Re: [SPAM]Re: Re: Blood Pyruvates

[Guest guest]

Jo

Mitochondria..... Please forgive my ignorance. No need to query about it for I

sincerely did not know.... thanks for the lesson.

We go for hemoglobin bloodwork and auto-immunity bloodwork soon. I believe this

has something to do with the mitochondria...... If you have auto-immune issues.

So, we shall see. I am crossing my fingers that we have escaped this issue.

Have you ever heard of the Mito cocktail that many of the women have put

together on the various boards? I cannot quite remember but it is a vast array

of vitamins of which a key one is COQ10.

Ask the girls on the board about the specifics of vitamin E before you buy any.

I actually did this incorrectly on my first trial and didn't have good results.

I finally realized my error and got better results when I switched things up.

Since I am new with the vitamin E, I will let the 'pros' on this board advise

you as to which kind produces the best results.

Janice

Mother of Mark, 13

[sPAM]Re:[ ] Re: Hijacked list - (was Tanner)

We've been seeing a neurologist for several years. She has only had 4 big

blood tests in this time. 1.) Blood Pyruvate was high 2.)Blood Pyruvate was high

3.)After beginning B-Complex 50mg Blood Pyruvate was normal, and 4.)Blood

Pyruvate was high again when she had a serious flu. The doc, who is actually a

metabolic geneticist said that her elevated blood pyruvate would have been

ignored by most doctors. The norm is .03 to .08, hers was .12, .11, .03, .11.

They are waiting for the remainder of the amino acids to be returned, and will

increase her dosage to a prescription level. The L-Carnitine was his suggestion,

and has made her very happy and easier to understand. She has only been on this

for 1 month though. Pronunciation is her biggest problem, definite motor

planning issue. Her vocabulary is good.

The B-Complex has made her healthy. She used to catch everything and did not

recover easily. B-Complex is water soluble, and is good for most people. She had

not been sick for 4 years, until last week. B-Complex was started 4 years ago.

The L-Carnitine helps with the production of energy within the cells. They

believe the high blood pyruvate is a sign that her energy production is not

normal. A typical person would not have an elevated blood pyruvate when they are

sick.

ilizzy03 <lizlaw@...> wrote:

Can you please tell me about how one knows to do L Carnitine.

tested fine initially (in May) but we have had a lot of changes since

then and plan to retest. I can't recall though if this is one of

those things where blood levels don't show all. Please understand I

would only do this under a mainstream physicians care so I am not

asking you to be my doc.

>

> Janice I am new to this website, but you have just described my 12

year old daughter perfectly. Only just recently the neurologist

noticed iregularities in her blood work. We have been tested many

times. My husband, and I have sought lots of therapy, and done alot

of therapy ourselves.

>

> We have done TLP, vision therapy, OT, PT, Speech, and

FastForword. I have to say each of these has helped her

tremendously. I can't say she is healed, but does communicate, and

is fairly happy.

>

> I'm wondering what has been most helpful to your child. Please

share, so that I know what path to take.

>

> We have just started L-Carnitine, and I do notice a change in her

understandability. She is also much calmer. Most of the posts I've

read talk more about carnosine.

>

> Thanks for any help you can offer.

>

> Jo

> Annie's Mom

>

[Guest guest]

Thanks for the info.

The doctor does have a cocktail. B-complex, L-Carnitine, and CoQ10. Sounds

like many of you are using these.

Please someone fill me in on the good vitamin E. Do you introduce the ProEFA

first or the vitamin E?