New to the group!

[Guest guest]

Hi All,

I hope this post works as I've tried several times over the past

couple weeks to introduce myself and it doesn't seem to work (?).

I've joined this group, as well as the Apraxia/Dyspraxia discussion

group. I REALLY could use some encouragement/insight from

any of you who are willing to gift me with your time and

thoughts..... Here's an abbreviated version of our " story " :

*Our 6 y.o. son Blake is mildly dyspraxic (which has affected his

gross and find motor skills but not speech) and low-tone.

*Our 33 month old son Owen appears globally dyspraic (to include

speech) and low-tone, as well.

*Owen has met milestones somewhat delayed (crawling at 11 months,

walking at 18 months, etc.)

*Starting at 15 months Owen was getting in-home therapy thru Early

Intervention here in California (we live in Orange County), and then

progressed into center-based p.t., o.t., and speech. He's also been

receiving ABA therapy, even though most therapists and a neurologist

he has seen all agree he doesn't appear to be autistic.

*Last spring I put him on a GF/CF/soy-free diet per the

recommendation of a local DAN doctor (he's asthmatic and has had some

mild eczema.) Diet helped with bowel movements and skin cleared up

somewhat.

*I started him on Cod Liver Oil at that time, but then switched to

Nordic Naturals Omega 3-6-9 liquid based on what I read on the Cherab

Foundation.

*Owen has made, very slow progress but is basically " consistently

inconsistent " . In 3 months he will be 3 years old and I'm going thru

one of my sad/depressed states (where I do all my research, staying

up late, shed a lot of tears, wonder what's wrong, etc. etc.) All

the therapists agree he's making slow, steady progress but at the

same time we're all a little baffled by him.

*I'm going to go back to the DAN doctor after not seeing her for 9

months or so and will probablly do MB12 shots. I'm also considering

HBOT.

*But I'm just wondering....can globally dyspraxic kids (if that's my

son's issue) appear cognitively challenged? That's my main

question. Or would they appear to still have it all going on " up

there " even though they can't get it out. Our little guy is a

mystery. And I'm wondering if the root of the problem is really

delayed cognition, causing all the other delays?

*One more tid-bit of history....when he was 9 1/2 months old, he

ended up in respiratory distress and almost died....ended up in peds

ICU for several days. That was the beginning of us realizing he was

asthmatic.

*Oh! And I'm also thinking we should be testing for metals

toxicity... as that could be causing a cognitive delay. He hasn't

had all vaccinations, but definitely had enough in his first year of

life, which I wish I could go back and " undo. "

Thanks so much for your thoughts, any of you who can share them!

Warmly,

Pearson

[Guest guest]

You are on the right track. It's a bit of detective work, and I

think it's wise to enlist a DAN! - which you have already stated. Be

sure you are getting results, if you're getting any instinct at all

that your not making progress - or you and the DAN are not

connecting, It may be time to move on to someone who maybe a better

fit (always keep copies of your labs). And, don't think the DAN

needs to be local... it's really not necessary at all. Once you get

all the prelim labs out of the way which pretty much tells the story,

you can then have telephone apts with your DAN while working a plan

of action.

Just a word, my son had 50 unintelligable words at 3 years old - I

was playing the " waiting game " per conventional cast of characters.

His health was in the toilet, I started with a whole host of

supplements including blasting him with omega's - see files of this

group. These kids are loaded with inflamation, and the omegas will

be helpful. There are some kids that really don't tolerate them

well, but therein lies a clue.

Keep reading and learning. Sounds to me, clearly, vaccine damage -

so be sure to stop that nonesense, you know your kids can't tolerate

that ridiculous lot of toxins.

My son is now 5, it took me a few years to ferrate out the real

problem, heavy metal toxicity. But, we had to work hard on

rebuilding his body and to get his bodies natural detox ability to

function. Some kids need chelation, and some don't. One day at a

time.

I suggest that if you can swing it, get yourself to a DAN conference -

Autismone is having one in May in Chicago. But, if you can't swing

it... next best thing - the ARI site has the most recent conference

right there for you to view by topic. It is fantastic - and will

really help your learning curve.

>

> Hi All,

> I hope this post works as I've tried several times over the past

> couple weeks to introduce myself and it doesn't seem to work (?).

> I've joined this group, as well as the Apraxia/Dyspraxia discussion

> group. I REALLY could use some encouragement/insight from

> any of you who are willing to gift me with your time and

> thoughts..... Here's an abbreviated version of our " story " :

>

> *Our 6 y.o. son Blake is mildly dyspraxic (which has affected his

> gross and find motor skills but not speech) and low-tone.

> *Our 33 month old son Owen appears globally dyspraic (to include

> speech) and low-tone, as well.

> *Owen has met milestones somewhat delayed (crawling at 11 months,

> walking at 18 months, etc.)

> *Starting at 15 months Owen was getting in-home therapy thru Early

> Intervention here in California (we live in Orange County), and then

> progressed into center-based p.t., o.t., and speech. He's also been

> receiving ABA therapy, even though most therapists and a neurologist

> he has seen all agree he doesn't appear to be autistic.

> *Last spring I put him on a GF/CF/soy-free diet per the

> recommendation of a local DAN doctor (he's asthmatic and has had

some

> mild eczema.) Diet helped with bowel movements and skin cleared up

> somewhat.

> *I started him on Cod Liver Oil at that time, but then switched to

> Nordic Naturals Omega 3-6-9 liquid based on what I read on the

Cherab

> Foundation.

> *Owen has made, very slow progress but is basically " consistently

> inconsistent " . In 3 months he will be 3 years old and I'm going thru

> one of my sad/depressed states (where I do all my research, staying

> up late, shed a lot of tears, wonder what's wrong, etc. etc.) All

> the therapists agree he's making slow, steady progress but at the

> same time we're all a little baffled by him.

> *I'm going to go back to the DAN doctor after not seeing her for 9

> months or so and will probablly do MB12 shots. I'm also considering

> HBOT.

> *But I'm just wondering....can globally dyspraxic kids (if that's my

> son's issue) appear cognitively challenged? That's my main

> question. Or would they appear to still have it all going on " up

> there " even though they can't get it out. Our little guy is a

> mystery. And I'm wondering if the root of the problem is really

> delayed cognition, causing all the other delays?

> *One more tid-bit of history....when he was 9 1/2 months old, he

> ended up in respiratory distress and almost died....ended up in peds

> ICU for several days. That was the beginning of us realizing he was

> asthmatic.

> *Oh! And I'm also thinking we should be testing for metals

> toxicity... as that could be causing a cognitive delay. He hasn't

> had all vaccinations, but definitely had enough in his first year of

> life, which I wish I could go back and " undo. "

>

> Thanks so much for your thoughts, any of you who can share them!

>

> Warmly,

> Pearson

>

[Guest guest]

Hi and welcome:

I recommend you reading through the Essential Fatty Acid and Vitamin

E folder. There are many more folders on there that might be of

interest to you also. Some of the links are archived messages full

of helpful information.

/links

Why do you suspect your son has cognitive issues? Most of the

information on apraxia it usually says receptive language is or above

age appropriate. You didn't mention how verbal he is. When my son

aged out of EI, I was told he was age appropriate for receptive

language, but as he got older and if he didn't start talking more the

scores for receptive language would start to go down because of the

lack of expressive language. I don't know if this is true or not.

My son was a great fish oil responder and is now 4 1/2 and age

appropriate for expressive speech. We are still doing therapy to

work on articulation now.

HTH,

Tina

>

> Hi All,

> I hope this post works as I've tried several times over the past

> couple weeks to introduce myself and it doesn't seem to work (?).

> I've joined this group, as well as the Apraxia/Dyspraxia discussion

> group. I REALLY could use some encouragement/insight from

> any of you who are willing to gift me with your time and

> thoughts..... Here's an abbreviated version of our " story " :

>

> *Our 6 y.o. son Blake is mildly dyspraxic (which has affected his

> gross and find motor skills but not speech) and low-tone.

> *Our 33 month old son Owen appears globally dyspraic (to include

> speech) and low-tone, as well.

> *Owen has met milestones somewhat delayed (crawling at 11 months,

> walking at 18 months, etc.)

> *Starting at 15 months Owen was getting in-home therapy thru Early

> Intervention here in California (we live in Orange County), and then

> progressed into center-based p.t., o.t., and speech. He's also been

> receiving ABA therapy, even though most therapists and a neurologist

> he has seen all agree he doesn't appear to be autistic.

> *Last spring I put him on a GF/CF/soy-free diet per the

> recommendation of a local DAN doctor (he's asthmatic and has had

some

> mild eczema.) Diet helped with bowel movements and skin cleared up

> somewhat.

> *I started him on Cod Liver Oil at that time, but then switched to

> Nordic Naturals Omega 3-6-9 liquid based on what I read on the

Cherab

> Foundation.

> *Owen has made, very slow progress but is basically " consistently

> inconsistent " . In 3 months he will be 3 years old and I'm going thru

> one of my sad/depressed states (where I do all my research, staying

> up late, shed a lot of tears, wonder what's wrong, etc. etc.) All

> the therapists agree he's making slow, steady progress but at the

> same time we're all a little baffled by him.

> *I'm going to go back to the DAN doctor after not seeing her for 9

> months or so and will probablly do MB12 shots. I'm also considering

> HBOT.

> *But I'm just wondering....can globally dyspraxic kids (if that's my

> son's issue) appear cognitively challenged? That's my main

> question. Or would they appear to still have it all going on " up

> there " even though they can't get it out. Our little guy is a

> mystery. And I'm wondering if the root of the problem is really

> delayed cognition, causing all the other delays?

> *One more tid-bit of history....when he was 9 1/2 months old, he

> ended up in respiratory distress and almost died....ended up in peds

> ICU for several days. That was the beginning of us realizing he was

> asthmatic.

> *Oh! And I'm also thinking we should be testing for metals

> toxicity... as that could be causing a cognitive delay. He hasn't

> had all vaccinations, but definitely had enough in his first year of

> life, which I wish I could go back and " undo. "

>

> Thanks so much for your thoughts, any of you who can share them!

>

> Warmly,

> Pearson

>

[Guest guest]

Hi Faith--

Welcome! You will find a lot of support here.

I just decorated my son's DOC band for the first time this past

Friday, so this is all fresh in my mind. There are fabulous

instructions in the decorating file--I pulled pieces from document

with the very detailed step-by-step instructions. I used acrylic

paint and painted 3 coats, blowdrying between coats to help dry--ONLY

on cool low heat though. Then I applyed vinyl stickers (we did a

skateboard helmet theme) and covered with two coats of modge podge. I

used a synthetic 1 " brush for the paint and a styrofoam brush for the

mp. I did see though that one mom suggestion doing a coat of modge

podge also after the paint but before the stickers, and I think

that's a great idea. I hear that the paint job should last 2-3 weeks,

then we can peel off the paint and begin again. Touch-ups can also be

done in between.

You also might want to search the previous messages to see all the

tips that parents have had about decorating, they are all very

helpful.

H.

Merrick, 4-months, 11mm plagio, mild tort (finally confirmed today by

PT) and 4-days in DOC band

>

> Hello everyone! My name is Faith Marchant. I just had my first

> appointment at Cranial Technologies in Clinton yesterday. I have

twins

> Chase and Paige who will be 4 months on Nov. 19th. They have

> Torticollis and have shaping issues with their heads because of

this,

> their twinness and their premature birth (they were 4 wks early).

I

> have worked really hard to give them round shaped heads with my own

> devices, but because of their neck condition and so forth, that is

just

> not to be. They are in physical therapy though, and are doing

great!

> Anyways, we had our consultation yesterday, and are just waiting to

get

> insurance approval stuff over with, but I was told there would be

no

> problems with ours. I am just curious about the best ways to paint

and

> decorate the bands. Thanks!

>