (and very likely will) enforce a

pre-existing clause.

This means the insurance company will *not* cover anything related to

the pre-existing condition for a certain time period, sometimes it's

six months, sometimes it's one year. HOWEVER, the insurance company

will pay for non-pre-existing expenses; for example, the person

developed appendicitis or breaks a bone, etc.

Some group insurance companies cover children as long as they're in

college full time (12 semester hours). Some group plans won't cover

beyond age 18 even if the child is in collge.

My former employer's insurance covered children up to age 24 as long

as they were in college full time. I left that employer in Aug. 2001,

and took 18 months of COBRA coverage. When my COBRA coverage ended,

that meant my childrens' coverage ended too.

Last February, I learned that because my son was over age 19 and no

longer in college (he graduated last December), under HIPAA he was

entitled to 36 more months on my COBRA policy! I couldn't get any

additional months but he could!

So my son was able to continue my COBRA coverage while working a part

time job and job hunting. July 27, his current employer approved full

time for him, so now he can drop COBRA (which is expensive) and go

with his employer's insurance.

So Tina, if your daughter decides not to go to college after high

school, check with your current employer to see if she's eligible

for COBRA on your policy. At some point, if your daughter decides to

go to college and is *not* over whatever age limit your employer's

plan allows for college students, then you should be able to get her

off COBRA and back under your plan.

The whole time the kids were growing up, I hadour insurance details

down to a fine art. When they were in high school, I'd taken a leave

from my job and was on COBRA... It was coming to an end about a month

before my divorce, and when COBRA ended, and their father were

eligible to continue 36 months of COBRA -- because of the divorce

(would have been the same rule if I'd died instead of divorced, my

survivors could continue COBRA for 36 months). I wasn't eligible

for extended COBRA, so I took out an interim health policy on me

alone. A few months later, I returned to work with my former employer,

and took the kids off COBRA and put them back under me, since it was

cheaper. But their dad was still able to continue under my COBRA plan.

It was the " after college " planning for that threw me, and Beth

Sufian, a Houston attorney with CF whose expertise is in this area,

really helped through this last March. I had no idea that because my

son was now out of school, he could get 36 months of COBRA insurance

even after my COBRA ended.

I know this seems confusing because now I've mixed COBRA into the

HIPAA pot. I'm sorry! Also, some people think you can only go on COBRA

once and that's it. That's another myth. When I went back to work for

my former employer (a university), I only went back for three years --

the amount of time needed to be vested in teachers' retirement, and

then I left and moved to Chicago -- and took another 18 months of

COBRA.

Kim

--- " Carpenter " <brandy@t...> wrote:

My understanding on the medical insurance is if she goes without

insurance for even 1 day she can be denied the rest of her life

because she will no longer be covered under the pre-existing

clause....Please check into it before your coverage on her elapses.

mother to Amy 14yowcf/cfrd

----- Original Message -----

From: Woosley, Tina

Hello! I wanted to send a short message to introduce myself. I am

mother of Steph who will soon be 18 in November. She was diagnosed

with CF when she was 5. She also has episodic arthritis and asthma.

She is a very active girl. Until last year at this time she had been

involved in dance(tap,ballet,jazz,point and competition team). She

also is involved in drill team at her school. Last year was a bad year

for us. She had to give up her dancing except for point class because

she just wasn't able to keep up.

She thought that this was the beginning of the down hill of CF. She

was sick allot with colds and coughing and her arthritis stuff. She

just went into the hospital for her first tune-up in June. We found

out when she was in that all of these problems were asthma related.

She has been feeling a little better since then but is still

struggling with getting the asthma in check. We really are to very

lucky and I find it hard sometimes to see her struggle. All these

kids want is to just be like all the rest of the kids. What they just

don't know is that those kids have something they are having to deal

with also. Just different. I am looking forward to being a part of

this group. I know in the next few years it will be a change for us.

The not having medical insurance, if she chooses not to go to college,

and can't be on my insurance, scares me to death. Thanks for

listening.

Tina

[Guest guest]

Thank you Kim. There are a lot of stuff outthere that we do not know

of, I mean available to people with extraordinary situtions like ours.

I am glad your back,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

>

> My understanding on the medical insurance is if she goes without

> insurance for even 1 day she can be denied the rest of her life

> because she will no longer be covered under the pre-existing

> clause....Please check into it before your coverage on her

elapses.

>

>

> mother to Amy 14yowcf/cfrd

>

> ----- Original Message -----

> From: Woosley, Tina

>

> Hello! I wanted to send a short message to introduce myself. I am

> mother of Steph who will soon be 18 in November. She was diagnosed

> with CF when she was 5. She also has episodic arthritis and

asthma.

> She is a very active girl. Until last year at this time she had

been

> involved in dance(tap,ballet,jazz,point and competition team).

She

> also is involved in drill team at her school. Last year was a bad

year

> for us. She had to give up her dancing except for point class

because

> she just wasn't able to keep up.

>

> She thought that this was the beginning of the down hill of CF. She

> was sick allot with colds and coughing and her arthritis stuff. She

> just went into the hospital for her first tune-up in June. We

found

> out when she was in that all of these problems were asthma

related.

> She has been feeling a little better since then but is still

> struggling with getting the asthma in check. We really are to very

> lucky and I find it hard sometimes to see her struggle. All these

> kids want is to just be like all the rest of the kids. What they

just

> don't know is that those kids have something they are having to

deal

> with also. Just different. I am looking forward to being a part

of

> this group. I know in the next few years it will be a change for

us.

> The not having medical insurance, if she chooses not to go to

college,

> and can't be on my insurance, scares me to death. Thanks for

> listening.

> Tina

[Guest guest]

Its a tough decision - is on IVs every 2 months and that has

influenced our decision greatly - if it were less frequent I would probably

hesitate re the port but the combination of frequency, his anxiety and the

bad luck we have had with lines have all contributed to our decision to go

for a port...

Margaret

Re: Introduction

Margaret,

In your email you mention that will be getting a port-a-cath.

How often is he receiving I.V. antibotics? My daughter is 14 yrs and we

are thinking about her getting a port-a-cath but I'm not sure if she is

needing one just yet...she is only averaging a hospitalization 2x per

year...

We have an awful time with picc lines but twice a year dosen't seem that

bad yet....

mother of Amy 14yowcf/cfrd

Introduction

Hi! My name is Margaret and I'm Mum to who is 4 and has CF, as

well

as a wicked sense of humour and an answer for everything!! We live

with

's dad, Simon, and a cat called in Glasgow, Scotland.

was dx'd last year at the age of 3.5 despite having been

trotted to

every consultant we could get access to since he was born - asthma,

ENT,

allergy, etc -. We had an incredibly hard 3.5 years prior to dx so we

had

mixed emotions when we discovered that he had CF. We were obviously

appalled

and frightened but were amazed that within days the pale, exhausted,

cranky

little boy we knew was blossoming into a bright, energetic and funny

little

person - friends came to visit us in hopsital and were so surprised to

see

him jumping up and down on the bed when they had hardly ever seen him

run or

jump around.

We now do physio twice a day, nebuliser and inhaler twice a day,

antibiotics, vitamins, enzymes and 2-monthly IV which we do at home.

has been showing pseudomonas since dx and is now on zithromax - after

a long

series of discussions with very hesitant Drs. He hates the long line

insertion and always seems to encounter problems so he will be getting

a

portacath over the next few months - I will be picking your brains

very soon

about ports for small people!! 's late dx has obviously taken a

toll

on his body but at the moment he is happier and healthier than he has

ever

been - he has sprouted up, is piling on the pounds (favourite dishes

being

beefburgers and chips and pancakes, bacon and maple syrup!) and

doesn't look

as though there is anything wrong with him. I am also piling on the

pounds

and have about a tenth of the energy he has!

I have been a member of Cystic-l mailing list since 's dx and

have

found it really helpful and made some good friends there - tho recent

flames

there have prompted me to join this group. I really look forward to

getting

to know you, learning more about CF and helping other CF parents if I

can.

Best wishes

Margaret - Mum of 4yo wcf